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Everything posted by Chemar
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Please help; discouraged and sad
Chemar replied to Bella1604's topic in PANS / PANDAS (Lyme included)
Hello Bumping up your post so others can respond -
PLEASE HELP- any docs in St. Louis area?
Chemar replied to angie's topic in PANS / PANDAS (Lyme included)
Hello I am bumping your post up so others can respond -
Hi Just bumping up your first post so others can respond
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New Here - Question about possible PANS
Chemar replied to Shupermom's topic in PANS / PANDAS (Lyme included)
Hello I am bumping up your first post so others here can see and respond -
Yes, acupuncture actually reduced the tics (and OCD too) We knew my son was dealing with hereditary TS My son's tics were very severe initially (age 9-10) until we started natural treatments (around age 11) and they had reduced significantly within a year after that. They have never totally subsided, but most people who did not know him before do not even know he tics, that is how mild and insigificant they have become.
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Hi Have you had his eyes tested? My son had strong eye rolling as one of his earliest tics and when he began wearing prescription glasses it really helped a lot. Also avoiding fluorescent, flickering and flashing lights helped. Many parents have also reported that removing dairy helped eye tics, but that was not the case for my son. Magenesium(supplement & Epsom baths) and accupuncture really were his "go to" treatments when tics ramped up....
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Welcome dee As a mom whose son had such severe tics years ago that he too suffered injury, I sympathize deeply I have written about what helped him http://latitudes.org/forums/index.php?showtopic=687 He is now in his mid twenties and living a full and active life, unhampered by tics. He does still watch what he eats (no artificial anything) and takes a few helpful supplements. We have a synopsis of helpful info here http://latitudes.org/forums/index.php?showtopic=2459 I do hope you will find answers soon to help your son
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spike in tics from wobenzym or pyrroloquinoline quinone?
Chemar replied to guy123's topic in Tourette Syndrome and Tics
No experience with those per se, but I do know we were always advised to avoid arginine as it is supposed to be a tic trigger. Bonnie Grimaldi used to have info about it on her old website, but that no longer exists. -
Relapse while treated with amoxicillin
Chemar replied to Marie22's topic in PANS / PANDAS (Lyme included)
Hello I am bumping up your first post so others can respond -
Hi It is most likely die off or herxheimer reaction (herxing) That happens when the candida "yeast" cells begin to die off and release toxins....things get worse before they get better/ Using a simple probiotic (we like kefir) and drinking lots of water and taking Epsom baths and other detox methods can really help Milk thistle helps the liver process the toxins
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Which lab to do a Heavy Metal Hair Test
Chemar replied to yufei's topic in Tourette Syndrome and Tics
Hi We had hair testing done I have no idea what Genova does now as I mentioned, it was known as Great Smokies when we used them but this was in the 1990s -
Which lab to do a Heavy Metal Hair Test
Chemar replied to yufei's topic in Tourette Syndrome and Tics
Hi We used Great Smokies which is now Genova Diagnostics............but that was many years ago so others may have more updated preferences -
Hi Doseage is something that really is very dependent on the individual and their spoecific needs. BUT imho that is a very high dose supplement. If you look at the other mag taurates available you will see they are much lower doses.
