kim

Carolyn, You were having a problem with slightly low iron for a while too, weren't you. I guess we can just hope some of the bad stuff is there too. I missed out on the remark Lisa was referring to, but my oldest son had exactly that same thing. My mother-in-law always used to say, he sounded just like he was from New York. Accent comments too. My youngest son, used to take a really deep breath at the end of sentences. He ALWAYS soundes like he was telling the most exciting story. kim

Giselle, Just a little info. I ran across and saved after youo post. Antineural antibody in patients with Tourette's syndrome and their family members. http://www.ncbi.nlm.nih.gov/entrez/query.f...al%20antibodies Mycoplasma pneumoniae http://www.ncbi.nlm.nih.gov/entrez/query.f...l=pubmed_DocSum Factor # 8 by Chisolm lab which is specific to the following viruses: MMR, EBV, CMV, Chlamydia Pneumoniae, Lyme, HHV6 (from a parents post) *Someone said that they were using this because of their childs very high CMV titers. The Pub Med article about the pneumoniae was interesting. I wonder about the Pneumonia shots that they're rec. for 6 mo. olds. Kim

Carolyn, http://en.wikipedia.org/wiki/Arsenic Arsenic is a chemical element in the periodic table that has the symbol As and atomic number 33. This is a notoriously poisonous metalloid that has many allotropic forms; yellow, black and grey are a few that are regularly seen. Arsenic and its compounds are used as pesticides, herbicides, insecticides and various alloys Metalloid? maybe it would then. I think they're using the phrase anorexia, kind of like a "catch all," when kids stop eating normally for any number of reasons. When it's referred to in the vax. info, I don't think they mean it in the sense we're used to hearing that word either. I have read that zinc levels that are off affect the way food tastes, oral sensitivities/defensiveness and things like that with metal overload. It has nothing to do with body image in these cases. I think I posted once quite a while ago about a segment on 20/20 about baby anorexics. Some of these toddlers were so bad, they didn't even want water in their mouths. There was a little girl on one of the morning shows recently. She had sever eating issues, and had been in In patient programs for it. They said her Dr.s believed it was related to strep. Her Mom had an eating disorder too. Again, is it a family history related to an abnormal immune response to an infection or virus? My 9 yr. old is hooked on pretzels. Soft, or regular crunchy ones. We were at a Subway, and he was eating a soft pretzel. I broke a piece off and remarked that they were sooo tasteless. He said "they're just so sweet." I couldn't detect ANYTHING sweet tasting about them. He said he didn't even like the salt, because it covered the sweet taste????? He didn't show any sensitivities with IgG to grains, so I let him have them occasionally for calories, but I still suspect he shouldn't be eating them.

Carolyn, I had actually thought of a magnet too. I assumed what ever metal may be present, would be combined with other properties that would make it useless though. What things chelated would have a magnetic attraction? I'm so glad you were able to get your test kits. I would not be happy with the way your Dr. is handling things Hooray on the mushrooms! Did you read this? Infection-triggered, auto immune subtype of anorexia nervosa in young children http://thewilloughatnaples.com/infectionindex.html In reading about the vaccines, I can't help but notice how many list anorexia as a side effect. The chart of symptoms on page 15 here, were upsetting for me to read too. Tics, eating disorders, sleeping disorders, etc. http://www.putchildrenfirst.org/media/5.20.pdf A similiar chart from this site, listed these same things + enuresis too. It feels just like a new blow everytime you see that stuff in black and white. kim

In case this could be important to anyone who uses medications for TS. It does not appear to be something recognized easily. http://www.ncbi.nlm.nih.gov/entrez/query.f...=ExternalSearch

Giselle, Can you tell me if they are looking for actual viruses or high levels of antibodies/titers in a viral panel? Do you produce antibodies for viruses? I guess I could look this up, before I go making myself look stupid, but it wouldn't be the first time, so what the heck! Going to throw this in here too. http://thewilloughatnaples.com/infectionindex.html The vaccine part of this, kinda kills me.

