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kim
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For Informational Purposes only. Always seek the advise of qualified medical professionals. shared from ASD_solutions Kim Feel free to forward Dr. Derrick Lonsdale He is a board certified pediatrician, Fellow of the American College of Nutrition and Certified Nutrition Specialist. I was an invited member of the first DAN initiation but could not make it because of a date clash. I was head of the Section of Biochemical Genetics at Cleveland Clinic until 1982 and helped to bring in the newborn screening tests into Ohio. I was conultant for inborn errors of metabolism in North East Ohio. I have published over 100 papers in the medical literature. My interest in TTFD dates back to 1973 when I was granted an Independent Investigator Licence (IND)for clinical studies of thiamine tetrahydrofurfuryl disulfide (TTFD). This IND is still active. I published an open study of the results of a single injection of Secretin in 68 ASD kids and I also published a pilot study of the effects of TTFD in 10 ASD kids, given by rectal suppository. Since that time I have been studying the benefits of TTFD given transdermally and have initiated the development of a commercially available transdermal preparation known as Authia. The use of transdermal TTFD is patented. Derrick Lonsdale M.B. B.S. (London). F.A.A.P. C.N.S. Notes below are paraphrased; the actual recording is on www.drneubrander.com Q: My son is 9 speech & attention deficit, would TTFD be of help to him A: Definitely. I did a study years ago with 10 children, 8 of them approved with TTFD. I saw arsenic, mercury, lead, cadmium in their urine in nearly all the children. The TTFD helped, and I still use it as part of my treatments. TTFD as a transdermal is very beneficial. I normally use it with transdermal DMSA. Animal studies show mercury is removed using thiamine (which is found in TTFD) and DMSA. The outcome using them together is better then either one alone. Q: TD (transdermal)? How often should I dose him? A: Daily. The cream is available by phone. The cream is given by 1/4 teaspoonful, massaged into the skin, on a nightly basis. Q: Do you believe that all of our kids have high levels of toxic metals? What kind of challenge do you do to determine this? How does TTFD differ from TD DMPS? A: No, I don't think all kids, but I think it's very common. I've seen SH-reactive metals (arsenic, mercury, lead, cadmium) commonly. They react with sulfur and hydrogen atoms. I do a TD-DMSA challenge, and the parents collect urine after the first cycle. DMSA is given for 3 days on, 11 days off. This is a good protocol. TTFD is essentially a vitamin. DMPS is a drug. That is a basic difference. I've used TTFD since 1973, and have never seen any toxicity. I've treated Down's, mental retardation, and ASD disorders. I've usually found TTFD to be very helpful. The best part is it's non-toxic. It's not just for heavy metals, although the removal of heavy metals is an important reaction. You might use it the same as vitamin B1, as a therapeutic tool. Vitamin B1 treats over 230 different conditions. TTFD is simply a method of delivering vitamin B1 into the system. Q: Are there any other supplements to give along with TTFD to help support detoxification or supplements that should be avoided while using it? A: One of the things that happens with the use of TTFD given transdermally is that the child develops a body odor like a skunk. 10 mg of biotin makes the odor disappear within 24 hours. Since then, I have treated a lot of children with TTFD, and in many cases the biotin hides the odor. The odor produced is undoubtedly related to the metabolic changes that are happening in the child, and as the child improves, the odor goes away. There is no toxicity from TTFD – that's simply not true. There are no supplements to avoid while using this vitamin TTFD. All vitamins you would normally use can be used in conjunction with TTFD. Q: Lemon juice takes the odor away as well (wash feet in the am) A: Thank you, that's a very helpful hint. Q: Is it for long term use? Can it be dangerous to give too much vitamin B1? A: Yes, it's for long term use. You can use it indefinitely; I've treated people for months, years, and have given very high doses. It can be dangerous to give too much, but it has to be literally thousands of times the RDA. If you take it that high, it will produce a paralytic effect in the nervous system. Much of the time I've given TTFD by mouth, but kids on the spectrum don't always take supplements orally. On a suggestion by a DAN! colleague, I contacted a compounding pharmacy to make a transdermal cream. TTFD is a disulfide derivative of vitamin B1. When it comes up against a cell membrane, the B1 enters the cell, and it leaves the self-containing molecule outside the cell. This is a very efficient way of delivering vitamin B1 into the cell. Q: How long before seeing results? A: In the pilot study, the children saw results in 4-6 weeks. Q: I have noticed that my son's "TTFD odor" will