Jump to content
ACN Latitudes Forums

Chemar

Premium
  • Posts

    6,492
  • Joined

  • Last visited

  • Days Won

    54

Everything posted by Chemar

  1. Primarily psychologists, tho there are a few psychiatrists who do it. ALWAYS ask ahead if they have CBT experience, and specifically related to tics. Sometimes your health insurance provider can give you a list of therapists who specifically are trained in CBT
  2. Hi yes there are many posts here on the benefit of gluten free diets. Not everyone finds it necessary as some people do seem to tolerate gluten with no adverse effect on tics. But for others, even those with no clear gluten intolerance, it does seem to help a lot. I would suggest you take a look at the Helpful Threads pinned to the top of the board as well as do a search on gluten, as you will find a lot of info.
  3. This is always a hard topic for me to discuss as I know results vary greatly between individuals. For my son, CBT (as I know it) was so very beneficial; for his OCD and Tourettic OCD, but had a sometimes opposite effect with "just tics" Any attempts to get him to focus too intensely on the tics side always resulted in tic explosions. So he did fine on most aspects of it but the "awareness" section not so much. His therapist focused instead on just helping him try to find substitutes for tics that were either personally or socially unacceptable, rather than total emphasis on the "competitive" phase I do wish they would not call that phase "habit reversal" as I cannot ever call TS tics "habits".....they are involuntary movements or sounds, and where the person does have a small measure of control, but where it is also known that suppressing tics for too long can cause not only a tic meltdown later, but sometimes a channeling into increased OCD, anxiety etc etc So we were thankful to have an excellent therapist who was willing to modify things to adapt to my son's specific needs....and it worked. The previous attempt we had was disastrous, as the therapist was more interested in molding my son into what her image of him was, rather than helping him be a better himself!!! I think therefore that the answer to your question is that everyone with TS is most likely a candidate for CBIT BUT not every therapist is necessarily a good candidate for providing it. Choose with care!! Dealing with the triggers and practicing relaxation techniques were the easy part as we had already been doing that. http://www.cfpsych.org/issues/issueDetails.cfm?ID=8
  4. Jim there may be more labs doing the testing by now, but we used Neuroscience/Pharmesan labs https://www.neurorelief.com/index.php?p=home https://www.neurorelief.com/index.php?p=testing
  5. Hi have you considered rather incorporating foods that are rich in digestive enzymes eg extra virgin olive oil, raw honey, grapes, figs and many tropical fruits including avocados, dates, bananas, papaya, pineapple, kiwi and mango.
  6. Hello sadly we have a number of reports here of children developing tics after vaccines...most likely something related to their immune reaction imo Where Epsom baths are a good detox, I am not sure they would specifically benefit here. remember the magnesium theory applies to TS specifically. If I were you I would try to find a good DAN doctor as they usually have experience with this. Hopefully the tics will subside once her immune system settles down.
  7. I post here primarily as a member Lauren. So my comments were in no way moderating. Rather posting from my personal experience and personal opinion. That's all.
  8. my goodness Lauren....that is not what I said at all! There was a lot of valid info in the article....just a bit one sided in its presentation. Sorry you took it that way....do remember the focus of these forums is to be able to share and discuss things where all opinions should be able to be expressed without upset. People don't always have to agree with each other...but that is not a bad thing provided they can disagree agreeably
  9. I seem to recall most people found that after a few weeks things leveled out and then began to improve on the BonTech... Acupuncture has always been one of the best treatments for my son.It's important to use a reputable clinical acupuncture therapist tho...and an extra plus if they already have experience with tics/TS Remember...one day at a time..... October will be here soon....and hopefully the enviro doc will have good skills to be able to help
  10. I do agree with Michael......... plus, as someone with a background in medical/scientific research... I am also aware of the very real aspect of "skewed" research, "peer reviewed" included...where researchers make the data fit the hypothesis whether for prestige, payoff or tenure. I learned early on to be very cautious in just accepting something blindly because it was a "scientific" study. Especially when Big Pharma and others with a vested interest are at the helm. Obviously, there is a lot of invaluable info that comes from genuine, unbiased research, and thankfully there is a lot of that. But sad to say, not every "scientific" study falls into that category.
  11. Eye blinking is one of the most common tics with TS. Have you had his eyes tested? My son had intense eye blinking tics that actually did get a lot less when he was rx corrective lenses. This was before we even realized that he had TS, and he was in KG Fluorescent tube lighting can also intensify eye tics and sadly most schools have it Some people have reported here that tics increased on BonTech. For most, it was just an initial thing and then subsided. But for others it intensified and it seems something in the formulation may not agree with some kids, as excellent and helpful as the overall ingredients are. That was one of the reasons we decided to stick with adding our own supps for my son, while basing his treatment plan on Bonnie's original plan.
  12. http://www.cdc.gov/media/releases/2013/p0819-lyme-disease.html
