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Everything posted by Sheila

  1. Hi Sarah, I'm glad finally had your appointment with the pediatric neurologist. You have had the classic (frustrating) experience that parents encounter when they take a child with tics to the neurologist. You want help, but what you get is a label. No further workup was suggested because the docs don't know what to do about tics. Which is not a very stellar approach for a physician who is supposed to heal people. For processing it, my suggestion would be to ignore the label of Tourette's. It is not helpful and is somewhat arbitrary. Please know that allergies can cause both
  2. mlee, to piggyback on Chemar's suggestions, it can be helpful to know what your son might need to be "detoxed" from. For example, does he have heavy metals in his system, did he get exposed to toxic chemicals, or does he need a food-detox program. You might want to consult a naturopath to get some guidance on this. (Sorry that I did not go back and review your posts before writing that suggestion-- maybe you have already done that!)
  3. To Lost99 -- it is a good thing to be looking at probiotics. I would agree with maryangela that a yeast imbalance seems to be very common with kids who have tics. It is often overlooked. Hope you have had a chance to implement that, along with dietary change to avoid foods that "feed" the yeast, and have seen some positive change.
  4. Hi Wonderful Mom -- I saw your separate post and responded there. Please be aware that a simple single intervention does not always make a major improvement, such as giving an Epsom salt bath. It can be a relaxant for the muscles and helpful for some people, but usually other efforts are needed. Don't get discouraged and avoid feeling overwhelmed. There are many things that can be looked at. You are in a good place here in the Forums. I'll look forward to your answers to your separate post.
  5. Hi --(and you do sound like a "wonderful mom." ) We are glad you joined the forum. Some people could think you are jumping on this very quickly when it might just go away, but since your daughter and you are both well aware of the vocal tic starting up as it did, you see a pattern and it can be very frequent, then I would encourage you to go ahead with your efforts. At the same time, it would be a good idea to be low key and casual about it. What you have seen so far with improvement could be a coincidence. But Chemar's suggestion of keeping a log is a very good one and will help
  6. Hi Sarah, Welcome to the forums. I know it is hard to watch your boy tic, and hopefully it will resolve very soon. It is such a feeling of being out of control as a parent. But you sound like the kind of mom who will be able to find answers. It sounds like you have a lot going on related to the travel. Where do you live? In addition to whatever your pediatrician wants to do , you could ask for a referral to an allergist. As for what to request or questions, lot depends on the mindset of your pediatrician. Some take the approach that tics come and go, and it has been a short time (
  7. Hi Patty, sorry for the delay. At first I wanted to know if it was the tine test. Then I failed to get back to you! How has your son's memory been since you first posted? I have not seen info specifically on memory. I found the Mayo Clinic to be one of the most complete sources for consideration before use and potential side effects. There are some significant ones but they do not say how long effects such as dizziness can last. Please let us know how he is doing. Here are two links from the same site in case they are of any use. Again, not on memory per se. https://www.m
  8. Hi Rose1, I too wish we had material in Spanish. We are looking into getting some articles translated. Thank you for bringing it up--it's an important issue. Wish we had funds to pay for professional translation and quickly jump start things. Also, welcome to the forums . . . Have you seen specific foods that trigger the vocalizations in your child that you mentioned? Could you please share those with us? I remember when an important study came out in the UK several years ago that showed how some additives could trigger hyperactivity even in so-called "normal" kids, and a doctor wr
  9. Hi Mertol, thank you for sharing your account of your daughter's tics. It is of course normal to be concerned, and the "wait and see" approach doctors often recommend for tics is frequently not too satisfying. However, it does sometime happen that tics lessen with time, so that's the good news there. However, most people on this forum are looking for answers and steps they can take to hopefully improve symptoms rather than just be observers. It's wonderful that your girl is so bright and doing well even in school even with a foreign language. I'm curious -- where do you live now, whe
  10. Hi Patty, I'm so sorry you are having this concern. It would seem to be a rare reaction, if indeed there is a connection. (But we know our kids can by hypersensitive.) Can you tell us exactly which skin test was your son given?
  11. Hi Supermom13, the term waning is used in the same way that "lessening" might be used. The symptoms are reducing. Then if they start to increase in severity or frequency, they are said to be waxing, getting worse. It sounds like your son is doing very well if he only has a couple of tics a day. For many people, waning could mean going from a score of 5, 5 being a high level of symptoms, down to a 3--simply getting better. Or it can be a time of no symptoms at all. Hope that helps.
