Chemar

die off varies from individual to individual but basically it ranges from nausea, brain fog, increased tics and other symptoms It is really a good idea to use a probiotic to keep the good bacteria up to help restore GIT health. We like kefir (by Lifeway) best as my son always reacted poorly to those high potency probiotic supps Drink lots of water. Epsom Salts baths help with the detox. We used special homeopathic remedies to help with the detox from die off along with acupuncture, chinese cupping, biofeedback etc Also Milk Thistle as a liver cleanser. Hot fresh lemon juice is excellent too.(1/2 lemon squeezed into cup of hot water)

Grapefruit seed extract is said to be a very effective anti-fungal and doesn't mess with the "good" gut bacteria which is a big plus! and it does other beneficial things too. Just be sure to stick to the recommended dose. It can interact with some medications http://www.rxlist.com/grapefruit-page3/supplements.htm

ps meant to also add the Wikipedia link about Nystatin for you http://en.wikipedia.org/wiki/Nystatin

I like the book "The Yeast Syndrome" by Walker & Trowbridge. Personally, I would never use Nystatin. It works by disrupting the fungal cell membranes to cause leakage of contents, so killing the fungus. Herxing seems to be greater due to this mechanism from what I have gathered. It is not non toxic as far as I am aware, and it does have potential side effects. Antibiotic drugs are produced the same way that it is so it is considered a drug, rather than a natural substance, and it has to be prescribed. http://www.drugs.com/cdi/nystatin.html http://en.wikipedia.org/wiki/Nystatin logismom, we initially used just magnesium capryllate and dietary modification which was very helpful, but it was not till we used candida clear that we finally got rid of the candida overgrowth. Now just using natural antimicrobials in diet (coconut oil, raw honey, garlic etc) has prevented further overgrowth.

Cara you should not be all worried because of my comments, but only reconsider because *you* have read and decided based on the info about the method of working of the drug and it's potential side effects. If you trust your doctor, and she feels it is safe for your child, then you should follow her advice. My posts were only to point out why many others here have decided against using it. As you had posted mentioning only "nausea" as a reason not to continue using it, I just wanted to be sure you had actually looked at the way it works and also at the rest of the potential side effects.

Did you read how Nystatin works? Also the other side effects? Nausea is not the only potential problem. Of course, you should do whatever you feel is best.

Hi My son was 11 when he first used Candida Clear and he was fine with it, but we did use it under supervision of his integrative doctor. As with all anti-fungals for candida, it is best used in combination with a good diet, designed to starve the candida "yeast" . We used The Yeast Syndrome book by Walker & Trowbridge as a dietary basis though we did not follow it in the exact phases they recommend. great recipes in the book as well as so much info on candida You should always be prepared for die off aka herxing as when the candida dies, it releases toxins which can exacerbate things for a bit. We minimzed die off by using detox remedies, epsom salts baths and excellent acupuncture, Chinese cupping and other detox aids.

A number of members here decided against Nystatin and instead opted for more natural anti-fungals for candida. Nystatin is a drug. It works by weakening the fungal cell membrane, allowing the cell contents to leak out, so killing the fungus. Not something I would want to do to an already compromised system! http://www.drugs.com/cdi/nystatin.html

found the study outline http://archpsyc.jamanetwork.com/article.aspx?articleid=1696348 and the PubMed abstract http://www.ncbi.nlm.nih.gov/pubmed/23760347

As the study was JAMA Psychiatry, plus given PsychCentral's longtime position at the forefront of online mental health sites, I really do hope this will get "mainstream" attention........hopefully not just by the media, but by the medical community too.

to read more please go to: http://psychcentral.com/news/2013/06/18/infections-linked-to-mood-disorders-like-depression-bipolar/56195.html

I don't know if I have mentioned this to you before but some people with TS tic more when they are on fish oil even though they do fine eating the types of fish that the oil comes from There really is no predictable course with TS...it varies from individual to individual. One thing is certain...you can never make the assumption that it will get worse and you can always have the hope that it will get better. Plus, especially in a child so young, tics frequently resolve mysteriously on their own

He may be having a chlorine reaction? or yes, it may be candida. You can rub coconut oil on candida rash as it has anti fungal properties Best he get out of those trunks and shower or better yet, epsom salts bath asap after swimming imho

if his tics increased with 5HTP I would discontinue it. Not everyone can handle it and it is pretty potent. Many people prefer inositol in young kids especially as it is a B vitamin and has a much gentler way of increasing serotonin If you do a search on methylation you will find quite a few threads on this forum too, though yes, the PANDAS parents have a lot of info on this, especially on the genetics/mutations that cause it.

