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Sunflower78

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Sunflower78 last won the day on August 16 2019

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  1. Thank you guys for responding!!! Daniel is doing so much better than when all this started. I did some detoxing, a bit of diet change and added many supplements I saw mentioned on here. He is down to only one tic ( throat clearing) and does that only a few times a day. Nobody would ever guess he is ticcing unless they know I am so grateful for the amount of support and information on here. I know I am not alone.
  2. I'm sorry my answer was so short. I was trying to put my baby to sleep. I can't believe antibiotics gave your baby tics! Isn't it a horrible feeling, we both thought we were doing something right by our kids and it possibly hurt them. There is a lot of speculation on gut health tic connection out there, it's worth looking into. I just want my boy to be back to his self😭😭😭
  3. Soo. I don't know what to think. I guess it was positive. The doctor we saw is a director of movement disorders at neurology department of National Children's hospital in DC and has 41 years of experience. I guess he's seen it all. He did neuro exam, said my baby is perfectly healthy. Said his tics are a 2 out of 10. He sees this every day all day. Said the next few weeks will be most interesting as they could start winding down and taper off. Said he didn't have a crystal ball and every child is different. But 15 percent of kids have tics. Said transient can definitely be both vocal and motor. Also mentioned they could go away and then rear it's ugly head in puberty. But at the end said 80 percent of kids with tics do not have them at age 18, which should be encouraging. I have a blood order for chemistry, cbc, thyroid and some other stuff. He said wait and watch approach is a way to go and would not medicate my baby( good) unless tics are very bothersome to HIM Said magnesium supplements are a good idea.
  4. Yes, all the info I could find is on thimerosal. I always declined flu shots . He never had one. He had a good day today, fishing and playing. I'm still a mess, but at least I sleep better now. Our neuro appointment is on Thursday. I agree, from what I read on here, many neurologists are not so good and push meds right away. I made appointments with 3 different pedi neuros at 3 different places.( husband thinks overkill, but at least I feel like I am doing all I can to find the best one). I will let you guys know, what he says. Thank you so much for checking on us!!! ❤
  5. Thank you both for your kind words. This feels so lonely. We have a neuro appointment on 15th, but who knows what they tell us. It seems nobody really knows much about tics and first advice is wait and watch. Sigh. I am taking him to the zoo today to try and forget for a while. I bought the book already!
  6. Hello all. I have a beautiful soon to be 5 year old boy. He has always been perfectly healthy. Breastfed till 26 months, fed all organic. We use green cleaning products and body products. No soda ever, no corn syrup, no artificial dyes etc. I postponed his mmr and chicken pox vaccine as long as I could. Finally gave him mmr in March and pox in April. Then I ran titers. Had to revax in June for school. He started blinking eyes 3 weeks ago, followed by constant sniffling without a cold, then humming and sometimes teeth grinding. It happens when he turns over in his sleep also sometimes. He doesn't seem bothered at all and keeps playing and being happy. But, he is different. I am devastated. I feel that one thing I did ruined his life. How can I live with this. I haven't slept in 3 days and can't eat. The guilt is killing me. Pediatrician said no way it was vaccines and might be tourettes. Is tourettes diagnosed this quick???We have neurology referral. We had a pretty exciting but stressful summer, travelling, with time changes and flights and daily activities. My question is. Anyone had a baby with multiple tics like mine and it was transient and went away? I bought lavender essential oil and Epsom salt for baths, multivitamins, made elderberry syrup, magnesium gummies and fish oil for kids. I feel helpless and cry all the time.
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