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JuliaFaith

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  1. JuliaFaith

    Would love to order some of this milk with you. Let me know what would work the best. I live in Redmond so close to you.,

    Thanks so much!

  2. JuliaFaith
    Hair test at Doctor's Data, Inc. in Illinois is very interesting on these types of tests. 'Potentially Toxic Elements' on top of page and "Essential and Other Elements" on bottom. Copper on bottom. My son's toxic levels went up on 2nd test which scared me until our dr. said the test was showing that he was getting rid of toxins (more in hair). Seems as though insurance covered this too. Second test also showed more vitamins in hair which meant absorption in stomach was doing better too.
  3. JuliaFaith
    So sorry to hear this! You have been thru a lot over many years. We have continued to try to find what is going on with my son. It has been over 2 1/2 yrs. but we have found and treated many things. We are still treating and trying to find all the pieces of the puzzle. You are working on it and finding out some things so you are doing great with what you know. Keep looking and treating. Just a few suggestions: You may want to give some background info. on your signature line so you do not have to spell it out with every thread but would give others some background from which to come up with ideas. Dr. Shoemaker genetic testing...this testing told me that my son will not heal on abx alone which was helpful since son is seeing an ND now. Have you been checked for lyme etc.? Keep asking questions on here. If no one is answering, re-word the question, give some more info. until question gets answered, keep trying. Persistence is necessary in getting your family well. Look forward to seeing your posts.
  4. JuliaFaith
    Soooo good to hear of your gains! May they continue and no longer be an issue sooner rather than later. My ds14 has been thru a bunch of healing in the last 1 1/2 yrs. He was actually beginning to feel better for 6 weeks after ending viral treatment. First time in over 2 yrs.! The difficult part was putting the brakes on a bit to keep injuries to a minimum! Still working on PANS but hopefully done with lyme and babesia! Will see.. Looking forward to hearing more of your progress.
  5. JuliaFaith
    My son is on his 3rd year of K12 curriculum. His local school district only offered a tutor 2 hrs. a week . Have not seen anything about evolution in curriculum yet and he has been enrolled since 7th grade. They do have a private paid school side that may focus on that aspect. We are using their free schooling which is funded by public $ so have to limit religious references. It has worked for my son since he has been so ill. We hope to get him back to his local school some day (2000 students!). Doing this reduced the stress a bit after son got past confrontational behavior with treatment. Before that was a bit more stressful (putting it mildly). Hope you find a good plan that works for your family.
  6. JuliaFaith
    PANDASnetwork.org is a great resource for your questions. It seems some children's immune systems do improve as they get older and, in our instance, it was starting to happen after all infections, viruses etc. had been addressed (until latest exacurbation anyway!). Keep looking for pieces of the puzzle to get your child well again. If still not well, then keep looking, you will see continued healing if you find those pieces and treat. Wish you well.
  7. JuliaFaith
    My son is in the middle of PANS exacurbation and his dr. Muscle tested him and seemed surprised that lyme tested neg. So, while lyme was part of healing, it it is hopefully deactivated and possible one of many things that caused the PANS not the only thing. At one time I was hopeful that getting rid of lyme would get rid of PANS but dr. Said son will probably always have PANS. Stem cell research is very active right now for auto-immune. We just keep hoping!
  8. JuliaFaith
    Ditto MDmom. Same here.
  9. JuliaFaith
    When my son had T&A, we had ENT do deep nasal culture. This can be very uncomfortable when they are awake (per dh). We asked ENT to test for MARCoNS, coagulase negative staph, & mold growth. His test came back surpisingly positive with MARCoNS, so did 3 months BEG nasal spray from Hopkinton Drugs. ND was very surprised that it came back positive the first time. She said it usually takes several tests in the office to get a positive. We figured it was because of how deep they did son's culture while he was in surgery. Good luck with all of this. You may find some answers soon.
  10. JuliaFaith
    Hello Suzan. My heart goes out to you in terms of your expectations not exactly what you had thought. I just went thru the same when my son caught a chest infection and his PANS reaction was extreme and did not have plan really in place after 1 1/2 yrs. of focus on lyme etc. After this exacurbation dr. is now saying another year of treatment! Lyme, thank goodness, is not an issue. Feel a bit mislead but after looking at last dr.'s notes I realize how far son had gone in relatively short amt. of time with current dr. Right before this exacur. hit, son was just starting to feel really better in over 2 yrs. We just hope to get back to that point sooner rather than later. Best wishes on getting the strep under control. Have you checked for MaRCONs? Just a thought.
  11. JuliaFaith

    How can I find the private FB page for kids. My ds14 might really enjoy talking with other kids about PANDAS. Thanks so much.

  12. JuliaFaith

    My son also saw Dr. Keller for 6 months during the initial diagnosis but did not have any treatments that worked for him. So we tried an "integrated MD" and ended up going to another in his office that happens to be an "ND-naturopathic doctor". She has done wonders in treating all the illnesses that go along with PANDAS and more. Name: Dr. Dahlgren at www.sophiahealthinstitu...

  13. JuliaFaith

    How is your son doing?

    Are you trying the mythylation treatment with Dr. Keller?

    My son was just started on Methyl B12 injections for part of his treatment. Just wondering if this is the same thing as mythlation treatment.

    Take care.

  14. JuliaFaith

    Hi Susie:

    How did your daughter do on the Alinia?

    My son is starting to take it again for 28 days. Dr. said it is an abx, antiviral, etc. all kinds of things which makes it a good med. for treating several things.

    Hope you are all doing well!

    Julia

  15. JuliaFaith

    Thank you for your encouragement! It really helps in keeping going on the cleaning. :)

  16. JuliaFaith

    Hi Cathy:

    What is the 'mold susceptibility gene'? Just got HLA test results back and trying to decipher them.

    Thank you!

    Julia

  17. JuliaFaith

    Hello. Just wanted to touch base with you because we live in Redmond, WA, close to Seattle. Thought we could share ideas/doctors etc. DS13 is going to a great doctor in Kirkland for Lyme and several other things. She charges per min. which was about $400 for the first visit but now is around $140 for a visit because we do not spend as much time with her. If you are interested jus...

  18. JuliaFaith

    Hi Susie: Was in Klinghardt's office today and saw Susan Marra an invited guest speaker at one of Dr. K Seminars on lyme being held at the Marriott. Interesting huh?

  19. JuliaFaith

    Hi Susie:

    Just wondering how your dr. appts. are going? Just found another doctor in Issaquah that is interesting. He also uses the 'Marshal Protocol'. His name is Steven M. Hall, M.D. He has a very interesting website www.stevenmhallmd.com Have talked to him 3 tims now about other things. He treats chronic health problems.

    Hope treatment is moving along for...

  20. JuliaFaith

    How is isopathic treatment working for you? Thank you for any ideas. Our Dr. is getting training and wants to try it our ds.

  21. JuliaFaith

    How is the bicillus treatment going? Would really like to hear. Hope it is helping!

  22. JuliaFaith

    Hi Dut:

    Had a thought about your lyme testing today that may be helpful or not. You could call Igenex and see if they have a deal for 3 tests at once. :) Or you could have one family member tested with Igenex and see how much insurance would cover (if possible)and go from there.

    Best wishes.

    Julia

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