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Found 24 results

  1. Hello - I 'm new and reading Natural Treatments for Ts & Ts. I am finally finding people whose experiences are like ours. My 12 yo has terrible tics. I believe meds are making them worse. Can anyone tell me how long the washout period is and what might help the demonic behaviors that go along with it? I realize I need to find some allergic / food triggers first before I try to convince the dr. Thank you.
  2. Hi everyone I have been reading the posts here for almost a year now, which has been so helpful in many different ways. I finally found the courage to post and share our story. I will really appreciate the input of those who have had similar experiences. I have a 5-year-old daughter who developed tics around May 2018. Prior to that, I do not remember her having any tics, compulsions or repeated behavior of any sort. I will try to keep it brief. She had chickenpox in April 2018. Looking back, she started facial grimacing, touching cars, getting upset because she had to be the o
  3. We recently had an OAT and IgG tests run for my 6 year old son who has Tourette’s (and OCD / Anxiety). OAT results showed elevated Arabinose, Lactic and Hydroxyhippuric. It also showed extremely low Ascorbic (vit C). The IgG test showed high sensitivity to Wheat. Wheat Gluten, Gliadin and Whey. With moderate sensitivity to Cassein, Cheese and cow’s milk. I would be really interested to hear if anyone who has done similar tests / had similar results and what you have done since them. I’ve not been able to find anyone in the UK who has much background in Toure
  4. lulu648

