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Everything posted by dee45

  1. I Have not seen any--thats a good time Deanna
  2. Hi I have not posted in awhile either. Anthony is doing very well on Topamax 25mg twice a day and Augmentin 500mg twice a day. Pretty much tic free except for small ones that only a mom would pick up on. I guess I am wondering when do you start weaning. and if on antibiotics which one would you wean first? glad to hear everyone is doing well Deanna
  3. Thanks for all the responses. I do not meet with Lyme doc till mid July--thought I was going crazy. Can you take anything for this?? Deanna
  4. Hello, when do you decide its a good time to start weaning antibiotics?? Deanna
  5. Hello. I have every test to man done but I am still having very strange and painful skin sensations it feels like my skin is burning on the inside. I Have had Lyme tests done and tested for some coinfections but I am hearing that Quest lab is useless with testing for Lyme. I am not meeting with Dr, till mid July. Has anyone every had these sensations?? thanks so much. Deanna
  6. Looking back I think Anthony first started with some mild behavior things that I thought were just developmental then he started with eye rolling and blinking, clearing throat and then head tics. The topamax took a few weeks to work but he has done very well, Anthony is also allergic to peanuts. I have stopped all yogurt and we will see what happens. Deanna
  7. Yes they all do! we stopped the yogurt and will see what happens he loves his yogurt and I do remember stopping this at one point when his tics were really bad. I guess you get in a good place and your kinda like ok go ahead I mean they are just kids sometimes its so hard to limit everything. But I was thinking and I was like why am I giving him the yogurt that has the s. Thermophlius when that is the same things that it is said to cause PANDAS light bulb when off Thanks for the feedback. Deanna Milando
  8. Thanks is that the only antibiotic your daughter has been on? Thanks for the reply/ Deanna
  9. Hello Everyone, I have not posted in a while because of some personal health issues but have checked in from time to time. Anthony saw Dr. Latimer at the end of August we started to wean down the Topamax but he did not tolerate this so once we went back to our original plan he has done wonderfully, He is on Topamax 25mg twice a day and Augementin 500mg twice a day. Over the last few weeks he started clearing his throat again I ignored it which in itself is a big step for me. He started then with his head tic. Once Anthony came and spoke to me about it we started with the epsom salt baths and some Magnesium Replacement. I guess my question is do you think the change of season could be the cause of the flare up. I guess I get so scared that we will go back to the time when his tics were awful I need so reassurance that this is a just a flare up or does anyone have any other ideas. He has got back to eating a lot of yogurt and not sure if this could be the culprit. Thanks any feedback would be greatly appreciated. Deanna
  10. I am watching Oprah and thinking the same thing didn't know any background on the show just started listening while I was tinkering on the laptop then saw Oprah interviewing him and the first thing I thought was PANDAS. Deanna
  11. Hi, I don't think Myrose has posted in a long time. I even tried sending her an email but got nothing back. My son is on Topamax and Augmentin--may try weaning back on the Topamax after we see Dr. Latimer I have not noticed any adverse effects he has just been on it for awhile it works well. Deanna
  12. Thanks for sharing we see her as well and your description was very accurate. So glad you are now on the right path with your daughter. Best of luck on your path to healing.. Deanna
  13. Hi, we see Dr.Latimer as well very happy with her. Deanna
  14. She lives in the NOrthwest Corner of Ohio! Deanna
  15. Hello, Just found out of someone whose son sounds like PANDAS in ohio, if anyone knows any Doctors in Ohio that could help that would be great. Also wanted to know if anyone had Dr. Triflettis and Dr. K's--thanks everyone. Deanna
  16. Dr l is Dr. Latimer she is in Betheseda Maryland 301-530-9200 Deanna
  17. Is the vaccine for menigitis a live vaccine? Deanna
  18. meningitis,chicken pox, and diptheria, tetanus and pertussis. Deanna
  19. Hello, Just sent Dr. Latimer an email telling her Anthony is due for his shots--he will be 11 next week. She said to get the shots and space them one month apart any thoughts. Deanna
  20. I hope everyone has a safe and Happy July 4th Holiday!! Deanna
  21. I think if the titers are high than you do not need to be revaccinated. is this right?? Deanna
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