Jump to content
ACN Latitudes Forums
  • Announcements

    • Administrator

      Forum Community Guidelines

      Forum Community Guidelines

      Our forums provide support for people dealing with neurological and related issues. Everyone joining this community should find it a safe haven where they are treated with respect, civility, and understanding.

      Your agreement as a user: You agree that you will not use this forum to post or send messages that are knowingly false, inaccurate, abusive, vulgar, obscene, profane, or sexually oriented. Text should not be defamatory, harsh, accusatory, intimidating, slanderous, an invasive of a person's privacy, or violate any law. Doing so may lead to you being banned (and your service provider may be informed). The IP address of all posts is recorded to aid in enforcing these conditions. You agree that the webmaster, administrator, and moderators of this forum have the right to remove, edit, move, or close any topic at any time should they see fit. You agree not to post any copyrighted material unless the copyright is owned by you or by this forum/website. Advertisements, solicitations for services or business, most research requests, as well as any type of research on the content of these forums by third-parties, are prohibited. Unauthorized use or reproduction of posts on these forums is not allowed. Any user who feels that a posted message is objectionable is encouraged to contact an administrator.

      Announcements, media requests, and research requests

      These need administrative approval. Please send to an administrator before posting.

      Inappropriate content

      Members are here for support and education. Check the list below for types of posts that are not allowed: Advertisements Flames or messages meant to intimidate, criticize, or harass others Threatening or obscene messages Messages discussing a private message (PM) from others Copyrighted materials that you do not own the rights to, except educational or research articles Messages containing or condoning illegal acts; also messages of suicidal intent Direct discussion of politics (please avoid) Specific or strong religious views Requests for donations for other organizations unless approved by administrator Solicitation of members for research, media projects or other projects, without prior administrative approval About links for other websites:

      You may have links in your profile as long as they do not violate our guidelines (above). Links within a post to online resources and articles are generally OK. Do not post links to other forum communities with the aim of soliciting other members to that community, thereby taking them away from this community.

      When a guideline is violated

      If you violate a guideline, you will be contacted by PM or email. We will try to resolve things amicably. We don’t like to ban members and rarely do, but this is an option.

      Updated March 19, 2010
    • Administrator

      Disclaimer and Privacy Policy

      Disclaimer

      The ACN Online Discussion Boards are intended to provide helpful information and allow sharing of ideas. Postings should not be considered as medical advice. All users should consult with their healthcare professional for questions or medical decisions.

      Users must accept full responsibility for using the information on this site and agree that ACN, Latitudes.org, advisory staff or others associated with the site are not responsible or liable for any claim, loss, or damage resulting from its use. Please remember that we do not actively monitor all posted messages and cannot be responsible for the content within. We can also not guarantee that access to the site will be error-free or virus-free.

      Reproducing any document in whole or in part is prohibited unless prior written consent is obtained. Web pages may be shared when passed on with the URL.

      Information posted on the Forum is done so voluntarily and will be accessible to the public. The material posted may be used by ACN (without the identity of the user) for publications or educational purposes. No compensation will be provided for the use of this material.

      Note: ACN is providing this service with the expectation that users will abide by the guidelines provided. We reserve the right to monitor postings and remove or refuse inappropriate and questionable material, as well as remove dated postings at our discretion, for any reason.

      Privacy Policy

      When you register with the Forum, you need only give your email address, which is available only to the Adminstrators and will not be shared on the Forum site or with others in any format. Forum users will see only the user name you choose to provide.

      Our web server collects and saves default information logged by World Wide Web server software. Our logs contain the date and time, originating IP address and domain name (the unique address assigned to your internet service provider's computer that connects to the internet), object requested, and completion status of the request. We use these logs to help improve our service by evaluating the "traffic" to our site in terms of number of unique visitors, level of demand, most popular page requests, and types of errors.

      You have the option of enabling to save your username and password data when you are accessing interactive parts of our websites, to allow your web browser to "remember" who you are and assist you by "logging on" without you having to type your username and password repeatedly. This is known as a cookie and it can be enabled or disabled in your control panel. Cookies are small files stored on your computer's hard drive that are used to track personal information.