George Monbiot Tuesday May 2, 2006* <http://www.guardian.co.uk>*http://society.guardian.co.uk/health/comment/0,,1765619,00.html Does television cause crime? The idea that people copy the violence they watch is debated endlessly by criminologists. But this column concerns an odder and perhaps more interesting idea: if crime leaps out of the box, it is not the programmes that are responsible as much as the material in between. It proposes that violence emerges from those blissful images of family life, purged of all darkness, that we see in the advertisements. Let me begin, in constructing this strange argument, with a paper published in the latest edition of Archives of Pediatrics and Adolescent Medicine. It provides empirical support for the contention that children who watch more television eat more of the foods it advertises. "Each hour increase in television viewing," it found, "was associated with an additional 167 kilocalories per day." Most of these extra calories were contained in junk foods: fizzy drinks, crisps, biscuits, sweets, burgers and chicken nuggets. Watching television, the paper reported, "is also inversely associated with intake of fruit and vegetables". There is no longer any serious debate about what a TV diet does to your body. A government survey published last month shows that the proportion of children in English secondary schools who are clinically obese has almost doubled in 10 years. Today, 27% of girls and 24% of boys between 11 and 15 years old suffer from this condition, which means they are far more likely to contract diabetes and to die before the age of 50. But the more interesting question is what this diet might do to your mind. There are now scores of studies suggesting that it hurts the brain as much as it hurts the heart and the pancreas. Among the many proposed associations is a link between bad food and violent or antisocial behaviour. The most spectacular results were those reported in the Journal of Nutritional and Environmental Medicine in 1997. The researchers had conducted a double-blind, controlled experiment in a jail for chronic offenders aged between 13 and 17. Many of the boys there were deficient in certain nutrients. They consumed, on average, only 63% of the iron, 42% of the magnesium, 39% of the zinc, 39% of the vitamin B12 and 34% of the folate in the US government's recommended daily allowance. The researchers treated half the inmates with capsules containing the missing nutrients, and half with placebos. They also counselled all the prisoners in the trial about improving their diets. The number of violent incidents caused by inmates in the control group (those taking the placebos) fell by 56%, and in the experimental group by 80%. But among the inmates in the placebo group who refused to improve their diets, there was no reduction. The researchers also wired their subjects to an electroencephalograph to record brainwave patterns, and found a major decrease in abnormalities after 13 weeks on supplements. A similar paper, published in 2002 in the British Journal of Psychiatry, found that among young adult prisoners given supplements of the vitamins, minerals and fatty acids in which they were deficient, disciplinary offences fell by 26% in the experimental group, and not at all in the control group. Researchers in Finland found that all 68 of the violent offenders they tested during another study suffered from reactive hypoglycaemia: an abnormal tolerance of glucose caused by an excessive consumption of sugar, carbohydrates and stimulants such as caffeine. In March this year the lead author of the 2002 report, Bernard Gesch, told the Ecologist magazine that "having a bad diet is now a better predictor of future violence than past violent behaviour ... Likewise, a diagnosis of psychopathy, generally perceived as being a better predictor than a criminal past, is still miles behind what you can predict just from looking at what a person eats." Why should a link between diet and behaviour be surprising? Quite aside from the physiological effects of eating too much sugar (apparent to anyone who has attended a children's party), the brain, whose function depends on precise biochemical processes, can't work properly with insufficient raw materials. The most important of these appear to be unsaturated fatty acids (especially the omega 3 types), zinc, magnesium, iron, folate and the B vitamins, which happen to be those in which the prisoners in the 1997 study were most deficient. A report published at the end of last year by the pressure group Sustain explained what appear to be clear links between deteriorating diets and the growth of depression, behavioural problems, Alzheimer's and other forms of mental illness. Sixty per cent of the dry weight of the brain is fat, which is "unique in the body for being predominantly composed of highly unsaturated fatty acids". Zinc and magnesium affect both its metabolism of lipids and its production of neurotransmitters - the chemicals which permit the nerve cells to communicate with each other. The more junk you eat, the less room you have for foods which contain the chemicals the brain needs. This is not to suggest that food advertisers are solely responsible for the decline in the nutrients we consume. As Graham Harvey's new book We Want Real Food shows, industrial farming, dependent on artificial fertilisers, has greatly reduced the mineral content of vegetables, while the quality of meat and milk has also declined. Nor do these findings suggest that a poor diet is the sole cause of crime and antisocial behaviour. But the studies I have read suggest that any government that claims to take crime seriously should start hitting the advertisers. Instead, our government sits back while the television regulator, Ofcom, canoodles with the food industry. While drawing up its plans to control junk food adverts, Ofcom held 29 meetings with food producers and advertisers and just four with health and consumer groups. The results can be seen in the consultation document it published. It proposes to do nothing about adverts among programmes made for children over nine and nothing about the adverts the younger children watch most often. Which? reports that the most popular ITV programmes among two- to nine-year-olds are Dancing on Ice, Coronation Street and Emmerdale, but Ofcom plans to regulate only the programmes made specifically for the under-nines. It claims that tougher rules would cost the industry too much. To sustain the share values of the commercial broadcasters, Ofcom is prepared to sacrifice the physical and psychological wellbeing of our children. At the European level, the collusion is even more obvious. Last week, Viviane Reding, the European media commissioner, spoke to a group of broadcasters about her plans to allow product placement in European TV programmes (this means that the advertisers would be allowed to promote their wares during, rather than just between, the programmes). She complained that her proposal had been attacked by the European parliament. "You have to fight if you want to keep it," she told the TV executives. "I would like to make it very clear that I need your support in this." I spent much of last week trying to discover whether the Home Office is taking the research into the links between diet and crime seriously. In the past, it has insisted that further studies are needed, while failing to fund them. First my request was met with incredulity, then I was stonewalled. Tough on crime. To ###### with the causes of crime. www.monbiot.com <http://www.monbiot.com> * The material in this post is distributed without profit to those who have expressed a prior interest in receiving the included information for research and educational purposes. For more information go to: http://www4.law.cornell.edu/uscode/17/107.html http://oregon.uoregon.edu/~csundt/documents.htm If you wish to use copyrighted material from this email for purposes that go beyond 'fair use', you must obtain permission from the copyright owner.

