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Found 109 results

  1. our DD has been prescribed as part of her protocol either Trileptal or Lamictal - does anyone have experience good or bad? she has been diagnosed with Lyme . Our concerns are the side effects of those two. They are supposed to help with her nuero-irratabliity, nerve pain and extreme sound sensitivity because of the infection. We are considering using something like Lyrica - appreciate any feedback
  2. Hello all you amazing, fighting Moms and Dads, Was looking for a holistic doc in the NY/CT area who treats Lyme/Pans and made an appointment with him. The other 2 integrative docs were much more expensive so I'm a bit worried that he isn't as good. Hopefully it's just capitalism trying to trick me :-) If anyone has or knows of this doc any info would be greatly appreciated. The other two crazy expensive docs that I'll take her to if need be are Kenneth Bock in Red Hook, NY and Elena Frid in NYC. TIA and best wishes to all!
  3. Jemsek Clinic?

    has anyone been treated by Dr. J @ his clinic, going to start my DD on treatment. pls inbox me with comments..thanks much
  4. Lông mày dựng ngược là có thai? Đây là quan niệm dân gian được lưu truyền từ xưa cho đến ngày hôm nay. Nếu như bạn hỏi qua bậc trưởng bối, chắc chắn đa số mọi người điều nghe qua hiện tượng này. Vậy đây là sự thật hay chỉ là những tin đồn thổi? Liệu rằng chị em phụ nữ khi xuất hiện lông mày dựng ngược là thật sự có thai? Cơ sở nào có thể chứng minh được điều này? Hãy cùng chúng tôi đi tìm câu trả lời qua các thông tin được cập nhật bên dưới, bạn nhé! Lông mày dựng ngược là có thai? Ngày xưa ấy, khi mà nền y tế chưa phát triển rầm rộ như hôm nay, ông bà ta thường theo dõi sự thay đổi trên người để nhận biết tình trạng sức khỏe cũng như việc có mang bầu hay không. Ngoài trừ để ý "ngày đèn đỏ" đến muộn, họ còn quan sát được khi lông mày có dấu hiện dựng ngược, thậm chí là tóc mai, tóc gáy cũng dựng lên thì chắc chắn người phụ nữ đã mang bầu. Tỷ lệ chính xác có thể lên đến 99%. Đây là quan niệm cũ xưa hầu như ba mẹ nào cũng biết, hoặc ít nhất họ đã từng nghe qua một lần. Xem thêm: phun thêu lông mày ngọc dung Hiện nay có khá nhiều phương pháp xác minh bạn có thực sự có thai hay không. Nếu như muốn đảm bảo tính chính xác, tốt nhất là nên mua que thử thai để xem có hai vạch hay không? Hay bạn cũng có thể đến bệnh viện phụ sản thăm khám để biết được tình trạng sức khỏe của mẹ và bé. Thay vì phân vân chuyện lông mày dựng ngược có thai là thật hay giả thì tốt nhất là nên áp dụng một trong những giải pháp hiện đại ở trên. Cơ sở nào chứng minh lông mày dựng ngược là có thai? Câu chuyện lông mày mà dựng ngược thì có thai được truyền lưu rộng rãi trong dân gian hơn trăm năm. Chỉ bấy nhiêu thôi cũng đủ chứng minh xác suất sự thật là rất cao. Nếu như một ngày đẹp trời nào đó bạn chợt phát hiện lông mày có hiện tượng dựng ngược trên gương mặt, kèm theo một số thay đổi sinh lý như đi tiểu nhiều lần và liên tục trong một ngày, cảm giác buồn ngủ, chóng mặt, dễ nôn mửa khi nghe thấy mùi tanh, mùi lạ thì bạn nên dùng mua que thử thai. Biết đâu bạn mang thai thật thì sao? Phải biết rằng thời gian đầu mang thai rất nguy hiểm, dễ sinh non nên bậc cha mẹ cần phải cẩn thận hơn. Xem thêm: Khám phá địa chỉ phun thêu chân mày đẹp nấc tiếng cả nước Một số trường hợp lông mày dựng ngược chưa hẳn là có thai. Chẳng hạn như một số bạn gái từ khi sinh ra bẩm sinh chân mày đã dựng ngược sang một bên. Tất nhiên, trường hợp này rất hiếm, tỉ lệ chị em có đôi lông mày như thế này không nhiều. Nói tóm lại, chân mày dựng ngược là mang thai thuộc về quan niệm dân gian. Hiện nay vẫn chưa có cơ sở khoa học nào có thể chứng minh được. Vậy nên, lời khuyên chân thành dành cho bạn là khi phát hiện lông mày dựng ngược là nên đi khám thử để đảm bảo việc mình mang thai có thật hay không. Chia sẻ câu chuyện vui về lông mày dựng ngược. Hồng