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Chemar last won the day on March 18

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  1. Hi mlee The yeast imbalance referred to is an overgrowth of Candida albicans ie candidiasis There are various ways of testing for candidiasis, from the non-scientific but interesting home "spit" test I see other "home tests" advertised on Amazon etc as well Blood, stool & urine testing can be ordered by a physician for the greatest accuracy. There are many websites with information & recommendations regarding Candidiasis. Just be aware, many are touting products as well which may or may not be effective! Here's one with good info (again check with your physician before just buying products that claim to "cure" ) How to Test for and Treat Candida Naturally
  2. Here is the archived webinar for anyone interested who could not attend https://njcts.org/tourette-syndrome-help-control-your-tics-by-learning-what-triggers-them/
  3. Just a reminder of the FREE Webinar tomorrow (April 17th 2019) 7:30-8:30PM USA Eastern time, with our own Sheila Rogers discussing: Tourette Syndrome: Help Control Your Tics by Learning What Triggers Them Hosted by the New Jersey Center for Tourette Syndrome Here's the link to register for the webinar https://register.gotowebinar.com/register/2536890380098133249
  4. Hi Ashly Sorry no replies yet. My son's multi has always had some coQ10 in it, both when he was a child and now as an adult. But as he didn't take it as a separate supplement for anything specific, I can't answer your question directly, other than to say I know it is a very helpful supplement in general. How is it going on the CoQ10 for son?
  5. Hi there I just wanted to welcome you to the forum tho sorry for your child's struggles. Hopefully parents more knowledgeable than me re PANS/PANDAS will soon reply, but my understanding is that Tourette Syndrome and PANDAS are not mutually exclusive, and that yes, some kids are dx TS when in fact it is PANS
  6. Hi starfish Sorry to hear of the setback, and do hope you find more answers, as well as that your son's system will stabilize again soon. I remember only too well how awful it was when the tics flared for my son after exposure to the yuck stuff! Once we learned that he had MCS (Multiple Chemical Sensitivity, diagnosed by an Allergist who ran excellent tests) he really understood why I was being so strict about the artificial stuff in food, as well as environment (one of his biggest triggers is perfume and regular household chemicals etc) Best to you
  7. My son was never on clonidine but my husband, who also has TS, was given it for high blood pressure and it not only made his OCD much much worse, it made him a bit psychotic! Coming off it stopped those alarming symptoms. I know some people seem to tolerate it, but not my 2 TS family members
  8. Hi there. Yes, I do think it would be a good idea to discuss this with your therapist as it may give insight and also be helpful for future therapy. And yes, having a major tic release after suppressing them at school or work etc is well known. It's important to have that release. Please don't think you are dumb and annoying! In fact, most people who have Tourette Syndrome are actually very bright and talented, they just often learn differently and need to find ways to cope with the symptoms. Here is some helpful info for you on our main website. https://latitudes.org/conditions/what-is-tourette-syndrome/ Do ask questions here and we can try to help as best possible. To encourage you, my son is almost 30 now and was diagnosed with TS when 10, and he has a great job, also loves playing guitar and writing songs and other good stuff. Explore your talents and things you enjoy! It really makes a difference in how you feel about yourself and life.
  9. Hi mlee Just FYI that this thread is from 11 years ago, in case you don't hear back.
  10. Hi joe_doc If you do a search on the forum you get assorted posts on Clerodendrum inerme, including more on where to find it https://latitudes.org/forums/search/?q=Clerodendrum
  11. Hello Ashly Sorry you have not yet had any responses, and for the struggles your son is going through. I know you mentioned you had strep titres done, but other microbes can also be implicated in PANS, so it's beneficial that you have also posted on the PANS/PANDAS board There is also a lot of info on our pinned threads both here on the TS/tics forum and on the PANS forum as well as the OCD forum, and lots more articles on the website https://latitudes.org/ We found magnesium very helpful for tics Oral supplements plus transdermal by Epsom Salts baths.I have a thread from years back on what helped my son, but do remember each situation is unique so there may be issues mine had that are different from your son's https://latitudes.org/forums/topic/687-the-treatments-that-have-helped-my-son/ I will try to check back later to post more or answer any questions you may have. My best to you.
  12. Hi My son with TS/Crohn's had abx sensitivity and we found Olive Leaf Extract, Monolaurin (Lauric Acid), Oil Of Oregano (capsules) and other natural antimicrobials very helpful, including dietary garlic, honey etc. I don't have experience with these and PANDAS
  13. Hi samz Sorry to hear of your son's struggles. I know nothing about sertraline so can't really comment re that effect, but thankful you have Sheila's book as a resource. Hopefully she or someone with more info will be able to post to you soon, but I just wanted to let you know you are not alone and that there is always hope in finding solutions.
  14. Just a quick FYI to anyone reading here that Sirena & vvny have children dealing with PANS so responses may be different in kids that have tics for different reasons.
  15. Hi shobo This might be a form of OCD (Obsessive Compulsive Disorder) manifestation? If so, CBT (Cognitive Behavioral Therapy) can be very helpful Whether these are tics or OCD symptoms, do remember that the more attention you draw to either can actually intensify them. I know it can be hard to "ignore" when something is drawing our attention in a negative way, but your wife is being honest when she says she can't stop doing those actions. Tics and OCD are involuntary. So my advice is to try to be understanding and supportive as that will make it a lot better for both of you.
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