    Touretic OCD

    Has anyone out there heard of Tourettic OCD? I just heard the term today for the first time. Any info appreciated! Thanks!
  5. Hi! I'm so, so happy that I found this forum. Just picked up the Natural Treatment for Tics & Tourettes book a few days ago and I'm so glad I did. I am the mother of a 15 month girl, and absolutely frightened because she is exhibiting multiple motor tics. This all started on January 29th, the same day she learned to walk. I was video taping her to show my folks that she was eating with her fork and noticed she did a few odd head jerks. I caught it on video and showed my parents and husband that day but all anyone was focused on was the amazing miracle of our little one walking o
  6. Hello to all of the incredible parents and caregivers on this forum. I am new here and found this forum through extensive google searches, which always brought me back here and to several of you who have posted extremely helpful information. I cannot than you enough for sharing your stories. My 5.5 YO son has TS, vocal and motor tics for a year. We have followed similar diets (GF/DF/Nut Free) to many of you here and he also has severe tree nut allergies with anaphylaxis, which seems to be a common thread with TS kids (allergies/OCD/ADHD). We've been on a quest for the past year to fi
  7. Hi everyone and anyone My 5 year old son has been experiencing both verbal and motor tics on and off for 1.5 years. Each time, just as they peaked, they quickly went away. However a new "episode" started 1 month ago and the tics have been more frequent and more aggressive. We have seen neurologists and had basic allergies tested (he has anaphylactic allergies to ALL nuts and seeds). We are desperate to find an environmental physician or any expert who can help us find possible causes and triggers, anyone more learned than me. I have spent days and weeks reading everything i can find on th
  8. Hi, I posted in the Tourette Forum but haven't heard anything. DS17 has PANS and an underlying TS dx (we think). Tics more or less controlled w/PANS treatment and 2 IViGs, but has remaining loud yelling tic (screaming one or two words, sometimes coprolalia). We are wearing earplugs. Do we just live with this, or is there something else to try?? He's already been on almost every psych. med, still on some, also on Functional Medicine regime for PANS with enough supplemnts to choke a horse. Has CBT therapist. -Has not tried L-carnitine or taurine, which I saw mentio
  9. My son is 14 and we have not had much success with any protocol, keeping in mind he has been reluctant to participate in almost everything. I have been in touch with Dr Mary of Marys Herbs concerning her OCD protocol that pertains to thinning myelin sheath. I am looking for parents that have used her protocols to share their stores and effects the treatment has had. Thank you!
  10. My six-year-old has been blinking his eyes on and off since he was two. Of late, he started stretching his neck, blinking from what was once in a while to every two seconds, and grimacing with his right eye and cheek. Except from this strange throat clearing thing he only does as he wakes up and goes to sleep, he doesn't have any verbal tics. We have him off gluten, artificial sweeteners/colors, and have drastically reduced his TV-watching time for one week so far. We've noticed a bit of improvement but his tics seemed to have spiked up as of yesterday. We want to run the tests that Natural Tr
  11. Hi, I'm glad I found this forum, seems like a very resourceful forum, so I'm hoping that I can get my questions answered. A bit about myself - I'm a 39 year-old male, diagnosed with TS around 7-8 years old. I have taken meds like haldol and catapress (sp?) and both turned me into a vegetable, as I kept falling asleep, and couldn't focus too well. Since about 11, I stopped taking meds altogether, and my symptoms have been a bit of roller coaster ever since. My main symptoms are facial tics, muscle tensing in the neck and shoulders, forced breathing, and repeating words and/or action
  12. Hello, I'm writing on behalf of my friend whose son 11yo has severe tourette's and ADHD. He's been on all kinds of medication, vitamins and supplements, but none of them has worked on him. The devastated mom recently heard about PANDAS, and her son's pediatrician is skeptical about it(=doesn't know much about it), so she is in a search for a doctor who can test and treat PANDAS in Wilmington NC or somewhere near around. Does anybody have a recommendation? Thank you!!!
  13. Hi. I was told to post here, so I thought it would be best to just repost what I did in the tic/Tourettes forum. Hope that's okay: Posted Yesterday, 08:48 PM First, I want to thank Sheila and the staff for their amazing web site/forums and incredibly helpful book. I am so glad I found these amazing resources!! Please excuse the long post, but it's been a long story.... But it is: My 8 y.o. son started ticcing when he was 4--mildly, no one really noticed but me. Then, they went away within month or two. When he was 6, they came back. He started ticcing more regularly but still
  14. Hi everyone, I have had tourettes since i was very little, and I'm now 23. I have been relying on meds mostly since thats only what doctors suggest. However, I recently found out tics are heavily related to food and also magnesium as well. I had been eating quite a lot of junk food recently, and a lot of stress from graduating in the toughest engineering school in the country, as well as looking for jobs, having interviews, my tics have been crazy. My tics has always been pretty bad, but there were some times that it was better. I have a variety of tics i do in the same period, and they ke
  15. My son who is 11 has had Tourette's since he was 4. Both vocal and motor tics and typical waxing and waning symptoms. So far it's been mostly mild at times with only a few severe spells. We're in the worst period ever since he now has a screaming tic for the last several weeks. It's not going away and he can't go to school or be in public right now until it gets better. I am very well-informed (in addition to a mom I happen to also be a physician) and have tried nearly everything out there over the years as far as supplements, diet changes, nutrition, neurofeedback and environmental thera
  16. Hi everyone. I need help ASAP please. I saw an ad or post on here yesterday regarding a new treatment called Repreeve. I thought I had bookmarked the website, but can't find it anywhere. I'm trying to do research before they send me their product, but need to find their ad, post or website. If anyone knows any of this, please let me know ASAP. Thank you a head of time! *J*
  17. Hello. Can anyone please recommend a good environmental / naturopathic doctor who treats TS in NYC area? After experiencing a number of vocal and motor tics of various severity that have been present on and off for about 2 years, my 6yo son was recently diagnosed with Tourette Syndrome and prescribed Clonidine. The medicine made him very weak and sleepy and disinterested in his surroundings. I could not endure seeing my little boy so sick, and took him off Clonidine after couple of days. It's interesting how the medical community does not have answers to two crucial questions that I
  18. Has anybody read the book Brain Maker by David Perlmutter? http://smile.amazon.com/Brain-Maker-Microbes-Protect-Brain%C2%96/dp/0316380105/ref=sr_1_1?ie=UTF8&qid=1443638847&sr=8-1&keywords=brain+maker In chapter 9 he talks about a PANDAS (Tourette's?) kid (Christopher)...I'm not sure Perlmutter has a great grasp on PANDAS (since in his mind, it's a form of Tourette's). However, what he had to say was interesting. He treated this kid (mainly tics, didn't mention other symptoms, so maybe he was really TS, not PANDAS/PANS, with an enema enriched with probiotics, with good result
  19. Hi everyone! My son suffers from ADHD, Tourettes and OCD. He is on a low dose of stimulant medication (which makes his OCD and Tics worse, but he is unable to function in school without it). We have just started exploring dietary intervention along with supplements (we are researching both now). We know he is sensitive to gluten and dairy, but have been pretty lazy about adhering to a diet. In the past year or so, we have seen a sharp rise in his symptoms so we are motivated to modify his diet. I wanted to get a baseline of his symptoms before the elimination diet. My husband and I have long n
  20. I just want to know if anyone else's child has these weird triggers. Please note my son has Lyme and PANS, and pretty much his only symptoms are severe motor/vocal tics. My son's tics are triggered sometimes by certain words/ideas (feet related, insect related, bodily functions, 'gross' things), the sounds of people coughing/sneezing/blowing nose, the sight of the above mentioned things (can't look at feet, bugs, etc). They *might* make him feel anxious, but what happens is that he has a big tic or a series of tics. For example, yesterday I asked him not to "get underfoot" when he was i
  21. The research below, done in Australia shows the dangers of our food supply and why there is an epidemic of diseases with the onset of GMO food both in our meat supply and corn, soy and sugar beets. My mom always wondered why I, and so many of my friends had to have bed rest pregnancies. She use to be a labor and delivery nurse in the 50's and saw miscarriages but mostly early on. Glyphosates were introduced in the 70's and tripled or more in amounts sprayed with GMO foods. Now I have my answer. I met the farmer personally 2 years ago at a lecture. He is 3rd generation and has seen ch
  22. Researching around I found this very informative. Seems to me we have rendered the innate immune system dysfunctional. What should become dormant is creating havoc neurologically. Depending on the age of onset, infants-Autism, young children- PANDAS/PANS, elderly-Alzheimers. Looks like it's ALL the same thing! http://www.psychologytoday.com/blog/evolutionary-psychiatry/201110/could-alzheimers-dementia-be-caused-virus
  23. This is one of the best articles I have read summing up the medical issues wreaking havoc on our children neurologically. It also goes hand in hand with the articles posted here in regards to missing gut biomes found in Autism, (ASU article) and the good strep bacteria in the throat, (NIH article) in the prevention of strep for PANDAS families. The author also talks about Gluten and Dairy as inflammatory contributors but not necessarily from an allergic response. The article gives me so much hope that we are finding answers. http://articles.mercola.com/sites/artic
  24. Hi I have a 7 year old. Last year in November, he developed some vocal tics. These eventually evolved into coprolalia. He was put on guanfacine, zolofot and risperdal. That improved things and the only thing that remained were some grimaces. In an attempt to eliminate his tics and move away from these powerful drugs, we've tried a whole bunch of alternative treatements and dietary changes. - put him on a gluten free, dairy free, reduced sugar diet. - We have him on a bunch of supplements - Ca, Magnesium, Methionine,etc. - for a while, he was on a very strict, candida free diet a
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