Chemar

My son has taken vitD 1000 IU separately for some time. Be sure to get the D3 We prefer the Douglas Labs brand of D3, and found it least expensive at Pure Formulas http://www.pureformulas.com/vitamin-d-1000-iu-100-tablets-by-douglas-laboratories.html#sthash.vhuEvyyl.dpbs

Hi and welcome sorry you have not had any replies yet I would suggest you also post this in the PANS/Lyme forum as not many members there look at our other forums as well Here is the link http://www.latitudes.org/forums/index.php?showforum=17

to read more please go to: http://www.economist.com/news/business/21586537-indian-firm-forefront-revolution-cheap-generic-medicines-hits-fresh

Hi Leslie My son inherited genetic TS from his dad/grandpa et al I'd like to suggest you post over on our TS forum to get support and input from others. Also, do take a look at our pinned "helpful" threads (I have it linked in my signature below.) I also have my son's treatment protocol linked there.

Cinnamon is frequently used to stop sugar cravings

Bonnie be sure to check out Caryn's blog for gluten free and other great recipe ideas http://healthy-family.org/ You may remember her? she was an active member here a while back. really nice lady whose son's tics resolved when he went gluten free. hoping for improvement to follow

Over on the TS board, it is remarkable how many kids have eye tics resolve as soon as dairy is removed from their diet...even those who do not test positive for dairy allergies.....and frequently this also settles GI problems.

Hi my son was around 100 lb when he took it. He was 12yo at the time Check with your physician but I know they usually suggest half the dose for under 12yo?

Hi there are some posts on our TS forum regarding NAET but I have not heard of it being a "cure" for tics per se...only a helpful tx for some However, if your child has a strep history, you may want to be investigating the possibility of PANDAS/PANS? We have a special forum for that here

Hi I have no knowledge of them going out of business? The website seems to indicate all is still go http://bonniegr.com/ If you are not getting a response from them, you could try contacting the manufacturer of BonTech, Douglas Labs, to find out Douglas Laboratories 600 Boyce Road, Pittsburgh PA 15205 U.S.A. 1-800-245-4440 www.douglaslabs.com

So sorry if I sound pedantic here but I really want to be sure no one is confused..... If you look at the link I posted in my first reply here, it explains that CBIT is made of of three components and that Habit Reversal Training is the first of these three...... http://www.cfpsych.org/issues/issueDetails.cfm?ID=8 This was the main reason that we opted for CBT alone. I realize some therapists may not incorporate the Habit Reversal training in what they call CBIT, as your experience shows mythree ....but just want to be sure anyone else reading here is aware and that they remain informed in exactly what the therapist plans to do. and PS Dr Dunc seems to feel HRT is helpful, so I am not saying it does not work. Just was not for us, at least not in that terminology. Our therapist did help my son find substitutes for tics he my son) selected, due to their problematic nature, either socially, or for him personally...but it was never considered "habit reversal" per se.

Hi and welcome to the forum I am just bumping your post up so others can respond

But Dr Dunc, who wrote Nix Your Tics does call it Habit Reversal! http://www.lifesatwitch.com/nixyourtics_book.html I really like his site and his perspective on TS...it was one of the first TS sites I found when my son was initially dx over a decade ago, but I still don't like the term "habit" for tics...

Hello and welcome I am just bumping your post up for other members to see and respond

FYI here is another more recent thread http://www.latitudes.org/forums/index.php?showtopic=21298

just an FYI to everyone that this thread originated in 2009 and the OP's son had low copper to zinc ratio

Welcome to the forum sunnyday10 I am just bumping your post up so others can respond

In the early days after the severity of my son's onset of TS, we had a bed in our room for him as that was the only way he managed to sleep without night fears etc. I was awake a lot during those nights as I was pretty anxious and distressed about what was happening to him and would spend a lot of time just praying and watching him while he slept. It was the only time that he seemed totally at peace, and I never observed tics then. But yes, as with everything related to TS, different things manifest for different people. I did go back and look at a lot of references and again, as I realize things are ever changing on what we know about TS....the majority I could find suggested that people with TS tend not to tic when asleep (at least not noticeably) and that if they do, it appeared the tics were greatly diminished.

Cara, please note I said MOST people with TS do not tic in their sleep. I did not say all. The literature is pretty consistent that for those that do, tics are usually greatly diminished.

With the number of people needing gluten free nowadays...you would be amazed at the great selection available! Check out our longtime member Caryn's blog http://www.healthy-family.org for lots of gluten free product tips and recipes

Hi Bonnie when my son started eye rolling we did not know he had TS yet (he was 4) we took him to an opthalmologist and he did in fact need corrective lenses which had a beneficial result. He still had mild eye tics, but greatly improved after the glasses. I do agree with others though on the impact of diet and especially getting rid of all artificial anything!(that includes Splenda/sucralose, and other artificial sweeteners like aspartame etc, all artificial food dyes etc etc etc) So many people have also noted the benefit of removing especially dairy on eye tics. Getting rid of all allergens, including possible gluten and other foods he may be sensitive to, as well as making sure his environment doesn't have some allergen too, is really worthwhile. My son has dustmite allergy and hepa filters and making sure his room was as well dusted as possible did help a lot Also, many kids with tics also have chemical sensitivity (MCS=multiple chemical sensitivity) so pure natural household cleaners, nothing artificially fragranced (including no Febreeze type stuff!!) can be helpful.

Hi and welcome I can't post much right now as am working, but wanted to suggest you take a look at our Helpful Threads pinned to the top of this forum. I also have a link to it below, in my post signature.

Hi and welcome I am rushed for time at present so just wanted to welcome you and also to suggest you take a look at our TS forum. I have a Helpful Threads link in my signature below that may give a good place to start.

Hello Most people with TS do not tic when they are asleep, so the tics your son is experiencing may be related to something other than TS. Does he tic at any other time or in any other environment? If not, then it is possible that something in his room (or that he is consuming or exposed to before bed) is triggering the tics (and perhaps the sleep issues as well) Have you seen a sleep disorder specialist about the sleep apnoea? That may also shed some light on why it is accompanied by tics.

Hi Melanie I just wanted to check if you are noticing any bad side effects from Gabapentin aka Neurontin? Many of the patients refer to it as Neurotten due to the horrid side effects it can cause! It is mainly used for epilepsy with some off label use for pain etc....just wondering why they have your child on it? rather than just a GABA supplement? http://en.wikipedia.org/wiki/Gabapentin http://www.rxlist.com/neurontin-drug.htm