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Sheila

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Sheila last won the day on May 28 2019

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  1. Hi MLee, So sorry to read about your setback. You should be able to get back to where you were soon. I understand food reactions can sometimes take 4 weeks to clear, but no doubt there's no hard and fast rules, so hang in there. Have you tried giving your son an antihistamine to see if it helps? If you do, please let us know. Also, some doctors recommend drinking baking soda (or trisalts) in water to help food reactions. Trisalts are on amazon--not expensive. Now that the initial period has passed I'm not sure how much effect it would have, but it is worth a try. Because he had avoided eggs for so long and then had a significant repeated exposure, the reaction is not unexpected -- though I know it's super discouraging. That said, I don't blame you for trying!! Scrambled eggs are so convenient--plus now you know what the limits are for sure. Please let us know how you make out. Will be thinking about you both!
  2. Hi Katielyashenko, Welcome to the Forums. I'm sorry you having to deal with the emotional response of watching Max have tics. Most of us have been there, tears and all. But on top of that you've dealt with his multiple open heart surgeries--that experience is hard to imagine. There's good news on the tics, which is that there are often answers to what is causing them. It could be a reaction to something environmental, (allergens, chemicals) a nutritional imbalance, a yeast overgrowth, an infection, food reaction. . . or a combination. That's why the right supplements for his body could help but are probably not going to give you the full answer. The possibilities may seem overwhelming but they are not meant to be--they are meant to be hopeful options that can be eliminated one by one until the culprits are found. 🙂 I would recommend our book Stop Your Tics by Learning What Triggers Them because it is an easy read and can give you good ideas on things to look for and resources to help you. Amazon Where do you live? You might want to consult with an allergist to see if sensitivities can be identified. Here's a summary on tics and Tourette's followed by some sample parent success stories on our site with advice. I hope this helps! Please keep in touch and try not to despair. There are lots of reasons to be hopeful and encouraged. We are glad you wrote. Sheila https://latitudes.org/conditions/what-is-tourette-syndrome/ Griff’s Dramatic Recovery from Tourette Syndrome Using an Allergy Approach Nutritional Supplements for Tics and Tourette Syndrome Rethinking Triggers for Tourette Syndrome Tracking Down Triggers for Tourette Syndrome Dealing with Tourettes or Tics? I Wrote this Just for You What you Eat is What You Are Surprising Answers that Helped Our Son’s Tics My Advice to Parents on Diet and Tics
  3. Hi Vvny, I'm so sorry to read that he is having such major vocal tics. We can see if anyone answers about guanfacine. I'm wondering how is your son is when he wakes up in the morning compared to when he goes to bed at night? And when do they get the worst during the day? How were things before the lockdown? Hoping to hear back, Sheila
  4. I wouldn't lose sleep over this, though I understand your anxiety over it. Hopefully having his dad around will help keep things under control (great he is going)! Maybe Dad can privately help give some guidance on the food choices. If he had severe allergies it would be one thing--then strict adherence would be critical--but that doesn't seem to be the case, right? You know best what it takes in the way of certain foods to tip the scales and increase tics. If if he does go off script and has an increase in blinking it could be a learning experience and he can get back on track once home. It's always a balancing act between issues like this and self esteem/having fun. With my son, he learned that if he was at a party he could take something like a soda, which he knew increased tics, and only have a sip or two, then ditch the rest. When is the camp?
  5. Hi MLee, I've heard a theory that for those with an immune/allergy connection to their tics, just as allergies and sensitivities often improve with age, so do the tics along with them. I don't think research has looked in this direction though.
  6. Hi -- I'm glad you could see some connections with your daughter and some of the symptoms/conditions from the book. I hope the reference below can be helpful to your family. As in any situation, medical needs are unique to the individual and I can't predict if this will be a match for you. Wishing you the best! Sheila This doctor is active in the field of environmental medicine. (They are few and far between). I believe he is near Flint. i did not see a website for him. Gerald D. Natzke, D.O., FAAEM, DABEM 9475 Holly Rd Ste 205 Grand Blanc , MI 48439 Tel: (810) 344.4567
  7. Thank you for adding your feedback, ahmoy44. And it's good to know you had positive results with adjusting diet related to gluten, eggs and refined sugar. It's always helpful for members to receive encouragement on how lifestyle changes can help some people so they can try for themselves. How are things going, Sunflower78? Please let us know if there is any specific info we can provide that might be useful.
