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Everything posted by Chemar

  1. Good to see the CDC take on bullying- and in this article specifically related to TS Tourette Syndrome: Help Stop Bullying
  2. @kmilligan06 Does she only tic more in the 03 Explorer - or in other vehicles as well? If there is mold in the Ford that may well be a trigger - or some other substance in it. That is if that is the only vehicle triggering her increased tics? Also, are the increased tics only when she is a passenger in the car, or does it also happen when she is driving?
  3. We have had numerous reports here of children ticcing more in *new cars* - but the post indicated this is a 2003 Ford Explorer?
  4. Hi kmilligan06 My son used to tic more in the car! I have heard many theories on why, but never was able to settle on anything finite, other than that for him it may have been a time of tic release? ie driving home after school, or on the way to something where he felt he wanted to suppress tics when there. One positive thing is that, where I was originally concerned this would mean he ticced more once he started driving, amazingly this has not been the case. He has been driving since of age and is now in his early 30s
  5. Hi danielled, I can't write much now as on way to work, but did want to welcome you, and also encourage you that there is hope! My son dealt with severe OCD, Tourette Syndrome and ADD (no Hyperactivity) as a child. We were taught about the condition of Tourettic OCD/tics, where OCD behaviors and tics morph - and that understanding helped so much - my son benefited greatly from CBT (cognitive behavioral therapy) to help him with this melded OCD/tic situation. He is now in his 30s and honestly TS/OCD are a very minor factor in his life - whereas they used to predominate. Pres
  6. Hello dutragirl Sorry to hear of the development of tics for your granddaughter, but take heart, very often tics are transient in young children - or you may find another trigger that is causing them. Before I make any further other comments or suggestions - I see you posted on our PANS/PANDAS forum rather than the TS/Tics forum, so I am wondering if you suspect an infection connection to the tics?
  7. Hi Did they make any suggestion on why her RBC & WBC counts are down? Any treatment suggestions? The fact that they are below normal may be indicative of an underlying issue that in turn may be triggering tics. An ASO <20 would indicate no strep infection as far as I know. https://www.healthline.com/health/antistreptolysin-o-titer
  8. Hi Tropea Interestingly, where they benefit greatly from Omega-3 EFA - some kids with tics, specifically TS tics, seem not to tolerate fish oil well - but do better with Omega-3s from other sources eg flaxseed oil etc I know we once had a thread running where there were links explaining why the fish oil may exacerbate some kids' tics - but not too sure where that info is now. I will see if I can locate it.
  9. You are welcome Deb. Yes, it is a continuous learning curve to find the tic triggers and best ways to keep things stable - but oh so worth it!
  10. Thanks so much for updating so thoroughly Deb. Hoping for continued healing for your child. I wanted to mention that we uncovered chlorine to be a major tic trigger for my son when we realized how much his tics ramped up after swimming (outdoor pool) - that, in addition to the mold, may also be what exacerbates your child's tics in the indoor swim/dive pools.
  11. Hi WorriedMum I am not sure if you have already posted this on another thread, but has your daughter been evaluated for PANS/PANDAS? From what you wrote above, this is something that PANS/PANDAS kids may experience. Where Tics/TS can certainly manifest with some very obsessive or even phobic behaviours - still in general tics don't usually have an almost hallucinatory manifestation like you describe, and most people with TS/tics don't generally exhibit violence or aggression when tics are in flare - although yes, sometimes the tics can be self injurious.
  12. Bumping up this old thread as it just might have helpful info for anyone looking for tips on what may help to reduce tics, and others may want to add their own helpful info too.
  13. Welcome to the Forum LLYNCH though sorry to see what brings you here. I do want to encourage you not to lose hope! My son's TS tics were very severe when he was 10yo but we found, after going down a number of conventional medication rabbit holes, that there were ways to help him greatly through a more natural approach of nutritional and environmental remedies that reduced the things that were triggering his tics. Do take a look at our pinned threads as there is a lot of helpful info there, especially in the excellent resources of Sheila's 2 books on Natural Treatments and identifying
  14. Adding the invaluable Tic Trigger resource book here as well. Tourette Syndrome: Stop Your Tics by Learning What Triggers Them Guidance on identifying and managing triggers for tics and Tourette syndrome. Includes common triggers, family success stories, helpful resources, tracking logs, and more.
  15. There is also a lot of good info on this on the Irlen website https://irlen.com/who-we-help/
  16. Hi Mayzoo Sorry to hear you are struggling to get medical help with the abx. I am not sure which areas are covered by this thread from before that lists some doctors that members found helpful for PANDAS etc https://latitudes.org/forums/topic/5023-doctors-we-have-seen-who-helped-with-pandas/
  17. Hi greekdude Sorry you have not had a reply yet. I know more about Tourette Syndrome than PANDAS, so can't be of help other than to suggest you look at the pinned threads on this forum as there is a wealth of information there. Hopefully someone with PANDAS knowledge will be by soon to offer you some help
  18. Good that your doctor has agreed to check into this further! Not sure what tests they are running, but do note that if this is strep related = PANDAS then they need to run blood titres rather than just do throat swabs. The PANS forum has a number of pinned threads that explain this in more detail as well.
  19. That's so good that you are seeing that level of improvement :) I did just want to mention that anyone who may also have Tourette Syndrome should be a bit cautious of Tyrosine as, it aids in Dopamine synthesis, and Dopamine seems to markedly increase TS tics....
  20. Hi Barbs So sorry to hear of your daughter's condition. The dramatic changes you describe sound like perhaps they may be PANS/PANDAS related? Here is an overview https://latitudes.org/category/conditions/pandas-pans/ We also have a forum where you may find more helpful info: https://latitudes.org/forums/forum/17-pans-pandas-lyme-included/
  21. Hello Kate424 I just wanted to welcome you to the forum, and hope you may get some replies soon from anyone in your area who may have recommendations
  22. Hi and welcome to the forums. I am hoping others who know more related to Celiac issues will be along soon. I do know we have many posts related to screens and tics, albeit not specifically breathing tics. As I need to head out to work, I will check back later and try to give some links to other relevant discussions and articles that you may find helpful
  23. Hi MLee It takes a very long time to load but it still loads up for me? It's an archived page. I just copied it so will paste it here for future reference too Again the link to the archived page is https://www.oocities.org/torcha.geo/ts_main_bonnie_sup.html
  24. Hi 🙂 I get PMs from so many members who are desperately looking for guidance on this challenging journey to help their children. Apart from being able to share some of my personal experience, and to suggest searching the many helpful threads members have posted here over the years..... I cannot think of a better #1 resource than everything that is on the ACN/Latitudes homepage at https://latitudes.org/ I found the original Latitudes magazine many years ago as a desperate mom seeking answers to help my then 10 yo son, who was diagnosed with genetic Tourette Syndrome with very
  25. Updating here that I found an old archive of Bonnie Grimaldi's original treatment protocol for anyone interested: https://www.oocities.org/torcha.geo/ts_main_bonnie_sup.html
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