kim

Alison, Just wanted to quickly say God Bless you for that response. If I were in Mos shoes, that would be just what the "humhum" Dr. ordered. I also wanted to tell you that I don't understand everything I post either....but in regards to Dr yasko's PANDA"S excerpt, I did think it would be interesting to know what blood types our kids have. Is there an over abundance of any type? I'm still not convinced that PANDA's is (all) about abrupt onset. It will be interesting to see what research kicks up in years to come. The other thing is, I'm wondering if this section might not be a good case for using epsom salts, since they provide sulphur, during a flair related to strep? ********** One particular extracellular enzyme produced by streptococcus is a sulfhydryl protease. This protease is capable of cleaving sulfhydryl groups and may lead to a deficiency of available sulfur containing moieties in the body following streptococcal infection. These sulfhydryl groups are involved in the binding and elimination of heavy metals in the body. Streptococcal infection is also known to lead to elevated levels of the inflammatory cytokines NFKB and TNF alpha. In addition, the level of TNF alpha is inversely correlated with glutathione levels. Consequently, high TNF alpha levels as a result of streptococcal infection would result in decreases in glutathione levels. ************* This may be really simplistic thinking on my part but just thought I'd mention. Kim

I have to tell you guys, today I went to the new Pediatrician with my neice. We have a beauuuuutiful baby girl. Got into the vax. thing. Needless to say, she COULD NOT (Dr.) figure out why ANYONE would be against Pediarix. I gave my reasons, including that the birth dose of HEP B being extra (which our girl did not get). I asked her about the aluminum and formaldehyde and if she didn't think there was ANY chance that some kids immune systems were being overwhelmed. We explained that we wanted the individual shots spaced farther apart. She said that she didn't think the things I was talking about were still in the shots, and yes the birth dose was extra, but in some populations, not really around here.....(I'm assuming she meant in area's of heavy drug use and infected Mom's?) that it could be a problem. All she kept saying was, Pediarix was the same 3 (5 components) shots that they would get anyway only in one vax! Why wouldn't I be HAPPY about that? Then she started in on my neice about this being HER decision, not mine, and to do her own research. HA! My neice calmly said I don't want it, it's too many in one day. Then I asked her about thimerisal. Her response "Oh, that was a hoax. One of the Dr.s that made that claim apologised." I told her she was referring to Andy Wakefield, and I really didn't think she had her facts straight. She then said we could just agree to disagree. Suddenly she didn't want to discuss it anymore. I never did want to discuss it, I simply asked told her it was a concern, and we wanted individual vaccines she kept saying "why in the world, we've been waiting for a vax like this for years, why would you possibly etc. The word HOAX just about brought my snickers butt, right off the chair. I smiled a lot and was very non challenging, but she got a little flustered. Please read the insert for safety info. regarding the use of of Pediarix in infants given the birth dose of Hep B. Here's the link http://72.14.203.104/search?q=cache:NNF7nm...k&cd=8&ie=UTF-8 Pediarix The aluminum and formaldehyde are there too.

Alison/Mos, I'm so glad to hear some of the stuff I post is interesting to you. I never knew I could fall asleep sitting straight up! The tops of my arms on the underside are going to swat me right in the face as I try to use a hose this summer though. Confiscated Easter candy and research are depleting me of some nutrient and it appears it's making my hind end bigger. I googled it, and exercise came up, but there is so much misinformation out there....I'm not buying it Glad you and yours are well Alison. Mos, don't feel alone! I'm going to let others with PANDAS experience answer what they have time for, and if everyone is busy, I'll see which of your questions, I may be able to help with. Kim