come and go. It leaves for a few weeks and then will come back. If this is indicative of metabolic changes, why does the odor return? Is the odor a sign of him detoxing more at that time? A: I'm afraid that I don't know the exact answer to that. Skunks produce mercaptans (the stinky sulfur-containing substance). I think some of the action of TTFD is to produce a mercaptan. Studies have been done, and it's shown that the mercaptans are excreted in the urine, with no toxic effect. Bottom line, I think the metabolism in your case might be waxing and waning. Q: My son is constantly hungry. He wants to eat all day long. After he finishes eating, he wants to eat more. He eats more than most adults. His weight is average. We give him only very healthy GFCF food. He only cares about food. He does not seem to have gut pain. He has no inborn errors of metabolism/genetic problems. All this started at 23 months at the same time as his regression with his DPT and has not been helped with dietary intervention. His fasting blood glucose level has gradually gone from normal to slightly low over the past 2 years. I don't know what to do. I am worried he will develop diabetes and it is so hard to deal with his eating all the time. He is not low in chromium and I always give him meat carbs and vegetables together. What can I do? Thanks! A: I have developed a conclusion about ASD. The metabolic lesion is related to the limbic system of the brain. The human brain is made up of cognitive and the primitive element (limbic). The limbic is a computer, it contains all the reflexes for which a human is able to survive in a toxic and hostile world. Appetite is controlled by the computer, not the stomach. When you put food in the stomach, it notifies the brain that food is coming. As you continue to put food in the stomach, the signals crescendo to the brain. Finally, the brain says I've had enough. That's what controls appetite. If that center is damaged in some way, the child goes on feeding and feeding and feeding. Most of the children I see have the opposite, a complete loss of appetite. So I think there is damage here (the satiety center). Many cells and many parts of the brain are affected by ASD. Every child is different. If you're not using TTFD, you definitely should. You can get that from your physician. Vitamin B1 is beneficial to the limbic system. You have to supply plenty of vitamins and oxygen to this system. Q: Do you feel the po (oral) is as effective as the TD? (TTFD) do you combine it with other chelators? A: Yes I combine. I use DMSA cycles along with daily TTFD. I do not feel that the oral is as effective as the transdermal. A lot of the things we use now are given by transdermal, and are efficient. The skin is a marvelous way to get these things in. But you have to be aware that the skin takes in the bad too, such as arsenic from play areas, and such. I think TD DMSA is wonderful, so good that I have not used DMPS. Q: 1. For those who have allergies to sulpha/sulphur, is ttfd safe as you said there was a sulphur molecule used for transport. 2. What are your top treatments for ASD? And can you rate their effectiveness? A: This is important. Sulpha medication is short for sulphonimide. It's an anti-microbial. Sulphur is the kind of sulphur produced from volcanos. TTFD is safe. The sulphur molecule in it may have an important bearing in it's effectiveness. Top treatments for ASD: I always use Nu-thera as a multi-vitamin. Nu- thera was a result of the research carried out by Bernie Rimland years ago. This mixture is beneficial in autism. These children are vitamin deficient. I use TTFD transdermally in the form of Authia cream, which contains a small amount of methyl cobalamin. I use that with TD-DMSA. I use folinic acid. Most of these kids can't use folic acid – folinic is the one you want. I look for yeast by sending urine to Great Plains, then I will add Nystatin. In some cases, I use Diflucan if the yeast is systemic. And I'm just beginning to use the low dose Naltrexone. The order I spoke of them in is the order I would rate them in. Q: We are using TD-DMSA on a 3/11 cycle. Is there a better time to give TTFD? Does it need to be applied away from the chelator? A: It does need to be applied away – use a different site for each of the TD creams you use. I usually advise for parents to give TTFD in the evening, so you can wash the child in the morning to try to get rid of the odor. Most of the children I see begin to get better within a day or so of completing the 3 day cycle of DMSA. Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/asd_solutions/
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http://money.excite.com/jsp/nw/nwdt_ge.jsp...t&date=20060213 Feb 13, 3:13 PM (ET) By DAVE CARPENTER CHICAGO (AP) - Not long after disclosing that its french fries contain more trans fat than thought, McDonald's Corp. (MCD <http://money.excite.com/jsp/qt/short.jsp?symbol_search_text=MCD> ) said Monday that wheat and dairy ingredients are used to flavor the popular menu item - an acknowledgment it had not previously made.
