JuliaFaith

We are currently using Sovereign Laboratories (recommended by ND) which my son loves in milk. They have a sale on the 1 lb. bag right now and free shipping: http://www.sovereignlaboratories.com/product/COLOSTRUM-LD_powder16.html

Hello! Have not been on for a while...but my ds17 is using CBD. We are using Bluebird Botanical Bulletproof CBD blend. It has other ingred. that our ND likes too. We started at 15 drops at night and now do it 2xday. The only reaction I have seen in 3 weeks is a more calm son. They have this in a new dosage (6x amount) which I will be ordering next since it would only take 2 drops. They have a 35% off now with discount code: bp6x (lower case) until Feb. 1. Will address reducing dosage days at his next doctor visit in a few weeks. The folks at Bluebird mentioned that some reduce to 4-5 days a week because it builds up in the system. Bluebird product is legal in all states (legal info on their site) because of ingredients. We are using for brain healing. Other interesting product we are using for depression is "Gabawave" produced by Bulletproof Nutrition, Inc. which is produced in my area. Best wishes and good luck!

Oops! Just realized ds is mostly on homeopathic liquid already! :-)

Wow! So happy to hear your story after all the years of struggle! Your comment about 'treating the whole body' is right on as the infections etc. really can damage organs etc. without even knowing it. My son is around 80-90% as well and we continue with supplemental support still. Have thought about switching to homeopathy just for the day -to-day support in order to reduce supplemental costs Take care and best wishes on continued healing!

30mg is a low dose. My son did synthroid for over a year and recently his thyroid numbers increased to 8.1! Right before that I wanted to switch to Armour for insurance purposes so we did a switch. Sleep issues disappeared and ocd is receding. My son has been on both and, as far as I can tell, only good body support has been the side effect (until synthroid quit working for him).

Thyroid should be checked every 3 months. We recentlyhad to switch because synthroid was not working for son--sleep problems and increased ocd were two of the noticeable symptoms for son.

Checked for h-pylori yet?

We detox every day. Getting rid of heavy metals was one of the first things we did. Also take powdered rose hip (in juice or water) to get rid of biofilm that can protect bacteria/viruses from treatment. Thyroid been checked? Mold investigated? Lyme doctor visit?

We have also had good experiences with k-12 online school. We tried to do a summer class with ds16 school district this summer (paid) and they were so un-accomodating that we had to drop the class which cost 400+. Disappointing in the least.

Interesting that you mention thyroid. His numbers were increasing recently so started on different brand and higher dosage and symptoms seem to be slowing down or gone (unable to sleep, more OCD). The Psych also mentioned how the thyroid can affect both. Your perspective that OCD is immune-related is very interesting. Thank you.

My 16 yr old told me he thinks that when his blood sugar gets low his ocd is worse (late at night). Also, his phych says that his recent higher thyroid numbers could also explain an increase. Anyone heard of either of these?

My son took artemesin for several months early in his treatment. It was a powerful herb for him. He seems to be testing neg. on babesia and Lyme now for the last year at least so have not gone back to it recently.

It was prescribed back then but have not had it since. It was through a compounding pharmacy. My Ds's GI symptoms only flair a bit now during a PANDAS flair. Parasite treatment helped a ton with it as well.

This was our first visit (4+ years ago) to our current doctor. Interesting info. for newcomers for a different perspective.

Tinidazole is an abx/anti-parasite that we have done twice in 6 months along with flairs. We also have good detox/probiotics/anti-inflammatories in place as well.

Have you done a strep swab on mouth and throat?

On this website, Scott (his site) asked the question "For anyone that was sensitive to almost everything that you ever tried to take and eventually was able to start doing treatment and benefit from them, what helped you get from a place of reacting to everything to benefiting from some of the things you attempted to do? I often hear of people that are sensitive to almost everything they try to do and would like to hear more from those that were in that position and what helped to get out of that place and to one where you better tolerated therapies? Thanks". Many of his answers are "MOLD Avoidance" but there are others if you want to check his facebook site. www.facebook.com/BetterHealthGuy Keeping you in my thoughts.

Hello Cara615: So good to hear of your childs improving health! Both my ds and dh take chlorella daily (have for a couple of years). Our favorite (which has muscle-tested well) is HealthForce "Chlorella Mana". They are little green tablets. My son was taking 20 3xday (15-30 min. before meal) but now doing 15 3xday. It seems that the higher amounts are what really work well. The tablets (small) really bothered my stomach so may want to try a small bottle first. They also have powder which I have thought of trying. The cost is very reasonable (~$70-1500 tablets) and the company really tests its products well. We are also taking their probiotic. With the cilantro, the lead doctor where we go, says to boil water with cilantro, let it cool a bit, and add organic miso, every night. Helps with metals and parasites. This and a morning drink of lemon, organic apple cider vinegar and not sure of the rest (look up Klinghardt) are two easy, inexpensive, maintenance things to do for chronic illnesses. You are lucky to be near a good doctor! Take care.

Was a member of a GCMAF facebook page but it did not seem very secure and it seemed people were afraid to post on it. Received this today, it looks a bit more secure (ok--probably not) and may be more helpful since it is set up by the company itself: It has come to our attention that many people are wanting to know more about GcMAF and so we now have our own Official Facebook Page (First Immune Gcmaf) and Group (First Immune GcMAF). You can find our Facebook pages here, https://www.facebook.com/FirstImmune and https://www.facebook.com/groups/649148908471720/ Of course, you have to join the 'group'.

So cool! Have always thought this journey might bring about positive changes for others. Your son has done that! Honestly, my father who is in the hospital, would probably really like one of those balloons right now.

This is a great article. We are going to start using ancient Minerals Ultra with MSM to help with migraines.

My son also took some abx during his gcmaf treatment (not the entire time). Best of luck with the BRAVO.

Beerae22--CBD oil--some on here have been buying from www.bluebirdbotanicals.com. Now DS stomache is fine but would have tried it at the beginning of treatment when he had horrible stomach pain after eating and did not want to each much. It is antibacterial, antiviral etc. so you would want to start low/slow in case of die-off. We are trying some at a low level for brain healing purposes.

Not sure if this would help, but more recently, trying CBD and ds started eating constantly! Reduced the dosage and he is back to normal.

This is great information! Thank you for sharing. Recently heard a radio host (Hartman) talk about the "vote with your money" dilemma in that big corporations own almost everything so that is difficult to do any more. The below quotes were particularly interesting: "The two main things that we were looking at here and the two main things that Howard Vlieger flagged as a problemas things that he was seeing in livestock, particularly in pigswere both things we found statistical significance for: (1) digestive health problems, particularly inflammation in the stomach, and also (2) reproductive issues. In this case, we've found this increased uterus weight," she says. The industry immediately went on the offensive. Then, in what appears to have been a last ditch effort to get rid of this stubbornly incriminating study, the publisher (Elsevier) simply retracted it, for no other reason than its findings were deemed to be inconclusive. The thing is, inconclusiveness of findings is not a valid ground for retraction... Elsevier's actions caused a major backlash, and has undoubtedly opened more than a few eyes to the reality of censorship of "unwanted" research. Even the National Institutes for Health (NIH) scolded Elsevier in an editorial titled: "Inconclusive Findings: Now You See Them, Now You Don't!"