There is no point to this post, I'm only looking at the pro's and cons of medications like zantac, pepcid, prevacid and motrin. PANDAS readers may be interested in this too. http://www.ncbi.nlm.nih.gov/entrez/query.f...02%20INHIBITORS http://en.wikipedia.org/wiki/Celecoxib I have read two posts, one here on page 36, and one on another forum regarding the use of Zantac and Prevacid where it appears the use of these things brought on tics. The post on the other forum was from a Mom of an infant who was prescribed Zantac for reflux. She said it was given btwn the ages of 3 weeks and 7 months in a dose that exceeded the recommended dosage for her daughter (age/weight?). She said it left her with tardive dyskenesia(sp?). She said there was improvement after stopping the use, but one year later, her daughter still has unusual movements everyday and an annoying tongue movement, and she was looking for help. Zantac was prescribed for my youngest son for allergies (H 2 blocker). Pepcid was prescribed by his Ped. for repeated stomach aches. I didn't give it to him either time. ************* From HSI e-Alert How Antacids Cause Stomach Pain Antacids are a quick fix with a steep price. Over time, they reduce your level of stomach acid. Which leads to poor digestion. And more stomach problems! Plus, bad bacteria and viruses have a field day when there's less acid around, creating a breeding ground for infections. And without enough acid, your absorption of crucial minerals such as calcium, zinc, and magnesium grinds to a halt. *************** On the other side, when my oldest son has had the head shaking flair, I have thrown in the towel and given him Motrin. When I quite discouraging the use of Motrin, the head flair got better twice. (I certainly can't say it was the motrin. We increased certain supplements, illnesses improved-a lot of variables.) I assumed it allowed him to sort of get ahead of the pain, which reduced the urge to continue the tic, but now, I'm wondering about the anti inflammatory effects of motrin. I know there are many natural substanaces for reducing inflammation. I'm was just curious if anyone else is taking any of these medications and if they have linked them to improvements or adverse effects?

lacovcit, I know NOTHING about TS meds and I have NO medical background, but I did read something with a list of supplements, referring to some studies that have been done (don't know how many, or how reliable) showing that certain supplements may be helpful when taking meds, to ward off Dykenesia. I will see if I saved it anywhere. If you decide to try ANYTHING regarding supplements ESPECIALLY with the use of meds, please be sure to CHECK WITH YOUR PRESCRIBING DR and A PHARMACIST for any interactions or medical conditions that should be considered with supplement use. This is something you may want to read through. http://www.autismanswer.com/articles/yasko..._reversing.html This article is loaded with information on Excitotoxins. Even with limited resources, I hope you keep searching and learning. I would do the food allergy testing if it's available to you. One more clue, and anything to help keep your meds to the lowest level, I would think would be helpful. Can you get your reg. Dr. to test your zinc and copper levels for you? Kim

Mos Sorry I keep posting general info. on your thread. I wanted to tell you, if you go down to the bottom left, you will see pages. Go to page 4 and you will see "ad ccl" on the page about 1/2 way down. Click on those initials. Then you will get a page that says Profile Options in the top right. Click on that, and it will say...find members posts. That will bring up all of Alison's posts. You can do the same thing for Ronna. Also, you can just use the "pages" option to search threads with PANDAS titles. Alison said she has used Amoxicillian and biaxin, I believe, but you will get a lot of details if you search the posts I mentioned. If you have any trouble, just holler. I know it's hard dealing with these problems, not to mention being out of the country. Kim

A parent on ASD solutions was saying that her DAN! Dr. consulted with Usman (former exec director of Pfeifer Institue) and her theory was that the strep was in the gut provoking the autoimmune reaction and would not show on a throat culture. Her son had negative cultures and no sore throat, yet had 3 acute episodes of PANDAS. She goes on to say that Immonosciences Lab (Dr. Vojdani) out of California has developed a PANDAS panel which is a much more effective test for PANDAS and her sons titers always turned up high on that test.(as well as myelin basic protein, B cells etc.) She posted this link For more info on the PANDAS panel, see: http://www.immuno-sci-lab.com/2003_cat_page115.htm http://www.cidpusa.org/PANDAS.htm....This link is probably already here somewhere, but thought I'd post it again. Basic PANAS's info.

Andy, I too am a fan of olive oil. Funny, right after your post, I came across this. My bottle says.....may become cloudy if refrigerated. ERRRR. Dr. Weil olive oil http://www.drweil.com/u/QA/QA365370/ http://www.drweil.com/u/QA/QA365372/ This is one that Mrs. Doubtfyre posted that she uses on the gluten/celiac bd. http://www.carotino-usa.com/