  12. Hi moonbound , I would agree with you that what you are experiencing is not a classic tic. I don't think age is as much the factor (tics can develop later in life, not just as kids) but rather the type of movements you are describing. Can you get a referral to a neurologist to get a diagnosis? There are a number of conditions that can result in different types of movement issues. Let us know, OK?
  13. Patty, I was just looking online about hair loss for someone else. I found this interesting, that iron may help even when someone does not test anemic. I thought of your son and am just passing it on in case it is of interest. It is multiple pages. https://www.webmd.com/skin-problems-and-treatments/hair-loss/news/20060516/hair-loss-may-be-iron-deficiency#1
  14. Hi James, sorry for the delay with this. I searched this Tourette Syndrome and Tics forum for Garcia TMJ (not in quotes) and came up with several posts. You should be able to learn more in those. There was no link that showed all of them at once that I could share with you. If you still need the information, please go to the search area in the blue bar, top right, and put those words in. I hope you get the information you need.
  15. Hi nervoustic, welcome to the forums. Often people who find they help they need do not come back to the forum to update old posts. Do you want to tell us more about your tic -- when it started, when it seems to be the worst? Do you have any other symptoms?
  16. Hi pinkmom, Thank you for sharing this helpful information on magnesium. I have spoken with Dr Teich at length on the phone and know that based on the approach he lists on AAEMonline.org as well as our conversation, he does the type of assessment and treatment that many have found useful. That said, we have not met and I do not know anything about his practice as far as insurance, costs, etc. (except NYC and some other major cities always seem high). If you see Dr Teich I hope you will let us know how things go. Some in Dr. Magaziner's office (the clinic you are considering) do si
  17. thanks for the helpful update! Are things still progressing nicely?
  18. OK, good luck. Maybe someone else will have different advice! Sheila
  19. gaga, please keep a log so you can monitor how things are going. Something simple, not stressful. We have charts for free on our Trigger Resources pages, which were actually designed as a supplement for those who order the Stop Your Tics by Learning What Triggers Them book. Why don't you go to the section where we have these charts and see if something appeals to you. I think it will help you to put ideas and plans down on paper and that can relieve the need to keep thinking constantly about things. It will also help to give you some direction. I know what you mean about fearing for
  20. Hi mildticer, Welcome to the forums. I see that no one jumped in here with the particular breathing tic problem you are having. Sorry to hear about it, I'm sure it is a challenge. I wanted to mention that in a situation like this, it is sometimes helpful to think back and try to remember if anything might have changed in your life about a month ago when this started. In other words, approach it with the assumption that something caused the change. It could be something like stress from a new job, change in relationship, or an infection. But it could also be something like a new
  21. Hi tropea22, Detox as a treatment has been helpful for tics, but typically when there is evidence of some type of toxic overload. As one example, it was learned by parents that their young boy with severe tics had been exposed to arsenic. After that was discovered through lab testing, his tics were successfully treated with detoxification efforts. Others have been tested and found to have high levels of different toxins. The concept that toxins can affect the nervous system is grounded in common sense. The methods used to "detoxify" should be determined by an expert and any treatment ca
  22. Hi gaga, It can be upsetting to see the worst situations online. I'm sorry it has been so difficult for you. Have you had a chance to do any of the suggestions that others made in your previous February posts? Tic can be concerning, that is for sure. But the swearing is not common, as you mention you have read. It helps to know that you are doing something to try to address the diet or allergies you said he has; feel like you are moving in the right direction. Maybe you can get some support and counseling for yourself? Let us know how things are going, please and what your options
  23. This is a good suggestion, James. The pre-test (with tongue depressors or similar approach) can often reveal whether this might be a good connection. it is not always a foolproof assessment but worth considering. We have a number of posts on this on the forum. Go to the search box and put in Stack. All threads related to an appliance are not under that search term but you will see lots of feedback and can then search for related topics if interested. It can also help to have a jaw assessment by an experienced chiropractor, an osteopath specializing in manipulation, or an exper
  24. Bernerchio, your efforts really are inspiring, and I love that you have a nutritionist guiding your steps. That can make such a difference. You have the determination it can take to bring about change. For some it is a simple fix, for others it takes a wider approach, as you are doing. For the light sensitivity, you might want to consider getting him tested by an Irlen specialist. I know you mentioned some improvement in this area but he might respond to Irlen filters (you can also search Latitudes.org for info). When there is a connection to specific light wavelengths, they can addr
  25. Jacky, for sure we hear about those specific items triggering tics. There are many such accounts on this forum. Also consider whether your little daughter is in her bedroom more at night around the time you describe, and whether that might be any clue -- lots of people find their kids react to a dusty room or bedding/mattress, or other issues in the bedroom. How is she when she wakes up in the morning after a good rest?
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