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  4. My little brother has eye tics as well… I thought… no, hoped that I was the only one with Tourette’s in my family. His tic consists of contorting his face and winking his left eye. It seems that his ticcing has irritated the conjunctiva. What worked for me didn’t work for him, so I turn to the Forum for ideas.
  5. Yes, the Relaxmax has been the most helpful supplement for our child, and the one we continue to use. All the best!
  6. Bonnie's research and protocol are still in online archives, but she is no longer actively involved as far as I know. There is no longer a print Latitudes magazine - but the old copies would still be with subscribers etc. Some of the older articles may still be archived on the main webpage here at Latitudes/ACN
  7. Do those old print Latitide magazines still exist. I have a hard time finding information from Bonnie Grimaldi. Did she retire?
  8. Hi MLee I have documented how starting magnesium was the first real beneficial natural treatment for my son in reducing tics. This was a mag supplement (best for him was mag taurate) as well as regular Epsom Salts (magnesium sulfate) baths. I learned about the importance of magnesium for people with TS by reading Bonnie Grimaldi's protocol & research in the original Latitudes print magazine. This was over 20 years ago. The B6(P-5-P) was added on advice from his physician to aid optimal function with the other supplements he was on. Yes, he has maintained those.
  9. Chemar, How did Mg and B6 help your son? Does he still take them? Thank you!
  10. Yes, magnesium and B6 were also essential supplements for my son - we found the P-5-P form of B6 worked best.
  11. Thank you. Interesting that B6 is on there as well. Many people find mg and B6 helps to reduce tics.
  12. Puberty is a tough time for people with TS - but thankfully for many, tics do begin to diminish once those hormonal years pass! Because dopamine is an essential neurotransmitter, one really does need to be careful in addressing reducing it. When my son was taking 5HTP to hep with Tourettic OCD, our physician explained that not only did it help increase serotonin - which helps control OCD - but it also reduces dopamine, and so can calm tics. But it is important to have physician guidance when using 5HTP This article discusses some natural supplements etc that may help reduce dopamine, but again, do your own research or speak to a qualified professional for specific guidance. https://bebrainfit.com/too-much-dopamine/
  13. Thank you Chemar!! Is there a way to reduce dopamine? An increase in tics while eating is newer, did not happen when tics first started. We are going thru puberty so that increases dopamine as well. Maybe as puberty eventually settles it will lower dopamine enough to offset the dopamine increase from food? Perhaps then eating will get better?
  14. @MLee I read a recent study regarding mealtime & tics https://www.frontiersin.org/articles/10.3389/fpsyt.2022.936796/full I also wonder if perhaps the release of dopamine while eating might contribute to the increased tics, as dopamine rise is associated with both tics increasing, and also the pleasure aspect of food?
  15. So just too many things going on. Guessing it will always be like that?
  16. Thanks @Chemar. I will look into those options, especially l-carnitine. As a rule, I’m usually quiet and reserved, but occasionally may seem to expand my tiny circle of acquaintances … and, indeed, explaining that I have tics often works. Thanks again for your advice .
  17. Hi @Conanjaguar My son found Cognitive Behavioral Therapy(CBT) really helpful. His CBT therapist was very experienced with TS & tics, and taught him coping skills for those social circumstances where tics were being bothersome. My son also found acupuncture of benefit for tics in general, and his Integrative physician also recommended l-carnitine short term for very intrusive vocal tics, which actually did help. I should also mention that my son has always been upfront in explaining that he has tics. Most people, even the kids back then at school. were pretty ok once they understood. I know people are all different in terms of what seems to work for them. Hope you find relief.
  18. Does anyone have any tips on how to avoid social embarrassment when dealing with severe vocal tics, besides completely withdrawing from human contact?
  19. So many people ask this question, and our admin Sheila Rogers has a really good article on the main section that covers a lot about TS & Tics. What is Tourette Syndrome? – A Comprehensive Overview If you have more questions, or comments, here is a thread for open discussion on this topic.
  20. If "the rules" get broken and they stay broken, so you're stuck the wrong side of "the rules" the whole time, does it ever resolve if for some kind of medical reasons the underlying PANS gets less, even if the original thing that was breaking "the rules" is not resolved? It doesn't seem to in my experience. Usually once I'm "stuck" I seem to stay just as "stuck" as I was to start with until the thing that broke "the rules" is resolved, even if the underlying PANS has subsided to a point where if that thing were to happen again it wouldn't cause any difficulty.
  21. Anyone else with experience with this? And what machine/what frequencies did you use? Like Dasu, I've had a lot of difficulty working out which is which. Many of them seem to contradict each other.
  22. Bumping up this old thread as it just might have helpful info for anyone looking for tips on what may help to reduce tics, and others may want to add their own helpful info too.
  23. "Tourette" is quite a dated diagnosis, and almost means nothing. And I don't think that coughing or throat clear is actually a vocal tic. Most people share the same feedback, best @ activity , worst @ in front of screen. Screen time is almost impossible to avoid, I suggest converting screen time from passive watching to creative activities like video filming editing etc. I know can't be done at all circumstances... If the tics are not very frequent, it's a positive sign. don't worry if new tics come in, we have it all the time. I think frequency and strength of the movement is what counts most. I am sure your son will gradually recover. It also looks like we have multiple instances of tics in the family too, so I am positive that genes definitely play a role.
  24. Hi Mert, Happy to know your daughter tics became milder. We are still going in waves and seem to be be rotating through older tics so i take it as a good thing he hasnt developped new tics.At the moment we see shoulder shrugging (but only when walking outside ) and a cough/throat clear quite frequent. Only thing seems to help my son are outside activities its where his tics seem to be at its lowest. And being on a ipad he has them the worst. My sister has five kids and 2 of them are also experiencing mild tics and my sister has been blinking here whole life a lot so i do think there is a genetic link in my family. Tourette diagnosis seems likely for my son.
  25. They didn’t go away. Since my last post, I saw some tics, probably a smaller ‘peak’ is coming as it was quite for some while. But it’s way better then it was a year ago , and a year ago was better then two years ago. Overall it’s in a declining trend. The only trigger I was able to outline is ‘anxiety’ . She is not overly anxious but when she is anxious about something I think thicks are triggered. So that’s what I am focused on. I try to built self confidence as much as possible so that she can deal with anxiety. Help her gain skills and keep her busy with supports and control the level off ‘healty stress’ to increase her tolerance to anxiety gradually. That is my strategy. But I don’t know if it’s helping or not. At least it’s not hurting.
  26. Mert, What do you think helped them go away?
  27. I just became aware of this from May 2022, so posting the link below for anyone who may be interested: Largest worldwide Tourette syndrome genetics and neuroimaging study also promises insight into related disorders
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