filinha1

Hi All, I have a friend looking for recommendations for a PANDAS-friendly pediatrician in the Westchester NY area. She has an appt. with Dr. B which is not until October and can't find anyone to give her abx until then. Or, if anyone can recommend a different doc who will likely see her child before October, that information would be welcome. She's willing to travel but has four children, one of whom is an infant, so her preference would be to find someone more local first if possible. Thanks, Heather

I believe that as a NP she specialized in pediatrics and she works part-time at a pediatrician's office, but she treats both kids and adults for Lyme.

Hi, My daughter is being treated by Kayleen and we like her very much. Feel free to pm me if you have specific questions. Heather

I just pm'd you.

Anyone know of a PANS-friendly pediatrician in the Baltimore / Annapolis area?

It definitely counts as one of the coolest jobs ever!

Wishing your son and your family the very best for this surgery and a speedy recovery.

From this short news clip it certainly sounds like Tyler has PANDAS, poor kid. Regardless of what else other than PANDAS may or may not have been going on with Tyler, I'm not going to keep my daughter's diagnosis any more private than I currently do. I'm not too keen on dd herself finding out about this story for her own sake - she is only 11 and has enough self-doubt and anxiety as it is. We homeschool her, so we don't have the pressure of worrying what other kids might say or that school personnel might put her under a microscope for strange behavior. I do sympathize with those concerns.

Husband's undergrad is systems engineering - are we going to get your thoughts on the results?

Great suggestion. Paying it forward in time, money or both for more research is often the only control we have when it comes to this illness.

Agreed, lot's of money would be saved, but probably only in the case of the smaller percentage of people who swim upstream. I think insurance companies count on most people choosing the path of least resistance when dealing with any illness whose presentation has a significant psychiatric presentation - psychotropic medication. This is also the least expensive for them as those pathways - psychiatrists and drug company pricing - have been well established. Adding the insurance piece to any complicated disorder is crazy-making. Our insurance will only pay for the first visit with any

Agreed, lot's of money would be saved, but probably only in the case of the smaller percentage of people who swim upstream. I think insurance companies count on most people choosing the path of least resistance when dealing with any illness whose presentation has a significant psychiatric presentation - psychotropic medication. This is also the least expensive for them as those pathways - psychiatrists and drug company pricing - have been well established. Adding the insurance piece to any complicated disorder is crazy-making. Our insurance will only pay for the first visit with any

Kara, I just tried to pm you to say hi, but your box is full. Heather

Interesting. I find it hard to place a lot of blame squarely in the lap of a researcher like Steere; he may be guilty of being incorrect in his conclusions and may not be asking all the right questions in the first place, that much is true. But Steere clearly isn't a dummy and likely isn't an uncaring monster. When there is equally compelling science that contradicts research like Steere's, I blame our insurance companies for adhering to the views of the side that costs them less. After all there are two diametrically opposing viewpoints in the medical establishment - not the mainstream and s

Yes, thanks! Good read and pass-on-worthy for relatives who still don't quite get it, i.e. "If it's 'real' then why is there still a controversy?"