kim

Simon, Every time I read something about a supplement and what form should be used, I grab my bottle of TS Plus, and sure enough, that's the type she used. I only say this because, I think if you were to buy the better forms of supplements, you probably wouldn't save a whole lot. I don't think that my kids require everything that's in the vitamins, but they have worked well for us. I don't think they would do as well on the full dose for their weight though. It would be too much for them. If folic acid and omega 3 fish oil are not good for high histime people, 3 fish oil and 20 of TS Plus would probably push my oldest son right over the edge. However, at the lower dose, I do think they are helping a lot. If there is a multi vit that's comparable sold in health food stores, I haven't heard of it. There are many online sites, where you may be able to come close though. The cost of the vitamins is something to consider when you think of the cost of the testing and a good Dr. too. If you knew exactly what the deficiencies were, you might save a lot on the supplements, and not be guessing what's needed and what isn't. Maybe someone else has a good recommendation for you. I know Claire had mentioned one that she liked at one time, maybe Kirkmans????? Kim

These were very interesting remarks. As I was watching the show, I was trying to figure out if I would ever have the strength to try the "more natural" approach if one of my guys were dealing with that bad of symptoms. I probably would have grabbed the meds and done exactly what the Neurologists said to do or try. From your posts Carolyn, I'm not quite as surprised as I am to hear Giselle say that Hoyt has been that bad at times. Just deepens my admiration for all of you who have been there, and had the courage to take a different path. I had posted that I was sure I would have mixed emotions watching the show. When I saw the level of her tics, I didn't. I was greatful that there was ANYTHING that could provided relief for her. Now after reading what you two have to say, I'm feeling sick that this girl underwent such a radical procedure without ever knowing if alternative treatments would have been the answer for her too. My husband and I were wondering about the medications too Carolyn. Maybe they are more along the lines of anti inflammatory, anti rejection? Kim

Marie, Tell your gum popping son I said "way to go!" Love that. We have had one period of vocal tics that was loud and so upsetting, but it was like most other tics, and lasted a couple of weeks or a little longer, and never returned. I think I was way more upset about it than my son too, so try to stay positive. If your going to have a blood draw done, you might want to get zinc/copper. That seems to be a biggy, and pretty easy to get Reg. Dr. to order, if that's who your using. Kim

Sunshine, I'm so happy to hear your good news! When you're in the throws of the what feels like a crisis, someone who believes in alternatives, with the medical knowledge to boot is such a wonderful thing. Alison, Could you please tell me what kind of metals test you did? Also, is your son still caesin free for the most part?

This is from the book Feast Without Yeast (I believe) Pg. 13: "After some investigation, I found out that barley malt is a raw material used in making beer. The barley is allowed to sprout under controlled condition. After a certain period of time, the sprouted barley is heated. The resulting substance is called malt and is the raw material for making beer. The malt is also sweet and is sold as a sugar substitute. In beer manufacturing, yeast is mixed with the malt and chemically alters the malt to form alcohols and many other chemicals. This process is called fermentation. Why is malt such a problem? I perused my investigation over the years and was able to obtain from a beer manufacturer a list of chemicals found in barley malt. Many of these chemicals are toxic and affect the nervous system. Many slow the brain down, which are part of the reason these chemicals and malt are so bad for children with developmental and behavior problems. This information made sense. I had observed clinically that the behavior of even neurologically typical children can deteriorate when they eat foods containing malt. Our ten year old daughter, for example, becomes typically whiney, demanding, unhappy preadolescent a few hours after she eats any malted foods. She has become so aware of how ill she feels when she eats malt that she reads labels before eating anything unfamiliar. About a month after we took away malt for Avi's diet. A baby sitter unwittingly gave him a bowl of cereal with malt. We came home from a walk and found Avi sitting on the couch, staring into space. He remained in that trance like state for ten days. " Pg. 35 "Barley malt is a product that starts with the grain barley. The barley is specially sprouted, then heated. This heated product becomes the raw material for making beer. Barley malt is found in cereals, crackers, breads, white flour, and bagels. Barley malt is the worst offender, other types of malt, including maltodextrin (usually malt added to corn syrup), also cause harm. When shopping read labels carefully and avoid anything with the word "malt" in it. You will be amazed at how many commercially prepared foods contain "malt", "barley malt" and "maltodextrin" or "malted barley flour". > > Pg 14...Barley malt is in nearly everything, > > including bread, bagels, > > breakfast cereal, and many health food snacks. It > > is in so-called > > natural chocolates and candies instead of sugar.

