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Everything posted by Sheila

  1. tj21 -- I know this must be so difficult. And first, let me apologize that I have not read your other posts where you may have discussed some of the additional efforts you have going on. Since you already have a functional medicine practitioner who is leading the way, and as Chemar mentioned, there are so many factors that could be involved, I'll just share a couple of thoughts that may or may not be a fit. It is possible with major immune issues to become hypersensitive to chemicals and allergens. I used to watch kids in the office of an environmental physician and saw a high pitched scr
  2. Hi MartinStoryKapusta, Welcome to the forums. It's smart you have started investigating triggers for your tics, and a journal log is definitely the way to go. You have brought up a good point about the confusion that can occur when food reactions are delayed. That's when looking back through a journal can help pinpoint a problem. People's responses differ. If someone is truly allergic to a food, the reaction will be immediate in contrast to an IgG reaction or being intolerant to a food where delays as long as a few days can occur. Reactions to chemicals, fragrances and typical aller
  3. Hi Tayna2001, welcome to the forums and I'm sorry you didn't get a quick response. What happens often is that once someone is better, they quit posting because they have found their answers. Wish that didn't happen because others need support, but sometimes it's just the way things go. In any event, yes things can end or stop but no one can make any promises about that. There are lots of factors involved. If someone find that traditional medicine works for them, that's great. But if it is really working, then they shouldn't have to be concerned about waxing and waning, if you know what I m
  4. Hi JMartin27, sorry for the delay in getting to this -- it slipped by me. Try not to be distressed because there are many things you can do that can make a difference for your son. The good thing is that there doesn't seem to be an actual "brain" problem per the neurologist. That doesn't mean there are not things that are affecting his nervous system. I don't understand what he could have meant by saying it is a behavioral problem. It is not unusual for symptoms to lessen when the person is concentrating, like during the car ride. The key areas to look at are allergy, diet,
  5. Hi Elise, welcome to the Forums! We are glad to have your input. I know that some people have tried neurofeedback, with different results, which is not surprising given the different types of approach used by practitioners and the different needs of the clients. Are you using it for tic control or some other associated condition like attentional difficulties or hyperactivity? Did you see a difference when you started the GFCG diet? Good he is low sugar! Are you able to keep him away from artificial flavors, colors and preservatives? Does he have allergies -- or do you have them in y
  6. That's very help information, Argentanya. And it explains why Dr. Walsh doesn't include the Pfeiffer Treatment center on his referral list! The tips on lab work and costs are useful, too. I'm sure your sleuthing will assist others. And we really hope you are finding the help you need for your daughter.
  7. Hi Badim, thank you for posting your wonderful improvement with your dental appliance. We are very happy for you. We know this can be a great intervention for some, and not for others. Could you please do us a favor and post a close up image of your appliance? If we could translate more of what you are saying it would be helpful. But then, the videos say it for you! Are you in Israel? Could you please let us know the name of the person and contact information for who has helped you with this in case others want to see if it might help them? Thank you again, and we wish you al
  8. Hi Abby114, We are glad to have you on the forums. I know tics are so concerning, but you sound like the type of parent who will be able to get to the bottom of this and find causes for the tics. Unfortunately pediatricians usually tell parents to do nothing about tics, which is not in the least helpful! Food allergy and sensitivity can be a big connection to tics, as can artificial colors, flavors, and preservatives as well as MSG--as well as environmental exposures. I think a big clue for you is the food allergy he had as a baby, especially with the milk and soy problem. Blood in the
  9. Hi -- sorry about the link. You can search Magnesium L- Threonate-(2,042 Mg), Patented Original Magtein Supplement From MIT Inventors on Amazon. Seems it doesn't list calcium. Probably a comparison of the amounts of Mg between any Magtein and Natural Calm isn't a direct comparison since they are different types of magnesium. In any case, I'm very glad your boy is doing better right now! Will watch to see what you learn about this topic. Good luck!
  10. Hi JC Mom, I thought someone else might jump in here so was waiting. Please give us an update on how things are going with your boy. I personally love Magtein for myself. I take it along with SAMe (not good for everyone) for mental clarity. I started it about 6 months ago and have intended to write a blog about it but never get to it. I buy mine on Amazon from the original developers of it, but was close to getting the one you have, from Life Extension. I didn't realize there was a powder form which would work well with your son. (I don't know the amount that a child should have.)
