Jump to content
ACN Latitudes Forums
  • Announcements

    • Administrator

      Forum Community Guidelines

      Forum Community Guidelines

      Our forums provide support for people dealing with neurological and related issues. Everyone joining this community should find it a safe haven where they are treated with respect, civility, and understanding.

      Your agreement as a user: You agree that you will not use this forum to post or send messages that are knowingly false, inaccurate, abusive, vulgar, obscene, profane, or sexually oriented. Text should not be defamatory, harsh, accusatory, intimidating, slanderous, an invasive of a person's privacy, or violate any law. Doing so may lead to you being banned (and your service provider may be informed). The IP address of all posts is recorded to aid in enforcing these conditions. You agree that the webmaster, administrator, and moderators of this forum have the right to remove, edit, move, or close any topic at any time should they see fit. You agree not to post any copyrighted material unless the copyright is owned by you or by this forum/website. Advertisements, solicitations for services or business, most research requests, as well as any type of research on the content of these forums by third-parties, are prohibited. Unauthorized use or reproduction of posts on these forums is not allowed. Any user who feels that a posted message is objectionable is encouraged to contact an administrator.

      Announcements, media requests, and research requests

      These need administrative approval. Please send to an administrator before posting.

      Inappropriate content

      Members are here for support and education. Check the list below for types of posts that are not allowed: Advertisements Flames or messages meant to intimidate, criticize, or harass others Threatening or obscene messages Messages discussing a private message (PM) from others Copyrighted materials that you do not own the rights to, except educational or research articles Messages containing or condoning illegal acts; also messages of suicidal intent Direct discussion of politics (please avoid) Specific or strong religious views Requests for donations for other organizations unless approved by administrator Solicitation of members for research, media projects or other projects, without prior administrative approval About links for other websites:

      You may have links in your profile as long as they do not violate our guidelines (above). Links within a post to online resources and articles are generally OK. Do not post links to other forum communities with the aim of soliciting other members to that community, thereby taking them away from this community.

      When a guideline is violated

      If you violate a guideline, you will be contacted by PM or email. We will try to resolve things amicably. We don’t like to ban members and rarely do, but this is an option.

      Updated March 19, 2010
    • Administrator

      Disclaimer and Privacy Policy


      The ACN Online Discussion Boards are intended to provide helpful information and allow sharing of ideas. Postings should not be considered as medical advice. All users should consult with their healthcare professional for questions or medical decisions.

      Users must accept full responsibility for using the information on this site and agree that ACN, Latitudes.org, advisory staff or others associated with the site are not responsible or liable for any claim, loss, or damage resulting from its use. Please remember that we do not actively monitor all posted messages and cannot be responsible for the content within. We can also not guarantee that access to the site will be error-free or virus-free.

      Reproducing any document in whole or in part is prohibited unless prior written consent is obtained. Web pages may be shared when passed on with the URL.

      Information posted on the Forum is done so voluntarily and will be accessible to the public. The material posted may be used by ACN (without the identity of the user) for publications or educational purposes. No compensation will be provided for the use of this material.

      Note: ACN is providing this service with the expectation that users will abide by the guidelines provided. We reserve the right to monitor postings and remove or refuse inappropriate and questionable material, as well as remove dated postings at our discretion, for any reason.

      Privacy Policy

      When you register with the Forum, you need only give your email address, which is available only to the Adminstrators and will not be shared on the Forum site or with others in any format. Forum users will see only the user name you choose to provide.

      Our web server collects and saves default information logged by World Wide Web server software. Our logs contain the date and time, originating IP address and domain name (the unique address assigned to your internet service provider's computer that connects to the internet), object requested, and completion status of the request. We use these logs to help improve our service by evaluating the "traffic" to our site in terms of number of unique visitors, level of demand, most popular page requests, and types of errors.

