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Bigal

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  1. No, but I can say with confidence that they helped my son
  2. Unfortunately not. There are just a few dentists that are known for doing this: Dr demersian, Ca Dr stack/brown, VA Dr. Sims, Md dr sims was the one who really helped my son. That said, there was a local dentist who called Dr Sims to find out how to help. That local dentist did learn enough to help us. So you may be able to find a local dentist or orthodontist that would want to learn and help. Google Dr. Stack and Tourette’s to see videos about this. Alan
  3. I was definitely concerned that it would impact his molars. Specifically I was concerned that they wouldn’t touch. That didn’t happen. He did end up with space between his front top two teeth. But it went away. When he was about 13 his tics stopped. The dentists said that it was because his teeth grew into the desired position because of the mouthpieces. I used to accept that. But now I suspect that the neurotherapy was responsible. But I do know that for years the mouthpieces kept his tic in check.
  4. Hi rsw This link shows some pictures. My son had several. They were not all the same. I'd contact Dr. Anthony Sims in Columbia, MD ( (410) 872-0872) He really helped my son. I'd contact him for advice. You can can also try Dr. Jeffrey Brown (703) 821 1103. He bought Dr. Stacks practice. Dr Stack, as I understand it, developed the treatment. FWIW, I think that neurotherapy also helped my son. I really don't understand anything about what they did. But this is the place. http://bandcenterllc.com/ Best wishes Bigal
  5. Hi TT My son wore mouthpieces for 3-4 years. I think the timing though is more important than the length. He was about 14 when we realized that he no longer needed the mouthpieces. According to the local orthodontist, his jaw grew into the position that the mouthpieces were guiding it towards. Dr Sims confirmed that that happens sometimes. FWIW, my son (now 15.5 is still growing) and I hope his jaw doesn't shift. But the local orthodontist says his face is not likely to grow anymore. How old is your son? Have the mouthpieces helped much? Are you using one of the well known doc
  6. Hi Zvendal I don't think that having a TMJ issue is a prerequisite for mouthpieces being an effect treatment. That said, my son did have a mild TMJ issue and we were completely unaware of it. When he saw a TMJ doctor the doctor put his hands on my son's jaw and when my son opened and closed his jaw there was an audible click. I'm not sure that qualifies as a TMJ issue. But if so, we were unaware of it. Maybe your child does have a TMJ issue and you don't know. But I don't know that it matters. Bigal
  7. Hi Lulu No, my son did not have an MRI. Dr. Sims did not think it was necessary. I don't think he prescribes it at all. I'm also not sure that you need to have a TMJ issue for this treatment to be effective. Best of luck with the doctor in Seattle. Again, from what I understand this treatment has helped my people. And I can say for certain that is helped my son. Feel free to get ask any more questions.
  8. Hi Lulu Yes, my son is still asymptomatic. It's been about six months since he's worn a mouthpiece. Honestly, I didn't expect he would be able to get rid of the mouthpiece. At least this young. Dr. Gary Dimerjian is the doctor in CA who does this. Also, for expenses, I think the MD doctor may be more affordable than the VA doctor. For one thing, he doesn't require an MRI.
  9. Hi NRR I'd recommend finding a local ortho that you can use for a "reality check" on what you are doing. Our family dentist recommended a local ortho that he new was intelligent, inquisitive and interested in learning something new. This ortho spent time reading about this treatment and spent time on the phone with the VA doctor and the MD Doctor. As mentioned, the MD Doctor made my son an upper mouthpiece that helped him so much. But that upper was expandable and we were told to expand it half a turn every week. We did this for a couple of months. The expnansion with each turn w
  10. My son is now 14 1/2. We started seeing eye tics when he was about 6 or 7. He was originally diagnosed with TS. That was later changed to CMTD, along with something else that they couldn't diagnose. The CMTD was getting worse as he got older. The other issue caused absolutely horrible tics starting at about the age of 11. His head would tic uncontrollably (like a baseball card in bicycle spokes ) for 45 minutes at a time. Along the way, we tried many things. This included dietary changes, fish oil, pharmaceuticals, magnesium, and essential oils. We also tried cranial sacral thera
  11. Hi Hopeful His tics were reduced by about 80%-90% before it broke. I could easily go a week without seeing any tics. I think the more that you wear it, the more effective it is. But the effects do stick around some. So it's not like eyeglasses. He hasn't had OCD or attention issues. I was trying to figure out how to private message you to give you my phone number. I'd be happy to talk on the phone if you wished. But I couldn't figure out how to PM you. Alan
  12. Hi Stillhopeful Honestly, it's been a bit of a roller coaster ride lately. About 3 months ago, his mouthpiece broke. It broke because his jaw grew. The TMJ doctor suggested that we now get braces instead. He said, if done correctly, they'll serve the same purpose as the mouthpiece. Well after about 6 week with braces, the tics came back strong. Braces were not appropriate at that point. Apparently, because his jaw issues had not been corrected. About three weeks ago, he got two mouthpieces from Dr. Sims in Baltimore, an upper and a lower. He's wearing them both and his tics
  13. Mathmom, thank you very much for that input. I knew much of that, but not completely. The ortho that I am using has consulted with Dr. Stack. So I hope that he knows what he is doing. As of right now, Wyatt's tics are as bad as they've been in a long time. The ortho said that he would call Dr. Stack tomorrow. I copied your response and emailed it to the ortho. Thanks again Alan
  14. As mentioned above, braces could potentially help some people with Tourette's. I think it is most likely to help those with an overbite. My son, who is now 12 1/2 got braces about 6 weeks ago. This is after wearing a mouth appliance based on the style that Dr. Stack made. He wore the appliance for about ten months and his tics became much less frequent. My son and I were delighted with the improvement. The dentist explained from the start though that ultimately we would need to get him braces to permanently correct his overbite. About two months ago, the appliance broke for the s
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