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  1. Thanks for your reply! I'm in Staten Island. My son was experiencing hip pain back in September. It was first diagnosed as toxic synovitis. When it recurred recently, his ped. tested for Lyme, which came back positive (from Quest). This week, the specialist told us that he was likely infected in early summer. I just ordered the Blood Collection Kit from IGeneX to test for co-infections. I'll PM you for additional info. Thanks again.
  2. Hi All, It's been a few years since I've posted. DS11, who had a mycoplasma infection and many of the issues associated with it, has come out on the other side. He's just started middle school and is doing very well! Unfortunately, DS8 has just been diagnosed with Lyme. Our pediatrician prescribed 500mg of amoxicillin, 3 times daily. We just visited an infectious diseases pediatrician this afternoon. I presented him with two questions: Should we test for co-infections? Should we be using an intracellular antibiotic? I was surprised that he answered "no" to both qu
  3. DS5 has just been diagnosed with Benign Rolandic Epilepsy. Does anyone have any experience with this? Thanks!
  4. I recently posted regarding the fact that seven weeks of Zithromax (200 mg per day for MycoP) seemed to have no affect on DS5's chronic sinusitus, tics and OCD. But shortly after that post, the nose cleared, the tics vanished and the OCD (excessive handwashing for fear of breaking toys with dirty hands, etc.) has greatly diminished. A week or so before this, we incorporated two new things into DS's regimen: Cysteplus (NAC -- 1 500 mg capsule per day) and essential oil of oregano (applied to the soles of the feet each night.) This prompts me to wonder if the Cysteplus may have eradicated a biof
  5. Hi All, Ironically, these past two days DS5's tics have diminished and OCD (handwashing) is at a minimum -- barely noticeable. Given this advance, it would be difficult not to stay the full twelve-week course. The tentative plan is to pause the azithromycin shortly before the t & a, although how much before we are not yet sure. Thank you for all your input! Biaxin is certainly still on the radar. -Phil
  6. Our latest dilemma: DS5 has been on Zithromax for close to seven weeks now to treat mycoplasma, and we have seen no improvement in tics or OCD behavior. I believe we are dealing with a macrolide-resistant strain and need to go back to the drawing board. But we plan to have a t & a performed soon and are hesitant to take him off the zithro until after surgery. On the other hand, the recent azithromycin study has prompted us to question if the combination of zithro and anaesthesia might be too much of a strain on the heart during surgery. A blood test will be done soon, and the myco-p ti
  7. Philamom: We used the GI Effects Complete Profile -- Stool, with Metametrix. The fusobacterium and streptomyces came up high, but not high enough to be considered "opportunistic" infections. According to our ped., this is why the strain of strep is not specified. Regardless of strain, I'd like to see the numbers lowered and normal balance in the gut restored. MMC: Regarding your question about strep in the gut, Dr. Yasko makes this observation: "Streptococcal infection in the gut can serve as a reservoir to reinfect the sinuses. Chronic streptococcal infection has been associated with OCD
  8. Update: fusobacteria sp. is in the 5th %tile (highest) streptomyces sp. is 4th %tile. I believe fusobacterium can be pretty dangerous and is treated with penicillin. Contacting our ped. regarding that. Streptomyces doesn't seem to be related to streptococcal, but I haven't yet fully researched this. Does anyone have any experience with this? Thanks!!
  9. DS5's stool sample reveals strep in the gut (4). I heard this can be treated with essential oils but haven't been able to locate any definitive information. Does anyone have experience with this? Thanks!!
  10. Excellent idea! We've been wanting to do the sinus culture because DS has had chronic sinusitis, but we've been holding off because it's an uncomfortable procedure, and he's been through quite a bit with doctors lately. Thanks for the info!!
  11. Hi Kiera, Thanks for your reply. The ENT our ped. recommended prescribed the antihistamine and corticosteroid which triggered the tics and ultimately alerted us to the bigger underlying issues (a blessing in disguise, I suppose). We haven't contacted her regarding the T & A yet. Whoever we ultimately go with, we'll be sure to confirm they're willing to administer IV abx and cultures! Thanks for the info, Phil
  12. Hi All, We are in the process of planning my DS 5’s T & A and are in need of some advice. He is currently on his third week of Zithromax (for mycoplasm) and we want to do a three-month course before the procedure, which would place it at some point in July. From what I’ve read in these posts, IV antibiotics will be necessary. Can azithromycin be administered intravenously? If not, is it advisable to do a test run of the IV antibiotic before the procedure? If anyone can offer any advice on this, it would be greatly appreciated. Our DS starts kindergarten in September, and we’d like to d
  13. Thank you all very much for your fast and informative responses! It seems most of the literature out there regarding PANS mentions strep, but not mycoplasma. Because my DS tested negative for strep numerous times, and does not exactly fit the standard criteria for PANS, I thought he was in the clear. But now the pieces are beginning to come together. Luckily my ped. is aware of this condition, and although I'm upset that he didn't call me immediately with the myco test results (I had to call this morning), I think he'll be on board regarding a long term abx treatment -- at least until we find
  14. Hi All, My DS4 developed motor tics after being on antihistamines and corticosteroids for a month due to chronic congestion that persists regardless of what antibiotic he's on. Tests showed allergies/sensitivities to egg, gluten, dairy, which have been discontinued for weeks, but congestion and tics continue. A blood test has revealed Mycoplasma IGG: 1.08 and IGM: 521. As I research, I'm starting to suspect that mycoplasma may be playing a larger part here than physicians thought (we've been told repeatedly that a stubborn infection might be living in my son's enlarged adenoids). Can anyon
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