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eacampbell67

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  1. PANDAS - Hearing Sensitivity Treatments

    zithro and mino are helping with the other PANS symptoms so not sure if we want to stop yet - we are trying the stoping vit d for a few days and see what happens, we'll also then play with the NAC. We've been told that her hearing sensitivy is related to inflamation still in her system, its been two months & we know recovery will take some time just looking for ways to give her some quicker relief
  2. Recovery Time

    Question - how long does it take to recover from PANS/PANDAS? I know every case is different, but just try to gauge where my dd is in her recovery . She just started 2nd month of treatment(abx &herbs) -headaches & light sensitivity have gone but still has hearing sensitivity & cognitive issues. We believe it was 7 months from her exposure to the time we started treatment....
  3. dd - officially diagnosed with PANS ( combo of lyme exposure, & strep) current daily regime - zithrox 250mg, minocyline 100mg, 1000mg D3, magnesium , NAC (1200mg) , probiotic, herbals - she has extreme sound sensitivity - looking for some good treatments (homeopathic & others) to give her some relief, any suggestions??
  4. TBB plus & OPC for PANS/PANDAS - w/ Clute

    sorry to hear your son is dealing with this - it can be consuming all the whole family. we believe my daughter's started this spring ( exposed to lyme & strep) . starting showing signs - anxiety, by summer time - it was cognitive decline (forgot how to read) & light sensitivity then headaches and sound sensitivity. Our Nurse does believe in PANS, she specializes in lyme so this is right in her lane. we are in week 5 of antibiotics, she's gotten better more herself - less headaches. still sensitive to sound...still can't read. she's going to school but not doing much. we think its going to take 3 months for her to fully recover at best. the TBB & OPC are herbal bacterials & anti-inflammatory What is LDI ?- never hear of it what does it do. Also never heard of SPM? I'll look into it - i think we'll need to prevent flare ups down the road. I know your son will continue to improve - and stays happy and healthy
  5. Most Effectives Treatments for PANS/PANDAS

    thanks msimon & bobh - for the insight, very good for for thought
  6. my 14 yr old dd - officially diagnosed with PANS ( combo of lyme exposure, & strep) we are in week 3 of treatment (we along with our provider suspected is was PANS)- daily regime - zithrox 250mg, minocyline 100mg, 1000mg D3, probiotic, herbals - TBB plus & OPC Our provider doesn't believe in steroids, so we are this course for now. We are new to the PANS/PANDAS ( 3 months to get to this diagnosis) - we've heard about other treatment options - just wanted to get others opinions thanks
  7. PANS - Cognitive Regression & Reading

    MomwithOCDSon - thanks so much for the reply - my wife and I where worried that he ability to read was totally lost for good. We have started reading to her and as she recovers we will try what seemed to have worked for you. She's currently can't read but wants to - we just started treatment ( abx of zithromax 250mg & minocycline 100 mg) along with TBB plus (herbal viral infection fighter) , and OPC (anti-inflamtory) we've seen some real changes over the last 3 weeks - but as you know we are anxious to get her better, the NP we are working with told us it would be 6 weeks min to see some noticeable results, so we thinking it will take a least 3 months.
  8. very helpful, we are just starting treatment for dd, thanks for sharing
  9. my 14 yr old currently taking abx to begin recovery from PANS, we are just in week 3. believe she was exposed in March 2017 - we notice axniety, then buy July morphed in light and sound sensitivity, memory issues and finally cognitive regression and migraines.We've had MRI, EGG, etc all negative. Most concerning thing is seems like she has "forgot" how to read?? Anyone had similar experience? Will she remember how to read once she gets better or will she have to re-learn
  10. my daughter is being treated for PANS/PANDAS - combination of zithromax (25mg) & minocyline (100mg) daily, NP Kayleen Clute is working with us. question - has anyone had expeience using TBB plus or OPC?
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