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Chemar

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Chemar last won the day on September 23 2019

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  1. Gradual is best - ie short exposure each day and see reaction to each device. We found using daylight lamps essential, especially with TV and computer/video games that have any flashing. You can get daylight light bulbs at Home Depot etc to use in standard lamps, and there are also more expensive specialized lamps.
  2. Hi We have used them for general gut health, but not directly for tics. They seemed a bit irritating for the Crohn's Disease that my son also dealt with and so we stopped them as supplements and instead used enzyme righ food like papaya etc
  3. Hi there Welcome to the forum What type of magnesium supplement? Some forms eg magnesium citrate can have a laxative effect. Also what dose is he getting? Magnesium taurate is generally well tolerated, and we found Epsom Salts (magnesium sulfate) baths to be an excellent tic calmer (2 cups Epsom Salts in tub of warm water, soak 15-20 min) My son always ticced more on iron so we rather got his iron in via foods rather than supplements. Chelated zinc is also best from our experience. I have a link in my profile about me section on what we used over the years to help my son. Do also take a look at the main website for more info, as often finding what is actually triggering the tics is the biggest step to calming them! https://latitudes.org Here's the book se on finding what may trigger the tics https://latitudes.org/store/tourette-syndrome-triggers-book/ I am guessing the other book you refer to is https://latitudes.org/store/natural-treatments-for-tics-and-tourette-syndrome-book/
  4. Welcome to the forum KSan As your daughter is now 8yo. you may be able to give her smaller doses of regular supplements that don't contain sugar, or other bad fillers? There are companies here in the USA that make sugar free pure supplements and many of those are also available from the companies' websites or on Amazon, iHerb.com and others A good way to increase magnesium is Epsom Salts(Magnesium Sulfate) baths - we use 2 cups in a tub of warm water with a 15-20 minute soak. Plain Kefir and high quality yoghurts are excellent natural probiotics. Sheila Rogers has another book you may find helpful as well now that you have her Natural Treatments for Tics and Tourette - it is "Stop Your Tics By Learning What Triggers Them" There is also a lot of very good information on the main website here: https://latitudes.org/ I hope this helps a bit. Please let us know how things are going.
  5. My son responded very quickly to the l-Carnitine for the vocal tic. He was already on other supplements to help with his tics and having regular Epsom baths etc so overall his tics were down, then the vocal began, and we added the l-Carnitine He was not taking guanfacine so I have no idea if that impacts the efficiency of the Carnitine. Have you tried to sleuth potential triggers for this tic?
  6. My son didn't react well to being given separate Niacin, but tolerates it in a multivitamin (He also reacts badly to B-complex but does still take some other B's separately eg Methy; B12 & P-5-P form of B6) Lecithin is beneficial, but be sure the source is ok (ie soy lecithin is what we used but some people are not soy tolerant) I hope your son is responding well to the l-Carnitine and gets relief from this vocal tic.
  7. We used 500mg l-Carnitine daily for 3 weeks. My son had a very intense shout/shriek tic and it worked very quickly to stabilize it, and it actually never returned. I am not saying this will work for your son but just sharing what helped mine when we were totally desperate over the shouting vocal tic. I would say if you try it again, do it first before adding any niacin or lecithin as otherwise you wont know which he is reacting too...good or bad. Do consider what Sheila asked re times of day and when the tic is at it's worst to see if you can correlate with any potential trigger at home setting him off, as opposed to when he is at school.
  8. Hi Vvny We never tried Guanfacine as my son had such bad reactions to all the meds we tried..... but I recall seeing a number of posts over the years about it...Try a search here of it's other names Intuniv, Tenex The only thing that helped my son's vocal tics was l-Carnitine, short term use. It was recommended by his physician and it really helped. Hope things stabilize for your son soon.
  9. I saw that Carlson Labs makes a B-6 Liquid (4 fl oz -120 ml) sells around $13 on most sites
  10. I know a number of folks with TS also struggle with OCD intrusive thought patterns, so am sharing this helpful video here as well:
  11. I shared this on the OCD forum as well, but as so many with PANS/PANDAS struggle with Intrusive Thoughts as well, I am posting it here too.
  12. A really well done and helpful video on dealing with those Thoughts !
  13. Yes, they fit all regular light & lamp fittings. Only difference is the light spectrum they emit.
  14. Daylight bulbs emit the light spectrum that being outside in daylight would :) Using them when on screens helped my son. It was physician recommended. We used them during the day and extra at night when he was on any kind of screen, including TV. You can get them at Home Depot
  15. Sorry to hear of the flare up. It is possible that increased screens could be contributing and yes, I know in my area the pollen is very high due to no rain in a long time. If he is stressed due to hearing about the pandemic, plus the change of routine being homeschooled, that could be a trigger too. The good thing is that he is home so not having to be extra stressed in social environments. I would just keep doing the things you know are helpful and try to remove as many triggers as possible, with understanding that screens may be hard to limit due to online school? We did find that using daylight lightbulbs were good as the screens in darkened rooms always seemed to trigger my son more Hope things stabilize for him soon. Be safe.
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