Ngọc, dân Đà Nẵng tâm sự: "Kết hôn hơn 3 năm mà chưa có mụn con nào, mình và chồng lo lắng lắm. Cả hai đi khám nhưng không phát hiện bệnh gì. Mẹ chồng mình thì hối thúc mãi, suốt ngày cho mình và chồng uống thuốc bổ. Thời gian dài, đâm ra cả hai cảm thấy áp lực, đôi lúc còn xảy ra tranh cãi. Chồng mình quyết định cả hai dọn ở riêng một thời gian để giảm bớt áp lực từ phía mẹ chồng. Hơn nửa năm sau đó, có một ngày mình phát hiện lông mày dựng ngược cả lên. Không chỉ vậy, tóc mai, tóc gáy cũng dựng ngược, nhìn quái lạ vô cùng. Mình sợ bản thân bị bệnh lạ nên dấu chồng đi khám thử. Bác sĩ khám qua và hỏi mình một số hiện tượng sau đó bảo mình qua khoa phụ sản xem sao. Mình lo lắm, nghĩ bản thân chắc bệnh nặng lắm cơ, lúc đó chồng mình lại gọi điện thoại. Tâm trạng lúc ấy vừa buồn vừa tủi thân, thế là ôm điện thoại khóc hu hu. Chồng mình hoảng sợ, chạy ngay đến bệnh viện, cả hai đi và khoa phụ sản khám thì phát hiện mình mang thai 2 tháng. Hai vợ chồng vừa mừng vừa sợ, còn mình cảm thấy mất mặt vô cùng. Vụ lông mày dựng ngược báo hiệu mang thai gì đó, từ trước đến giờ mình chưa nghe nói qua nên không biết, ai ngờ lại xảy ra trường hợp dở khóc dở cười này. Nguồn: https://github.com/thaiphong92/phunxam/wiki/Địa-chỉ-phun-thêu-lông-mày-ở-đâu-đẹp-nhất-cả-nước
  5. Hello all. My daughter is 17 and has been on every pysch med imaginable, CBT/ERP, you name it...I've discovered over the past few years her OCD is caused from infection in her brain and right now I am searching for a pyschiatrists or MD.. any DR really, who will be willing to consider using ceftriaxone to help treat her. She is miserable right now and OCD is preventing her from getting her physical conditions treated properly. Studies on OCD and ceftriaxone are remarkable and every time she has had some she has had significant symptom relief, only issue is finding a doctor who will listen. Any response appreciated. You can personal message me on here or email as I've heard you can't post names of doctors in forums.
  6. Hello, all. I posted in this form about eight or so months ago searching for answers on how to treat my daughter's pandas. Since then, after a very long and hard journey, we have found out she has Neurolyme and multiple coinfections. It seems she regressing neurologically on a daily basis and the oral antibiotics aren't doing anything for her. She responded excellently to ceftriaxone in the past, so I am in desperate search for an LLMD willing to give it to her again. We have been seeing an LLMD for a few months now, but I found him to be dismissive and not willing to hear anything out. My daughter is about to turn 18 and half of her time is spent doing compulsions, the other half she is spacing out, sometimes so bad she can't remember her own name. She is not going to be able to tolerate oral abx until her head is cleared up a little and pyschotropic medicines have an extremely negative effect on her. I am willing to travel overseas if it means getting her the proper Lyme treatment, I just need some recommendations please. I'm aware forms don't allow LLMDs information to be posted, so if anyone could email or personal message me some it would mean a great deal. Please. I am desperate
  7. Hello - have you all heard of and considered Low Dose Immunotherapy (LDI) for your children. There is a very nice YouTube video of Dr Ty explaining the use of LDI for lyme/pandas. He is a very convincing speaker and we are going to talk to him. Wanted to know if you have any feedback for us.
  8. Recovery Time

    Question - how long does it take to recover from PANS/PANDAS? I know every case is different, but just try to gauge where my dd is in her recovery . She just started 2nd month of treatment(abx &herbs) -headaches & light sensitivity have gone but still has hearing sensitivity & cognitive issues. We believe it was 7 months from her exposure to the time we started treatment....
