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EAMom last won the day on August 10 2017

EAMom had the most liked content!

About EAMom

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  1. Hi Eliself, Do you know what dose you were giving? Did the flare happen immediately after the dose? Was this for you or your child?
  2. Hi, I'm interested in learning more about Low Dose Naltrexone. Please comment if you have any information or experiences! Thank you!
  3. here's the link http://www.mdedge.com/clinicalpsychiatrynews/article/131114/pediatrics/antibiotics-have-role-pans-even-no-infection
  4. Hey, I'm putting this article here b/c when I've searched for it recently it's been behind a paywall...but today it's not. So now it's here for safe keeping in case it becomes inaccessible again. Antibiotics have a role in PANS even with no infection Publish date: February 9, 2017 By: M. Alexander Otto Clinical Psychiatry News EXPERT ANALYSIS FROM THE PSYCHOP
  5. Moleculera just posted this on their FB page: Excerpts from an interview with pediatrician and immunologist Dr. Seshagiri Rao, of Texas: "I think parents are very smart. Sometimes I see parents whose child has just developed symptoms, maybe a month ago, two months ago. These days with social networking, parents are very well connected and most of the time it is not the pediatricians but other parents who guide them." "Its very important for pediatricians and primary care physicians to trust the parents. If the doctor says 'I dont believe in PANDAS', the parents are left living a ve
  6. I've heard Murphy is mainly good for diagnosis, not so stellar for treatment. You have 2 leading PANDAS physicians in Texas. I would not recommend travelling to the East Coast in your case. Here's a provider list (by state) from Pandas Network http://www.pandasnetwork.org/research-resources/us-providers/ Dr. Sesgagiri Rao (Leading PANDAS Physician) Immunologist 972-964-7374 Plano, TX will treat more complicated cases involving PANDAS and Autism Dr. Bruce Russell (Leading PANDAS Physician) Pediatrician 361-749-1930 Port Aransas, TX May not be accepting new patients. Will treat more c
  7. I love this part...you know he's GOT to be thinking VACCINES (at least that was my first thought) but he just can't say it! “We have more kids who have special needs than ever before,” large, objective increases in bipolar, autism, and other psychiatric problems, as well as increases in psoriasis, nut allergies, and other autoimmune issues. “What causes it is harder to say, but there has been a change for sure in kids and their immune system development that does affect the brain, and has probably led to more neuropsychiatric disturbances,” he said. “No one talks about it. Everyone thinks t
  8. Was it a tetanus only shot (don't think that's available in the US) or the Tdap? Many PANDAS parents (at least the ones I've encountered in FB groups) have stopped vaccinating b/c the risk of vaccination (in a child with PANDAS/autoimmune dz) outweighs potential benefits. There is a teen in one of the FB groups (who was previously stable PANDAS) who has been having ongoing (months) severe issues (meaning hospitalizations, seizure like activity) after tdap and meningitis vaccines. Also, don't forget that you can draw titers to prove immunity (that's what we did for tetanus) if there wer
  9. It sounds like you have PANDAS with onset in childhood. Here's a thread on adult PANDAS (there are others): http://latitudes.org/forums/index.php?showtopic=16422&page=2
  10. Cytokines and inflammation are discussed! "There are several ways in which a severe reaction to airborne allergens might tip the scales for someone at risk for suicide, but here’s one. When a speck of pollen from the air comes into contact with immune cells in the nose, the cells release cytokines—molecules that cells use to communicate messages to one another. Postolache and others believe cytokines might drift through the nose to enter the brain. There, the cytokines might disrupt the brain’s delicate chemical soup, shifting the balance from feel-good chemicals to toxic ones that may trigg
  11. This blog is wonderful! Great PANDAS/PANS article to read and share. https://walkinginquicksand.com/2017/04/19/what-you-should-know-if-youve-ever-wondered-if-your-child-had-pandas-or-pans-even-if-your-doctor-ruled-it-out/
  12. Along the same line of whether vaccines may have set the stage for autoimmunity... Listen to this podcast (#4 interview with Wakefield). The whole podcast is excellent but this part pertains to infection triggered autoimmune dz (e.g. Pandas): At 6 1/2 minutes into it (until 8 1/2 minutes) he talks about ground squirrels in Russia . In some areas, they would all die if exposed to the plague bacteria. In other areas, it was a benign infection. After 16 years of research they figured out the difference was that the squirrels that ate plants growing in areas with high heavy metal content w
  13. New Study: "This pilot epidemiologic analysis implies that the onset of some neuropsychiatric disorders may be temporally related to prior vaccinations in a subset of individuals." "This study examines whether antecedent vaccinations are associated with increased incidence of obsessivecompulsive disorder (OCD), anorexia nervosa (AN), anxiety disorder, chronic tic disorder, attention deficit hyperactivity disorder, major depressive disorder, and bipolar disorder in a national sample of privately insured children." #RFKcommission http://journal.frontiersin.org/article/10.3389/fps
  14. This is another good article on the Lewis Group study https://medium.com/@jbhandley/diabolically-dishonest-lewin-groups-mmr-autism-sibling-study-f83af102bb38#.ng0ypb71u
  15. Here's an article from 2015 about using glutathione vs NAC for skin picking. https://med.stanford.edu/news/all-news/2015/07/antioxidants-help-treat-skin-picking-disorder-in-mice.html Antioxidants help treat skin-picking disorder in mice, researcher says Two antioxidant supplements were found to be effective in treating a skin-picking disorder in mice, suggesting they may be useful in people with the condition. JUL 132015 Joseph Garner and his colleagues found that two antioxidant supplements were effective in helping mice with a skin-picking disorder. Steve Fisch Two
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