*** Phillip DeMio, MD Dr. DeMio is the father of a child with autism, and has been an M.D. for over twenty years. He graduated from the Case Western Reserve University School of Medicine with honors in metabolism, women and children’s health, and neurosciences. Prior to medical school he taught and worked in the organic chemistry laboratory at Creighton University in Omaha Nebraska. He is a DAN! physician, an author of medical topics including alternative and conventional medicine, and is accredited for speaking nationally on medical topics including brain toxicology, nutrition, and use of supplements in health and disease for children and adults. Dr. DeMio currently focuses almost exclusively on treating children of all ages on the autism spectrum. Dr. DeMio’s philosophy is that our children and loved ones are first and foremost in all of our treatments. *** Go to http://www.drneubrander.com for the audio of the biochat *** Q: What is the best way to discipline or handle temper tantrums? A: Temper tantrums and meltdowns – meltdowns are very common with our kids, and often the child is not even aware of them, they’re out of control. Assess the child’s nutrition, heavy metal status, sensory issues, antioxidants, etc. A whole program is important. In the short term, you can try backing off, giving space, give no input. If they might hurt themselves, move things out of the way. Sometimes they work themselves through it. Sometimes giving them pressure helps. The parent usually knows how to handle best. Kirkman’s magnesium cream helps – 5 scoops from that jar, rub it all over the back. They really chill out. Unless the child has kidney disease, you can be pretty liberal with this cream. Sometimes in between meals meltdowns are common. If nutrition is short in between meals, they get weak, sick, don’t think clearly. Give protein snacks. Or if you have amino acids, sometimes that helps. The neurotransmitters in the brain regulate better in 10-15 minutes. If you know what may trigger your child, sometimes you can rub the magnesium cream on ahead of time. You can give this several times a day. Other supplements can help too, like DHA (fish oil). EPA is more stimulating, but DHA is calming. Q: My daughter is on LDN, she has been on it for 7 mos. it seems to be helping her bowls be more normal, but she is getting a distended belly again and some hard stools and gas. Do you think this is from the LDN? A: If the bowels are normal, but the belly is distended, that might be from LDN. If the dose is too high, it can cause constipation. The endorphins in the body keep the bowels right where they should be, if the dosage is right. Try backing off a little, to find the optimal dose. It’s a tricky substance to use. 3 milligrams for those under 100 lbs is not always right. Sometimes start at 0.3 milligrams or even lower, and inch up once or twice a week. Start at 0.3 (1 notch on the cc syringe). See how that does for a few days. For anyone already doing it, just back off 1 notch. The goal is to find what’s right for your daughter. You also need to watch the immune – what’s happening to allergy, viral outbreaks, colds. That’s another gauge of whether too high or too low. Ask your doctor if you should back off a slightly. Also, if the LDN dose is too high, you can get overgrowth of yeast, clostridia. Q: What is the first thing you usually start with for a 10 year old non talking boy? How would you get a child to get in the HBOT? He is just too scared to zip it closed. A: Some of the parents use sedation before going into hbot, but that may take breathing down, and the child doesn’t get as much effect from the hbot. Try the magnesium cream, DHA fish oil, that might help. The first thing I usually start with, for any patient, is to look at where you’re at, what you’ve tried, lab test results, what has worked, what hasn’t worked. For example, if TMG didn’t work, we might try DMG. If gluten free helps, soy free doesn’t, then maybe allergies are not as much an issue as leaky gut. Then we talk about what you want to try. Start one thing or multiple things. Test for depletion in minerals. The testing has to occur first, but while we’re waiting for the results from testing, we might start LDN or MB-12. Q: How do you know when it is time to stop the b-12 shots. At first we saw a mild improvement and now we aren't sure if it is helping him A: If it’s not making the child too hyper, increase the dose and/or give more frequently. If you’re not getting the effects you want (better language, better social), then try upping the dose. The urine might get red with the extra dose. I have some kids on the shot every day. Others only do a shot a couple times a month. You can add folinic acid, and some of the amino acids, and that might help. Sometimes I pulse – give the shots 3 days a week, then back off for a couple weeks, then start up again. I’m willing to use different doses, different schedules. The nasal spray is another good way to get the mb-12. I think mb-12 is another one of those things where the kids all need different dosing. Probably for 80% of the kids, you can find a dose that doesn’t make them hyper, but works for them. Have you tried Ritalin or any add medications? Some of the medications, like Adderall and Ritalin, interfere. They counteract each other, the mb-12 doesn’t seem as strong. Q: I had a question about yeast. My son has yeast symptoms which come and go - giggling, spinning, higher energy, drunkenness, sleeping less, yellower stool. Overall, though, when he has these symptoms he seems better, happier. He also follows instructions better and is more social. I am able to get rid of the yeast fairly easily but then he is a lot less social and quite unhappy though he sleeps more. Testing usually reveals some yeast but not super-high amounts. He is on a strict GFCF diet which excludes sugar and fruit among other things. Given that he is so much better with small amounts of yeast, could it be that in my son's case he somehow needs yeast, maybe until the metals reduce some more? Does this make sense at all? I have read a lot about yeast and how it is bad for ASD kids but it's just that my son is just so much happier and affectionate with it. A: That’s a challenging question. It rocks the paradigm of what we think of about yeast. Yeast makes gluten in the GI tract – Bill Shaw has shown this. If your child is gfcf then they get yeast and the yeast makes gluten, they get a rush of gluten, that opiate high. It’s almost like a little dietary violation. That might not be your son’s issue for sure. How often does this happen, and how long are the stretches? the stretches can be months and months but more frequent lately There might be more then just yeast involved, other bacteria. What are you doing to get rid of the yeast? candex, threelac, we used Rxs in the past If you have more then 1 type of yeast, the candex/threelac might have killed one type. Some of the other yeast might not show up, might be resistant. Higher dose of nystatin sometimes works; or rotating what you’re using to battle yeast. It seems to me the dysbiosis knocks out the old bad guys, but adds its own bad side