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Sheila

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Sheila last won the day on March 1

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  1. Hi Patty, sorry for the delay. At first I wanted to know if it was the tine test. Then I failed to get back to you! How has your son's memory been since you first posted? I have not seen info specifically on memory. I found the Mayo Clinic to be one of the most complete sources for consideration before use and potential side effects. There are some significant ones but they do not say how long effects such as dizziness can last. Please let us know how he is doing. Here are two links from the same site in case they are of any use. Again, not on memory per se. https://www.mayoclinic.org/drugs-supplements/tuberculin-intradermal-route/precautions/drg-20066571 https://www.mayoclinic.org/drugs-supplements/tuberculin-intradermal-route/side-effects/drg-20066571
  2. Sheila

    Book in spanish language

    Hi Rose1, I too wish we had material in Spanish. We are looking into getting some articles translated. Thank you for bringing it up--it's an important issue. Wish we had funds to pay for professional translation and quickly jump start things. Also, welcome to the forums . . . Have you seen specific foods that trigger the vocalizations in your child that you mentioned? Could you please share those with us? I remember when an important study came out in the UK several years ago that showed how some additives could trigger hyperactivity even in so-called "normal" kids, and a doctor wrote an article that he thought it was better to let children eat foods containing those rather than avoid the foods because they need to be able to eat what their friends are eating. I was appalled -- some doctors clearly do not get it. Thank you so much for writing~Sheila
  3. Hi Mertol, thank you for sharing your account of your daughter's tics. It is of course normal to be concerned, and the "wait and see" approach doctors often recommend for tics is frequently not too satisfying. However, it does sometime happen that tics lessen with time, so that's the good news there. However, most people on this forum are looking for answers and steps they can take to hopefully improve symptoms rather than just be observers. It's wonderful that your girl is so bright and doing well even in school even with a foreign language. I'm curious -- where do you live now, when did you move there, and what countries were you in previously? Besides a dust allergy, do you or her mom have any other allergies you are aware of? We'd love to have an update now and then, as you indicated. It's good to read you have focused on her diet. You don't have to answer these questions, Mertol, I just thought members might like to brainstorm with you if you want input. All the best, Sheila
  4. Hi Patty, I'm so sorry you are having this concern. It would seem to be a rare reaction, if indeed there is a connection. (But we know our kids can by hypersensitive.) Can you tell us exactly which skin test was your son given?
  5. Sheila

    waxing and waning

    Hi Supermom13, the term waning is used in the same way that "lessening" might be used. The symptoms are reducing. Then if they start to increase in severity or frequency, they are said to be waxing, getting worse. It sounds like your son is doing very well if he only has a couple of tics a day. For many people, waning could mean going from a score of 5, 5 being a high level of symptoms, down to a 3--simply getting better. Or it can be a time of no symptoms at all. Hope that helps.
  6. Hi moonbound , I would agree with you that what you are experiencing is not a classic tic. I don't think age is as much the factor (tics can develop later in life, not just as kids) but rather the type of movements you are describing. Can you get a referral to a neurologist to get a diagnosis? There are a number of conditions that can result in different types of movement issues. Let us know, OK?
  7. Sheila

    Hair loss at 17?

    Patty, I was just looking online about hair loss for someone else. I found this interesting, that iron may help even when someone does not test anemic. I thought of your son and am just passing it on in case it is of interest. It is multiple pages. https://www.webmd.com/skin-problems-and-treatments/hair-loss/news/20060516/hair-loss-may-be-iron-deficiency#1
  8. Hi James, sorry for the delay with this. I searched this Tourette Syndrome and Tics forum for Garcia TMJ (not in quotes) and came up with several posts. You should be able to learn more in those. There was no link that showed all of them at once that I could share with you. If you still need the information, please go to the search area in the blue bar, top right, and put those words in. I hope you get the information you need.
  9. Sheila

    "Breathing Tic"

    Hi nervoustic, welcome to the forums. Often people who find they help they need do not come back to the forum to update old posts. Do you want to tell us more about your tic -- when it started, when it seems to be the worst? Do you have any other symptoms?
  10. Sheila