Dr. Amy Yasko on Strep http://www.autismanswer.com/articles/yasko...citotoxins.html Blood Type/Streptococcal Infection The A-B-O system for blood typing is dependent on the blood group antigens that are expressed on the outer surface of an individuals' red blood cells. Those with blood type A have NAC-gal (n-acetyl galactosamine) as the predominant blood group antigen, and those with type B have galactose as their primary antigen. Those with blood type O have fucose as a predominant antigenic determinant on their red blood cells. In addition, to a lesser extent the NAC-glu (n-acetyl glucosamine) antigen would be accessible to the immune system in those with blood type O due to the limited carbohydrate antigen on the surface of type O red blood cells. It is necessary for the body to discern the difference between self and non-self, and to prevent the immune system from attacking self. As a consequence of this "tolerance" to self, those with blood type O would have a higher tolerance to NAC-glu, and would not have as high a natural tolerance to NAC-gal and galactose as would those with blood types of A or B. Similarly, those with blood type A would have a higher "self-tolerance" to NAC-gal. The major carbohydrate antigenic determinants on the surface of the streptococcus bacteria are predominantly NAC-glu and NAC-gal. As a consequence, persons with blood type O and type A would have an initial greater natural tolerance to infection from streptococcal bacteria. After repeated exposure to the streptococcus bacterium, an immune response would finally be mounted, and targeted against the antigenic determinants on the bacterium. When this happens the immune cells of the body inadvertently launch an autoimmune attack upon body tissue with antigenic determinants that are similar to the antigen on the surface of the streptococci. This reaction to the NAC-glu and NAC-gal on the surface of the streptococci could also lead to an autoimmune type reaction against the NAC-glu/gal in the GI tract. This process has been recognized since the middle 1980's and is known as molecular mimicry. The excessive shedding of NAC-glu and NAC-gal, otherwise referred to as GAG has been described and well characterized by others. Suffice to say that the shedding of GAGs in the GI tract is enhanced with immune activation and inflammation. Following infection and/or inflammation, the body would need to replace GAGs that have been shed, as well as to sulfate them. If there is a sulfur deficiency in the body, this would lead to undersulfated GAGs in the GI tract along with the deficiency of other sulfur related proteins in the body. Nitric oxide has been shown to inhibit sulfation of GAGs. High levels of nitric oxide are a consequence of excitotoxin damage. Generally, bacteria elicit a B cell mediated immune response, and viruses elicit a T cell mediated immune response. However, a large number of extracellular toxins are elaborated by streptoccocci, all of which have the ability to nonspecifically stimulate T cells. Therefore once an immune response is mounted against streptococcus it would involve both T cell and B cells resulting in a major inflammatory reaction. One particular extracellular enzyme produced by streptococcus is a sulfhydryl protease. This protease is capable of cleaving sulfhydryl groups and may lead to a deficiency of available sulfur containing moieties in the body following streptococcal infection. These sulfhydryl groups are involved in the binding and elimination of heavy metals in the body. Streptococcal infection is also known to lead to elevated levels of the inflammatory cytokines NFKB and TNF alpha. In addition, the level of TNF alpha is inversely correlated with glutathione levels. Consequently, high TNF alpha levels as a result of streptococcal infection would result in decreases in glutathione levels. Streptococcal infection is also associated with a wide variety of behavioral disturbances. High levels of TNF alpha (as a result of streptococcal infection) have been implicated in Tourettes syndrome, facial tics, obsessive compulsive behavior, and schizophrenia. On a related note, lithium (the most popular prescription drug for treating the mood swings associated with manic, or bipolar depression) has been demonstrated to act by protecting the brain from over stimulation by glutamate. Excessive levels of glutamate have also been implicated in drug craving and in addictive behavior. Consequently, the net results of streptococcal infection are depletion of Vitamin K levels, decreased glutathione levels, decreased sulfhydryl protein levels, over stimulation of the immune system, increased TNF alpha levels (which trigger OCD, facial tics, etc.), potential autoimmune responses and inflammatory reactions against the GAGs in the GI tract.

http://www.mysanantonio.com/news/metro/sto...ne.2670429.html WASHINGTON -- A major mumps outbreak in eight Midwestern states has raised questions about the effectiveness of the mumps vaccine routinely given to children. More than 600 cases of mumps have been reported in Iowa, compared with three cases last year.

