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Sheila

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Sheila last won the day on May 28 2019

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  1. Hi -- we really appreciate this detailed report and it's heartening to know that you've found some answers for your daughter. I especially appreciated knowing what Environmental Health Center of Dallas. I wasn't sure how things were proceeding after their founder. Dr. Rea (who was on our advisory board) passed away. They were always excellent for mold issues plus so many other environmental issues. I applaud you on moving out of your home to get here way from mold, and you've seen an improvement. I can imagine a rotation diet would be too much to try in someone else's home without a functionin
  2. Hi Always Worried Mom -- I hope you have a response soon. You have a complex post (as many PANS ones are!) and we know a lot of parents are maxed out trying to deal with virtual learning. If you would like to explore approaches that we often recommend for tics, please drop me a note through our contact page on the website https://latitudes.org/contact-us/ Let's hope you find some good answers soon, Sheila
  3. Hi usernamecat, I know it's so hard to limit screen time these days! Schooling often revolves around it. I'm sorry, I hadn't noticed your question about the environmental allergens. So much depends on the situation. Some sensitivities can improve with time and avoidance. And some allergies may improve with age especially if the immune system is strengthened. Of course, treatments can also reduce the response. But if someone has a mold allergy, for example, and they continue to live in a moldy home, their symptoms can be expected to be aggravated. The classic approach is "avoidance, av
  4. Hi -- How did your follow up session go? I had never heard that a deviation in uvula is connected to neurological issues. This could be a clinical finding that your chiropractor has noticed or something more widespread. I saw a bit online about a possible connection to the vagus nerve. It would be interesting to learn more. Maybe you could ask him for more details on this, if there are any case reports he could share. Did you do the allergy test? Please give us an update and let us know how things are going if you get a chance.
  5. Hi Kate424, I'm really sorry I missed this. Have you been able to find any help for your son yet ? If not, please write to me through our contact page https://latitudes.org/contact-us/ We can arrange to connect and hopefully find what you are looking for. All the best, Sheila
  6. Hi SharingSheryl--I loved that: I am totally freaked out by it and my husband is totally not! Hah. That's not unusual, though sometimes the roles are reversed. It must have been a serious bout if you took her to the ER. I sympathize with all the family stress over work and am glad it sounds like you were able to stabilize things. Meanwhile, so many parents are frustrated with the reliance on screens these days. Great that you have reduced computer and phone time. Please let us know if you have seen any change with the allergy-free diet you started a few days ago. When you sa
  7. Hi usernamecat, welcome to the forums. I read your account and really sympathize with what you are going through. Many of us on this site also had the tears and emotional response you are having. The good news is that many of us also found answers. I can't make any promises but the fact that you have allergies in your family is actually encouraging. Both physicians and patients/families have reported that tics can often be more like an allergy of the nervous system than what we would think of as a neurological "disorder." We have an article that will give you an overview of the new t
  8. Hi Deb22 -- and welcome to the Forums. I agree LNN had some great suggestions. Just to let you know, we've received many reports on mold as a trigger for tics, as well as it causing other health issues plus behavior/emotional reactions. We hope you will keep in touch, letting us know how you make out and what new insights you come across as well. Best of luck!
  9. Hi MLee, So sorry to read about your setback. You should be able to get back to where you were soon. I understand food reactions can sometimes take 4 weeks to clear, but no doubt there's no hard and fast rules, so hang in there. Have you tried giving your son an antihistamine to see if it helps? If you do, please let us know. Also, some doctors recommend drinking baking soda (or trisalts) in water to help food reactions. Trisalts are on amazon--not expensive. Now that the initial period has passed I'm not sure how much effect it would have, but it is worth a try. Because he had
  10. Hi Katielyashenko, Welcome to the Forums. I'm sorry you having to deal with the emotional response of watching Max have tics. Most of us have been there, tears and all. But on top of that you've dealt with his multiple open heart surgeries--that experience is hard to imagine. There's good news on the tics, which is that there are often answers to what is causing them. It could be a reaction to something environmental, (allergens, chemicals) a nutritional imbalance, a yeast overgrowth, an infection, food reaction. . . or a combination. That's why the right supplements for his body could h
  11. Hi Vvny, I'm so sorry to read that he is having such major vocal tics. We can see if anyone answers about guanfacine. I'm wondering how is your son is when he wakes up in the morning compared to when he goes to bed at night? And when do they get the worst during the day? How were things before the lockdown? Hoping to hear back, Sheila
  12. I wouldn't lose sleep over this, though I understand your anxiety over it. Hopefully having his dad around will help keep things under control (great he is going)! Maybe Dad can privately help give some guidance on the food choices. If he had severe allergies it would be one thing--then strict adherence would be critical--but that doesn't seem to be the case, right? You know best what it takes in the way of certain foods to tip the scales and increase tics. If if he does go off script and has an increase in blinking it could be a learning experience and he can get back on track once hom
  13. Hi MLee, I've heard a theory that for those with an immune/allergy connection to their tics, just as allergies and sensitivities often improve with age, so do the tics along with them. I don't think research has looked in this direction though.
  14. Hi -- I'm glad you could see some connections with your daughter and some of the symptoms/conditions from the book. I hope the reference below can be helpful to your family. As in any situation, medical needs are unique to the individual and I can't predict if this will be a match for you. Wishing you the best! Sheila This doctor is active in the field of environmental medicine. (They are few and far between). I believe he is near Flint. i did not see a website for him. Gerald D. Natzke, D.O., FAAEM, DABEM 9475 Holly Rd Ste 205 Grand Blanc , MI 48439 Tel: (810) 344.4567
  15. Thank you for adding your feedback, ahmoy44. And it's good to know you had positive results with adjusting diet related to gluten, eggs and refined sugar. It's always helpful for members to receive encouragement on how lifestyle changes can help some people so they can try for themselves. How are things going, Sunflower78? Please let us know if there is any specific info we can provide that might be useful.
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