Chemar

PS I also learned a lot from Peter Breggin's book "Your Drug May Be Your Problem" and other of his writings https://breggin.com/your-drug-may-be-your-problem/

Hi LATT1 The withdrawal period, and severity, of coming off a medication depends on the type of med itself, along with the length of use. We were advised to titrate down very slowly, so from full dose to 3/4 , to 1/2, to 1/4.... then half that, quarter that till off. It was suggested to have at least a week between titrating down doses. We did this under physician guidance, with great care and it still took over 6 months till we felt my son was "back". During withdrawal we relied on acupuncture, resonance biofeedback, Chinese cupping and other natural detox remedies. It wasn't easy, but oh the relief when we had him off those horrid meds that were doing more harm than good!

Sunflower, there is info re vaccines and tics on the Latitudes homepage, but it's primarily related to the thimerosal containing vaccines https://latitudes.org/vaccine-research-thimerosal-tics/ I hope things are a bit better there. Have you seen the neurologist yet? Hopefully they will be an open minded one, which sadly is the exception not the norm. But there are some really clued up excellent ones, so I hope that will be your experience! 🙂

OK I have put these on your own thread for you, which should make it easier to follow, and for you to get more responses too.

Neat = undiluted "Many drops" is way too much imo My son has never had a problem talking about his TS. We didn't realize that my husband, and his own father had it till my son was diagnosed. That was when the tics that ran in their family became understandable. They had been told they had "nervous habits" all their lives. Cristo-Krista, it's fine to keep discussing essential oils on this thread if you still have questions about those. That keeps this thread on topic.🙂 However, for any other questions, it would be best to ask on the thread now dedicated to your questions where I moved those other posts too as requested. Here's the link to it: https://latitudes.org/forums/topic/25718-tics-after-neck-injury-antibiotics/

If he is reactive to probiotics, best just stay away from them or maybe try them in fermented foods if he likes that? It really sounds like perhaps the antibiotics have done a number on his system and left him hypersensitive. I would consult the physician who has been treating his neck injury regarding the NUCCA or Atlas Orthagonal as it depends on what was injured in his neck as to what treatment is most beneficial. I am wondering if perhaps you would mind if I split your posts off here onto a separate thread, so that we can keep this thread for Sunflower's questions ?

Just do remember that Essential Oils are concentrated and not all brands can be applied to the skin without use of a carrier oil. When used neat, one drop is totally enough! and even then it depends on the individual. Some people cannot tolerate all oils. ie they will react ok with one and very negatively with another. My son has always been that way. Just because something is natural doesn't always mean it doesn't have a potential for reactivity. We learned that the hard way and with much trial and error. It's the same with supplements....they are excellent and beneficial - but different people have different reactions.

Have you done any probiotic treatment? Or tested for Candida albicans "yeast" overgrowth in the gut? I am not suggesting it will fully resolve your son's tics, but when we take antibiotics, they kill off all the "good" bacteria too and that can often create a favorable environment for Candida, which does cause tics in some people. Also, have you had your child evaluated by a NUCCA or Atlas Orthogonal chiro since the neck injury. They specialize in neck injuries and I do know of tics that have resolved after readjustment. Please note these are not regular chiros but highly specialized for cervical vertabrae readjustment of the neck.

Hi I think perhaps you are referring to B12 not B6? For B12 the methyl form is better than the cyano form

Hi Sunflower78 So sorry to hear of what you are going through. As a mom who was in that same state of anguish almost 20 years ago, I absolutely understand. But I so agree with Sheila that you should not blame yourself. There are so many possible causative factors that can trigger tics. We can beat ourselves up, or we can focus on trying to find the best ways to make things better. It was thanks to Sheila and this forum that I was able to follow the latter course, and thankfully things started to improve for my son. In our case, my son does have a genetic TS component, but even so, many things we learned here made such a difference in helping to manage his tics. I do think your pediatrician may be way too quick to say Tourettes! Unfortunately many mainstream physicians really are not keeping up with so much info that is around about other possible tic triggers. I am at work so I can only do a quick reply now, but I would greatly encourage you to just start reading up on as much info here as possible and also on the main ACN/Latitudes website https://latitudes.org/ Sheila's books and articles have been a tremendous help to so many as well!

We found the best B6 to use was the activated P-5-P form. European Union countries outlawed the food dyes and other dangerous additives a while back! Shocks me that this country hasn't especially as natural food dyes do the job well without the danger! (eg beets, blueberries etc.) M&Ms in England have these natural colourings so there is no real reason imo that they can;t use them here too!

Yes, chlorine was a major tic trigger for my son! Even though it didn't show in his list of actual allergies, more detailed testing showed he was very very sensitive to it, as to many other chemicals. Later testing confirmed he has MCS (Multiple Chemical Sensitivity) which is why both environmental and food additive chemicals impact him so intensely, including chemical perfumed/fragranced items etc I found some excellent online resources over the years to make my own household products, and always select fragrance free/dye free options for laundry, toiletries etc and of course no artificial food dyes or other artificial food additives.