effects, so the idea is to get rid of both of them at the same time. You could try Grapefruit seed extract, caprillic acid, uva. Q: Does giggling and spinning always mean yeast? Because my son has never tested positive for yeast and yet has started spinning and giggling again lately which I haven't seen since we changed his diet to gfcf over a year ago. We finished our 3rd round of td-dmsa 11 days ago… Second Question, How do I know if my son is a good candidate for LDN? How many rounds of td-dmsa should we finish before trying something new like LDN? We will be starting our 4th round this weekend. A: Yeast does not always show up on tests. We look in the stool. The yeast in the GI tract doesn’t always show in the stool test. They look for the yeast to be sending toxic stuff into your urine. If you treat for yeast, and get a reduction of giggling/spinning, it’s the yeast that’s the problem. We’ve had great success with td-dmsa. Orally, yeast loves the sulphur in dmsa. Even with transdermal, some kids get yeast from td-dmsa. Use grapefruit seed extract ahead of time, in the days before you chelate. Spinning could also be OCD behavior. Chronic strep. Sensory issue, vestibular. Good candidate for LDN? 30-50% chance it will help. If your child has yeast, for example, it will make your immune stronger, knock off the yeast. It can also help with leaky gut, block the opiate receptor. The hardest part is finding the right dose. I don’t think you have to worry about the number of rounds of dmsa, as long as you’re comfortable as to how your child is doing. Q: I have a question about the possible effects of antibiotics. My three year old has been on MB12 shots for about three months. He is also on folinic acid, cod liver oil and Dr. Neubrander's multivitamin powder. Daniel is almost never sick, but 10 days ago wound up with a double bulging ear infection, so we put him on omnicef. For the last four or five days, he has been much spacier, not as connected, not as easy to get his attention. Unfortunately, at the same time he went on the antibiotic, his non-biomedial program changed a great deal because he "aged out" of early intervention and into the school system. Finally, on day 6 of the antibiotic, we started high daily doses of MB12. He has never regressed before. Do you think the antibiotic is to blame? If so, what can I do about it now or in the future? A: You can work on it now. Sometimes a child has to go on antibiotics. But at the same time, you can use threelac, nystatin, grapefruit seed extract, to tone down the yeast and bad germs. About 80% of the time in our experience, we can use a natural method rather then use antibiotics. When they have to have them, we use probiotics, herbals, etc. Q: We started my 2.11yr old son on TD-DMSA in Jan. Since the second round, he has had alot of increase stimming and running, along with many positives. I added Yeast Aid thinking it was yeast but his stools haven't firmed up yet and are still very runny and the stimming hasn't gone back to before starting the DMSA. Could this be metals moving or could the yeast aid not be strong enough to kill all the yeast? A: Stimming and running and positives makes me think metals are moving, but that can stir up metals. Yeast Aid doesn’t kill all the yeast. Some of the yeast remains, then grows back. You can preempt the yeast before doing a round, so keep after the yeast, and do things on your off-chelation days. Q: How much actual brain damage is happening vears just swelling/inflammation from the heavy metals and toxins that our kids have in them? Do "older" kids that have been exposed for several years to these have a good chance at recovery? Also. what is an average timeframe for chelation to be complete? A: Most people go a couple years with chelation. Some adults chelate quickly. But others are out past a year. It depends on what you use, what fits into your life style, whether you add IV glutathione, etc. The kids get sicker if we go too fast. As far as older kids and recovery, I did a talk on Autism One Radio. Also, the archived ARI newsletters has a piece from me. We’ve helped every child we’ve done chelation on. One child was very sensitive, so we backed off, started again slowly. All the other kids, the chelation has really helped. For example, we have a 13 year old girl who after a year of chelation just started speaking, said her first sentence. As far as brain damage/swelling/inflammation, we don’t know. The inflammation is reversible, the brain damage we don’t know. But with therapy and biomed, we can do as much as is possible. Q: What is your opinion on Hbot treatments? Can you comment on any successes you have seen? Also what chelator would you recommend for my 8 year old girl with high lead & copper levels and lower level of mercury? She is GFCF and receiving daily MB12. A: I think HBOT is helping a lot of kids. Some kids get a little bit of help, some get a lot. Some kids get side effects; others absolutely rave about it with minimal side effects. Start out low and slow, after a few treatments see if any side effects. The kids are accompanied by an adult in the chamber. There are certain supplements that can help. Chelators – topical dmsa (transdermal) is a good one. TTFD and glutathione can help. If your child is even-keeled, you can try dmps. For some of the more wound-up, dmps is too much. Some of the girls with high testosterone for example should be starting on dmsa, not dmps, because they get wound up with the dmps. Q: My son has seizures as well as Autism. When we began M-B-12, we saw an increase in seizure activity for a short time, then we upped M-B12 to daily shots. Again, increase in seizures. I've increased his Taurine to 3grams per day in divided doses, and, he's only had 2 seizures in the past 5 weeks, an all-time record. Likely, he's not absorbing all of the Taurine, but my question is, could this be a bad thing to give this much Taurine? He only weighs 40 pounds and is 8yrs. Also, we just started Nystatin. How long until we SEE yeast in the stool? Thank you! A: A lot of parents talk about seeing crystals in the stool, or sweet-smelling, so they suspect yeast. I wouldn’t worry about that much taurine. It protects the liver. It can lead to higher ammonia, but if you check it and it’s not going up, keep giving the taurine. It’s a fabulous choice for seizures. Good combination, the taurine and mb-12. Q: If a child is high in d-lactate, should they stop l-acidophilus and use only lactate-free probiotics? A: The good guys can turn out to be bad guys. They take over the GI tract too much. D-lactate is produced from sugar. Sometimes the real issue is that the child needs to back off on sugar or carbs. Our kids cannot tolerate the amounts of sugar and carbs that other kids can. Switch to saccharomyces boulardii. Custom Probiotics makes d-lactate-free probiotics. Try that, and cutting back carbs/sugar. Q: Are you using the low oxalate diet in your practice? If so, what experiences have you had with it? Although we are using high dose daily MB12 and supplements and are casein free, we are not yet fully GFCF. Do you recommend any particular order for starting various