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About rissakaye

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  1. My ds had an eyeroll tic if he eats dairy and one thing that we have noticed is that since we cleaned up his diet to eliminate dairy (meaning that almost all foods are made scratch instead of using some processed foods) is that ds is a whole lot calmer. At times before this ds would walk up to his sister and just yell at her while she was reading on the couch or just get monumentally frustrated with himself and have a crying fit. Now my ds is eating no dairy, he has really just been calmer and easier to get along with. He isn't perfect by any means, but it just seems like he's more rel
  2. Unfortunately, in my experience, the mainstream medical dr's that I have talked to have very little knowledge and/or tolerance for any discussion of how food and neurological things like tics interact with each other. I was told by an allergist that my son was just acting to please me. He declared food interactions with tics impossible and he wasn't going to believe it. My regular dr. wanted my son to see a neurologist that has a horrible reputation within the community and online horrible reviews for "missed diagnosis". I hope that you have better luck than we did. The best advice I c
  3. Today is day 4 after the dye and hfcs and ds's vocal tic has virtually disappeared. I know if he eats dairy, by day 4 the eye roll tic will be gone. So, best guess is it's the dye and/or hfcs. Ds is actually really, really good about giving up what doesn't help him. Not that there haven't been a few tough moments. I'm good in the kitchen so I'll usually whip up something that convinces him the world didn't end and we go on with life. I re-looked at all his normal foods. He's eating dye-free and hfcs free with his normal foods. I actually hadn't done that purposely, but I've always tend
  4. Wondering if anyone else is feeling the same way. My ds had been doing so well just being dairy free. No tics for a good stretch. We had not taken him completely off of food dye, but since most of what we eat is fresh/homemade, I hadn't worried about the very minute amounts he sometimes got. Food dye just really isn't much of an issue around here. And then Halloween. Since ds couldn't have the chocolates, I was letting him have the candies. Yesterday he came home from school and his vocal tic was in full force. It's still going today. He can mask it with gum chewing, so comp
  5. Dairy does not show up for my son on an allergy test, but he lives dairy free now because it makes such a difference for him. Ds had an eye rolling tic and a vocal tic. If we feed him dairy, the eye roll shows back up immediately. The vocal tic has faded over time the longer ds has been off of dairy. Ds drinks soy milk (he has major tree nut allergies which make almond not a possibility). I use unsweetened coconut milk beverage for cooking. You can use coconut oil or a few other substitutes for butter. There are some wonderful coconut milk based ice creams. We haven't found a good ch
  6. I would give it longer than a week on dairy free before making up your mind about. My son's been dairy-free for a period of months now and the improvements build over time. Also, sure that you are getting all of the dairy. It's a hidden ingredient in so many things. Honestly, I haven't worried about calcium with my son. He had refused to drink milk from an early age and I'm delighted that now he's drinking soy milk happily and getting a consistent source of calcium. Most days he gets close or at recommended levels from his soy milk and the coconut milk I use. (He has a tree nut all
  7. My son likes the So Delicious coconut milk ice cream better than the real stuff. We were just at the store getting more of their fudgsicles. We really like it. I also use the So Delicious unsweetened coconut milk beverage for baking and cooking in place of milk. The whole family agrees that it makes the food better. I use it mainly in biscuits and muffins. The hardest thing for my son has been no pizza and no cheese on his burritoes. Everything else we've found a good substitute or ds really just wasn't that attached too anyway. For a little hope, my ds has been dairy free for a
  8. My son had never eaten a lot of dairy. He refused milk as a young child and detested childhood standards like mac-n-cheese. Pretty much the only dairy he ate was the occasional ice cream, pizza, or cheese on burritos. Also those things where milk was a hidden ingredient. He never liked much of anything else with dairy in it. Something else is that ds is the 5th generation in my family to not be able to handle dairy. My ds's tics are probably the some of the mildest possible. He has the eye roll tic which we can literally watch come and go with dairy. (We kept a food journal and trie
  9. I don't know if you're dairy free or not, but that is the trigger for my son's eye-rolling tic. Taking dairy out of his diet made a huge difference. Marissa
  10. I'm glad you're seeing such success! Even though we're realizing now that there is some genetics at work with my son and his tics, dairy makes a huge difference for him. When we eliminated it, his life became better. And my son has also been willing to try new foods as well. Marissa
  11. I don't have a complete answer yet, but I truly believe it can be diet. If we let ds eat dairy, the motor tic returns. Doesn't eat it, it's gone. I've been dropping dyes and artificial things out of ds's diet and the vocal tic is fading. After we get back from a trip we're taking we're probably going to do a gluten free trial. Marissa
  12. He was just allergy tested. Nothing we didn't already know about showed up. The allergist was an arrogant, self-righteous jerk who was very unhelpful. I'll try and remember to ask our family dr. about it next time. We just always joked that ds would be a horrible poker player because of it. Marissa
  13. Dh and I were talking last night about ds and his tics. One thing that we observed is that when ds was younger (probably from age 2 and up), if he was in trouble or really uncomfortable or upset, his face would start blotching. He would get red splotches on his face. They were almost like hives, but wouldn't raise or itch. I'm not even sure he knew it happened. Now in those situations where he used to get the splotches, he tics instead. Has anyone else experienced this? Any bright ideas on if the 2 are connected or related or why? We asked our pediatrician at the time about it and
  14. I have found this forum to be extremely knowledgeable. My ds started with a motor tic. I read on here about dairy and motor tics. We eliminated dairy and that resolved. So what I'm wondering, is what are the top triggers you all have found for vocal tics? Ds's tic is small and controllable with gum, but he'd like it to be gone. He's also been excellent about keeping a dairy free diet because he is adamant that HE doesn't want that motor tic back. So ds is definitely of a mind to go along with things and try them. Any ideas or suggestions? I know that gluten comes up a lot.
  15. Talking about tics does increase them for my ds. TV doesn't, but he barely watches that. I've actually noticed the vocal tic comes out in more in 2 particular buildings that likely have mold issues. Also, I notice them pop up when he thinks/knows he's in trouble. Marissa
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