Parkinsons/pesticides...Not genetics? http://www.garynull.com/Documents/erf/parkinsons.htm

Hi Sunshine, I read your post last night, and went back through the emails, and searched the old ones too, to make sure I hadn't missed where the person who said she would post the book title did, and I might had missed it. I'm sure it was Karen B. from ASD solutions (group moderator and super Mom ) Maybe Carolyn can help us out here. I think Karen B. is on Dr. Neubranders site, where Carolyn was just saying she chat's once in a while. Carolyn, if your reading can you let me know if you have "seen" Karen there. I tried her email and it said in box full. I was booted from yahoo mail because of inactivity and it won't allow me to post on the site, so I can only post by email, and I have to bust in on someone elses thread. If Carolyn can't ask her, I will post the link so you can go to the site, and ask. It's live chat. I know Dana has talked about an eye issue with one of her kids, I think it was her daughter. You might want to look around her site. http://www.danasview.net/index.htm These are posts regarding eye problems from a serch of here site. http://www.google.com/search?ie=UTF-8&oe=U...h=DanasView.net Your welcome for the response and info. sharing! Please keep us posted on your progression with your son. Kim

Giselle, I would think that the fact that you had the vaccine and two cases of the mumps, might be a clue that you DON'T build immunities. Remember two posts ago, when I said some parents have had their childs titers tested and they came back ZERO to things they had been vaccinated for (did you read that one, I posted two in a row) If that's the case with you, it wouldn't be a hype immune response, but an inadequate immune response. Might that be the case for Hoyt too, an unresolved viral issue? Guess you had figured that out already I think your viral panel is a good idea, and will be waiting to hear the results! Kim

Giselle, A little more information in regards to last post. http://72.14.203.104/search?q=cache:I8Z2d2...k&cd=3&ie=UTF-8 http://www.holistichealth.com/pub8.htm scroll down to Vaccines/Virus Looking at the vax again, I'm right back to wishing that I wouldn't have done it. The insert says that the length of immunity is unknown. What in the world do you do with an older child as in my 13 yr. old now. The vaccines are designed to prompt an immune response using things that are very unnatural to a human's system. I guess I'd rather take the chance with the natural virus and response. Thanks for helping me work through this! Kim