IRONIC? Vax both of my boys received. Combination Hib and DTP. I'm not chemist but the casamino acids AND yeast kind of make me wonder, not to mention the Thimerosal. In another article it referred to casamino acids as casein. This vax was licensed in 1994. I'm wondering how many with milk sensitivities had this, and need to see what other vax. are grown this way. It seems yeast is mentioned in at least a few, but this one was the first time I saw caesin. It destroys vitamins and Trypophan? Was the amount in the vaccine, being given to an 8 week old infant possibly having this effect to some degree and then again at 16 and 24 weeks? Tetramune: http://www.whale.to/vaccines/tetramune.html The diphtheria and tetanus toxoids are derived from Corynebacterium diphtheriae and Clostridium tetani, respectively, which are grown in media according to the method of Mueller and Miller and are detoxified by use of formaldehyde. The toxoids are refined by the Pillemer alcohol fractionation method and are diluted with a solution containing sodium phosphate monobasic, sodium phosphate dibasic, glycine and thiomersal (mercury derivative) as a preservative. ******** The oligosaccharides are derived from highly purified capsular polysaccharide, polyribosylribitol phosphate, isolated from Haemophilus influenzae type b grown in a chemically defined medium and coupled by reductive amination directly to highly purified CRM197. CRM197 is a nontoxic variant of diphtheria toxin isolated from cultures of C. diphtheriae C7 ( beta 197) grown in a casamino acids and yeast extract based medium. The conjugate is purified by diafiltration to remove unreacted protein, oligosaccharides and reagents, and sterilised by filtration. http://www.usbio.net/Product.aspx?ProdSku=C2080 Casamino Acids is a hydrochloric acid hydrolysate of casein. Supplies a completely hydrolyzed protein nitrogen source. It contains a small amount of cystine. Tryptophan and vitamins are destroyed by the acid treatment. The remaining amino acids (in varying amounts) are a source of nutrients for various microorganisms. Amino acids are highly soluble and suitable for use in tissue culture. Salt content is typically 30-40%.

Steph, I ran across this and thought it might be something you might want to read too. http://www.ccid.org/stealth/encephalopathy.htm There are so many area's to search for these types of problems. I would also recommend that you get copies of any reports from tests that the neurologist might order. Read them yourself. It appears some parents find info. that turns out to be important that the Dr. may have dismissed. Thoughts are with you today. Kim

Hi Andy, Hope things are well with your little guy. I was aware of the leaded glass and the older ceramic dishes, but glazes in the newer stuff surprised me. I think your right on with the import remark, and who knows about stuff that's made right here, if it's profitable enough. Apparently, it's still in the glaze, and if you have different colors, it may test on one color, but not the other. This is part of a remark from a parents post; and after doing some research found out Leaded porcelain in bathtubs was used as recently as 12 years ago. It sounds like chipped or damaged, may be worse and epsom salt baths might increase uptake of lead? Would love to hear an update on your son's progress when you have a minute! Kim

lynn, The thing that jumps out at me, is your comment about the vit B. I have read several complaints on the Autism bds. about too high vit.B content in some of the vitamins, and how their kids can't handle that much. My oldest son showed 103 on his P5P/vit B level (top of normal range 50) and younger son showed 48. Youngest was not taking any vitamins at that time. It says Pyridoxal 5 Phosphate next to the number so I'm assuming there is not a problem with conversion. I suspect B12 levels to be low, if anything, and biotin with my youngest son. His fingernails and toenails have been paper thin since he was an infant, they used to be almost non existent! I read somewhere, where candida can cause havoc with biotin and other B vits too. Kim