    Magtein

    Hi pinkmom, Thank you for sharing this helpful information on magnesium. I have spoken with Dr Teich at length on the phone and know that based on the approach he lists on AAEMonline.org as well as our conversation, he does the type of assessment and treatment that many have found useful. That said, we have not met and I do not know anything about his practice as far as insurance, costs, etc. (except NYC and some other major cities always seem high). If you see Dr Teich I hope you will let us know how things go. Some in Dr. Magaziner's office (the clinic you are considering) do similar testing--it seems Dr Kyle Meyer is a naturopath, not an allergist or physician. Naturopaths can be very helpful, it just depends what you need. I am not trying to convince you who to see, one way or another. Do you think you will see someone soon?
  11. Sheila

    Our Journey

    thanks for the helpful update! Are things still progressing nicely?
  12. Sheila

    Breathing tic -advice needed

    OK, good luck. Maybe someone else will have different advice! Sheila
  13. Sheila

    I’m breaking down !

    gaga, please keep a log so you can monitor how things are going. Something simple, not stressful. We have charts for free on our Trigger Resources pages, which were actually designed as a supplement for those who order the Stop Your Tics by Learning What Triggers Them book. Why don't you go to the section where we have these charts and see if something appeals to you. I think it will help you to put ideas and plans down on paper and that can relieve the need to keep thinking constantly about things. It will also help to give you some direction. I know what you mean about fearing for the future, but as long as you are taking steps in a positive way and seeing some improvement, you will feel better and so will he. Studies have shown that most of what we fear never happens. And it is so good that he is happy and doing well with sports. Enjoy his smiles. Also if you keep a log, then if things worsen for a bit, you can go back and try to figure out what might have caused that to happen. One reason we feel so out of control with tics is that we imagine there is nothing we can really do about them, but for most people that is not the case. There is lots of reason to be hopeful. If he continues to do well and you still have the same problem of worrying so much, then it would be good to get some help for yourself. You could think about seeing a good counselor or find a naturopath who could see if you need something to help adjust your emotional state. You sound like a wonderful mother, and you may have the tendency that most of us moms suffer from, of putting everyone else's needs ahead of your own. You will be able to help your family more if you can find some peace. If you are needing certain nutritional balancing, then that makes it much harder to feel happy. Sometimes there is a simple solution. Does that make sense to you?
  14. Sheila

    Breathing tic -advice needed

    Hi mildticer, Welcome to the forums. I see that no one jumped in here with the particular breathing tic problem you are having. Sorry to hear about it, I'm sure it is a challenge. I wanted to mention that in a situation like this, it is sometimes helpful to think back and try to remember if anything might have changed in your life about a month ago when this started. In other words, approach it with the assumption that something caused the change. It could be something like stress from a new job, change in relationship, or an infection. But it could also be something like a new location for work or home (environmental issues--exposures to dust, mold, new furniture) a pet, allergies--or even a change in personal products -- cologne, for example. Also a major change in diet or drink. Or even a new or different car. There are a number of influences that can play a role. Can you take a little time to brainstorm anything that has changed along those lines? Please let us know. I hope you can get back to us and also hope you are feeling better, Sheila
  15. Sheila

    Detox...

    Hi tropea22, Detox as a treatment has been helpful for tics, but typically when there is evidence of some type of toxic overload. As one example, it was learned by parents that their young boy with severe tics had been exposed to arsenic. After that was discovered through lab testing, his tics were successfully treated with detoxification efforts. Others have been tested and found to have high levels of different toxins. The concept that toxins can affect the nervous system is grounded in common sense. The methods used to "detoxify" should be determined by an expert and any treatment carefully overseen. That said, the term detox is used quite broadly these days, especially given the fact that in the West, most of us have been exposed to toxic chemicals and have assimilated them to varying degrees. Certain foods and nutrients are often touted to detoxify the liver and the body. In your case, did the naturopath have specific reasons to recommend these remedies or do you think it is more of a general cleansing approach? You might want to be sure that the naturopath is well trained in homeopathy for children. (This is just a general statement, I have no idea who you are seeing and what your specific situation is.) I hope this is some help.
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