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Chemar last won the day on September 8

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  1. @MLee yes, we had many tests, including bloodwork. We saw Integrative Physicians.Yes, the rapid improvements in my son after we began corrective nutritional and other specifically recommended supplements was remarkable, especially as he had actually been in a negative decline after we started the Rx drugs the Neurologist had prescribed. It was through ACN (then a magazine) that I learned about the alternative ways to approach tics & TS and I will forever be thankful for Sheila's dedication in providing this info. If you look at just the first post in my looong thread started in 2004, you can see more detail of what we did. https://latitudes.org/forums/topic/687-the-treatments-that-have-helped-my-son/
  2. Hi MLee My son's first tic at 4yo, before we knew he had TS, was eye rolling and blinking. We had a specialized eye test and he did needed corrective lenses, and those did help a LOT, though not a "cure" per se Later when more tics developed, the eye tics were a bit different, and only really settled once we started the needed nutritional supplements and removal of tic triggering dietary, environmental etc factors Flashing light always has triggered him, so daylight lamps while watching TV or playing video games helped. Interesting @Conanjaguar re you also noticing focus - as it was always evident that being focused intently on something seemed to bring about an overall calm in tics for my son - something we noticed even more when he played guitar/sang
  3. Hi @FraggleRed Just an FYI that we did NOT use acetyl-L-carnitine We were advised to use just L-carnitine I believe there is a difference.
  4. Hello @TheMainMan We used L-carnitine short term when my son had a shouting/yelling tic. Our Integrative physician recommended it. I don't know the exact biochemistry behind it - but I can confirm it immediately helped my son with that loud vocal tic. Once that tic had calmed, my son stopped using it, again on the advice of our physician, who said it was best used "as needed short term" I am only aware of it helping with vocal tics- so can't comment on any general use.
  5. Conanjaguar - are your referring to mold or mildew? Mold is dangerous to health in general, and usually something that needs specialized cleaning, especially as the spores can be hazardous. Especially black mold needs professional treatment. Mildew is what is most commonly found. There are cleaners for that, usually include chlorine bleach, which has been found to be triggering for tics in some people. We have successfully used hydrogen peroxide to clean the mildew that tries to grow in moist areas like bathrooms etc. White vinegar also eradicates mildew. Neither of those cleaners seemed to be triggering for my son
  6. The Dopamine connection in TS tics has been known for a long time - I am heading out so not time to post more now - but if you do an internet search for dopamine and Tourette tics, you will find many research reports, articles etc Dopamine levels increase during puberty.
  7. Hi again @Conanjaguar Different people seem to have varied dietary reactions that depend very much on their individual specific allergies and sensitivities to things like gluten, sugars, dairy etc. But one thing seems relatively consistent and that is to avoid all artificial food additives like food coloring dyes, flavoring and other processed food chemicals. pesticides etc and high mercury fish like tuna We found a balanced organic diet to be key. But again, some people have very specific sensitivities that need to be factored in, where even "good" food may not be so for them. Keeping a food journal is helpful.
  8. Welcome to the forum @Conanjaguar I agree that our experience with my son was that his tics were at their worst in the period just pre and during puberty. General consensus also seems to agree with this, and it seems it may be related to increased dopamine
  9. Hi @MLee My son does well now and his tics are so minimal that hardly anyone would notice them. Even when they are triggered now - they are nowhere near what he once had in his preteen years! His tics started to improve as soon as he stopped the pharma rx meds, started specific supplements/nutrients, avoided things that triggered his tics. As he passed the teenage pubertal years, there was a continued improvement in the overall tics. He has a good job, works hard, nice apartment. Well adjusted, and, having dealt with TS since childhood, he is a more compassionate and empathic person toward others. He feels TS gave him a lot of insights he may not have otherwise had. Number one tic trigger still seems to be stress - which is often harder to control in this stressful world - and so he continues to create and play music to relax, plus he has a set up that allows him to unwind with video games that is not triggering for him. He has maintained a healthy organic diet, and avoids any food additives that have always triggered his tics (artificial colors, flavors, chemical fillers, MSG etc etc) He also still avoids other environmental things that he has long known were triggers for his tics (eg chlorine pools, flashing lights, artificial fragrances/perfume etc). He continues to take certain supplements that work well for him. Experience has shown him that these are important to his overall health and well being, as well as to keeping TS symptoms minimal. Hope that answers your question :)
  10. Thankful with you, as I sure know the feeling when you see relief for your child !
  11. Hi Nate It is astonishing sometimes what triggers tics - points again to how individual reactions to various factors, and even treatments, can sometimes be. Was your daughter reactive to organic produce? We discovered that my son's later diagnosed Multiple Chemical Sensitivity (MCS) factored in to some of his reactivity/tic triggers.
  12. Hi MLee I agree that Cognitive Behavioural Therapy was very beneficial for my son in many respects, especially with vocal substitutes etc But some of the "mouth tics" can also be involuntary motor tics - which is a little harder to apply those principles of CBT to I think?
  13. Welcome to the forum Linda. My son used a mouth guard for a short while when he had some teeth grinding/snapping tics - but it was more to protect his teeth than to control the tics. Thankfully that form of tic didn't last long. There are some discussions on this forum from parents who have had success treating TMJ with specialized mouthpieces- and found it relieved some tics - but I don't know if that would be relevant to what you are asking about?
  14. Hi Jacke My son had to have some vaccines for a trip abroad when he was younger - but although I was concerned - his tics did not seem to be altered after the vaxx. However I know some parents have found any vaxx to be triggering, and I wonder if that may be due to the actual immune response rather than the vaxx per se. I say that as some people with tics (my son & dh included) seem to tic more when they are ill, and our physician once suggested the immune system ramping up could be the trigger? Just a thought to add to this discussion.
  15. I really don't want to engage in disagreements, as that just isn't why I am here. Nor am I now, or have I ever, tried to suggest magnesium is beneficial to everyone who tics. But when my son was suffering from severe tics many years ago, after horrible effects from the medications prescribed, I found Bonnie Grimaldi's hypothesis on magnesium and other nutrients helping to reduce (not "cure") TS tics. Her initial writings formed the basis for other research. It was life changing for my son! For me, the only result I needed was to see for myself just how beneficial it was for my son. And as I have stated many times, we always worked under supervision of a trusted health professional, and I used my own training to be diligent in checking things out carefully. I'll repeat too what I have said since the start of our TS journey - there are many different reasons that people tic, and many different ways that may help them to tic less. I had only mentioned the Tic Triggers book in hope it may be helpful. So I will just leave this discussion to avoid detracting from the benefits others may find, and wish you only good progress as you seek to help your child as well.
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