I typed this a week ago and saved it, so I could go back and double check some things I said here. I haven't had time, and I'm going to post it anyway, in case it may be of interest to someone. Please do your own research and check with your Dr. in advance about what vaccine, how many, what is required...and what is just recommended BEFORE you vaccinate. If you don't have the time to search on Internet, ask for the insert from the box. I have found that they give a lot of info, on the prevalence of what is being vaccinated for, info on adverse reactions etc. I posted not long ago that my niece is expecting a baby in a couple of weeks. I've been trying to help her pick a Pediatrician, and getting more of an education on vaccines. I called 4 offices, mostly DO's some had an MD and a DO or two in the office, and they were ALL using Pediarix. I call this a 5 in one vaccine since it contains Polio, Hep B and DTaP, they refer to it as a 3 in one. I guess they don't consider tetanus, diphtheria, and acellular pertussus to be 3 separate illnesses either. I don't like Pediarix for a few reasons. One, if there is an adverse reaction, you don't know which component caused it, two, since a birth dose of Hep B is usually given, you are actually receiving an unnecessary 4th dose, and I feel it's too much to give 6 vaccines in one day, as the Hib is sometimes given with the Pediarix at 2 4 and 6 months. At the 6 month visit, they are recommending Prevnar or the pneumonia vaccine also, so make that 7, on that visit (not all offices do it the same way, at some they may leave time in-between, at some they may do more than 7, if Hep A or meningitis are recommended too...this is MY understanding). So, I moved on to calling Wellness and Hopewell Pharmacies to see if I could find the MMR as separate injections. Hopewell 1-800-792-6670 had all three. The cost was 31.85 for measles, 26.45 for mumps and 28.55 for rubella. There is a 30.00 S&H fee. He told me that the Pediatrician needs to fax the order about 1 week in advance. You need to pay in advance and ask insurance for reinbusement. Wellness said they could only get the measles and rubella in packs of 10, cost $200.00. They said mumps was unavailable and they didn't know when it would be available again. Then I called the Health Dept., and YES.... They can give the individual vaccines, not just the Pediarix. I didn't ask her if they carried the MMR individually (forgot). The lady I spoke with was very respectful of all of my questions, and confirmed that yes, babies given the birth dose of Hep B were receiving an extra dose, when Peds. used Pediarix. I told her about my concern of adverse reactions and not knowing which one may have cause, and her remark was that the DTaP would be the most suspect. I also told her that I had read that the TDaP was now on the schedule for 12 year olds, and asked why TDaP and not just the tetanus booster. She said Pertussis is on the rise and that, is now the recommendation. Afterwards, I wondered why, since my son has been vaccinated 5 times previously for Purtussis, what makes them think this on will provide immunity, and for how long? It was interesting, when my niece told her OB that she didn't want the birth dose of Hep B and that she knew she needed her titers tested to prove that she was negative (so an infected Mom doesn't pass it to the baby at birth) her OB informed her that it had already been tested in her pregnancy blood work and was negative. Why would you test these titers, give 4 doses to an infant 6 mos. of age and younger, when Hep B is transmitted through sexual intercourse, getting tattoo's, IV drug use, and blood to blood contact? This, in my opinion is outrageous, especially when this is NOT explained to parents, so an informed choice can be made. Sorry if I'm repeating myself here, but I now realize that both of my boys had reactions to vaccines. I specifically and innocently asked one Dr. in ER why he didn't suspect his shot when the fever (105) and rash were in the time frame that's warned of. He said the rash didn't look right. Why wasn't a VAERS report offered? Maybe I would have had a heads up, before I did the same thing to my second son **Pediarix does NOT contain HIB....It's DTaP, Polio, and HepB** OOPS Changed above

The Age of Autism: Pox -- Part 1 By Dan Olmsted for UPI http://tinyurl.com/qhcet Children in families with problematic reactions to chickenpox virus may be at risk for developing autism if they get that live- virus immunization too close to other live-virus vaccines, a three- month United Press International investigation of cases in one northwest U.S. city suggests. *************************************************************************

http://www.leadinspector.com/product/index.php Recent talk about lead in older bath tubs, and the use of epsom salt baths in these older tubs being problematic for exposure. Also, one parent reported that a set opf dishes purchased at Target last year, tested positive for lead. Parents are saying that you can get lead testing kits at home Depot, and various hard ware stores, also at link posted here. ******************************************** In a message dated 18/04/2006 02:01:56 GMT Daylight Time, info@houstonni.com writes: Dr. Houston Inteview on Autism One Radio April 19 Listen on your computer! Dr. Devin Houston, Ph.D. enzyme biochemist and CEO of Houston Nutraceuticals, will be interviewed by Dr. Larry Kaplan on _Autism One Radio_ () . The interview will debut on April 19, 9:30 p.m.-10:00 p.m. Eastern Time. Miss the interview? It will be available in the Autism One _archives_ (http://rs6.net/tn.jsp?t=89oosubab.0.jehcvubab.ixtevyn6.2596&p=http://autismone.org/ra dio/default.cfm?radio=viewAllArchive) . Topic: The Role of Digestive Enzymes for Autism Date: Wednesday, April 19, 2006 Time: 9:30 p.m.-10:00 p.m. Eastern Time Listen Online: Autism One Radio _http://autismone. org/radio/_ (http://rs6.net/tn.jsp?t=89oosubab.0.nidw8tbab.ixtevyn6.2596&p=http://autismone.org/radio/) Host: Larry Kaplan, Ph.D., director of _US Autism & Aspergers Association_ (http://rs6.net/tn.jsp?t=89oosubab.0.kehcvubab.ixtevyn6.2596&p=http://www.usaut ism.org/) Discussion will include: * how digestion is affected by oral supplementation of enzymes * why appropriate enzyme products may be an alternative to some special diets * how enzymes address digestive-related issues specific to those on the autism spectrum * how to identify differences between enzyme products * signs that may determine who can benefit from enzyme use Dr. Houston will be a speaker at the _Autism One Conference_ (http://rs6.net/tn.jsp?t=89oosubab.0.lehcvubab.ixtevyn6.2596&p=http://autismone.org/leftside.c fm?page=11) in Chicago and _US Autism & Asperger's Association Conference_ (http://rs6.net/tn.jsp?t=89oosubab.0.qidw8tbab.ixtevyn6.2596&p=http://www.usaut ism.org/conference_overview.htm) in Utah as well as other events listed at _www.houstonni.com_ (http://rs6.net/tn.jsp?t=89oosubab.0.6dnmw8n6.ixtevyn6.2596&p=http://www.houstonni.com) . _Cindy Kelley_ (mailto:cindy.kelley@houstonni.com) Events Coordinator Houston Nutraceuticals