  9. dd - officially diagnosed with PANS ( combo of lyme exposure, & strep) current daily regime - zithrox 250mg, minocyline 100mg, 1000mg D3, magnesium , NAC (1200mg) , probiotic, herbals - she has extreme sound sensitivity - looking for some good treatments (homeopathic & others) to give her some relief, any suggestions??
  10. my 14 yr old dd - officially diagnosed with PANS ( combo of lyme exposure, & strep) we are in week 3 of treatment (we along with our provider suspected is was PANS)- daily regime - zithrox 250mg, minocyline 100mg, 1000mg D3, probiotic, herbals - TBB plus & OPC Our provider doesn't believe in steroids, so we are this course for now. We are new to the PANS/PANDAS ( 3 months to get to this diagnosis) - we've heard about other treatment options - just wanted to get others opinions thanks
  11. My son (11 w/sever autism) has been treated for PANs for two years with antibiotics by an immunologist at MGH. Recently his symptoms worsened with increased anxiety, ocd, aggression, and a new tic disorder. Can anyone recommend doctors in New England who could treat a child like my son? We're feeling quite desperate. Thanks!
  12. DD6 had a major meltdown in school today that landed her with an in school suspension and the response to the stimulus was way out of proportion. This is on DAY 3 of 1st Grade!!! ...With LOTS of supports in place... I'm thinking that we may have to home school or hospital school or something. She's dealing with Lyme and Bartonella which I suspect was congenital but Idk. We've been treating Lyme since mid-January and she herxed horribly. Any thoughts? Any advice?
  13. Hi everyone, Have any of you had a dramatic regression/increase in symptoms from starting Rifampin? To give context, I’m 22 and had untreated PANS for eight years. I got diagnosed at 19 in 2014, had two IVIG’s, a tonsillectomy, a year of steroids, and I went into complete remission by the end of 2015. I got Lyme in 2016 and relapsed, and I’ve since had another IVIG and have been treating Lyme and co-infections with an LLMD. I didn’t start Lyme treatment until December—nine months after the initial infection. I also tested positive for Babesia and Relapsing Fever. I was doing really well this summer and was definitely getting much better, but in the last few weeks, I’ve gone downhill fast. When I started Rifampin two weeks ago (in a MWF pulse dosing), it dramatically accelerated my decline. I still have an occasional, pretty-good day, but most of the time, I’m so depressed I can barely take care of myself. My word-finding issues have returned, and I speak nonsense frequently. The atonic seizures (one of my most severe PANS symptoms since 2014) have come back, too. I feel confused and disoriented often, with periods of time when I feel dissociated and really far away from everything around me. I’m having all of the symptoms that I get when all breaks loose with a full-blown PANS exacerbation/relapse. Yet my parents claim I don’t have the same “look” as when I’m really at rock bottom. My LLMD thinks I’m herxing, but my psychiatrist thinks it sounds more like PANS (purely autoimmune) and that Rifampin is making my psych drugs (Wellbutrin, Lamictal, and Seroquel) less effective. My LLMD did warn that this new Lyme protocol could make my mood symptoms worse, but why so many other symptoms? So far, my other herxes have never lasted as long as this, so I’m afraid this is an autoimmune thing again. I'm detoxing with Burbur and Alka-Seltzer Gold, but any reduction in symptoms never lasts long. Has anyone else had a similar experience with Lyme treatment, and especially Rifampin? If so, what do you do to make this better? I’m so tempted to do a Prednisone burst, because that’s almost always made PANS symptoms go away, but I know that’s a bad idea with an active infection. But how am I supposed to keep living like this?
  14. I am hoping to get some help making sense of our current flare. My son got PANS when he was three, but he really fell off a cliff two summers ago at age 7. It wasn't until last summer that we began treating it as PANS with Dr. P, and by October had determined mycoplasma and HHV-6 as triggers. Two steroid tapers and 6 months on azithromycin and his infection numbers were down to nothing and he was doing well (making new friends, laughing, his personality back). However, his IgG numbers, which were very low in October, continued to drop. We planned on doing IVIG this summer. In early June he had a tick bite with a bulls-eye rash and began treatment that day for Lyme. Unfortunately, he has been declining as the summer has gone on. He did two weeks on doxy, a week and a half off before we realized he was still being affected then two weeks on Ceftin. Last week he became very aggressive which had not happened since two years ago so we started a prednisolone taper. We were also just denied IVIG coverage by our insurance and are planning on paying for it ourselves. He just switched from Ceftin to Rifampin three days ago in case he has bartonella. On top of all that, he was stung four times by wasps last week (can that cause flaring?) which has restarted a major bee/hornet phobia and has him scared of being outside. He also just started saying he hates the feel of water which takes away our only activity this summer of swimming. He is scared of everything, says he "doesn't feel right" and has started saying he wants to "go home" which in the past has meant heaven. His sister also has an open sore on her bottom which could be staph (we are having it looked at today). Can this be causing the flare? I am a wreck trying to trouble shoot and keep my own mental health strong. I am anxious to do IVIG as soon as possible to alleviate his suffering and give him time at home before school starts, but I wonder if we have all the possible infections covered. Any thoughts? I would also love advice about preparing for IVIG. Did it help? How did you keep your child calm? Do they need other medications at the same time to make it more effective? Any questions I should be asking of his doctor? Thank you for your advice!
