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  1. I'll find out the medical name and let you know. They told me but I can't seem to remember!!!
  2. Our non PANADAS son had a T&A - we hadn't met our deductible yet, so we had to pay out of pocket. Hospital bill - $4,026 ENT - $800 Anesthesiolgist - $600
  3. JJMOM - Not sure if this is the same medication but it sounds like it. Our 12 year old son (PANDAS) just had this done and he did fine. The warts were around the same area - the beds of his fingernails. The dermatologist froze them first, then injected them with the medication (the injection was painful). The dr. said it would take a couple of treatments. I could tell his skin was starting to peel close to the end of the 3 week mark. We went back again in 3 weeks for another round of freezing and injections ( they said it would at least take 3 rounds for the warts to be gone). Once he re
  4. Thank you for the responses. My plan is for our Ped (she gave us the original diagnosis) to prepare a medical exemption form/letter. The school district is aware of his condition, so hopefully we won't have any issues.
  5. Our PANDAS son will be entering middle school in the fall. 3 vaccines were added for boys and girls ages 11-19. 2nd Varicella (Chicken Pox), Tdap booster (Pertussis - whooping cough) and MCV4 (Meningococcal conjagate). Any older PANDAS children receive these vaccines yet and if so how did he/she react? He has been exposed to chicken pox and also had the vaccine when he was 1 year of ago. As far as PANADS goes, he is doing very good and hate to risk that. Thanks, Michelle
  6. I've only posted a few times; but read almost daily. Short and sweet, our DS was diagnosed at age 9 (May '09) by our ped with an onset of symptoms following a strep infection and mono. Looking back he showed symptoms starting in K with his first strep infection. He was put on abxs immediately, t&a surgery and did a 5 days of steriods and we drove to Dr. L in August of '09. At that time she put him on Augmentin and a 30 day steriod burst. The healing process was very slow from that point on. His main issue was panic attacks, fear of choking and fatigue and sleep issues. When school sta
  7. I watched the entire Oprah show today. The child displays alot of PANDA symptoms. Would be intersted in knowing the child's medical history, all they really talked about was his rages and that the he was diagnosed with a sensory disorder and was put on mental medications that didn't really seem to help him. Soo sad, the parents are not even living in the same house b/c of the child's rages.
  8. Looking for a dose of Omega-3 for an 11 year old. Was told by sales lady that the dose I was buying was for a 3 or 4 year old. Of course that was the only kind that he somewhat liked! Looking for something that taste decent and is a strong enough dose. Have also tried a junior capsule, but it was too big for him to swallow. Thanks!!!
  9. Kimballot - thanks for posting the thread. It brought up several questions. Did you do a steriod burst b/c of the sinus infection or b/c of PANDAS? Our 11 yo son was diagnosed in May of 09. We started augmentin and 30 day steriod burst and t&A surgery. He would get strep twice a year which started out as a sinus infection. We see a allergy/immunologist dr. We do daily nose sprays and nasal rinse of needed. He has not had any major sinus issues until the past month or so. We just switched from augmentin to omnicef (only for 10 days). Im wondering if we need to go longer then 10 days
  10. We have been on augmentin for about 14 months (11 year old son). However, we are fighting a sinus infection. Allergy/sinus dr gave us a prescription for omnicef for 10 days. So for 10 days we will not be on augmentin, which makes me nervous b/c he is showing some forms of pandas that we haven't seen in awhile. I understand that the omnicef will get some of the bacteria that the augmentin will not. Has anyone been on omnicef for a short time and switched back to Augmentin?? Thanks so much.
  11. The white spots are a form of eczema. Our daughter, 10 has had eczema since the age of 2. She always had the red itchy spots, but for some reason this summer we noticed the white spots. We took her to the dermatlogists and he prescribed us an ointment (sorry forget the name) and they are gone. He said that once they clear up that the areas would tan with the rest of her body, and they did. Our 11 year old son was diagnosed with PANDAS May of 09 (is doing great) and we have never had any skin issues (knock on wood).
  12. Thank you for the response. He has never been on Azithromycin before; so I'm very nervous of it is strong enough for him. We have tried other anbiotics in the past that did nothing for him.
  13. DS has been on Augmentin since Nov and has been doing GREAT. Actually the last 3 weeks he has shown Zero signs of PANDAS (makes me nervous to say). However, Monday he woke up complaining of stuffy nose and a little sore throat. Went to ped, did all of the normal stuff (strep tests - both negative). She suggested that we take him off the Augmentin and put him on Azithromycin for 5 days since Azithromycin gets some of the infections that Augmentin wont. I spoke to Dr. L and she agreed. I spoke to the ped again today and told her that he still had some of a stuffy nose and she wants to le
  14. We went to the lab at our local hospital. The only issue they had was trying to figure out the proper way to bill for doing the draw. They performed the blood draw, spun it and even packaged it for me. From there I went straight Kinkos to FedEx it back. They were very nice and helpful. Good luck!!!
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