diet options? A: Some parents come in and want to start more then one diet at once, GF, CF, soy free, Feingold, SCD. Other parents want to cut out one food at a time. If you have a problem with appetite, sometimes it’s best to first increase B vitamins and zinc, possibly LDN. Their appetite might get better, then you can try changing diet. The low oxalate diet can be tricky. Sometimes adjusting your mineral supplements will help. If you have tried gfcf and it didn’t help, you might try SCD or low oxalate. If the diets aren’t helping, it may mean you need to clean up the GI tract more. If gfcf doesn’t work, you can try any other diet, in any order, as long as you commit to it, do it fully. Q: We are going to be starting oral DMSA and my son has yeast. He is on nystatin and mct oil or uva ursi. Is he better off on TD form of DMSA? 2nd question - my son has been sick - cold, ear infections, stomach flu, all winter. We tried a few a few things to help his immune system like colostrum, monolaurin, echinacea. He is on LDN, & mb-12. Anything else that can help? A: Yes, the TD-DMSA is much better then oral form in terms of controlling yeast in GI tract. Sometimes we do oral DMSA challenges, but for the most part we use transdermal. 90% less yeast with transdermal. It’s much easier to control the yeast with transdermal. Sick all winter – if you’re sick while on LDN, you might want to stop LDN while you’re sick. The viruses can race if you don’t. I stop for most cases if the child has caught something. It clears up faster. If you get one infection after another on LDN, your dose might be too high, and you’re making your immune weaker. Try a lower dose. Q: We have a son diagnosed with PDD-NOS and possible ADHD. My mother-in-law has asked about Glycoproteins IE Phyto Bears for children. Are Glycoproteins something that you would reccommend and If so how much and what would it do to help him? Would you recommend the Glycoproteins over other minerals etc? Also... We have had many great suggestions today MB12, LDN, Probiotics, minerals, etc. Hard to think of starting everything all at once. Thank you for your suggestions and all your help. A: Minerals replace the deficiencies that so many of our kids have, especially with chelation. Zinc and selenium especially are important. Glycoproteins are like a vaccine without the mercury. They get the immune to kick into action. We use Larix from Eclectic Institute. Probiotics have glycoproteins. Glycoproteins are generally pretty safe. Generally I recommend starting only a few things at once, so you can figure out what’s doing what. Q: My son had a neurotransmitter test done by neuroscience and it showed low epinephrine and high norepinephrine with a ratio of 14.9 which according to the lab means that he is under a lot of stress. Also, glutatmate (131) and PEA (819) were very high indicating excitatory but GABA also high (14) which indicates inhibitory. Is this test reliable? Any suggestions to help with this (esp the epi/norepi ratio)? Thanks A: I think these tests are tricky to interpret. They give some info, but you can get similar from Organic Acid test. Some of the kids can get better control using MB-12 for the epinephrine/norepinephrine. Or dmg/tmg, or folinic acid, a methylator. Sometimes amino acids can be adjusted and that helps. The glutamate is tricky. It is made more powerful with metals. Q: Do you have any comments on Amy Yasko's RNA? I have a good friend whose 18 year old is pouring out mercury on Metals I & II, although he's chelated with DMSA & DMPS for years. Thanks. A: Many patients do feel better with Amy Yasko’s protocols, they go a step further. I think you keep trying to peel the layers. The goal is always for the child to get better. As long as the child gets better, the treatment is worth it. You need a game plan as to how these things will fit into your child’s protocol. Q: Our local DAN! Doctor wants to do a round of steroids due to Lymphoid Hyperplasia, can't remember which one he wants to use. Can you comment on this issue? Is there a natural alternative? Could the HBOT help kill the measles virus in the gut, as 100% O2 does kill some viruses? PS Congrats on being on NBC news with the Shoemaker family! Anxious to see many more kids recovering! A: If you use a small dose of steroid, I don’t think it’s always bad to use steroids. Sometimes licorice (not DGL but full force licorice) acts likes a steroid. Be careful with the licorice, can deplete potassium. HBOT probably does help kill viruses. Q: Do you use LDN for an adult with Parkinsons? Do you know if it has been used successfully? A: The cause of Parkinsons is controversial. I don’t really have any experience with LDN and Parkinsons. IV glutathione has been used successfully with Parkinsons, sometimes up to twice a day. Q: Have you ever used ozone therapy - given rectally for bacteria/ yeast?? A: I haven’t. There are many oxygenizing therapies. IV peroxide. Acid water, with ozone in it. Sometimes when you use an ozone type of acid, it’s more of a hydrogen free acid. It can kill off a lot of germs, but it can be an irritant, so there is a limit of how much you can use. I use idebinone and co Q10.. Also germanium oxygenates the GI tract. Q: When do you recommend IV-chelation? for which kids? Are kids recovering with IVs who were not with TD-chelation? You mentioned regular licorice over DGL. Why? We were using DGL and it helped my son's stool but after a time my son got non-painful reflux symptoms that have not gone away after we stopped. A: IV chelation – several chelators can be given IV, but the only I’ve done IV is glutathione. Vitamin C can also be considered part of chelation. DMPS and DMSA are drugs, and some parents worry about the liver, so glutathione and vitamin C are a good natural alternative. IV EDTA is in every major children’s hospital, used for lead toxicity. The fast IV push is slightly different then IV EDTA. We do over several hours, and check electrolytes. But not all doctors do it the same way. I recommend starting with topical DMSA or DMPS; and possibly EDTA. Penicillamine has been used for autoimmune issues, it’s a brain chelator. Alpha lipoic acid on the skin, or oral. Licorice is used as a steroid substitute, it does not suppress like prednisone. The DGL version is soothing for the GI tract, it can help heal leaky gut. The full fledged non-DGL is stronger. Q: My son picks alot at his lips and his fingers. What may help with this? Is this something that needs to be therapeutically treated with biomedical interventions? Thank you. What does zinc do to help? A: Zinc is the most important for our kids. Zinc runs metabolism. It’s a traffic cop throughout the body. When it gets pushed out of the way by mercury, the kids get sick. Make sure your child gets enough zinc. Sometimes kids pick from yeast. Others pick because they have OCD (could be strep infection, or autoimmune). Sometimes picking at the face means calcium is low. Try raising calcium, with or without magnesium, should see an improvement after a week. Sometimes they are low in minerals, especially when detoxifying they crave minerals, so they pick skin and hair and eat it.

