dee45
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Everything posted by dee45
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Thanks Wendy Deanna
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Does your son still have tics? I did shoot one more email to Dr. Latimer she is going to put Anthony on 250mg Zithromax every day. So she finally called and did apology--all is good. thanks. Deanna
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Hello, thanks for the info--I think my doc will change just can't get a hold of her. I have left 8 messages since Monday for Dr. Latimer she responded to a quick email I sent her on Monday and said we would talk Tuesday well I still cannot reach her any suggestions to help with that. She is good but this piece is really is frustrating. Andrea one of her girls at the front desk says she is getting so busy and I understand that but if you have a patient and you order labs and things come back out of whack you need to be available to talk about them. I can't call another dr. and say so and so ordered labs this is elevated or whatever and have them treat it. sorry to vent just so frustrated. Deanna
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Hi, Just have a quick question Anthony's DNASE-AB level went from 960 until 1360 on Augmentin. He is still having some tics so my question is do I push to get on Zithromax or I do I leave things the way they are?? Need so help with this one. Deanna
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Hi Colleen anthony weighs 70 pounds he is on Augmentin 500mg twice a day, the first level was drawn on 3/25/2009 and the most recent was drawn on February 26, 2010--He was put on Augmentin in October of 2009 after being on Pen-v-k not sure what this means. Deanna
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Hi,' need some help with labs--Anthony's Dnase-b-ab titer is up from 960 to 1360 he is on antibiotics so I don't understand the increase. also what does an elevated IGE-mean?? thanks so much. Deanna
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Help! (from those who've already done Cunningham lab)
dee45 replied to CandKRich's topic in PANS / PANDAS (Lyme included)
we had some issues as well. most labs at hospitals are use to sending blood out--check with your lab at your hospital--you may need an order from doc stating venipuncture for lab draw. Deanna -
Anthony had his tonsils and adnoids removed for recurrent strept when he was just a little over two--nothing else tics, behavior changes noted at this time. Deanna
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thanks i will look into that --the ones I am finding in the store are filled with crap--additives etc. thanks i am going to look into that right now. Deanna
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Hi.' looking for multivitamin for 10yr old any suggestions would be great. Deanna
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Hi, we use the probiotic called Pearls recommended by Dr. Latimer. Deanna
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Hi, want to find a good multivitamin for my 10yr old and suggestions would be appreciated. Deanna
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Hi, 'the link did not work what is the name of the product?? Deanna
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Hi, he has had a on and off again cough but that is it. Do you think he may need a new antibiotic? Deanna
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thanks I did not know that was is actually included in a immunological workup--Dr. latimer did some things but not that many and we see here in March maybe I could ask her run those as well could you please let me know what to aske for thanks Deanna
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Anthony is due for chickenpox and tetanus since he will be turning 11 at the end of summer I was just going to let him get tetanus--is that one ok?? Deanna
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Vickie, he has been probably tic free for at least 3 months. soooo confused. Deanna
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so if the strept test is positive do i change the antibiotics? Deanna
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Questions about antibiotics, supplements, diet
dee45 replied to simplygina's topic in PANS / PANDAS (Lyme included)
Hi, my son is also 10 I try to keep him eating pretty healthy but he is 10 so sometimes I need to let him ---we don't use any supplements --he has been on Augmentin sicne October in conjunction with topamax just started to tic again this week so not sure what is going on. I don't think 10 days is long enough--if it is truly PANDAS then long tern antibiotics are indicated. Deanna -
Hello, Anthony has done great the last 3 months on topamax and augmentin--he was put on the augmentin in October on our last visit to Dr. Latimer was on pen-v-k. ove the last few days i Have been noticing tics which are increasing and a vocal tic at times. I am so nervous that he is slipping back, does this mean the antibiotic is not working we don't see Dr. Latimer until March maybe going sooner I just don't know what to do or is the waxing and waning just normal. I know I probably have the answer to this somewhere its just he was doing so well and now I am just scared. i hate this so much, you are in a good place and then wham right back to where you were(well not that bad) you know what I mean. thanks for listening. Deanna
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He's only ten the more I think about it I think I will probably not let him watch it. thanks for the input. Deanna
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HI, I also posted this on the PANDAS page. Brad Cohens movie Front of the Class airs Saturday I was going to let Anthony watch it and my mother in law was like you should not let him watch this she gave me no real reasons why. Now I am starting to doubt myself. I sent Brad an email about a year ago when this was all so new and he sent me an email back he is awesome. He was very kind and gave me some good insight. www.classperformace.com Deanna
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I also get updates from class performance you can sign up on the link you provided-- I actully got an email from Brad about a year ago-it was in rresponse to one of my desperate emails but he was very empathetic and gave me alot of good insight. Deanna
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Hello, Brad Cohens Movie Front of the Class is on Saturday I was going to let Anthony watch this and my mother-in-law said you should not let him watch that--I am now feeling to doubt myself any feedback appreciated. thanks Deanna
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Hi, Anthony is going back to see Dr/ Latimer I would like to have labs drawn not sure what to ask for -he is on Augmentin and topamax. thanks, Deanna