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Stephanie2

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  1. For those who don't know me, I have been a member of this group since 2009 when my boys were first diagnosed. I have not been as active in recent years b/c we have finally gained control over this beast of an illness. But I like to come back from time to time to give an update, and our 2-year mark seems like a good time to do so. First, I'd like to make a quick announcement...I am now studying to become a homeopath and plan to specialize in autism and pandas/pans. I am already working for a new asd/pandas holistic group as a Holistic Healthcare Consultant (guiding moms to the proper avenues wi
  2. Nystatin will not help c diff, in fact I would argue that it could "almost" be a contributing factor toward the development of c diff. The gut microbes have a limited amount of space in which to "live". When you kill one microbe off (nystatin kills yeast), you make room for another to move in it's place (such as c diff, klebsiella or even strains of gut-related strep). We were on the same merry-go-round of abx mentioned above (and antifungals, etc.), high dose probiotics, etc. In the end it all got out of control and we stopped all abx and now only give homeopathic remedies for all infections,
  3. I'm not sure if what I am about to tell you is at all related to what you are asking, but your daughter sounds like my youngest pandas son (I have two pandas boys). My youngest (4.5 years old) has had strep (group A) and pneumonia too many times to count in the past year. I had him muscle tested a month ago and (even tho it didn't come up in the labs when he was in the ped ICU) he tested positive for strep pneumonia. We do strictly homeopathic remedies for all illnesses (with the exception of the first round of pnuemonia b/c I panicked and took him to ER before calling homeopath, and of course
  4. also there is a c diff nosode that I have used with success for one of my boys. he only required 2 doses and it worked immediately...
  5. did this happen after the tuberculinum was administered? talk to homeopath. it is common for kids to get rashes after remedies as a form of detox or "die-off", although it could be strep and she could need a strep nosode asap...
  6. I dont' know which homeopath she used but my boys have had fabulous succes with homeopathy for over 18 months now and we usse a homeopath located in NYC who specializes in pandas and autism. Her name is Angelica Lemke and she does skype appts for almost all her patients and the child doesnt' even need to be present. It's expensive but sooo worth it. www.asdhomeopathy.com
  7. My sons and I have pandas. I tried SSRIs at first with great success and then I bottomed out and became suicidal and had to discontinue them. Abx helped but I had to be on treatment dose constantly and it was tearing up my stomach. Then I got all of us to a homeopath in NYC (via skype) who specializes in autim/pandas and she got us straightened out very quickly. This was 18 months ago and our pandas is still very much under control without abx or psych meds. I know many of ther kids/moms who are being treated by her with great success, so I would say Dr. K is absolutely wrong about the necessi
  8. My boys have a history of c. diff (from too many abx). We used to use vancomycin (must be oral, not IV) or flagyl, but be careful: if you are going to go chasing gut bugs, have lots of probiotics on board (twice a day) and you may even see the need for diflucan or an herbal yeast fighter if you see yeast start to flare from the abx. And just FYI, we switched over to homeopathy 18 months ago and we had clostridia flare once since then and it was taken care of by a remedy called Clostridia Difficile nosode. My son only needed two doses. But this approach should be overseen by a homeopath.
  9. Does your child receive a zinc supplement? That would reduce copper. If so, maybe you need to reduce the dosage. If you are supplementing copper, watch out, it you go too high you might to see more mental symptoms...
  10. I don't think anyone is too old to get help. I am 38 and myself and my boys are being successfully treated.
  11. So I glanced at the date on the computer this morning and noticed that it has been 18 months today since we switched from standard pandas tx to classical homeopathy. My boys continue to do well with their constitutional remedies and strep nosodes when strep comes around. In fact, we have strep in the house right now and all 4 of us are taking a sip of the strep nosode a few times a day. PANDAS sx (theirs and mine) and sore throats are very much under control. For those who don't know our story (and because I know I will be asked), my boys are 4 and 7 and they have had pandas since they wer
  12. I have two sons with pandas, the youngest has developmental delay and speech apraxia. I have seen a definite correlation with pandas/strep, all gains go out the window and he turns "inward" (if I were to get an eval on a pandas day, he would be classic autism). My son's pandas is now under control and many of the delays are improving, with speech apraxia being the slowest to come along. We do classical homeopathy.
  13. While not actually "homeopathic", an herb called Grapefruit Seed Extract would be great but follow it up (an hour or so later) with good probiotics. Oil of Oregano would knock it out but can be hard on the gut. Personally, we use classical homeopathic remedies but you would need a homeopath really to do this. I just got rid of a vaginal yeast infection very easily with my remedy.
  14. Scott Smith in northern NJ is very good. Also we have had fantatic succes with Pierre Fontaine/Angelica Lemke in NYC, they specialize in homeopathy for ASD/pandas.
  15. that's a good point. we have had some funky stuff come up on throat cultures before. staph, enterobacteria...
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