Sunshine, Perhaps by supplementing deficiencies, and removing things that are taxing his immune system, your son will lose the strep that's lingering somewhere. My youngest son (and probably oldest, if I could remember that far back) was said to be a carrier. Repeated positive swabs, with none of the visable symptoms. All of a sudden, the swabs started coming back negative. Is he no longer a carrier? I don't know. I was not giving him any supplements when this happened, so I have to assume, that his body was able to overcome it, on it's own. He did however, have white spots constantly with negative swabs, prior to supplementing, that the Ped finally said was probably something an ENT should check out. Since starting Bonnie's vitamins, and recently the addition of extra vitamin C, those spots have disappeared. Thoughts and prayers are with you. Kim

Lisa, Don't know if you were following the Mag. sulfate cream info. I shared with Giselle, but the same question was asked regarding Kirkman's zinc sulfate cream. Larry from Kirkman's said about half of the zinc from their cream was thought to be absorbed "according to the literature," unlike the amount of mag. provided by the magnesium sulfate (very minimal.) Don't know if this applies to the product that you're going to use, but thought it was worth mentioning. If you have any question regarding how much is actually absorbed with a lotion, I would call the lab, or at least run it by your Dr. Kim Shared from a parent on the autism/enzyme bd. sorry no link provided. Lots of talk about tics and PANDAS btwn asd solutions and aut/enzymes. Way too much for me to find coincidental, hence my interest in vaccines and all progress made on the autism/ASD front. PDD=Pervasive Developmental Delays. Kim PANDAS Research that may bear fruit for people with PDDs is now occurring on a number of fronts. The first breakthrough was the Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus (PANDAS) project, steered by the National Institute of Mental Health's Dr. Susan Swedo. Dr. Swedo's group has identified a bacteria-triggered auto-immune response as the trigger in some cases of childhood neuropsychiatric illness.1 One of the researchers' most interesting findings was that there is a blood marker, B lymphocyte antigen D8/17, associated with PANDAS. This could permit the development of a diagnostic blood test. According to the PANDAS hypothesis, when some children are exposed to the common group A beta-hemolytic streptococcus bacteria, the same bacteria that causes "strep throat," they develop antibodies that mistakenly attack the basal ganglia in the brain as well as the strep bacteria. These patients present with symptoms consistent with Obsessive-Compulsive Disorder (OCD) and/or Tourette's Syndrome (TS). PANDAS researchers have also found that some children already diagnosed with OCD or TS have symptom flare-ups when they contract strep infections, although this may occur with other illnesses as well. Although the initial NIH study targeted OCD and TS only, it raised interesting possibilities for the diagnosis and treatment of PDDs. First, both OCD and TS appear to have a genetic or medical link with PDDs, appearing fairly often in the same families. Second, both conditions are frequently secondary diagnoses in people who have a primary diagnosis of autism or another PDD. Finally, researchers note that subtle social deficits, sensory integration problems, and other symptoms that might otherwise be attributed to PDDs also occur in some children with TS and OCD. So it came as no surprise to some observers when a research team at the Seaver Autism Research Center announced in early 1999 that the B lymphocyte antigen D8/17 marker was also found in 78 percent of the autistic children studied, and that its presence correlated strongly with severity of compulsive behaviors. Many parents interviewed reported that their children with PDD-NOS or Atypical PDD have had chronic, recurring strep throat and/or strep-related ear infections. Some have reported obvious increases in stereotypic movements or tics, obsessive-compulsive behavior, aggression, withdrawal, and other "autistic-like" symptoms during these infections. *************************** Notice these statements One of the researchers' most interesting findings was that there is a blood marker, B lymphocyte antigen D8/17, associated with PANDAS and...... So it came as no surprise to some observers when a research team at the Seaver Autism Research Center announced in early 1999 that the B lymphocyte antigen D8/17 marker was also found in 78 percent of the autistic children studied, and that its presence correlated strongly with severity of compulsive behaviors. This may be one of those "stupid questions," but is there anything on a titer test referring to this marker? Why aren't our kids being tested for this? Discovered in 1999? Might we want to take a copy of this to our Peds? Does anyone have time to search for this study?