      You have the option of enabling to save your username and password data when you are accessing interactive parts of our websites, to allow your web browser to "remember" who you are and assist you by "logging on" without you having to type your username and password repeatedly. This is known as a cookie and it can be enabled or disabled in your control panel. Cookies are small files stored on your computer's hard drive that are used to track personal information.

      Except for authorized legal investigations, we will not share any information we receive with any outside parties.

      Updated March 19, 2010


  • Content count

  • Joined

  • Last visited

  • Days Won


qannie47 last won the day on May 6 2017

qannie47 had the most liked content!

1 Follower

About qannie47

  • Rank
    Advanced Member

Profile Information

  • Gender

Recent Profile Visitors

496 profile views
  1. Ibuprofen alternative?

    New chapter turmeric force..2 a day. Don't buy cheap stuff
  2. Maybe PANDAS??

    Your 5 year old sounds very similar to my son whom was dx with Pandas at age 6. I would find a Panda's doctor. Some advice: Do not take him off the abx until he is symptom free of behavioral issues. This could take several weeks. There is a high co morbidity between Pandas and ADHD. My son is doing well for a handful of years now. He does have ADHD. Recently I have decided to put him on Vayarin; an Omega 3 type supplement that is shown to help with emotional control that is typical with ADHD. Even if your son does not have ADHD, I am thinking this could support the anger/rage issues that you are seeing. Hope this helps.
  3. Months ago I shared that food allergy treatment was our final piece to the puzzle in getting rid of symptoms that seemed to have no explanation. It seems to have held as well. Last October though, my perfectly healthy 100% free Pandas child of many months flared from a tetanus immunization shot. A flare could not have been further from my mind, and I did not even recognize it right away. We started ABX (an increase from his prophylactic dose) without any great results. I started advil 2x a day and that did the trick. For the most part he has been back to 100% again with very minimal wax/waning. He came down with a cold 5 days ago and sure enough....there were the symptoms...I was smart enough to start the advil 2x a day and this approach seems to have nipped it in the bud and also prevented further escalation of symptoms. I still believe that the October flare still has a little hold on him. An off day/half day here and there. Thinking that those dam antibodies will just need some time to completely leave his brain....Otherwise he is in good shape and holding.
  4. If active infection..abx important. However, I have come to believe that advil works best due to it's anti-imflammatory properties.
  5. We did many things to help my child with Pandas. ABX, IVIG, supplements...all helped. Figuring out that an autoimmune was also playing a role in flares was in my opinion the last piece of the puzzle. Yes...an auto-immune diet would be very helpful.. Food allergies also can play a big role. Eliminating these can be very helpful but also very difficult to avoid...as their are trace amounts in many foods. We did food allergy treatment and that helped with that...see my other posts.
  6. Hmmm. I don't find myself saying this often, but your case sounds about as straight forward a case of Pandas as it can get. If I remember correctly, ear infections can be caused by strep bacteria. I do not think this most recent set of symptoms that started in september is the first episode either. Dr. K theorizes that Pandas is a slow building storm, with minor clues that don't catch a parents radar (like the 3 week hand washing episode..but then it goes away). Think back to any weird quirky behavior, that was Atypical, maybe lasted even only a few days, but then went away. Dr. K's research shows that there often seems to be that BIG Explosive episode right around ages 5-7. Also, once the first Dominoe is tipped over with Pandas, you do not have to have strep to trip off future flares...because the Immune System is now broken somewhat and is producing "misguided" antibodies whenever it is turned on.
  7. When my child was diagnosed with PANDAS 4 1/2 years ago, Standford seemed to be one of the only institutions that was studying it in a pretty big way. I would have to assume that they could be several steps ahead of many with understanding this convoluted disorder and treating it. Best of luck!
  8. a message of hope