Hi So sorry you are dealing with all this concern and uncertainty! I have always felt the so called criteria given may be far too rigid, especially as it seems there are many possible reasons for tics apart from TS, or transient & chronic tics. Here's an informative article on our website that helps to give a better overview: What Is Tourette Syndrome Many parents here have found that often some form of allergic reaction is causing their child to tic...either food or environmental, so it certainly is worth exploring if there are any allergies or sensitivities. There are also numerous known "triggers" for tics that parents have been noting for years. Our admin, Sheila Rogers, has written a very informative book on this https://latitudes.org/store/tourette-syndrome-triggers-book/ and also a more general one on Tics & Tourette https://latitudes.org/store/natural-treatments-for-tics-and-tourette-syndrome-book/ I am doing a quick reply to you from work so hope you will get more responses soon.

Hi Martin It does sound like something is triggering these reactions you are having. The fact that your Dad has had tics since childhood means you may have a genetic predisposition. Can you recall possibly having any form of illness or infection before all this started so suddenly? I know you mentioned moving to the UK, so obviously there would have been many changes in environment, diet etc...all of which can be triggers. Sheila has written a very helpful book on tic triggers https://latitudes.org/store/tourette-syndrome-triggers-book/

Hi Martin My son found it was much improved when he used a daylight lamp to watch TV, play video games etc. rather than a darkened room. The degree of "flash" coming from the screen seemed to impact.his tics most. Going to the cinema was worst in triggering his tics. Most modern TVs and computer monitors seem improved, being digital rather than analog Blue light blocking glasses can also be helpful for mobile devices and computer screens If you do a search here for "screens and tics" it should bring up a lot of info that others have experienced.

Hi mlee The yeast imbalance referred to is an overgrowth of Candida albicans ie candidiasis There are various ways of testing for candidiasis, from the non-scientific but interesting home "spit" test I see other "home tests" advertised on Amazon etc as well Blood, stool & urine testing can be ordered by a physician for the greatest accuracy. There are many websites with information & recommendations regarding Candidiasis. Just be aware, many are touting products as well which may or may not be effective! Here's one with good info (again check with your physician before just buying products that claim to "cure" ) How to Test for and Treat Candida Naturally

Here is the archived webinar for anyone interested who could not attend https://njcts.org/tourette-syndrome-help-control-your-tics-by-learning-what-triggers-them/

Just a reminder of the FREE Webinar tomorrow (April 17th 2019) 7:30-8:30PM USA Eastern time, with our own Sheila Rogers discussing: Tourette Syndrome: Help Control Your Tics by Learning What Triggers Them Hosted by the New Jersey Center for Tourette Syndrome Here's the link to register for the webinar https://register.gotowebinar.com/register/2536890380098133249

Hi Ashly Sorry no replies yet. My son's multi has always had some coQ10 in it, both when he was a child and now as an adult. But as he didn't take it as a separate supplement for anything specific, I can't answer your question directly, other than to say I know it is a very helpful supplement in general. How is it going on the CoQ10 for son?

Hi there I just wanted to welcome you to the forum tho sorry for your child's struggles. Hopefully parents more knowledgeable than me re PANS/PANDAS will soon reply, but my understanding is that Tourette Syndrome and PANDAS are not mutually exclusive, and that yes, some kids are dx TS when in fact it is PANS

Hi starfish Sorry to hear of the setback, and do hope you find more answers, as well as that your son's system will stabilize again soon. I remember only too well how awful it was when the tics flared for my son after exposure to the yuck stuff! Once we learned that he had MCS (Multiple Chemical Sensitivity, diagnosed by an Allergist who ran excellent tests) he really understood why I was being so strict about the artificial stuff in food, as well as environment (one of his biggest triggers is perfume and regular household chemicals etc) Best to you

My son was never on clonidine but my husband, who also has TS, was given it for high blood pressure and it not only made his OCD much much worse, it made him a bit psychotic! Coming off it stopped those alarming symptoms. I know some people seem to tolerate it, but not my 2 TS family members

Hi there. Yes, I do think it would be a good idea to discuss this with your therapist as it may give insight and also be helpful for future therapy. And yes, having a major tic release after suppressing them at school or work etc is well known. It's important to have that release. Please don't think you are dumb and annoying! In fact, most people who have Tourette Syndrome are actually very bright and talented, they just often learn differently and need to find ways to cope with the symptoms. Here is some helpful info for you on our main website. https://latitudes.org/conditions/what-is-tourette-syndrome/ Do ask questions here and we can try to help as best possible. To encourage you, my son is almost 30 now and was diagnosed with TS when 10, and he has a great job, also loves playing guitar and writing songs and other good stuff. Explore your talents and things you enjoy! It really makes a difference in how you feel about yourself and life.

Hi mlee Just FYI that this thread is from 11 years ago, in case you don't hear back.

Hi joe_doc If you do a search on the forum you get assorted posts on Clerodendrum inerme, including more on where to find it https://latitudes.org/forums/search/?q=Clerodendrum