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Chemar

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  1. Hello Mammina Thanks for offering to help Vittorio I am going to post the translation of your message here as well:
  2. This was described to us as Tourettic OCD by our physician, when tics can "morph" into OCD and OCD into tics So those kinds of tics seemed to be different from others. We were also able to somewhat differentiate "triggered" tics ie reaction to food, environmental agent etc from those that we couldn't track to any specific trigger. Keeping a journal really helped a lot!
  3. Usually, before an "official" Tourette Syndrome diagnosis is given, there must be both vocal and motor tics present, with characteristic waxing & waning, for a year. However, as we and many others discovered, there do appear to also be "triggers" for tics that can be noted and eliminated as best possible, to help reduce the frequency, duration and intensity of those waxing times. Sadly, most conventional physicians are not well informed beyond the standard textbook views on TS, so it really is a case of equipping yourself with as much information as possible in order to find the best ways to help your child. If you do have any Integrative physicians there, that is a big plus, as they are usually able to guide one on alternative treatments, while having conventional training as well.
  4. Hi We noticed an almost immediate improvement for the vocal tics when we started L-carnitine. However we were advised to not go above 500mg per day even though my son was adult weight & a young teen then
  5. Hello Vittorio So sorry that your post took a while to show on the forum! We just went through a software update and I am still getting used to the new moderator panel! It's good you have Sheila's book and I do hope you will take a look at some of our Helpful; Threads pinned to the top of this forum. Does your son have any vocal tics or only motor ones?
  6. Hi I replied to your post on the TS/tics forum
  7. Hi I am hesitant to comment when there is PANS involved as there are so many variables included then....but when my son had loud yelling tics, l-carnitine was very helpful. We also always found acupuncture, Epsom Salts baths & Bach's Rescue Remedy helpful when any tics ramped up
  8. Hi and welcome Sorry for the delay...our forums have just had a software update! I do want to encourage you....my son got his TS dx when 10yo (tho his tics started much younger) and he is now past his mid 20s and doing fine! We found following a more natural and complementary treatment protocol worked better for him than conventional meds. I hope you find the support and information to help you and your daughter.
  9. Hello Silviatx The same basic natural treatments for tics, TS & OCD seem to be helpful for adults as well so I think perhaps worth investigating? We have a lot of threads here on natural ways to treat tics and OCD http://latitudes.org...?showtopic=2459 and our admin Sheila Rogers has a helpful resource book about it as well http://latitudes.org...-syndrome-book/ There's also a lot of helpful info on the website http://latitudes.org...tics-tourettes/ I have an adult son who manages to still keep his tics, OCD & ADD well managed by natural methods (diet, supplements & healthy environment) as he has since childhood
  10. Hi Haley Many people with TS seem to find increased Magnesium helpful We have a lot of threads here on natural ways to treat tics and OCD http://latitudes.org/forums/index.php?showtopic=2459 and our admin Sheila Rogers has a helpful resource book about it as well http://latitudes.org/store/natural-treatments-for-tics-and-tourette-syndrome-book/ There's also a lot of helpful info on the website http://latitudes.org/category/conditions/tics-tourettes/
  11. I know it is hard, but do try not to stop your child from still enjoying the normal things! The last thing you would want is a feeling of being "punished" because of tics, and that can happen when one avoids outings, parties etc! One can still participate and have fun, while being careful!
  12. Just a word of encouragement...yes! perseverance pays and yes! it can get better. When my son was first diagnosed aged 10 things were very intense with his tics & OCD Now past his mid 2os, he is an independent young man doing so well! Yes, he still has genetic inherited TS, but to this day, as longs as he does what he can to avoid triggers, and maintain a healthy diet and environment, it is a negligible factor in his life!
  13. Hi My son definitely responded dramatically when we started supplemental & transdermal magnesium. Obviously there are many other things that can help, both by addition & elimination, but magnesium was a turning point in reducing his then very intense tics. Here's a bit about what it's role might be http://bonniegr.com/news.html Now that my son is an adult and doing so well, I have not kept up with current research, so not sure what more recent info might be available
  14. Hi We were always advised to use 400mg magnesium as supplement, and then also extra in diet, transdermal etc I know this would be a bit lower for younger children, or lower weight Just an FYI jcmom that the loose stools is from the magnesium citrate form in Natural Calm Not all forms of magnesium have laxative effects
  15. Hi One thing we found was that using daylight lamps when TV on really helped. It reduces the flicker tremendously! I don't have info on plasma vs LED Claire had a lot of threads here on screens as a tic trigger