  15. Frazzled

    Someone on the site referred me to a Dr. Carolyn Walsh in Leesburg. I see she is on the Lyme board of loudoun county. Has anyone had experience with Lyme? If so what are her modalities ? Antibiotics, herbals,HBot, ? Not sure I can get in? Desperate! He is just laying there say after day till we can get an appt saying he doesn't feel good, if anyone knows of other Dr in va, Md. D.C. Besides Jemsek, Fletcher, Fishman, Mozayeni, please let me know thx!
  16. My son has been sick for 15 months bedridden with all the usual symptoms of mold/Lyme. He was treated for mold and most of his symptoms went away with the exception of headaches, fatigue, neurological symptoms like not wanting anyone to see him and isolating himself in phis room. I discovered purple streaks on left side of body. He has had low testosterone and cortisol , not sure if it was from mold or Lyme. Went to infectious disease Dr. sand he said purple streaks are STRETCH marks ! He is 21 has not grown in 4 years, he is 150lbs. He used to be 175 before getting sick. What do you think about remaining symptoms! I want my son back!
  17. Posting in case this hasn't been shared before: The Ruggiero-Klinghardt (RK) Protocol for the Diagnosis and Treatment of Chronic Conditions with Particular Focus on Lyme Disease Full online publication here.
  18. Key Takeaways: What can we do to step up our EMF mitigation efforts? What works better for parasites; natural options or pharmaceutical ones? How can we detoxify aluminum and glyphosate? What role do viruses play in chronic illness? What is Dr. Klinghardt's approach to treating Lyme? What are SIBO and MCAS and how to approach treatment? What probiotic may help with SIBO? How do we get more energy and a better functioning brain? Is copper toxicity a common concern? What diet is best for people with Lyme? Is alkaline water a useful tool? What type of bee venom is best?
  19. My son has been sick for 15 months bedridden with all the usual symptoms of mold/Lyme. He was treated for mold and most of his symptoms went away with the exception of headaches, fatigue, neurological symptoms like not wanting anyone to see him and isolating himself in his room. I discovered purple streaks on left side of body. He has had low testosterone and cortisol , not sure if it was from mold or Lyme. Went to infectious disease Dr. sand he said purple streaks are STRETCH marks ! He is 21 has not grown in 4 years, he is 150lbs. He used to be 175 before getting sick. What do you think about remaining symptoms! I want my son back!
  20. Hello, all. I joined the forum today and skimmed messages for our issue. I have a 17 yo daughter who is positive for lyme, bartonella, and babeisia. She is in treatment for those as of April and also has an eating disorder that she began treatment for in September of 2016. I am desperate to connect with anyone who has had the two illnesses as her ed psychiatrist does not believe that she has the tick infections and she is herxing bad (increased eating disorder and other symptoms.) Decreasing the antibx will not stop the restriction cycly. Her llmd does not fully understand the eating disorder and we are headed for a major hospitalization when she becomes medically unstable. Thanks. Amy
  21. Hello everyone, my 21-year-old brother was diagnosed with PANDAS shortly before his 18th birthday, and he also has a past history of Lyme disease. He has been in and out of the hospital and psych wards over the past several years and often unable to care for himself and in a psychotic state. I know that there is toxic mold in the home where he has lived his entire life and recently he went to stay with his older sister for a week and saw some small improvements (was able to eat, carry on some conversation, etc.) but when he returned to his home with my parents and two other brothers he grew intensely worse and ended up hospitalized again. My family has not seen any connection between mold and his condition and just attribute it all to the inflammation they are told is in his brain. The only thing he has received in the past that has given any help were the IVIG infusions but they never lasted and this past time, there has yet to be much improvement seen from them. I am putting out a call for help to any parents out there who may have some helpful advice, experience, and especially scientific evidence on the connection between mold and PANDAS, especially because I am 99.9% confident that my brother is one of the 25% who is unable to detox the mycotoxins from mold. I had to leave that house because of my own chronic illness and the mold keeping me from stabilizing or improving. Thank you so much for any help you can offer. Grateful!