Giselle, Just wanted to share that another poster said that his TS started at 13, after he got chicken pox, the illness, not the vaccine. Again, you have to wonder about the bodies immune respone or hyper response to these things, or possibly the inability to respond effectively, which would be the opposite of hyper response. Possibly the combination of virus or infection occuring at the same time? So many things to consider. They vaxed my kids when they had been sick on a few occasions. They have changed things several times already. http://www.909shot.com/Timeline/timeline.htm You might want to check this out, kind of ties in with your viral panel for Hoyt. I didn't have time to read the whole thing, but clicking on the 2nd and 3rd ones, made me a little queasy. I think what led me there was a discussion on the stealth viruses. http://www.ccid.org/safety.htm# More to consider than thimerosal, but depending on what state the immune system is in, is there a case to be made FOR vaccinating, as opposed to getting the full blown illness? I think about this with the soy formula too. Since it provides something normally higher in females, did it help or hurt? Some parents have said, when they had titers tested for things that are vaxed for, sometimes they were sky high, and some had zip, where NO immunity had been provided. Kim

Carolyn, Andy, Giselle/Others, It may be a little early on for Carolyn, maybe not, but I thought of the three of you reading this: From Bernard Rimland..... Several announcements: 1. Our Washington, D.C. DAN! conference held earlier this month was a huge success, in every respect. Prior to the conference, ARI sponsored a two-day Think Tank of researchers and physicians. The day after the conference, ARI sponsored, sold-out training courses for physicians and for nurses. The DAN! message is really getting across! The entire Washington, D.C conference was videotaped, and we plan to upload all of the presentations to the Internet within a month. You can still watch the videotaped presentations from our Boston DAN! conference (Spring, 2005) and our Long Beach DAN! conference (Fall, 2005) at www.DANWebcast.com 2. Chelation is one of the most effective and safest treatments for autistic children. However, there is a great deal of controversy regarding the most effective chelating agents and the most efficient ways of administering them. We recently uploaded a chelation survey to the Internet. If your son or daughter received chelation therapy, we would appreciate your completing our survey. Our findings will be shared with other parents and physicians. The survey is located at: www.ChelationSurvey.com 3. Just Published! AutismToday recently published a book titled 'The Official Autism 101 Manual.' The book contains a chapter written by Drs. James Adams, Stephen M. Edelson, Temple Grandin, and myself, along with chapters written by other respected professionals, such as Tony Attwood, Sandra Harris, Stephen Shore, Teresa Binstock, and more. Visit: www.AutismToday.com to find out how to purchase the book. 4. We continue to place additional translated articles to our website. We will be including articles translated into Italian and Russian in the near future. Visit: www.AutismTranslations.com to view these articles. *************************************** * Our findings will be shared with other parents and physicians. The survey is located at: www.ChelationSurvey.com I was wondering if anyone wanted to respond to that survey. I would so love to see TS included in their research, and it just makes sense that they would be interested to know what progress you have made. Kim

Carolyn, Another option? Maybe you could call and ask them if they would like a donation for research purposes. UC Davis M.I.N.D Institute The Medical Center donated several acres of land and added more than $20 million to the pot. In 2003, the M.I.N.D. Institute, which also includes a 27,000-square-foot lab that is the envy of other departments at the Medical Center, was formally christened. It has an annual budget of $18.9 million, which includes $3.8 million from the state. Contact Info. http://www.ucdmc.ucdavis.edu/mindinstitute...ctus/index.html

http://news.monstersandcritics.com/lifesty...m_Pox_--_Part_3 WASHINGTON, DC, United States (UPI) -- When 12-month-old Jimmy Flinton joined a clinical trial of a new immunization for chickenpox, measles, mumps and rubella, no one told his family it contained about 10 times the usual dose of live-virus chickenpox vaccine.

