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  1. Hi Sheila,

    Thank you for your continued commitment to finding natural solutions to tics and Tourette's. I know that you post articles on Facebook (which are very helpful), but I was wondering if you could create a Latitudes FB group where people can post their own issues (similar to this forum). The reason I ask is 1) there seems to be less traffic these days on this forum, 2) I belong to other Tics/Tourette's forums on FB, but they don't talk about natural treatments, and 3) i belong to other health-related forums in general (e.g., Pyroluria https://www.facebook.com/groups/pyroluria/, MTHFR https://www.facebook.com/groups/MTHFRGROUP/, etc.) that seem to provide an amazing amount of information. I think this forum was like that about 10 years ago, but people have moved on from forum-type information sharing to Facebook groups.

    Looking forward to hearing from you!

    Tanya Zivin

    1. Sheila


      HI Tanya, I agree that would be a good idea. Let me get my new book behind me (coming out very soon) and then come up with a plan. Sorry for the delay in replying!

  2. Sorry no one has responded to you. I’ve been into this whole thing for a year now, and it’s a slow process. The most valuable testing for us so far has been Great Plains OAT and some random blood tests including strep antibodies (my daughter has none), MTHFR testing, copper, zinc and Vitamin D. We are now able to target focus her supplements. They may be helping her mood, but I have yet to see any effect on her tics. Interesting about PharmaGABA. We tried it once, didn’t seem to help. Maybe i’ll increase her dose to two chewable per day. Good luck!
  3. Nothing is working for my 12 yo old daughter who developed tics after taking Adderall one year ago. We immediately took her off the Adderall, and her first tic, a sigh breathing tic, has stayed the same. She sigh breathes almost every waking minute of every day. Yes, i’ve read the book, I’ve looked at 1000s of websites and combed through this forum. She’s had OAT and blood testing. I even spoke to the famous Dr. Walsh in person and he told me that my daughter’s tics are permanent.😢 We’ve seen two pediatric pulmonologists and a Holistic nurse practitioner. We’ve cleared my daughter of Candida - no effect on tics. We cleared her of clostridia - it reduced one of her minor tics. I eliminated gluten and dairy - no effect on her tics. She does not have allergies except for some Igg - eggs, oats, green peas and shrimp. I’ve eliminated those, no effect on tics. It is not OCD. It is not strep. It is not anxiety. I’ve eliminated most toxins and put her on Reduced Glutathione; no effect on her tics. I need to hear a success story from someone who “cured” their child of tics that resulted from Adderall (or another sort of stimulant medication). I am desperate and running out of solutions. I’m afraid that Dr. Walsh may have been correct.😢
  4. List of foods containing MSG

    Thank you for responding. My daughter has been at overnight camp, but when she left there was no change. I know she's been taking a lot of supplements with gelatin caps, like her NAC. I'm currently looking online for non-gelatin options.
  5. Every time my daughter swallows pills, it sets off her tics. Now I'm wondering if the gelatin in the capsules is causing it...gelatin contains MSG. https://medium.com/@kimo_16661/how-i-discovered-that-some-foods-were-messing-with-my-sons-brain-3c6bd63daa6d
  6. Ketogenic Diet for Tics?

    Thanks for responding and let me know how it goes with you son!
  7. Curious to see if anyone has tried a ketogenic diet to reduce their child's or their own tics. If so, what were the results? The reason I ask is because if you connect the dots between the following two articles, you'll first find out that increasing the neurotransmitter GABA, may help reduce tics/Tourette's. The second article states that a ketogenic diet increases GABA in the brain and has been used successfully to treat epilepsy. http://neurosciencenews.com/tourette-tics-gaba-2815/ https://www.psychologytoday.com/blog/evolutionary-psychiatry/201104/your-brain-ketones Thoughts?
  8. Thanks, Sheila! So I found out some interesting info yesterday. According to Dr. Mensah's office, The Pfeiffer Medical Center (http://www.hriptc.org/index.phpis) was basically bought by a physician who is not trained in the Walsh Protocol (they bought the brand name of "Pfeiffer.") Drs. Mensah and Bowman of Mensah Medical (http://www.mensahmedical.com/) are the world-renown experts in pyrrole disorder. Ironically, Drs. Mensah and Bowman were both trained at The Pfeiffer TREATMENT Center - the original Pfeiffer - and both The Pfeiffer MEDICAL Center and Mensah Medical are located in Warrenville, IL. Confusing to say the least. Unfortunately, Mensah Medical charges $1,115 + labs ($250-$500) for 6 months of consultations. No insurance accepted, except maybe the labs, But I found a loophole. If you order a test from DHA Laboratory (https://www.pyroluriatesting.com/), you can buy a package ($205-$435) which includes a 20-minute phone consult with Dr. Mensah. The consultation fee can later be applied to that $1,115 above if used within 6 months. Possibly the labs too. Depends on if the doctor wants to run the labs again. Hope my detective work helps someone else.
  9. Thank you, Sheila! I just finished reading your book. Thank you for putting together such a comprehensive guide and for continuing to monitor and help other parents and patients out in these forums! I looked into these physicians, but after reading your book, I'm not so sure she has allergies/environmental sensitivities; I think it may be more related to brain autoantibodies/autoimmunity and/or candida. Do you have any experience with the Pfeiffer Medical Center in Warrenville, IL?
  10. My daughter developed a breathing tic after having an adverse reaction to Adderall. The pulmonologist called it "sigh breathing." After we went on a cruise, she got sick, and then started clearing her throat and having esophageal spasms. The latter two have diminished, but the breathing tic is constant. She is no longer on Adderall (or any medication). Trying to find a holisitc approach and physician in the Chicagoland area too. Would appreciate any suggestions regarding dealing with the Adderall/tic connection from a holistic viewpoint and finding an appropriate local practitioner.