Welcome to the forum I am just bumping your post up for replies.

Family history of tics and Tourette on hubby's side but mostly into the arts, no engineers or mathemeticians that I am aware of. Writers, artists, musicians primarily. Son's dad is pretty good with math but not mechanically minded at all! Lots of scientists on my side, but more the biological sciences, and quite a few medical doctors & researchers, as well as many in the arts and education fields.

I do just want to mention that where I agree that good nutrition is an essential component to maintaining health and healing disease.......this too is not the "magic cure" for all tic problems. We have had many posters pass through here who have tried all the nutritional suggestions (which btw go back years in multiple threads here) and where yes, many have found it a good thing for overall health, sometimes kids tic for other reasons, and so those issues do need to be dealt with primarily. And for some kids with genetic Tourette Syndrome, nomatter how perfect their diet and environment, some still have waxing phases of their tics. Personally, I do feel there is some inherent "trigger" that is just not identified yet...but still...we have had some posters become very despondent here when they were told that changing diet or adding supplements or whatever else has been helpful for others would help their child too...only to find it did not. So I always add a word of caution that not everyone responds the same way to the same treatment or modifications. Do I personally feel that nutritional changes are important?...most definitely.!!..in fact, I consider them essential, even if they don't bring THE fix on their own. My own son's dramatic improvement and transition from multiple supplements to obtaining most of what he needs from food has been documented here for years! But I know from experience that I cannot tell everyone else that this will work the same way it has for my son...only suggest they try it as imho cleaning up diet and environment is always a good thing, whether people have health problems or not

I just wanted to remind everyone that we have a Member Intros Forum now that some newbies are posting to...perhaps if you have time you could pop in there, say Hi and maybe guide them to this forum if that is relevant thanks here is the link http://www.latitudes.org/forums/index.php?showforum=21

No personal experience with this but you may want to search the generic name as well as the brands Tenex (most commonly used) and Intuniv(extended release form) I know there are past threads about Tenex here.

Welcome to the Forum I am just bumping your new post up for others to reply

Hi it seems you had posted this twice, so I have merged the threads to keep all the replies in one place. I just wanted to add that I concur that I would not accept a Bipolar dx in such a young child!

I just want to add here that although yes, many people may have allergy related tics, it is not the case for *everyone*. There are also many whose tics are related to TS genetics, with no allergies to anything, as well as the many other tic triggers discussed on this forum. So while I absolutely agree that one should always check for allergies as a possible tic trigger, it is not the "cure" for all who tic.

so glad it all went well.....if you do a search for pyroluria on this forum you will find quite a bit of info....good that the envirodoc was clued up on that! I know of a number of families with tics, misdx TS, who suffered with pyroluria. There are also past threads re mold (that is how it is spelled in the USA so search both mold and mould)

Hi Noting the improvement with the antibiotic and that the "bad behavior" is more bothersome than the tics....did you ever have testing done for infections? eg maybe the dx is PANDAS/PANS (PITANDS)

If your experience is anything like ours here, you will find it much easier to communicate with the enviro doc than the neuro. Don.t be surprised if the neuro negates any of the tic trigger discussion and calls supplements and other modifications for tics "quackery" and just gives a TS dx with offer of antipsychotic meds to treat the tics. Hopefully, you experience will be better....... Enviro docs tend to take a more holistic approach and are usually very aware and educated about how what we eat and the environment around us can impact our health. I would be sure to let the doc know any potential triggers you may have noticed. Hope all goes well