Criminal activity? http://www.msnbc.msn.com/id/12542539/from/RSS/ ***************************************** This looks pretty mainstream to be talking about increased gut permeability Infant/Prevention of food allergy http://scholar.google.com/scholar?hl=en&lr...ent+and+...%22+ ************************************ Infantile cobalamin deficiency........ http://www.ncbi.nlm.nih.gov/entrez/query.f...l=pubmed_DocSum

Pub Med 2006 study....camomille tea http://www.ncbi.nlm.nih.gov/entrez/query.f...l=pubmed_DocSum

Change made and it's off. Let's keep our fingers crossed even for an opinion, if nothing else. I sure hope the photo attachment went in the forwarded email. I sent it to myself and it was, so I think it will be ok.

Happy to Carolyn, sent email address.

Ireana and all, Wanted to share this with you. http://home.earthlink.net/~moriam/ANDY_INDEX.html#onibasu If you scroll down to OTHER HEALTH ISSUES; OTHER TESTING ISSUES; OTHER TREATMENTS you will see Giardia. You may want to read the post on this. I found that page quite by accident. I can't wait to read through some of it. Kim

http://www.newstarget.com/019355.html Frito-Lay has launched a new "Natural Doritos" product that doesn't have the usual monosodium glutamate (an excitotoxin) and artificial colors found in its flagship product, but it does contain another offensive ingredient: yeast extract. It's listed right on the package of the new Natural Doritos products.

Thanks, I would love to listen to Dr. Neubrander on the first. If you're excreting metals in that size and frequency Carolyn, it just seems like it needs to be shouted from roof tops. I so hope you can find a way to have them tested. I would think that someone on the research end of this would PAY YOU to get ahold of those specs. If you say it's metals, I sure believe it. Dealing with the Dr.s, your treatments, going to school, Washington and all, just want to say I think you are one extraoridinary young woman. Thanks for your updates. Kim

Sunshine/Ronna/Mos I was so glad to read your post. I wanted to mention that the eye problems with one wandering etc. have been discussed on another forum quite a bit. It almost seems to me that the vit A in the cod liver oil, has been reported to help that? If I run across anything more specific, Ill let you know. Someone was going to post the title to a book that was supposed to be awesome about the eye related problems, not vision but muscular and tracking. I'll post it, if I see it. Ronna, That was the first time I had ever read that the tic course was similiar, that it was the OCD that had the acute onset??????? Mos, I know just how you feel, my graitute to the people on this forum runs really deep too.

Carolyn, I had thought of Dr. Neubrander because he donates so much time, like with biochat. It doesn't surprise me that he said he would love to know what they were. It seems like it has the potential to be really important. If not an unknown WOW, at least important for your personal treatment. The Dr. that I took the boys to, had the Great Smokies test kits there in the office, so maybe that is what's going on, the office just didn't send them out. Sounds like someone is dropping the ball with you. I had no idea there had been another biochat. Hilary has not been on ASD solutions much though either, that I have seen. Guess I would have to start checking Dr. Neubranders site to find out about them. Kim

Carolyn, I would think that your Dr. would be as anxious to see what these things are as you are (me too). I have read several posts about specs, but have never run across anyone who posted a picture. Maybe call the office back and ask them where they were sent, and get someone MOVING on it! I was going to suggest that you post this on labdiscussions, but I see that they haven't had any new posts in 7 days. There are some really good people that pop up there. Mark, from Carbon base, J. McCandless, etc. but not really a very active forum. I did a search on the AM board and saw 11 posts, and one of them were yours. I scanned them, didn't look like any info, you don't already know. Just speculation. I would definitley push your Dr. on this. If you don't get any answers, I would be happy to send an email to Dr. Shaw with your picture attached (if I can figure out how to send an attachment.) I could tell him what a huge asset you are to the TS community! People get some unexpected help in these area's occasionally, and it sure seems having these analysed, could be important. You could send a copy to Dana, she has at least seen the specs with one of her kids I believe. I remember how frustrating it was, just waiting for the results from metametrix. After weeks, I called and they said, nooo, n o t b a c k yet (yawn), I got a little insistent. Had the results faxed to me by that afternoon, and the completion date on the test was like 3 days from when the sample went in. Kim