  13. Hi there are so many potential tic triggers at school that many people find their kids begin to tic more when it starts again. You son may be right about the chair being irritant...it could be fluorescent lighting, new paint, new carpets, woodwork etc etc...or even just the stress of the school environment. Just try to take it one day at a time. I would suggest letting the teacher know so that at least she is aware and doesn't start "calling him out" for tics Talk to your doctor to see what he/she suggests. As I don't recall whether you have TS in the family? (could be if oldest tics too) or have identified why your oldest also tics (if not TS, is it something else triggering both children?) ........yo may want to start keeping a journal to identify potential tic triggers and work on those. Most of all, and I know this is hard, try not to let your child see you upset by the tics. That will only make it harder for him, and be a potential tic trigger itself.
  14. Hi you really need to discuss dose with your doctor. Because GABA is both an amino acid and a neurotransmitter, the dose depends on the individual's needs and biochemistry. We were told to titrate up and down the same way that people do on SSRI medications. As far as I know, whereas serotonin increases GABA, GABA does not actively increase serotonin. There are studies that suggest GABA can increase Human Growth Hormone so that may be the reason for the caution in not using it longterm in kids especially? I was told the PharmaGABA is best in terms of delivery as most oral GABA does not cross the BBB and therefore needs to be increased via synthesis methods I really suggest again your discuss all this with the doctor.
  15. I would be very cautious about doing any form of consultation on Skype or by phone for a first consult. And especially for a child! A physician, nomatter the field, should imho see a patient at least once in person before dx or tx
  16. this really is something you need to talk to your doctor about. GABA may be a supp but it is a very potent one! We were told by our physician that GABA should be gradually added, maintained for a period and then gradually titrated down...never started abruptly at high dose and never ended without titration down. We were advised not to use it long term. But my son was not taking it due to a deficiency but rather to aid with anxiety and some OCD related issues that elevating his serotonin alone was not sufficient for I am told that PharmaGABA is a newer and much better supplement, but not sure of long term use, especially in kids. Again that is something to take advice from your doctor on. http://www.bioclinicnaturals.com/us/en/articles/4/conditions-and-diseases/8/stress-management/show/103/pharmagaba-natural-support-for-stress-anxiety-and-insomnia
  17. From today's Journal Watch newsletter to read more about this study please go to http://pediatrics.aappublications.org/content/early/2013/08/07/peds.2012-2191.abstract
  18. from today's Journal Watch Newsletter to read more please go to http://archpedi.jamanetwork.com/article.aspx?articleid=1725449
  19. Hi The Tourette Syndrome Association has excellent info to help get the accommodations needed, and they can also help you with advocacy for your child. As TS is classified as a disability in education under the Americans With Disabilties Act ...your daughter is entitled to the accommodations...it is not an optional choice for the school to grant them...they *have to* by law here is the TSA website where you can read up on all the education info, and it also has a phone number that you can call http://www.tsa-usa.org here is the education section http://tsa-usa.org/aeduc_advoc/education_main.htm
  20. Sorry can't be of help. I fully believe in a brain-gut connection, but tend to avoid these kinds of diets as I believe in a more balanced, individual specific nutrition program. These kinds of fad diets tend to put everyone in the same box I think...but then I confess I don't know much about GAPS and it may be very different. I don't think I have seen it discussed here before, at least not on this forum.
  21. Hi JJ to have OCD and high serotonin at the same time is unusual I think!? including Tourettic OCD All of the OCD supplements I mention elevate serotonin as usually it is low in OCD. St John's Wort does also increase serotonin. You may want to consider Cognitive Behavioral Therapy (CBT) for the OCD?
  22. Hi Best I can suggest is that you Google search for Integrative or Environmental physicians in your area, or if you are still looking for a homeopath, search that as well. Some people also like the DAN doctors because althoutnthey are Autism specialists, they are also up on a lot of the other integrative treatments. Then call the offices and ask lots of questions first to be sure this is the physician you want to see. We have a pinned thread at the top of this forum for Finding Medical Help but it may be a bit outdated by now. ps you may want to edit out your email as you could end up getting a lot of spam by posting it on an open forum!
  23. We have an article on the main page regarding triggers for tics, with an informal survey that yielded interesting results. Although it is primarily referring to TS tics, others with tics have also reported that some of these factors are triggers http://www.latitudes.org/articles/finding_triggers.htm
  24. Hello my son was given flagyl at one time for Chron's related issues and it had a very detrimental effect on him. He was on it for 2 months. Flagyl is an prescription antibiotic (Metronidazole) and as such it does also kill good bacteria and can result in Candida overgrowth I am not a personal fan of nystatin either as there really are more natural ways to combat Candida without adding yet another rx drug like nystatin, which does also have its own potential adverse side effects. As your daughter's case is complex, I realize that you do need to treat the infections, but wonder if you have tried to use any of the many natural antimicrobial remedies?
  25. Hi If you are doing antibiotics I assume he has now been dx PANS or PANDAS? What does the doctor who prescribed the abx say about the tics increasing at those times? Some people do have tics triggered by TMJ issues so I guess it may be worth looking into.
×
×
  • Create New...