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LymeGreenPanda

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  1. Found this old thread shows up on first page of Google search results of a couple key words, so figured it should be updated: Due to a head-on car crash shortly after this thread (100% on other driver) I've had to focus on other things. A couple years of P.T. and continued effort and my injuries are no longer as significant, though still permanent. Digestion went south again, so that was only a short reprieve after surgery, then in November 2015 collapsed and have been on a liquid diet since (milk, milk components, cranberry juice alternately - not much else). Since found I can dige
  2. That is a reasonal position to take based on the information that I've given. I do have significant anxiety, but (to follow your logic) it took over two weeks from the surgery to get the Pathology report yet my diarrhea began clearing up immediately after the surgery, when I did not yet know the results. The stool change since the surgery has been surprising; well beyond any change in anxiety. Put another way, my anxiety varies, but my stool does not follow the same schedule. I've only been regular for a while after each cleanse with Colyte; prescribed a few times before and since a col
  3. Nothing makes sense. I'm sure someone reading this thread without a similar background would think I'm a hypochondriac! I searched the whole 'net for any association between Lyme and lipoma and while I did find some discussion, I found nothing conclusive. Here's an update, not that it makes any sense to me: * I went to see the surgeon as described, and his 'blind' response was to just remove it due to its size and potential recent growth. No testing done. * a few weeks ago I had the surgery. The anesthesiologist was great. I gave him a page describing the previous time I went under,
  4. I really appreciate the replies! I don't recall the dose, but I was on high dose Valtex for maybe six months ~ year 2000, just before/after Biaxin in a similar course. It really messed with my head, which I don't think was the drug but Herheimer's reaction to the drug killing off something. Modified Paleo without GMO is a goal, but it is extremely difficult to implement living alone. Just taking care of myself and ADL (activities of daily living) is difficult enough. Without the chronic encephalitis (and whichever of my symptoms go with it) I'd be out of this fog, which would be an inc
  5. Thanks for replying, but that's all Greek to me! Actually, Babesia Microti was positive (present) before heavy antibiotics (not the names you described) and negative while on them, and I learn a new set of results on Tuesday from IGeneX tests a couple weeks ago. Ehrlichia Chaffeensis IgG (not IgM) is present, along with Borrelia Burgdorferi Plasmid, HHV4, HHV6, a few others and a partridge in a pear tree! My liver was severely taxed by Metrinidozole, and I took Zithromax, Mepron, and quite a few others. I certainly haven't taken every chemical nor do I want to. Drugs and operations
  6. I think they do these things Monday. Someone else mentioned a test introducing something into my blood so they can see the bloodflow into or around it. No tests done to date. They may also want to biopsy it. However, some time ago I read that if the lump is "a waste deposit" from Lyme, it should not be punctured (biopsied) but merely removed so it doesn't leak into my body. Alternatively, can they "liposuction" the thing, even if it is a fluid reservoir?
  7. I guess this is as reasonable place as any to ask this... (may as well be in context of my situation) A lot of things are getting out of whack, too much to list here and confuse the issue. Point being that things keep changing. Nothing stays stable. My body is developing antibodies to a bunch of parts of myself! Monday a surgeon is going to look at the lump on my left arm (mentioned early in this thread, larger than a chicken egg), which may be growing again (someone else suggested it is, I'm not sure). This brings up a few questions: 1. What is this thing, assuming it is related to
  8. One thing puzzles me, forgive me if it is addresses elsewhere... Many people here have difficulty from a very early age (I was told that I was really late speaking, but made up for lost time (ADHD) when I did). While tick bites were a very real part of my childhood, from as early as age 4 when I first moved to the Ozarks, then Tennessee, then Mississippi Delta, then the Ozarks again; how likely is it that a tick bite is relevant to all these cases of being Lyme positive? In other words, could Babesia, Bartonella, Borrellia, and/or Elrhichia be false positives for something else (from boost
  9. iGeneX came out positive, as did a couple Quest tests: Borrelia, Babesia, Elrhichia, anti-DNase B AB strong positive five times 2000-2013, ASO negative, Mycoplasma Pneumonia positive twice (IgG), HHV4 strong positive repeatedly (with CFIDS & Fibro), HHV6 IgG positive, TPO strong positive, hormones out of whack. What does that add up to? I have no idea! My neurological difficulties have always been mild compared to most of the children described who's parents are on this forum. I don't "want to believe" anything; just follow the evidence as best I can. I can't donate $1K for Cunning
  10. Wow, information overload... it's hard to know where to begin... Yeah, I am my own doctor. Or rather, I have one that is completely open to tests and (within limits) changes in meds; a second doctor that is treating me as if I am a brand new Lyme patient (wink, wink, nod, nod - he isn't allowed to treat late-stage, chronic, or post-lyme which per the CDC don't exist) and for hormone imbalances, and a third specialist who weighs in on results and suggests changes to my protocol. I've seen many practicing doctors (few that have had enough practice to know what they are doing) over the years,
  11. I posted this on the Members Introduction page, and Chemar suggested reposting it here... Interesting forum, as you specify Lyme and PANDAS. Per repeated blood work over the last decade I have both from childhood. I'm a 45 year old man, permanently disabled (so they say for 14 years), and have been on a hard-core course for Lyme for the last year. Things are looking up. First, PANDAS: (Pediatric?) Diagosed with PANDAS (along with TLD, chronic encephalitis unknown type, Asperger's, CFIDS, and many merely-descriptive diagnoses - over the course of a year at about age 30). Ask my ps
  12. Interesting forum, as you specify Lyme and PANDAS. Per repeated blood work over the last decade I have both from childhood. I'm a 45 year old man, permanently disabled (so they say for 14 years), and have been on a hard-core course for Lyme for the last year. Things are looking up. First, PANDAS: (Pediatric?) Diagosed with PANDAS (along with TLD, chronic encephalitis unknown type, Asperger's, CFIDS, and many merely-descriptive diagnoses - over the course of a year at about age 30). Ask my psychiatrist, he'll tell you I have all of them. Ask another doctor, he'll say he only knows ab
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