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Found 2 results

  1. Hi everyone, Have any of you had a dramatic regression/increase in symptoms from starting Rifampin? To give context, I’m 22 and had untreated PANS for eight years. I got diagnosed at 19 in 2014, had two IVIG’s, a tonsillectomy, a year of steroids, and I went into complete remission by the end of 2015. I got Lyme in 2016 and relapsed, and I’ve since had another IVIG and have been treating Lyme and co-infections with an LLMD. I didn’t start Lyme treatment until December—nine months after the initial infection. I also tested positive for Babesia and Relapsing Fever. I was doing
  2. I have 3 children. DD10 and DS6 (twins). The boys just got their tonsils out on April 15 AND HAVE A + HOME R/S! I am floored. They were on Augmentin and dd10 had a + r/s on it. Changed to Azith. (Or maybe vice versa). Sorry. It's been a long month. Anyway. She tested positive on both. So she was changed to Duricef. They seemed to be doing well for a few weeks. Then one son started complaining of headaches, bellyaches and kicked up anxiety. The other son's OCD kicked up. I just did a r/s and one is very + and the other is very faint. Dd10 is negative. When my daughter tested + last time and was
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