**** Katie Wright zinged 'em on that one -- she called the AAP's stance "shameful and disgraceful." And she said that whatever caused Christian's autism, she wishes she hadn't let her doctor give him six vaccines on one day at age 2 months. Parents need to use "common sense," she said -- would you, an adult, want six vaccines in one day? ****** The Age of Autism: Christian's mom speaks http://tinyurl.com/g27cn The Age of Autism: Christian's mom speaks By Dan Olmsted Apr. 12, 2006 Washington, Apr. 12 (UPI) - A small earthquake rumbled through the autism world shortly after 7:30 a.m. on April 11, and the aftershocks are going to be felt for a long time. That's when Katie Wright, daughter of NBC Universal Chairman Bob Wright, said she is concerned her young son Christian's autism might be related to vaccines he received, that he is getting better through treatments that include biomedical interventions, and that it's time for parents to follow their own "common sense" when they get their kids vaccinated. Big deal? Yes, big deal. It's hard to overstate the buzz circulating through the autism community over the past few months as it became known that Katie Wright was among those with concerns about vaccines playing a role in her child's autism -- and that she was trying to help him recover accordingly. "I think it's a huge story," one autism activist e-mailed me in February. "This child triggered a weeklong series on NBC and the most well-funded autism organization on the planet (Autism Speaks)," not to mention the high-profile heft of the Wrights in lobbying for more money, more research and more awareness of a disorder that afflicts 1 in every 166 American kids. Thousands of parents with concerns just like Katie Wright's have been all but ostracized, as have the small but growing minority of doctors trying to help them. I know two MDs who lost faculty appointments shortly after I wrote about them, and I hear story after story about pediatricians rolling their eyes when they hear vaccine- related health concerns of any kind from parents. Many ban families who balk from their practices. Sitting right next to Katie Wright on "Imus in the Morning" on MSNBC was her father, who also is vice chairman and executive officer of GE, one of the world's biggest corporations. His comments were understandably more general -- nobody knows what causes autism, he said; vaccines are in the mix of possibilities that need urgent research; as are other environmental issues, as are genetic factors. But does anybody think he would have been there if he vehemently objected to his daughter expressing her concerns? (For that matter, does anybody think Katie Wright would have been there? After all, he runs the joint.) After Christian's diagnosis, Bob Wright and his wife, Suzanne, founded Autism Speaks, an advocacy group. Some longtime autism activists consider it a bit namby-pamby, but after Tuesday that impression may be due for an update. Regardless, what Katie Wright had to say extends a thoroughly bad spell for the nation's health bureaucrats and medical trade associations in their efforts to stamp out discussion of a possible vaccine link to autism. Major newspapers such as the Atlanta Journal-Constitution and the Los Angeles Times, which has been the best by far on this topic, published articles on such groups' relentless opposition to banning thimerosal -- the mercury-based preservative some believe triggered a huge rise in autism diagnoses in the 1990s -- from childhood vaccinations. Last week 22 health organizations sent a letter to every member of the U.S. Congress putting themselves on record that such bans are a danger to public health -- yes, banning mercury from childhood vaccines is dangerous, keeping it in is not. Several states have banned it anyway, including heavyweights Illinois, California and New York. Meanwhile, Katie Wright said, the American Academy of Pediatrics has not endorsed a pending bill in Congress called Combating Autism -- backed by Autism Speaks and numerous other organizations -- which includes funding for research into possible causes of the epidemic, not excluding vaccines. Some apparently take that as a threat to the third rail of public-health policy: the U.S. childhood immunization schedule. Katie Wright zinged 'em on that one -- she called the AAP's stance "shameful and disgraceful." And she said that whatever caused Christian's autism, she wishes she hadn't let her doctor give him six vaccines on one day at age 2 months. Parents need to use "common sense," she said -- would you, an adult, want six vaccines in one day? Then she raised the stakes. Parents should insist that doctors "separate the vaccines." You know, give them over several office visits rather than all at once to minimize chances of a bad reaction. That doesn't sound terribly threatening to public health, does it? Yet it's heresy -- completely contrary to the position of the Centers for Disease Control and Prevention. "Use of licensed combination vaccines ... is preferred to separate injection of their equivalent component vaccines," says the CDC's authoritative Pink Book of vaccine-preventable diseases. And they should all be administered "as soon as the child becomes eligible for vaccination." And they should contain mercury, if we say so. By putting her foot down, Katie Wright joins thousands of other parents putting the "father-knows-best" branch of medicine on notice that it's not nutty to use common sense when your child's health is at stake. Others will differ, but that's what I call a public service announcement.