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adding more resources: For those on facebook who want more info https://www.facebook.com/vaccinetruth and the website http://vactruth.com/
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http://www.organiclifestylemagazine.com/scientists-against-vaccines-hear-from-those-who-have-done-the-research/ For those on facebook who want more info https://www.facebook.com/vaccinetruth website http://vactruth.com/
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Triggers - Discussion on timing and duration of tics
Chemar replied to MarkL's topic in Tourette Syndrome and Tics
Welcome to the forums here at ACN/Latitudes Mark. The answers to your questions are as varied as the triggers and the individuals who react to them!!! My son seems to react fairly quickly when exposed to things that trigger him.....whether injested or environmental. As an example, when it comes to food dyes, my son seemed to always have an instant reaction.........increased tics, increased agitation etc Similarly with flashing or fluorescent light. Chlorinated pools Perfumes etc etc We found that exposure could sometimes have reactions that lasted quite a while. So removing the trigger did not always remove the reaction as quickly as it caused it. Stress triggers him big time as well but there we found a more subtle buildup, and often the most long lasting reactivity. -
Very interesting article! http://www.organiclifestylemagazine.com/scientists-against-vaccines-hear-from-those-who-have-done-the-research/
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Hi sahm Well you know I am not a big fan of neuros related to TS especially due to our personal experiences but I also know that if you are just looking for more input re diagnosis, you might find it beneficial to get another opinion? I read my post above, and still feel the same. We got the dx of Central Auditory Processing Disorder when my son was doing the school assessment to see if he needed any special accommodations related to ADD. It was some years before we knew he had TS as well. So it was a educational psychologist who spotted it and we then went for specialized testing at the Audiometry Dept of a nearby hospital where the dx was confirmed. But we never sensed that the CAPD caused tics though...? at least not that I noticed at the time My son had eye rolling tics then and also got corrective lenses due to astymatizm which did seem to help a lot to calm that tic. A pediatric opthalmologist did that testing. My son has always been very sensitive to light flashing or strobes or even flicker, and flurescent lighting etc. We found that using daylight lamps and avoiding TV or computer in darkened rooms helped. And again his glasses helped too (including transitions lenses that darken in brighter light) Other tics manifested over the next few years. We do have varied manifestations of TS in a number of males on my husband's side, and I have noticed some tics in family on my side too. But the only neuros we saw always just wanted to rx drugs (which we tried and had horrible reactivity and side effects) Still I know there are wonderful neuros who truly can help, so just be sure you are going to one who is open minded and caring, not just a dx and rx doc.
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Hi there and welcome. We have had a number of parents pass through here whose very young children had vocal tics...and many of those resolved when it was discovered there was in fact some allergy involved....interestingly many for whom tics resolved when dairy was removed from the diet and also a number with gluten sensitivity who benefited from going gluten free. There have been a range of other allergens or sensitivities anecdotally reported over the years....food and environmental. So yes, definitely worth investigating further. TS usually manifests with both motor and vocal tics and imho usually has some form of genetic component. There are also tics related to infections like strep (PANDAS), or Lyme Disease and other microbial infections (PANS) so we also have a forum here for those. http://latitudes.org/forums/index.php?showforum=17 We have a thread pinned to the top of this board with some helpful info http://latitudes.org/forums/index.php?showforum=1 I know it's hard as a Mom to want to fix whatever ails our children. But remember that you and your child will benefit a lot more if she doesn't get to sense you being anxious over this tic, and thinking she is doing something wrong...so easy for little ones to pick up on mommy's stress. We have been blessed to hear of so many "success" stories here of tics that totally resolved once the right piece of the puzzle to what was causing them was found. So I hope you will take comfort and that you will soon be on the right path to helping your daughter.
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Help ...... New to tics and we are at breaking point?
Chemar replied to worrieddotcom's topic in Tourette Syndrome and Tics
Hi Do be sure to read our Helpful Threads pinned to the top of this board as there is a lot of info to be gleaned there http://latitudes.org/forums/index.php?showtopic=2459 -
Andrea...you were asking for NEW methods and most of us have used methods that you already identified, so nothing new to add on my end. We used blood tests, skin prick, hair analysis and transdermal testing. All similar resilts. Perhaps someone else has something newer?
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Hi yes, magnesium taurate is the chelated form of magnesium with taurine.
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Well my son definitely did not have stunted growth! He is mid 20s now and 6 ft tall!!! He also was not on it long term but it really helped him tremendously when he needed it most. I think perhaps the problems might be on mega dosing or the mixtures found in energy drinks etc?? Magnesium taurate was the form recommended by our physician
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to read more please go to: http://psychcentral.com/news/2015/06/02/common-pesticide-associated-with-adhd-in-boys/85245.html