Has anyone used these products? Zinc drink Zinc tally Zinc Tally supposed to have no taste if you're deficient. Kind of a low zinc test. http://www.metagenics.com.au/shop/index.cf...=list&cat_id=38

I thought maybe this might be helpful to someone SNC=Special Needs Child The person who shared this, said that there are about 12+ Homeopaths that contribute to this group Hello, Welcome to the Homeopathy-SNC group at Yahoo! Groups, a free, easy-to-use email group service. Please take a moment to review this message. To learn more about the Homeopathy-SNC group, please visit http://groups.yahoo.com/group/Homeopathy-SNC To start sending messages to members of this group, simply send email to Homeopathy-SNC@yahoogroups.com If you do not wish to belong to Homeopathy-SNC, you may unsubscribe by sending an email to Homeopathy-SNC-unsubscribe@yahoogroups.com To see and modify all of your groups, go to http://groups.yahoo.com/mygroups Regards, Moderator, Homeopathy-SNC

http://www.lewrockwell.com/paul/paul307.html Before the US House of Representatives, March 3, 2006 Mr. Speaker, Supreme Court Justice Louis Brandeis famously said, ³Sunlight is the best disinfectant.² In order to shine sunlight on the practices of the House of Representatives, and thus restore public trust and integrity to this institution, I am introducing the "Sunlight Rule." This measure amends House rules to ensure members have adequate time to study a bill before being asked to vote on it. One of the chief causes of increasing public cynicism is the way major pieces of legislation are brought to the floor without members having an opportunity to read the bills. This is particularly a problem with the Appropriations committee conference reports, which are often rushed to the floor of the House in late-night sessions at the end of the year. For example, just this past December the House voted on the fiscal year 2006 Defense Appropriations conference report at approximately four a.m. ­ just four hours after the report was filed. Yet the report contained language dealing with avian flu, including controversial language regarding immunity liability for vaccine manufacturers, that was added in the House-Senate conference on the bill. Considering legislation on important issues in this manner is a dereliction of our duty as