    Thank you so much for sharing. It encapsulates the journey of so many on this forum. What I love best is your message that reminds us parents to embrace the better moments....and Acceptance. What has kept me most sane and hopeful is the knowledge that most people carry a cross of some kind. We are not unique. I draw strength from that. Continued Blessings, Q
  9. Here is a link of testimonials.....there are tons http://www.midwestallergyrelief.com/testimonials.htm
  10. The Therapy is called AAT Therapy here is the link Allergy Video for PC <https://www.hightail...CbEFubHk5TE5Vag> AAT Video for Mac <https://www.hightail...CbEF6RTgxWjhUQw> If anybody is unable to view the videos, you can call Midwest Allergy Relief (847) 392-7901 Ask for Beverly, she is Dr. Ian Wahl's wife and office manager. She will resend the video. P.s Technology has advanced in this treatment...instead of applying the broken down components of each elements on the skin during treatment, they apply a cuff that is connected to a computer that sends the components directly into the body during treatment. Weird I know. You have to download before viewing. Boysrlove: The very reason I did this was because my Pandas son on a cleaned up diet would periodically have an off day or 2 nothing big but would disrupt his day. My thoughts were the same as yours; that hidden allergies were causing Panda symptoms. Not major flares, but enough to to claim my attention. Since finishing treatment mid July, he has not had any off days. I truly believe that I was right. In his case it was Food coloring that was one of the hidden culprits. He was also treated for everything that came under their "Mood Panel", so there could have been many other allergens that were tripping him off. I figured if I was going to do this, I would go the whole 9 yards..... It was a total of 25 treatments. His non-Pandas brother had about 16 I think.....
  11. Update: My Pandas DS has so far made it thru the first 5 weeks of school with absolutely zero Pandas symptoms. A FIRST. Since ds has been lucky to have responded to past IVIG's (2) and has done well, my hopes were that the hidden antagonists (not quite full blown flares, but more like minor bumps in the road that lasted anywhere from a couple of hours to maybe 2-3 days), was the food/inflammation. I am now convinced that the food allergies were the culprit. He has received perfect behavior scores at school for 5 weeks straight. His ability to self regulate for very age appropriate/typical 5th grade behaviors is nothing short of miraculous. Teacher reports NO mood shifts at all..... Just wanted to share. I hope that our experience can help others....
  12. The online game is called Plants vs Zombies (7 yr olds love it). Ha! The Pandas "take-a-way" for me is that after dealing with that special form of Crazy....it takes a lot to phase me at this point.
  13. Allergies

    This season was a tough allergy season for the entire household. Even my husband was affected, he he never has had issues. My kids have been complaining all summer about sudden headaches, dizzy, stomach/nausea only when driving. You may have seen my recent thread about allergy treatment, but it was for food only, did not treat mold, etc.... My thought are that since seasonal allergies mess with sinus channels it has to effect the inner ear in some way. Which would make sense with the symptoms they report. When the car stops and they are out of the car, the symptoms clear immediately. Food allergies can produce the same issues, since they can cause congestion..... I have my kids do the netti-pod. It works very well. Kids have a tendency not to blow their noses completely and clear out everything. They sniff and sniff, which just backs up those sinus canals, hence, aggravating the inner ear. The netti-pod clears it all out.....twice daily.
  14. I am not sure if I am remembering correctly, but I thought Sheila posted something about 6-9 months ago regarding a new patch that appeared to be very effective with tics..... The company was offering a free trial with the patch?
  15. midwestallergyrelief.com/ You can call Beverly and she will send the video link directly to your email. mama2alex: Yes and No. Some things are straight forward, like food coloring. Others more complicated like Gluten/Wheat : it's a panel of treatments that would include everything that a piece of bread might contain... Once done with a group/Gluten, yes...you can tell if it worked right away. Wisdom: Midwest Allergy Relief Center, Dr. Ian Wahl . Yes, can work for mold. In fact, just asked him about that for myself cause my allergies with mold are terrible. When I save up some money I am going for it. What is amazing to me is my second son, just completed treatment. His biggies were Dairy/Wheat. Horrible stomach ache and constipation once he ate any...then came the mood shifts. No stomach aches, constipation, or mood changes. He has been eating everything all week.... Still shaking my head but converted into a believer.