      Except for authorized legal investigations, we will not share any information we receive with any outside parties.

      Updated March 19, 2010

Chemar

Premium
  • Content count

    6,236
  • Joined

  • Last visited

  • Days Won

    25

Chemar last won the day on September 14 2017

Chemar had the most liked content!

2 Followers

About Chemar

  • Rank
    Advanced Member

Contact Methods

  • Website URL
    http://www.latitudes.org

Profile Information

  • Gender
    Female
  • Location
    USA
  1. New motor tics every year

    Hi there If the tic increase is linked to this time of year, could it possibly be seasonal allergies? Those don't always necessarily have a "stuffy nose" as symptomatic Has he had any allergy testing done?
  2. Supplements can impact different people so very differently (just like meds) so it's always hard to say. Our physician did say not to use it long term. My son was on it a few months. It really did help the vocal tics for him. It's an amino acid
  3. Hi The only thing that helped when my son was dealing with very loud vocal tics was L-Carnitine, as suggested by our physician.
  4. bumping up a new member post in case anyone can help
  5. Hi We had the same problem as my son has MCS (Multiple Chemical Sensitivity) CVS pharmacy has their own brand ibuprofen in a dye free version. We have always used primarily natural treatments of which some have antimicrobial properties and can help pain relief (eg Oil of Oregano capsules) Also white willow bark instead of aspirin, but be cautious if salicylate sensitive.
  6. Hi I moved it to PANS forum for you.
  7. Magnesium lotion

    Hi We used to rub it into the areas where tics were prominent. He especially benefitted from having it rubbed into back of neck and between shoulders. We used it when there wasn't time or opportunity for an Epsom Salts bath
  8. Magnesium lotion

    Yes, and yes We used Epsom lotion (magnesium sulfate) I think only Kirkman's makes it now. We used to make our own, then used Mortons! So sad they discontinued it.
  9. Hi I am sure Sheila will respond as soon as she gets a chance but did just want to say that the infectious disease specialist didn't give you accurate information. I am by no means clued up on it, and don't know what studies they were referring to, but I do know that kids with PANDAS/PANS can and do frequently have tic disorders as part of their symptoms, or as an additional co-morbid condition. That said, not every kid who exhibits tics has PANDAS/PANS. There are many varied things that can be underlying tic disorders, and they are not all mutually exclusive. That's why keeping a journal/log is so valuable in trying to find what sets the tics off, and what calms them. It may really be best, if you feel there might be a chance of PANDAS, or PANS, or at least want to rule it out, to see a specialist who actually knows about this and will run the kinds of tests that are documented. The parents on the PANDAS/PANS forum here might be able to give more info? I hope that helps a bit till you hear back from Sheila.
  10. Nothing is working😢

    Hi My son had acupuncture as well as biofeedback resonance therapy. 2 separate treatments but our therapist performs both. Neurofeedback is a completely different treatment, and we were advised by our physician never to have it. Some other parents on this forum also reported bad reactions from it for TS kids
  11. Fulvic Acid

    Hi No idea related to PANS, but it is remarkable for eliminating leg cramps at night, plus extra stamina. We have been using it for almost a year, in liquid form.
  12. Success stories?

    Hi Hopefully some of this may help and encourage.... **There's an older thread here on some treatments that have helped **We also have a "Useful" thread pinned here **And I have a thread from waaaay back on the treatments that helped my son
  13. How much Natural Calm?

    Hi mlee The magnesium in Natural Calm is citrate, so can have a laxative effect. I would stick to the recommended age appropriate dose
  14. Hi So sorry you have not had responses and hope someone with more knowledge may be able to offer advice. My uneducated suggestion would be to look into PANS if both children are showing similar symptoms. Here's that (((HUG))) of support, as I know only too well how scary all this can be. I do hope you get answers and effective treatments for both your children.
  15. Hello hay78 So sorry we missed your post! How are things with your daughter now? Any new tests results?
×