Stephanie2 Posted February 18, 2011 Report Share Posted February 18, 2011 I have been told that this may be a pandas child. http://www.oprah.com/showinfo/Exclusive-The-7-Year-Old-Who-Tried-to-Kill-His-Mother?FB=fb_tows_021811_1 Link to comment Share on other sites More sharing options...
SarahJane Posted February 18, 2011 Report Share Posted February 18, 2011 (edited) I've posted messages on the Oprah Show Facebook page & have already had one mom contact me for more info. Have a few others who "liked" my post. I put a message on the Oprah Show web site too. I hope that those who need the help get the help. I plan to watch & DVR this show. Edited February 18, 2011 by SarahJane Link to comment Share on other sites More sharing options...
EAMom Posted February 18, 2011 Report Share Posted February 18, 2011 I really do wonder how many kids with rages/odd/bipolar symptoms/mental illness are undiagnosed PANDAS. Our kids with more classic OCD/tic presentations are ones that have a chance to get diagnosed/treated ...many more are out there. Link to comment Share on other sites More sharing options...
dee45 Posted February 18, 2011 Report Share Posted February 18, 2011 I am watching Oprah and thinking the same thing didn't know any background on the show just started listening while I was tinkering on the laptop then saw Oprah interviewing him and the first thing I thought was PANDAS. Deanna Link to comment Share on other sites More sharing options...
mk8898 Posted February 19, 2011 Report Share Posted February 19, 2011 I watched the entire Oprah show today. The child displays alot of PANDA symptoms. Would be intersted in knowing the child's medical history, all they really talked about was his rages and that the he was diagnosed with a sensory disorder and was put on mental medications that didn't really seem to help him. Soo sad, the parents are not even living in the same house b/c of the child's rages. Link to comment Share on other sites More sharing options...
Stephanie2 Posted February 19, 2011 Author Report Share Posted February 19, 2011 Wow, I watched it this morning, seems like classic pandas to me. Both of my boys have it but only my 3yo gets violent like that with strep. The child was sitting there ticcing as he was speaking to Oprah. Please go on the website and leave a comment for this family! If enough of us mention pandas, not only will this child get help (and get out of the group home) but maybe Oprah will bring light to this illness. Link to comment Share on other sites More sharing options...
Priscilla Posted February 19, 2011 Report Share Posted February 19, 2011 there is also a story on her site about a little girl named Jani with schizophrenia- not responding well to meds... tried to contact family about the possibility of Lyme/PANDAS. Just breaks my heart to know how many more kids may be getting institutionalized. While we are not well, we have gotten a surprising new diagnosis of Lyme, started treatment, and hoping for more progress. I know for certain if I wouldn't have gotten my dd on antibiotics as soon as she exploded last year, she would be nearly be incapacitated- she was spiraling THAT fast (1 week!!) Link to comment Share on other sites More sharing options...
momcap Posted February 20, 2011 Report Share Posted February 20, 2011 Watching those clips sent chills down my spine. My DS used to threaten to kill me, and he tried to put a kitchen knife in my arm. He has not had a violent rage since we started antibiotics in the summer! Did anyone else notice his red hot ear? Do other PANDAS kids have that? My DS always has hot red ears. I know this is common with bipolar disorder. Is it also common in PANDAS? Just curious... Link to comment Share on other sites More sharing options...
browneyesmom Posted February 20, 2011 Report Share Posted February 20, 2011 I emailed the producers last night also... maybe if enough of us do so, word will get back to the family to look into PANDAS. They said they do not always read "every" message, but if enough of us write.... Link to comment Share on other sites More sharing options...
kimballot Posted February 20, 2011 Report Share Posted February 20, 2011 Watching those clips sent chills down my spine. My DS used to threaten to kill me, and he tried to put a kitchen knife in my arm. He has not had a violent rage since we started antibiotics in the summer! Did anyone else notice his red hot ear? Do other PANDAS kids have that? My DS always has hot red ears. I know this is common with bipolar disorder. Is it also common in PANDAS? Just curious... Yes... my son also gets red ears and red cheeks - especially during exacerbations. Watching the Oprah clip it was hard to know if the child was just hot / nervous or if it was tics & a PANDAS reaction with the red ears. Link to comment Share on other sites More sharing options...
Phasmid Posted February 20, 2011 Report Share Posted February 20, 2011 I had never seen "hot ear" discussed before. My son had "hot ear" constantly for years until treated aggressively over past six months with antibiotics. I don't know the cause. One popular physician author, Leo Galland, MD, describes the "hot ear" as being caused by food allergens. Who knows. But, now his ears are not blood red all the time. Link to comment Share on other sites More sharing options...
cwmom Posted February 20, 2011 Report Share Posted February 20, 2011 I emailed them as well. I cried the whole show because in my gut I think he is a PANDAS child. His tics were out of control ... but when he spoke to Oprah he just seemed like such a sweet lost soul Link to comment Share on other sites More sharing options...
philamom Posted February 20, 2011 Report Share Posted February 20, 2011 Watching those clips sent chills down my spine. My DS used to threaten to kill me, and he tried to put a kitchen knife in my arm. He has not had a violent rage since we started antibiotics in the summer! Did anyone else notice his red hot ear? Do other PANDAS kids have that? My DS always has hot red ears. I know this is common with bipolar disorder. Is it also common in PANDAS? Just curious... [intermitten red, hot pinnae or external ear] is also listed as a symptom of lyme, by Dr. Ann Corson in "What everyone needs to know about Pediatric Lyme Disease" Link to comment Share on other sites More sharing options...
Kbossman1 Posted February 20, 2011 Report Share Posted February 20, 2011 I emailed them as well. I cried the whole show because in my gut I think he is a PANDAS child. His tics were out of control ... but when he spoke to Oprah he just seemed like such a sweet lost soul Amen! I have not stopped thinking about this little boy since watching the show on Friday. I wrote to the Oprah show too. I also suggested that she do a show on PANDAS! We are getting the word out....but obviously have to keep it up so that kids like this don't slip thru the cracks. Link to comment Share on other sites More sharing options...
jdude Posted February 21, 2011 Report Share Posted February 21, 2011 Last night when talking with my mom on the phone she asked me if I'd seen this show. SHe had nopticed his eye blinking and her first thought was "could this boy have PANDAS?". I will e-mail the show as well. Just think what a dedicated Oprah show on PANDAS could do... Link to comment Share on other sites More sharing options...
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