Giselle, I'm still following your thread on Braintalk. Might this help, or have you read these already? http://www.enzymestuff.com/discussionsafety.htm http://www.enzymestuff.com/discussionsafety.htm Safety evaluation of amino peptidase enzyme preparation derived from Aspergillus niger. Coenen TM, Aughton P. Food Chem Toxicol. 1998 Sep-Oct;36(9-10):781-9. PMID: 9737425 An amino peptidase enzyme preparation obtained from Aspergillus niger was subjected to a series of toxicological tests to document the safety for use as a processing aid for food. The enzyme preparation was examined for subacute and subchronic oral toxicity, and mutagenic potential. No evidence of oral toxicity or mutagenicity was found. Administration of the amino peptidase enzyme preparation at doses of 500, 1000 and 2000 mg/kg body weight/day for 90 days did not induce noticeable signs of toxicity. The no-observed-adverse-effect level (NOAEL) of the enzyme preparation in the subchronic toxicity study was 2000mg/kg body weight/day (equivalent to 1152 PHEA units/kg body weight/day). It can be concluded that no safety concerns were identified in the studies conducted with this amino peptidase enzyme preparation derived from Aspergillus niger and produced under controlled fermentation conditions.

Mary, I saw the show, and will be watching next week, with mixed emotions, I'm sure. Kim

I have posted many articles relating to the vaccine issue. I think it's important to say that I only post all of these, more or less negative articles, because it's very easy to find many many articles that will tell you that they are very safe, and absolutely necessary. http://www.cispimmunize.org/pro/pro_main.h...ntvaccines.html Please notice this statement: *Adolescent Vaccines in Development Due to the complexity of the vaccine licensure process and the large number of vaccines on the horizon...............* I strongly feel that this is an area where we cannot afford to be uninformed. I'm wondering how many of our kids may be affected by the adjuvants, not just the mercury that has been removed from the majority, but may have contributed to an added risk of adverse reactions to further vaccinations or a worsening in existing conditions. The purpose of an adjuvant is to stimulate the immune system. http://www.ncbi.nlm.nih.gov/entrez/query.f...l=pubmed_DocSum http://www.ncbi.nlm.nih.gov/entrez/query.f...l=pubmed_DocSum http://www.ncbi.nlm.nih.gov/entrez/query.f...l=pubmed_DocSum The majority of the Pub Med articles, talk about the safety of adjuvants. Again, after reading Evidence of Harm, I feel that some of the safety studies performed, are much to small, to have realistic odds of including a subset of people that may be adversly affected by these substances. Sometimes the amount of time that the studies track, is incredibley short also. Matt's recent post about his daughter's overactive (hyper) immune system, prompted me to post these thoughts. I'm hoping we can discuss this subject, and I would love to know how many feel vaccines have played a part in the increase in neurological conditions, and whether you plan on continuing to vaccinate. I'm struggling with "can I afford to continue vaccinating my guys? Can I afford not to?" I know two families that have dealt with menningitis. One lost their beautiful teenage daughter, the other almost died. These are not easy decisions. Is anyone discussing vaccines/boosters with their Alternative/DAN Drs.?

Welcome Irene!!!!!! I only have a minute, but I wanted to comment on the "itching all over." My oldest son went through a horrible period of this. We mentioned it to his Pediatrician several times. Finally I picked him up in the middle of the school day, and took him back to the Dr. and got the winter dry skin excuse. He said he expected it would get better once spring came, and we could open the windows. I looked at my son, and said "can you live like this until spring?" He said NO. I told the Ped. I thought we needed an appt. with an allergist. He was found to have reactions to many envionmental allergens. They tested both of my sons at the same time. Looking at my oldest's reactions, compared to my youngest, I could have cried. Oldest was such an explosion. Zyrtec has eradicated the itching. I'm sure it has had no effect on the underlying problem, but I wanted to share the fact that during this horrible period, it is the one time, I can say that my son was affected mentally. I really suspect his histime levels were off the charts. His personality was NOT HIM, and it was frighteneing. I'm so glad you are exploring the alternatives, and thank you so much for posting! Will look forward to hearing how you're progressing. Kim

Matt, I am so glad you posted this. Thank you! I hope you will share these results with every Dr. who ever told you that there was nothing wrong with.... or nothing to be done for your daughter, other than a DRUG. If you type "test results" in the search box, you will find some great information there. Many of Claire and others, amazing posts. You made a comment that is exactly what I've been looking at lately. > The second diagnosis made from this (plus other factors) is that my daughter likely has an overactive (hyper) immune system. I'm going to start a new topic for this, hope others will share their thoughts. Kim

Bump

Giselle, So wonderful that this info. may have helped. You might want to take a look at Susan Owen Biochat on page 4, and check out the oxalates too. It's about 3/4 of the way down the page. Do you remember if Hoyt ever showed crystals on a urine test? Looks like high oxalates and phenols may have a common link, to me. right back to you and Hoyt! Kim Bumped the no fenol thread for you.