lynn2, Some supplements have fillers and things that are not necessairly all that good for some people , or they may have a sensitivity too (i.e.corn?). What is the capsule made of, are there any common ingredients in the two supplements that he could be reacting to? Just from reading other's posts, when a child seems to react negatively (and there's no chance of a med. interaction) it's usually recommended to cut the dose in a 1/4 or 1/2 and reintroduce slowly. Personally, in this case, I would try giving magnesium and taurine one at a time, instead of a combo and see what you can figure out. The medical supervision, I TRULY believe is the best way to go, not only for safety, but maximum chance of improvement as Chemar pointed out above. The rotten truth though, is many can't find these Dr.s and can't afford the tests, the time to drive 2 to 3 hours each way, and the supplements. What does that leave, other than the prescription meds, which personally, I'm much more afraid of, than the supplements. My boys have required relatively low levels though, which I think has made me more comfortable. Are you using any other supplements other than the ones you mentioned? Kim

Beverly, When we see something that we are convinced had an adverse effect on one of our kids, maybe we need to tell someone, and not just a Dr. that dismisses you as a knit wit. I think we should email, phone or write the manufactures and encourage other parents to do the same. If tics are becoming so common that as many as 1 in 100 may experience them, maybe an additional warning would be added, if enough of us spoke up. My son had one of his worst tic attacks ever, playing pac man. HE wouldn't even touch the game again, he was that aware of what it did to him. It sent me to a closed door room to have the neurologist paged (crying.) It takes a lot for me to panic and cry on the phone with a Dr. It was his birthday, and I guess there was some emotion involved too. As far as fixing, just read read read, and plan your defense, if the tics don't pass with no video games. Thanks for posting, and let us know how he's doing! Kim

These are some articles showing higher estimates. http://www.ninds.nih.gov/disorders/tourett...il_tourette.htm *The early symptoms of TS are almost always noticed first in childhood, with the average onset between the ages of 7 and 10 years. TS occurs in people from all ethnic groups; males are affected about three to four times more often than females. It is estimated that 200,000 Americans have the most severe form of TS, and as many as one in 100 exhibit milder and less complex symptoms such as chronic motor or vocal tics or transient tics of childhood. *Epidemiology and clinical science. Careful epidemiological studies now estimate the prevalence of TS to be substantially higher than previously thought with a wider range of clinical severity. Furthermore, clinical studies are providing new findings regarding TS and co-existing conditions. These include subtyping studies of TS and OCD, an examination of the link between ADHD and learning problems in children with TS, a new appreciation of sensory tics, and the role of co-existing disorders in rage attacks. One of the most important and controversial areas of TS science involves the relationship between TS and autoimmune brain injury associated with group A beta-hemolytic streptococcal infections or other infectious processes. There are a number of epidemiological and clinical investigations currently underway in this intriguing area. All NINDS-prepared information is in the public domain and may be freely copied. Credit to the NINDS or the NIH is appreciated. Last updated April 07, 2006 ********************************************************************8 http://www.brookespublishing.com/email/arc...01/may01DD2.htm May 2001 Genetics The National Institutes of Health officially estimate that 100,000 Americans have full-blown TS. Some genetic studies suggest that the figure may be as high as one in two hundred if those with chronic multiple tics and/or transient childhood tics are included in the count. ************************************************************** http://en.wikipedia.org/wiki/Tourette_syndrome Tourette's syndrome has historically been described as a rare disorder, with about 5 to 10 people in 10,000 having TS.[10] However, multiple studies published since 2000 demonstrate that the prevalence is much higher than previously thought, and that Tourette's syndrome can no longer be considered rare. Contemporary prevalence estimates range from 1 to 3 per 1,000[28] to 10 per 1,000.[29] A large, community-based study suggested that over 19% of school-age children have tics, with almost 4% of children in regular education fulfilling the diagnostic criteria for Tourette's Syndrome. The children with tic disorders in that study were usually undiagnosed.[30] As many as 1 in 100 people may experience some form of tic disorder, which includes transient tics, chronic tics, or Tourette's Syndrome. ***********************************************************

