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jdude

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About jdude

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    Female
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    NE Ohio
  1. What is the difference or benefit of Enhansa v. other curcuminoid products that are readily available at health food stores?
  2. Someone else had mentioned to me that MycoP was associated with raging. Then I checked my son's labs from last year, and it was high. He has been on Biaxin for the past 10 days for an ear infection and I swear his mood/tempermant has improved. Biaxin apparently is used for MycoP. I'm seeing his pediatrician tomorrow, so will discuss with him.
  3. Ditto what Heather said. First, it's great to hear you're studying to be an engineer. My son is almost 13, and his emotional issues have hindered his studies at some times to the point I wonder how college will be for him. He is extremely smart (cognitive scores are extremely high), but grades don't always reflect that. Would love to hear your awareness level at that time about what your brain was going through..did you recognize what was gonig on? My son doesn't have a lot of self awareness..he's had some quirky behaviors that are OCD (obsessive thoughts/compulions) related but I think for hi
  4. I was checking his labwork from a year ago and the IgG was in the high range. IgM, low. If it's still high, what is usually recommended for that?
  5. Thanks everyone. I spoke with his psychologist and she agrees we should seek medical treatment (i.e. IVIG) first before going down the path of partial hospitalization(especially if symptoms are PANDAS related, she agreed psych meds wouldn't help). i think she was just getting exasperated with her lack of progress with him. I think perhaps she is not the best fit at this time...he's very good at diverting and getting off topic and he needs someone a little stronger to keep him on topic and recognizing his behavioral issues and working toward correcting them. Although he's always had some level
  6. He's on Augmentin now (actually, at the moment he's on Clarithromycin for 10 days for an ear infection), usually a prophuylactic dose of Augmentin. When initially diagnosed, strep titres were high. Last bloodwork done titres were within normal range. Not sure what other triggers he has, although I will say he has bad allergies..for last month has been extremely congested, have tried three different allergy medications to no avail.
  7. Brief background-DS, 12 diagnosed with PANDAS Sept 2010. Sudden onset of OCD/tics/separation anxiety, handwriting deteroration. ASO titres high, had success with antibiotics/steriod bursts. Symptoms wax and wane. Did not pursue IVIG initially as after first episode, tics went away after a few months, handwriting back to normal, symptoms mild (as compared to Sammy from Saving Sammy). This past year, however, has been horrible. He has been in trouble in school (impulse issues). Recently, he was in serious trouble for stabbing a classmate in the hand with a pencil after constant bullying (she was
  8. I am near Cleveland and have not heard of this doctor. I don't think anyone in the OH PANDAS group has been to him. There is a Dr (features on the PANS video posted here a couple days ago) near Cleveland who does treat PANDAS and is looking to do IVIG here locally. PM me if you want the name/telephone #.
  9. She said she tried to post to youtube but couldn't? Anyway, it will be posted at some point on the Pandas Resource Network website (www.pandasresourcenetwork.com). I'll let you know when it's there.
  10. I was part of the video, I'll ask the person who coordinated it whether she can post on youtube or anywhere else (perhaps even the PANDAS Resource Network website). I'll let you know what I find out. Although you do not have to sign up to FB to view this video. If you click on the link, it is a public view.
  11. Was watching Dr. Phil while folding laundry...it turned out to be about Lyme. Veri interesting. One of the woman there talked about how regular Lyme tests are 60% inaccurate.
  12. Thanks for the recommendation! I also enjoyed "Look Me in the Eye" about Asperger's. Even though my son doesn't have Aspergers, I know kids who do, and it was great insight into how the Aspie mind works. I'll definitely pick up Triggered to read.
  13. Glad you found this forum, it is very helpful. I don't post much, but find the information here very helpful. It does sound like you're head down the right path. Some of the behaviors you mentioned so sound much like my child as well. Wishing you the best of luck for recovery.
  14. My PANDAS DS is 11 (diagnosed at 10). Lately,we've been having several behavioral issues (probably made worse by a steriod course he is on...both for his asthma and PANDAS), severe oppositional behavior, swearing at my DH (saying F-you, which if my DH had ever said to his dad would result in getting his ###### kicked, but thankfully he realizes this is due in part to his condition), repeated potty/body part talk. We're off from school this week, but when he is in school, he seems to be able to keep behaviors in check (thankfully). I noticed last night during a meltdown that his pupils were di
  15. Our ASO titer tests read <100 "normal range", test result "200", result "above normal range". HTH
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