ad ccl, Not odd in the least for you to post about this. It's so heartening to read about the improvements. This is the second post recently about the gasping tic. My youngest son did this at the end of every sentence when he was about 4. It sounded like he was SO excited about everything he said. Looking back, I now know this was his first tic (or close to it...blinky eyes.) Just wanted to say I really share your excitment about your son's improvements, WAY TO GO and thanks for all of the info. on PANDAS. Kim BTW can I ask what probiotic you added recently? Klaire requires a Dr. sign. or so their site says. Has anyone successfully gotten them without a Dr?

http://www.sciencedaily.com/releases/2006/...60303205050.htm Omega 3 Fatty Acids Influence Mood, Impulsivity And Personality, Study Indicates Omega-3 polyunsaturated fatty acids may influence mood, personality and behavior, according to results of a study presented today by University of Pittsburgh School of Medicine researchers at the 64th Annual Scientific Meeting of the American Psychosomatic Society in Denver.

Melisssa, Both of my son's took clonidine. I felt it helped decrease tics at first, and definitley helped my oldest son get to sleep easier. The effects just didn't last for them. I can't say that it increased tics, or that we noticed any negative behavior associated with it's use though. It was kind of interesting, I had to have a kidney xray recently. The guy doing the test started telling me that he has had high blood pressure since he was in his early 20's. He said he had just lost a lot of weight from one of his blood pressure meds causing anorexia symptoms. I told him I had no idea a blood pressure med could do that. He said "yea, it's a calcium channel blocker." He said the next one caused severe depression after about 3 mos. Don't know if these remarks have anything to do with clonidine, all I know is that it is used to treat high blood pressure sometimes. I have also read reports of clonidine causing nigtmares, which my youngest son did have after starting it. As usual, I was not informed that could be a side effect and didn't have a clue, until I started searching the web, trying to figure out how to get my sons off of it safely. We had parted the company of our Neuro at that time, and he was the only Ped. Neuro around. I sure know how you feel about Orap. I'm glad we dodged that bullet. I do want to say though, if either of my sons would have been bad enough, I probably wouldn't have had such a strong conviction back then, and I never would want to appear judgemental of the parents/people who have used this type of med. My biggest problem is, I don't think we're given enough information to make informed choices, by a lot of these Drs. Kim

Matt, If you do a google search of Alpha-Ketoglutarate, you can find quite a bit of information, and maybe narrow down the questions to ask the lab/Dr. http://www.nutriline.org/akg.htm INTRODUCTION Ornithine alpha-ketoglutarate (OKG), a nutritional supplement, has gained a great deal of attention in both the scientific and athletic communities for its anabolic and anti-catabolic properties. Supplement manufacturers and distributors have described OKG as an ergogenic aid similar to the anabolic-androgenic steroids. OKG is an ionic salt that contains two molecules of ornithine and one molecule of alpha-ketoglutarate. Ornithine, an amino acid, is required for the normal functioning of the urea cycle, where ammonia is trapped to form urea. Alpha-ketoglutarate is the carbon skeleton of the amino acid glutamate. This amino acid analogue is an intermediate in the citrate (Kreb's) cycle and plays an essential role in a variety of transamination reactions (1). OKG has demonstrated marked anabolic and anti-catabolic effects in healthy persons and individuals that have sustained trauma (2-4). The compound stimulates the release of insulin and growth hormone while raising levels of amino acids and their metabolites, presumably making them available for protein synthesis. Concurrently, OKG reduces the catabolic markers of protein degradation (5-6). Although OKG's mechanism of action is poorly understood, it is believed that the anabolic actions of insulin and growth hormone contribute to the supplement's influence on protein metabolism (5-6). The protein metabolism part of this really interests me, as my youngest really seems to avoid the protein foods.

March 2, Biochat was cancelled...no notes

Giselle, That was probably the nicest thank you that I have ever received and you are so very welcome. I would never want to miss an opportunity to help your precious boy, especially after all he and his Mom have done to help others by sharing his story! Sure hope zinc is your answer. Please keep us posted. Kim

Carolyn, Andy & Lisa Thanks for the responses. Carolyn, I have always been curious as to why a magnesium deficiency would be a hard thing to prove, and this is what Bonnie's hypothesis is based on. Her vitamins have been a God send for us, but as you may be able to tell, things have to "make sense" to me. I have a friend that I worked with for years, who said "you're the one to always get to the bottom of things." I think I bit off a little more than I can chew, this time though! Andy, My oldest son that eats everything, has no real signs of gut problems other than the elevated IgG for the grains, had a higher ammonia level than my younger son. It's a puzzle to me too. If you run across any info. on this, I sure would love to hear it. Lisa, You may find reading these lists helpful. http://health.groups.yahoo.com/group/Autis...yguid=145220130 http://groups.yahoo.com/group/chelatingkids2/