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Everything posted by Chemar

  1. How much Natural Calm?

    Hi mlee The magnesium in Natural Calm is citrate, so can have a laxative effect. I would stick to the recommended age appropriate dose
  2. Hi So sorry you have not had responses and hope someone with more knowledge may be able to offer advice. My uneducated suggestion would be to look into PANS if both children are showing similar symptoms. Here's that (((HUG))) of support, as I know only too well how scary all this can be. I do hope you get answers and effective treatments for both your children.
  3. Hello hay78 So sorry we missed your post! How are things with your daughter now? Any new tests results?
  4. Book by sheila rogers

    Hello azka Sheila's book is available on Amazon and the Kindle online version is also there https://www.amazon.com/Natural-Treatments-Tics-Tourettes-Patient/dp/1556437471/
  5. Shake and vac

    Hello azka Here is the link for Sheila's book https://latitudes.org/store/natural-treatments-for-tics-and-tourette-syndrome-book/ It is also available on Amazon if that is more convenient for you https://www.amazon.com/Natural-Treatments-Tics-Tourettes-Patient/dp/1556437471/
  6. Shake and vac

    Hi Ronnie and welcome to the forum. Organic is always the best choice for anyone and especially for children! Also non-GMO I am only aware of corn products being potential tic triggers for those who have sensitivity/intolerance/allergy to corn?
  7. I know of an excellent acupuncture therapist in Orlando area, but no experience re S Florida
  8. Nothing is working😢

    So sorry to hear of the ongoing struggles. One thing that might be helpful is acupuncture with biofeedback (not neurofeedback!) and antitox therapy My son's horrendous reactions to medications he was initially given for TS/OCD are documented. Our acupuncture therapist did a remarkable series of treatments to try to reduce the side effects and we really saw benefits
  9. Which type of magnesium is best?

    Magnesium Oxide should be avoided as it is very poorly absorbed. The only downside with mag citrate is that it can cause a loose tummy. But if one doses correctly, the bioavailability of ionic forms like Natural Calm are very helpful We also used magnesium taurate successfully as taurine itself is also a tic reducer. A number of people have reported that magnesium glycinate has been helpful
  10. Supplements

    The only form of B6 my son has used is P-5-P and he always tolerated it very well, with notable benefit.
  11. Hi Just bumping your first post up for others to see and respond
  12. Diet...

    I agree that you may need to investigate possible sensitivity to the things he is eating most of. Even good healthy things can sometimes trigger tics if one is sensitive to them. eg we have a member who cannot tolerate coconut I don't see any multivitamin/mineral or magnesium in your supplements? We found those essential for helping to manage tics. Magnesium in particular.
  13. Diet...

    Hi Are you giving any nutritional supplements? Could you give an example of what your child eats each day?
  14. Hello Lwei66 Yes, magnesium is known to be helpful for TS tics and yes it made a dramatic difference for my son.
  15. Son with tics and driving

    My son has been driving for 10+ years now with tics not having any negative impact. He has had years of Cognitive Behavioral Therapy, but really has not needed to use it specifically with regards to driving, at least not that I am aware.
  16. Hi Vittorio We have always used Magnesium Sulfate (Epsom) as baths and lotion for transdermal magnesium
  17. Hi We use Olive Leaf Extract as a general antimicrobial, but not specifically for TS tics, though I know some PANS/PANDAS parents have used it as a natural antibiotic. We use Kefir as a probiotic, but again not specifically for tics........ but we did learn that the better overall health was, so the tics became more manageable. Magnesium was overall very helpful for my son's tics. I'm not sure what dose is suggested for a 4 year old though. There are a number of parents who have posted here about seing eye tics improve by going dairy free...but this is not everyone.
  18. Essential Oils?

    Hi We found that diffusing the calming essential oils were always helpful in relieving stress, and so helping with OCD & tics. Jasmine Oil especially, and also Lavender were ones we frequently used.
  19. I am still seeing products on BonTech? http://www.bontechstore.com/main.sc
  20. Hi We used Bonnie's protocol since before she started producing her own supplement range, so never used those. I based much of my son's supplement treatment on her original regimin posted on the old GeoCities!http://www.oocities.org/torcha.geo/ts_main_bonnie_sup.html Here's what I found helpful for him
  21. Cleaning brands?

    Hi Sorry you have not had any replies. We use Seventh Generation products and I make a lot of my own household products with them, along with Greenwise bleach alternative and essential oils. Eliminating chemical products definitely helped with both tics and OCD & general neurology
  22. TICS in Italy

    Hello Mammina Thanks for offering to help Vittorio I am going to post the translation of your message here as well:
  23. This was described to us as Tourettic OCD by our physician, when tics can "morph" into OCD and OCD into tics So those kinds of tics seemed to be different from others. We were also able to somewhat differentiate "triggered" tics ie reaction to food, environmental agent etc from those that we couldn't track to any specific trigger. Keeping a journal really helped a lot!
  24. TICS in Italy

    Usually, before an "official" Tourette Syndrome diagnosis is given, there must be both vocal and motor tics present, with characteristic waxing & waning, for a year. However, as we and many others discovered, there do appear to also be "triggers" for tics that can be noted and eliminated as best possible, to help reduce the frequency, duration and intensity of those waxing times. Sadly, most conventional physicians are not well informed beyond the standard textbook views on TS, so it really is a case of equipping yourself with as much information as possible in order to find the best ways to help your child. If you do have any Integrative physicians there, that is a big plus, as they are usually able to guide one on alternative treatments, while having conventional training as well.
  25. L-Carnitine Dose for Teen?

    Hi We noticed an almost immediate improvement for the vocal tics when we started L-carnitine. However we were advised to not go above 500mg per day even though my son was adult weight & a young teen then