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tropea22

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  1. Hi, my son has been prescribed Azithromycin. The doctor feels that he may have PANS. He is to take two tablets two times a day. Each pill is 250 MG. I've very nervous to start him on the pills because it seems like a very high dose for a 6 year old who only weighs 45 pounds. I'm wondering if anyone else has been prescribed a similar dosage for their child? Thank you.
  2. tropea22

    Dr. Trifiletti....

    Thank you bobh. I will do that.
  3. tropea22

    Detox...

    Thank you Sheila for your response. It was very helpful.
  4. Hi, I was wondering if anyone has seen Dr. Trifiletti and what has been your experience with him? Was he able to help your child? I am considering of contacting his office for an appointment but before I do I wanted to make sure he is helpful. Thank you.
  5. tropea22

    Detox...

    Has anyone tried using homeopathic detox remedies for their child? If so has it worked? Our naturopath wants us to give my son three different homeopathic remedies to detox his system. They are UNDA 243, UNDA 20 and UNDA 2. He is only 6 years old and I'm concerned about giving him something that will affect his liver. Has detoxing helped anyone's child with stopping tics? Thank you.
  6. Hi, has anyone tried digestive enzymes as a way to reduce their children's tics? If so did it work and which ones did you use? Thank you.
  7. tropea22

    Pandas doctor in Buffalo area

    Hi cdnmo Have you found anyone? We too are searching with no luck. Please let me know if you have found someone. Thanks.
  8. tropea22

    Which type of magnesium is best?

    Thank you Sheila. I appreciate your help. Cathy
  9. Hi, Does anyone know why this plant helps? Does anyone know what the long term effects of the plant are? Nothing I've tried works. I would love to try this but, I'm afraid of what damage it can cause 5, 10 years down the line.
  10. tropea22

    Which type of magnesium is best?

    Hi Chemar, I read that you give you use magnesium taurate. Can you please tell me which one you use? My son is 6 years old. Do you know if it's safe tot give it to him? I have used magnesium citrate but, I did not help his tics. Thank you, Cathy
  11. tropea22

    Diet...

    Thank you Angel23. I appreciate your help.
  12. tropea22

    Is this Pandas?

    Thank you bobh for your help.
  13. Hi, I'm new to the Pandas forum. I was wondering if someone could help me figure out if my son has Pandas. In February of 2016 we saw a neurologist because my son started motor tics. She was not concerned and said these type of tics are transient and usually go away by the age of 12. In April of this year we went back to the neurologist because my son started vocal tics. This time because he had both motor and vocal tics within a year she diagnosed him with Tourettes. We wanted to rule out Pandas and did some research. My son did not demonstrate the diagnostic criteria such as the sudden onset of tics, doesn't have OCD or restrictive eating disorder or anxiety or sensory amplification or behavioral regression or deterioration in school performance or sleep disturbances. We recently went to a naturopathic doctor to get help with his tics and she diagnosed him having Pandas. She had him put out his arms straight in front of him and close his eyes. Since his fingers pointed upwards, her diagnosis was Pandas. Has anyone else experienced this type of diagnosis? Thanks.
  14. tropea22

    Diet...

    Thank you Wombat and Chemar for your replies. I give my son B6 (hidden in gummie bears) and I rub magnesium on his feet. Those are the only vitamins the naturopath told us to use. I there is something else that can be beneficial to my son please let me know. Thanks, Cathy
  15. tropea22

    Diet...

    Hi Chemar, Thank you for your email. For breakfast my son usually eats a banana, homemade almond cookies, egg whites, a date/nut bar with no msg. Lunch: chickpea/lentil pasta with homemade pesto sauce, gluten free waffles (almond flour/coconut nectar) capacollo (homemade nitrate free pork slices) Dinner is where we eat most of our protein hormone free chicken and nitrate/nitrite free pork. Snacks: grapes, oranges, peaches, strawberries, cucumbers, peppers, olives, seaweed, fruit puree drink pouches. We give him 1/8 tsp of Vitamin B6, I break open a 250 mg capsule and measure it. I have to hide the vitamin B in gummie bears We also do Epsom baths and at night I rub magnesium on his feet. Any suggestions/information you may have would be greatly appreciated. Thanks, Cathy
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