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Frazzled

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Frazzled last won the day on July 2 2017

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  1. That's great information, Thanks. I know I have a long way to go, my son is so difficult to deal with because of the Bart, I know he has heavy metals and he's MTHFR like I do but don't now specifics. I was reading Dr. Amy yasko and she talks about A CBS mutation that is part it methylation pathway. I have not done genetic testing on him but know genetically he has a mutation for mold susceptiblility. This mold for. At my request is sending me Tox ease, I think it has a couple herbs in it, I'm worried about detoxing due to seizures.he is very stubborn on diet but I can work on that, thx for t
  2. Someone on the site referred me to a Dr. Carolyn Walsh in Leesburg. I see she is on the Lyme board of loudoun county. Has anyone had experience with Lyme? If so what are her modalities ? Antibiotics, herbals,HBot, ? Not sure I can get in? Desperate! He is just laying there say after day till we can get an appt saying he doesn't feel good, if anyone knows of other Dr in va, Md. D.C. Besides Jemsek, Fletcher, Fishman, Mozayeni, please let me know thx!
  3. Thank you for your response, I'm going to try and call a new Dr. I've been reading about because yes you are right, it is so overwhelming to me. My son also has grandmal seizures and stopped taking his depakote a year ago thinking that it was making his brain slow. I'm concerned about doing anything without a Dr. to cause it to happen. Has your son been treated by a Dr.? If so how long before you tried the lomatium? Here is my son's rash. It seemed like it was fading a little, I noticed it about s month ago, foes this rash come and honor does treatment make it go away? I don't see him/ body
  4. I want to hear other people's experiences about Lyme/ bartonella . How to help him while I wait 2 months for dr. Appt and can anyone recommend a dr in maryland/va/D.C.?
  5. He had an I've experienced test 1 year ago and they said it was positive, his number was 40 which equaled equivocal, so tight on the border. He has had many western blots, all negative, infectious disease dr. Did a bartonella Elsa test, guessing that will be negative but we'll see. Current alternative dr. Treating him for black mold toxicity tests, MMP9,trans growth factor, VEGF, Melanocytes stimulating hormone, testosterone and cortisol to name a few and I asked her if these labs would be off due to Lyme as well as mold? She said yes. So she has only treated him for mold. I don't think she k
  6. My son has been sick for 15 months bedridden with all the usual symptoms of mold/Lyme. He was treated for mold and most of his symptoms went away with the exception of headaches, fatigue, neurological symptoms like not wanting anyone to see him and isolating himself in phis room. I discovered purple streaks on left side of body. He has had low testosterone and cortisol , not sure if it was from mold or Lyme. Went to infectious disease Dr. sand he said purple streaks are STRETCH marks ! He is 21 has not grown in 4 years, he is 150lbs. He used to be 175 before getting sick. What do you think
  7. Frazzled, I wanted to know what to do while waiting to get into a Lyme Dr. for Barronella. I see someone said to look at Dr. Bruhner protocol, it seems overwhelming to me and dont know where to start. Also some one mentioned diatomaceous earth which I have, but said child could only tolerate 1/4 of dose, what is a dose? A teaspoon any help appreciated. Thx
  8. Thank you for your responses, it feels good not to be alone. I wish I had read these responses before I went to infectious disease dr. He looked me straight in the eye and said the purple streaks were stretch marks! I said how is that possible, he is so thin and has lost 15 Lisandro the marks go horizontally at an angle across his body. I couldn't believe it. He was treated for mold for 7 months he took cholestyramine and a nasal spray for margins and biofilm.i have to say he did improve somewhat as far as heart palpitations, joint paint, tingling and numbness , sweats, stomach pain,visio
  9. My son has been sick for 15 months bedridden with all the usual symptoms of mold/Lyme. He was treated for mold and most of his symptoms went away with the exception of headaches, fatigue, neurological symptoms like not wanting anyone to see him and isolating himself in his room. I discovered purple streaks on left side of body. He has had low testosterone and cortisol , not sure if it was from mold or Lyme. Went to infectious disease Dr. sand he said purple streaks are STRETCH marks ! He is 21 has not grown in 4 years, he is 150lbs. He used to be 175 before getting sick. What do you think
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