  11. Many parents have experienced taking their child with a tic problem to the doctor and having him or her look calm and not be ticcing--it can be frustrating! But the doctor will often take a history that helps them confirm what is happening. If you don't want to see a practitioner you could go at this from the stress level, taking nutrients that are known to help the stress response or reduce anxiety. You could see professional to help with this. Dr. Oz gives suggestions here (be sure to see the different pages.) http://www.doctoroz.com/article/supplements-fight-stress For sure yo
  12. Argentanya, a researcher, Dr. William Walsh, started the Pfeiffer Treatment Center and now focuses on research: http://www.walshinstitute.org/ Dr. Walsh is a member of our advisory board. I notice that on Dr. Walsh's institute website, they offer clinical resources but the Pfeiffer Treatment Center is not on that list (I don't know why). http://www.walshinstitute.org/clinical-resources.html From those within this list above, I believe Albert Mensah at Mensah Medical (or his partner) would have the most experience. That's not saying others could not be helpful. We just posted
  13. Here's what I would suggest -- and you know I am not a doctor. If symptoms are continuing it might be safe to assume that the candida problem has not been resolved. Die-off is not necessarily a problem if the dosage is appropriate and one starts slowly. And if there were to be a die off problem it would show that there is still an overgrowth so the treatment was needed. I am in touch with a dad whose 4 year old son was diagnosed with a candida problem based on a urine test. (issues: hyperactivity, poor impulse control, history of some tics). The doctor recommended Nystatin suspension 1
  14. Let me give this some thought please and I'll get back to you.
  15. Hi Argentanya, Welcome to the forums. I'm so sorry to read about the reaction your daughter had after Adderall. (I'll let others answer whether they have tried it.) It's at least encouraging that some of the other symptoms have disappeared. As for doctors in the Chicagoland area-- two environmental physicians are below. They have a background in allergy and chemical sensitivities. I am not suggesting that one is a perfect match for you, that's always hard to say. If you would be willing to travel, there might be others as well who would interest you. Wishing you the best and I hope you
  16. Would you be interested in seeing a doctor who could help you with this effort? If so,, what city do you live in?
  17. We have an article in which Dr William Shaw gives some simple suggestions for avoiding and for detoxing chemicals, these are things you can consider along with other efforts you are making. Dr Shaw is director of Great Plains Laboratory that has a new lab test for toxins; info is included in the article. http://latitudes.org/4-steps-you-can-take-to-detoxify/
  18. You might want to see what your naturopath thinks of this combination probiotic: http://shop.gapsaustralia.com.au/bio-kult-probiotic-120-capsules/
  19. Hi -- A note about the probiotic you are taking. While that looks like a quality product, it can be helpful to take a combination strain rather than one with only Lactobacillus Rahmnosus. I'm on the road right now but can try to send some suggestions later. I would consider seeing a physician to see if she or he would prescribe Nystatin or Diflucan to address the candida if it was so significant. That's just a suggestion. It's great you are getting the other nutrients into him!
  20. Hi Stratcat , Welcome to the forums. You wrote a very clear description of what is going on. (I sympathize with your issues -- calculus is hard enough without the distractions you have!) As you probably know, Tourette syndrome often overlaps with OCD. Since you describe sounds you used to make a a child, along with muscle movements, you might fall under the umbrella diagnosis of Tourette's. But as you say, you also have OCD type symptoms. People often experience a premonition or need to tic prior to the muscle movement, and that may be what you are describing. But in the end, they are la
  21. Hello Moose_Man, Sorry to see that the anxiety has cropped up along with tics worsening. I looked back at some of your previous posts and you had mentioned a compound formula: Also doing a compound formula for the many minerals, acids, etc the ION profile found. This includes Vitamin A, C, D, E, K, Thiamin (B1), b-Carotene, Riboflavin (B2), Niacin (B3), Pyridoxine (B6), Folic Acid (or 5-Methyl-THF), Vitamin B12, Biotin, Pantothenic Acid (B5), Calcium Citrate, Iodine, Magnesium, Zinc, Selenium, Copper, Manganese, Chromium, Molybdenum, Boron. I couldn't tell if you ever were able
  22. Hi JC Mom, I know some members have seen Dr Stack but are not necessarily online. I did a search and came up with some previous links that might be of interest to you. I did not differentiate whether they were positive experiences or not. We have heard from people who found this approach, including with Dr. Stack, very help and others for whom it did not help, even when at first it seemed they would be good candidates. There is a study going on presently, I believe with Dr. Sims. As I understand it, people are responsible for their own transportation and lodging. Sometimes a
  23. Ryan's post has been edited also. I'll drop Wombat a note that the thread should be OK now.
  24. Hi James_S, It is always so reassuring to read accounts of successful efforts like your family's. I'm so happy for you! Those of us who have "been there" know the heartache in watching a child have tics -- and feeling helpless. So we can relate to how nice it must be to see your son calm. Ah-h-h. It is good to know that you were able to find an integrative practitioner who pointed you in the right direction, though you didn't follow through on everything recommended right now. And you may never need to. You used a good approach, to start with your own plan, knowing you could adjust eff
  25. Hi jcmom and welcome to the forums! About the magnesium, there is a theory that there could be a magnesium deficiency in tic disorders, though there is not research on it and there are a number of different reasons that kids can have tics. One study was planned but results not published that intended to look at supplementing with magnesium and B6 for Tourette syndrome. The entire discussion of the proposed study is here with the rationale behind it. With food allergies, it is best to try to avoid the items even when they are mild--or at least rotate them, say every 4 days. But for s
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