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Everything posted by philamom

  1. I'm sorry I haven't replied to your pm - been a hectic week Only have great things to say about the therapist we saw at Rothman - that was 3 years ago. We mainly worked on a specific phobia. We went for 3 weeks daily intensive therapy.
  2. Thanks phillypa - So good to hear from you - Hope all is well! I was shocked to learn that they take them out when there is no pain, but looking into it more I see it is the best move.
  3. Resurrecting an old post. We are faced with the decision of having our daughter's wisdom teeth removed - all 4 at the same time. Her dentist, orthodontist, and oral surgeon feel they should be removed, even though they are not causing any pain. They feel not removing them can reverse what the braces and retainer have done. Thoughts? Has anyone gone unscathed (flare) in having them removed in their children? My daughter is not thrilled of the idea, and of course I worry about a major flare. Thanks
  4. Clindamycin is sometimes prescribed for persistent strep. But one would need to take a good probiotic, as it is known to cause c-diff.
  5. Its so hard to figure out at times what the underlying cause may be - you have to play medical detective. I would suggest a full blood work up, including strep, mycoplasma, lyme & co-infections, thyroid, and inflammatory markers (sed rate, c-reactive, gad -65,etc). Are you treating the yeast? Regarding the intrusive thought- one thing I make clear to my teen daughter (who is currently dealing with one nagging intrusive thought) is that all ocd thoughts are equal on the playing field. Like the above person said, they are just thoughts and there should be no shock value to them, however bad or intrusive they are. Any good therapist should make you aware of that. If you feel uncomfortable seeing someone, maybe try writing down your thoughts and progressing to paragraphs around situations of your thought. Don't write it differently. Try doing this numerous times throughout the day. People with ocd don't act on their thoughts - its the anxiety around the thought that keeps it strong and persistent, and quite the opposite of their character. Example - if you had ocd thoughts you are gay (or straight - works both ways), you could write down situations of you acting out on gay thoughts. Its the same for all ocd thoughts, whether you have a fear of germs, vomiting, fear of sexuality, fear of harming someone. They are just absurd thoughts. By repeating exposures over and over, it brings down the fear level/shock value. Hang in there - and trust me you are not alone
  6. Is Malarone easier on the stomach? What is the difference, in regards to treating babesia?
  7. Hi llm! For the most part things are going well - something recently brewing. Doctor prescribed dd Celebrex for a few really elevated autoantibodies markers. I will send you a pm so not to derail this thread. Thanks for the info, and call a handyman with the lottery winnings. lol
  8. Sorry to hijack, but also wondering if anyone had success with Celebrex. Getting ready to try this - concerned about side effects.
  9. We also saw Dr. Rahman 2 years ago and felt he was amazing.
  10. Congrats on the 3 month post graduation w/zero symptoms!!!
  11. Rowingmom- silly question, but do you rotate your probiotics during the day or on different days? I was thinking of adding another one to the mix - maybe align. thx
  12. Ditto, Ditto, Ditto! My daughter and I saw it on opening day. We both left feeling we've been through a boxing match. It was exhausting, on so many levels.
  13. Where were you two years ago We did 3 weeks there two summers ago, with my then 12 year old daughter. We also stayed at a condo on the bay. She saw Omar - he was amazing! Just wanted to wish you well.
  14. sounds exactly like a herxmeirer reaction to me. seen it many time myself (including w/zith)
  15. airial95- did your kids attend the new program in tampa? Could you give me some details on the program. Is it in-patient? Any other doctors from Rothman there? Thanks in advance - feel free to pm!
  16. Bartonella is very elusive and difficult to test for, it cycles in and out of the blood. That is why the Galaxy test recommends 3 blood tests, days apart.- but also very expensive (not sure if any is covered by insurance). We have been testing for Bartonella every 3-4 months for few years. My daughter test positive 25% of the time, negative 75% - same infection. When using Quest to test Bartonella - make sure doctor or llmd specify it be done at their Nicholas Lab in California. Since it cycles in and out of the blood, one negative bartonella test does not mean you don't have it. I would definitely test again if bartonella symptoms are present. I cringe when I hear a doctor say there is no possibility of bartonella since the test was negative. It is a very tough co-infection to test for and treat.
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