  22. DS8 is 19 months in since the sudden onset. We've had multiple abx treatments, tonsils removed, IVIG, high dose pulse steroids, 10 weeks of partial hospitalization for ERP therapy, another round of diagnostic testing. Positive for D1 antibodies on Cunningham panel, positive for Babesia duncani, and lyme. Some indication of bartonella. Treatment for lyme & co-infections. Another HD IVIG...more Babesia/Lyme/Bart treatment. Added LDN...switching out abx for Lyme&Co. Overall better than last year but aggression and liability issues still. Still getting one or two red hot ears without explanation (maybe lyme?) frequently. Still dealing with enuresis. Currently on minocycline, cefuroxime, mepron, ibuprophen, LDN, glutathione, probiotics (visbiome & florastor), loratidine (antihistimine), vit D, BLT drops, phosphotidylcholine, multi-vitamin. So the question is...do you think it is time for plasmapheresis? Thanks!
  23. I've read on this forum that candida overgrowth can cause behavioral and psychiatric flare symptoms that can be mistaken for a typical PANDAS. And now, after several of these flares I'm starting to think what I thought of as PANDAS has really been Candida all along, or at least on several occasions. Questions-- 1) what are the behavioral/psychiatric symptoms associated with candida overgrowth? are they different than a strep induced PANDAS flare? 2) from my description, do you think she has candida, if not, what else could it be? 3) any treatment recommendations for candida overgrowth? DD6 was diagnosed with strep throat and PANDAS two years ago and had a remarkable turnaround after antibiotics and oral steroids, but no return to 100% baseline. She was then diagnosed with Lyme a year ago and we are taking the slow and steady approach to treating lyme with our LLMD. We are also treating PANDAS flares with oral steroids and now more recently with IV steroids (solumedrol), with the hope that she will not need repeated steroids in the future as the lyme dies off. Over the years she has on several occasions experienced acute episodes of: a red rectum, red vagina, agitation, anger, fears, separation anxiety, and sensory sensitivities - but coupled with normal perianal culture and normal urinalysis. All of this (perianal redness and aggitation, normal test results, etc.) came back with a vengeance following her recent IV steroid infusion. Im thinking its Candida. Any thoughts on it being something other than candida? Her Current Treatments Are-- GAPS Diet daily prophylactic amoxicillin Beyond Balance MC-BAR-1, MC-BB-1, MC-BAB-2, Mycoregen, MC-BFM-P, IMN-V-II DesBio Upper Respiratory Staph and Strep Klaire Labs Ther Biotic Complete, and Klaire Labs BioSpora Prescript Assist Probiotic Glutathione Tri Fortify orange Takesumi Supreme Thank You for any time spent reading and responding to this post, as I am second guessing my entire treatment plan for her right now.
  24. For the past year, we have been treating my 10 yr old daughter with just herbs (Beyond Balance products: Cognease Detox, Cyflacalm, MC-BB-2, MC-BAR-1, and MC-BFM-P) to treat lyme. I saw a big improvement in her neuro symptoms (7/10 in her overall behavior compared to the prior years). Her doctor convinced me to switch to antibiotics in order to fully "tackle the lyme" after her most recent lyme urine test. We started one month ago with 300 mg Cefdinir/daily and pulse 250 mg Flagyl on Friday/Saturday/Sunday for cyst busting. We try to detox with aka seltzer gold, lots of lemon water, and epsom salt baths. The first twelve days, my daughter severely herxed and could hardly hold a conversation, sit down, sleep, or eat. Things have *slightly* gotten better, but she still has bad anxiety, cries easily, low appetite, poor focus, and a general feeling of restlessness. We're supposed to start the 3rd antibiotic next week (Azith), but I know her body can't handle it just yet. I'm also still giving her all of the Beyond Balance herbs. So, how long in your antibiotic lyme treatment did you see your child's symptoms improve? I am at the emotional point where I want to just drop the antibiotics and go back to herbs. Or, maybe try a different herbal protocol. So, I'm looking for any guidance/success stories in sticking with antibiotic treatment. Her doctor says 3-4 months is the usual protocol, but I've read you need to stay on antibiotics for two whole months after all symptoms have resolved. Thanks in advance for any input ;-)
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