Chemar

Hi Just to reassure you...transient tics can be simple or complex, and are failry common in young children and most often resolve naturally. There are a lot of things that can cause tics, in addition to Tourette....things like food and environmental allergies, infections and a lot more. Many people find that dairy intolerance can sometimes be the cause of eye tics so you might want to try dairy free for a while to see if any improvement? Take a look at the Helpful Threads pinned to the top of this forum (also linked below in my signature) Hope you find answers. Try not to stress or fret too much, especially in front of your son, as often that in itself can be a trigger for tics.

Welcome Marty Just bumping your post up so others can respond

to read more please go to http://ucrtoday.ucr.edu/19363

there is also a class action lawsuit now, against 23&me (hmmm timing seems hinky imo?) http://www.forbes.com/sites/danmunro/2013/12/02/class-action-law-suit-filed-against-23andme/ Interesting piece in Businessweek http://www.businessweek.com/articles/2013-12-02/what-do-government-agencies-have-against-23andme-uber-and-airbnb The other thread here has a link to the letter the FDA sent 23&me

Hi Sorry to hear what you are going through Have you ever looked into possible PANS/PANDAS/ If both children are exhibiting these behaviors it is always a possibility. There are a range of infections that can cause this, most notably strep, but also others. I am not saying this is what is occurring but just a few things you mentioned in both your son and your daughter made me wonder.... I really would suggest also posting on the PANS forum. I do hope you find answers that can help to improve things for your family

Hi Al well again...pursuing areas that may hold helpful results is always worthwhile....whether this is a TMJ problem or some other issue related to the jaw...if it helps...that is what matters. It is that "hype" re 80% or "2/3" of ALL TS patients being "cured" by this that has always troubled me a bit....as indicated by the members reporting back here, most were NOT helped by it so that in itself denies that statistic that the dentists involved quote. Much better I think that they would just hold out a hope that *perhaps* this can help. It should also be noted that some people with TS tic *more* with orthodontic procedures ie it can be a trigger for some, rather than a help. It is like that with most treatments. We simply cannot say *everyone* who tics is definitely going to be helped by any one specific treatment protocol... as all of on this journey have found, there are as many causes as there are treatments, and not everyone who tics has TS Again, I am so glad it has helped your son and thank you for sharing as even if it helps just one other person, it is invaluable!

Glad it has helped your son We have had others here who tried it (a number of threads in the archives!) but most found it was of no help, and in one case, it even proved to be a hindrance if I recall correctly.... so the important thing to remember is that this device appears to be helpful only for those who are having tics due to TMJ problems. It is not a "cure all" for TS and not everyone dx with TS has TMJ problems. That said, of course it is great news to hear that your son has benefited so much from this Al and hopefully anyone else who is dealing with tics related to TMJ issues will follow through and find relief too!

Hi and welcome Our website has been down for an upgrade so I am not sure how many members have seen your post here. May I suggest that you also post on our PANDAS/PANS forum http://latitudes.org/forums/index.php?showforum=17 imho the behaviors you are describing are not what I would attribute to just an ADHD dx

I posted the FDA letter sent to 23&me here...... http://latitudes.org/forums/index.php?showtopic=21840

Here is the AP story http://news.yahoo.com/fda-tells-23andme-halt-sales-genetic-test-173620516--finance.html and here is the FDA letter to 23&me http://www.fda.gov/ICECI/EnforcementActions/WarningLetters/2013/ucm376296.htm Hopefully this will all be sorted out soon as many people have found tremendous benefit from this testiing!

Hi and welcome I am bumping your post up so others can respond

Hello you are more likely to get replies to these questions if you post directly to our PANDAS/PANS forum, as not many members check in this new member forum here it is http://www.latitudes.org/forums/index.php?showforum=17

Hi I am not sure if you have seen the very recent news about the massive fine issued and the dangers of this drug! It sounds like your doctor is wise to want to help get your child off it! http://psychcentral.com/news/2013/11/04/janssen-agrees-to-1-6-billion-guilty-plea-for-risperdal-allegations/61612.html

ABX is the abbreviation for antibiotics We have a list of commonly used abbreviations pinned to the top of the forum http://www.latitudes.org/forums/index.php?showtopic=7841

Hi and welcome I have merged your two threads as it is much easier for members to reply to a new member's thread when all is in one place.

Eye rolling tics are amongst the most common TS tics. Do you have any other family history of TS or tics? Honestly whenever there has been any strep history, it is always worth investigating PANDAS, just so you can be sure that you have covered all bases Also, be sure you have your son's eyes examined by a pediatric opthalmologist as sometimes vision problems and corrective lenses can dramatically improve eye rolling, whether or not these are also TS etc related.

Hi I am hoping some members here may be willing to offer some insight and encouragement to this new member who posted on the newbies forum http://www.latitudes.org/forums/index.php?showtopic=21765 thanks

hi honestly, with the strep history and rages...I would most definitely investigate PANDAS Yes, some kids with TS can have anger issues, especially as noted when they are exposed to allergens, toxins etc.....but personally I would not hesitate to first get a PANDAS evaluation as the longer you wait with treating strep inflammation of the brain, the harder it can sometimes be to treat! Also, if there is no family history of tics/TS...the likelihood of it being TS diminishes. Remember too, TS and PANDAS are not mutually exclusive but where TS does not get "worse" necessarily if not treated...PANDAS can! Our PANDAS forum parents will be able to give a lot more input

Hi and welcome Just bumping your new post up so others can reply

to read more please go to http://psychcentral.com/news/2013/11/04/janssen-agrees-to-1-6-billion-guilty-plea-for-risperdal-allegations/61612.html

There are healthy candy sites that do not use dyes or artificial sweeteners, flavors etc (eg www.naturalcandystore.com Honestly my son learned so early on what even a small slip would give such a big set back that he voluntarily gave up the junk food. imho Food dye is a poison...there is very good reason that it is banned in Europe and UK etc!! I hope things stabilize again quickly for your son

Hello I just wanted to welcome you and suggest you post on our PANDAS forum as not many of the members there look in here...most just log in directly to PANDAS?PANS Here it is http://www.latitudes.org/forums/index.php?s=5d3ee0772aaea9903f2100c026ccb704&showforum=17

Hi Shelds and welcome I think we do have other members in Australia here so hopefully they can assist in helping you locate physicians

It may be tourettic OCD? We found cognitive behavioral therapy to be very helpful for tics/OCD behaviors that were troublesome socially or health hazards

Hi Tourettic OCD is unique to people with Tourette Syndrome and involves tics and OCD behaviors "morphing" into each other ie a tic starts being done obsessively/compulsively or an OCD symptom becomes a tic...ie tourettic OCD involves tics and OCD interactions Doing things "just right" seems to often accompany OCD (whether "classic" OCD or Tourettic,) so that in itself does not define Tourettic OCD. And yes Cognitive Behavioral Therapy can help with this.