  8. Hi -- we are locking this thread so the conversation can be continued in the Comment area of a regular article. That way more people can see it and learn from it. I hope you will participate in sharing ideas there! Please see here. (https://latitudes.org/can-you-help-amelia-with-her-tics/) Thank you!
  9. Hi there and welcome to the forums. Where do you live please? (State/country)
  10. Hello Lenny and welcome to the Forums. I'm really sorry for the delay in responding, this totally slipped through! As Ahmoy44 said, you seem to be in the US. What area of the country are you in? I'm asking in case you would benefit from seeing an environmental physician. Allergy testing is a controversial field, with people--even on this forum-- turning to a range of techniques for allergy testing. Part of the issue is cost and whether insurance coverage is an issue. In general, I would not recommend the mail-in testing. A number of lab tests can be completed depending on the situation; it is best to have a practitioner overseeing those. Please write back and let me know where you live and tell us a little more, OK? Do you think anything changed in your son's environment around the time when the vocal tics started up? How long has he had those? I'm glad you have seen some improvement with the diet changes you've tried. Sheila
  11. Hi Ahmoy, welcome to the Forums. It is good to see that you have already made some helpful observations to help get you started in the right direction. Please check your email, I have sent a note to you there and we will look to provide more info here in the forum. Hopefully there will be more answers for you and your daughter soon. Sheila
  12. Hi Ashley, Please see this article by Dr James Greenblatt, one of our advisory board members, that includes a discussion of NAC. While not addressing each of your questions, I hope it will be useful. Wishing you all the best, Sheila https://latitudes.org/key-nutrients-for-adhd-ocd-and-tics/
  13. Hi Sunflower78--welcome to the Forums. You sound like a wonderful mom and all the efforts you have made to stay green, breastfeed and eat clean have no doubt helped your son. Please don't assume it was the vaccines or that you did anything wrong. Many, MANY kids have symptoms just like your boy. Sometimes they go away on their own, sometimes it takes extra steps to find the cause and then go from there. You are right that there is no way this could be considered Tourette's (Geez!). I apologize that I am out of town and have to get off the computer but will check in soon. Don't despair, there are lots of things that can be done to help your son. Others on the Forum can help also. Best wishes, Sheila
  14. Hi Dawn, You've taken a number of sensible approaches and made a significant effort; I'm sorry you haven't hit on the answers you need yet for your boy. It can be complex to sort everything out. For example, and I'm just throwing this out there for the concept--the diet could have been helping and maybe your community sprayed for mosquitoes and that triggered the neck tic. I'm not suggesting this happened--but it's why it can take patience and investigating to figure things out with environmental approaches. Let's see if others come up with ideas for you as far as physicians. In the meantime I'm sending a private message since you said you are willing to travel. Sheila
  15. Hi Sad Dad, Welcome to the forums. I'm so sorry you are in this situation of feeling helpless. So many of us have had that awful feeling yet also been able to turn things around. Please read a couple of articles on our site that give a overview of approaches people have found useful, linked below. (Don't count on one thing, like some magnesium, to be a silver bullet.) Also I would suggest you get the book you see at the top of this page -- Stop your tics by finding what triggers them. It could be helpful in trying to get to the bottom of what is going on. Our other book, Natural Treatments for Tics and Tourettes -- both books are on Amazon--will give a broader picture beyond triggers, including nutritional supplements and ideas for lab testing if that were needed. Lots of info from families who met with success with natural approaches are included in both. Here are a couple of articles--remembering that everyone is different, just to give some concepts; you can find more on the site. https://latitudes.org/dealing-with-tourettes-or-tics-i-wrote-this-just-for-you/ https://latitudes.org/how-we-reversed-jessicas-tic-disorder/ Our organization finds that tics are often allergy connected--and not just just throat/nasal, but rather an allergy that affects the brain. That allergic inflammation or immune response can be triggered by factors such as gut conditions, chemical exposures, typical allergens, or dietary issues. Please don't be sad. You've come to the right place to start looking for answers, and you seem like the type of parents who can find them. Your daughter sounds like a sweet and lovely girl. It's good to continue to just think of the tics as habits and avoid her being self conscious of them. I hope this helps? Sheila
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