I came up with these by doing a google search of "Prevalence Tourette Syndrome+1989" I have been looking for information to indicate a rise in the reported cases of Ts or tic syndromes from the early 1990's thru the early 2000's (1991-2002) to correlate with a rise in Autism. Not sure what I found after reading through some of these again. ******************************** http://72.14.203.104/search?q=cache:KR4Mov...&cd=11&ie=UTF-8 *note page 5 second paragraph http://72.14.203.104/search?q=cache:a0jOEy...&cd=21&ie=UTF-8 as high as 50 per 10,000 pediatrics volume 1998. ****************************************** Edited It's Hard to sort out the numbers relating to actual TS and tic syndromes. Many conflicting reports too. I was really only looking at the numbers reported, not the other info. contained in these articles. One more.... *********************************** http://72.14.203.104/search?q=cache:VtyrWN...k&cd=1&ie=UTF-8 20. Diagnosis and management of Gilles de la Tourette Disorder in rural North Dakota children Abstract Tourette Disorder (TD) is more common than previously suspected. In the state of North Dakota, the prevalence rate among school-aged children is 5.2 per 10,000. In this paper the authors discuss diagnosis and management of children with TD in a rural state. Particular emphasis will be paid to identifying children for referral from a public school or institutional setting, identifying appropriate referral sources, and discussing methods to facilitate multidisciplinary long-term management of these children. Burd, L. & Kerbeshian, J. Diagnosis and Management of Gilles de la Tourette Disorder in Rural North Dakota Children. Rural Special Education Quarterly 1988, 9, 20-26. ****************************************************** Notice the date 5.2 per 10,000 in 1988 or prior?= 1 in 1,923

Giselle, Would your Dr. Lipmann do group rates? I thought your DAN's remark was pretty cool. Thought this was kind of interesting. Just wonder where this statistic came from. http://www.bbc.co.uk/health/conditions/tourette1.shtml Not everyone's the same Researchers have discovered a new prevalence in TS of one in 100 people. TS may be inherited or may appear from nowhere, when it's called 'sporadic TS'.

Irena, NOW Special Two..... vits, minerals, antioxidants and aminoacids One thing that I would find concerning for my boys, would be the copper and zinc levels in these vitamins. To much copper, too little zinc. This is a guess, since I have had serum zinc levels checked, but nothing on copper. Kim

Giselle, I am SO glad to hear Hoyt is back on track! Did you click on many of the clickables in that article? I was glad to find one that listed the actual documents that have been unearthed. The deception is what makes me so so angry, and it appears to me that there is no end in sight either, with increased safety studies before more and more of these things are added to the line up. I recently became aware that my boys were given a tetramune vax. This was a multi dose DPT/HIB. I can't find a chart that shows what the mercury content of it was, back in the year it was given to them. Now there is a 5 in one vax called Perdiarix (I think that's right.) It occurs to me that they are real busy combining these things, so more and more can be given. How many Mom's are going to stand there while their baby is given 7 or 9 shots in a day. This way, they probably won't even question it, and several more can be added with out flags going up. What are we to do when the government comes along and tells us that we're to get a bird flu, small pox vax, anthrax vax etc.? I totally suspect that the vaccine additions of the early 90's through 2002 (and some before) pushed a lot of our kids over the edge with things that we would not thave been dealing with, if these concerns would have been addressed. Why isn't there more attention given to the condition of the intestional tract of our kids. It sure doesn't seem like it would involve rocket science to see how many of our kids are dealing with bacteria/candida overgrowth. How would that tie in with "genetically" inherited TS. I do agree about the predisposition to damage from toxins, that others may be able to handle. Giselle, what was your Dr. looking at when she made the remark about the MMR? I really appreciate your kind remark. I do want to say though, that the credit for most of the information goes to the supermoms (and a few Dad's) at ASD solutions, and Autism enzymes. How they cope with such large challenges, and still have the time to research and share, I'll never know. BTW I always think of you, as the bright light on this bd. Kim