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Carnosine, the miracle remedy (at least for me)
kim replied to FireFlysWay's topic in Tourette Syndrome and Tics
Thanks Chemar! There's something new to learn everyday. As my oldest sons head shaking flaire was on it's way out, he was sitting next to me, and he was sort of pushing his shoulder or knee against me. I could just feel that deep pressure impulse, although there were no tics visible. I thought how annoying that must be for him. I suspect carnosine may be good for him. I don't worry about the taurine or zinc issue with him, as much as I would my younger son, so it's something I'm trying to learn as much as possible about. -
February 12, 2006 By LAURA BEIL / The Dallas Morning News http://www.dallasnews.com/sharedcontent/dw...n1.3e7c881.html Rates of diabetes, autism, asthma and other conditions are rising in American children. Usually, no one can say why disease afflicts one child and spares another. The National Children's Study was designed to help explain how genetics, chemical exposures, social circumstance and other factors combine to make children ill.
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2006 January 26 http://www.ncbi.nlm.nih.gov/entrez/query.f...l=pubmed_docsum Alteration of the spontaneous systemic autoimmune disease in (NZB x NZW)F1 mice by treatment with thimerosal (ethyl mercury).
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Carnosine, the miracle remedy (at least for me)
kim replied to FireFlysWay's topic in Tourette Syndrome and Tics
http://www.iherb.com/ulcers2.html zinc/carnosine -
By Victoria Kennedy AS EVEN MORE VACCINATIONS ARE PLANNED FOR KIDS, HAVE WE GONE.. By Victoria Kennedy http://www.mirror.co.uk/news/tm_objectid=1...-name_page.html IT'S a scene that's unbearable for both parents and children alike - when a nurse moves a menacing needle towards their child's arm. But by April, this toecurling scene will be repeated in doctors' surgeries TEN times before a child is two, as a further four inoculations will be added to the immunity programme. The current required 21 doses will be increased with an extra four pneumococcal vaccines - against meningitis, blood poisoning and pneumonia - and a booster against Hib, an infection that can cause bacterial meningitis. The government says these jabs are vital as they will keep children safe. However, questions have been raised as to how effective these inoculations are, and whether they are actually harmful to a child's health. This, in addition to parents' existing concerns over the safety of the current MMR jab - after all many parents born in the 80s only had five inoculations themselves. Some experts believe that vaccines are contributing to the steep rise in immune-related disorders in very young children.
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Confused Mom, >I want to know that I am on the right track and that I for sure need to do the full urine, blood and stool testing in order to figure out what supplements will be best. I think this is something a lot of us struggle with, especially during times when the tics and other issues, really don't seem that bad. I guess every parent has to decide for themselves which route is best for their child. Could I suggest that you read Giselle's posts, along with Chemar's. Just click on her name anywhere you see it, and it will give you a "read all messages," option. She has had remarkable success with improvement for her son, with the testing and DAN protocol. I truly think the testing and a DAN Dr. is the best way to go if your son's condition warrants it. As with the fish oil and fatty acid metabolism, without testing, you kind of have to experiment. The same thing with management of yeast or bad bacteria, vitamin/minerals, overload of metals if present, etc. The alternative Dr. I saw, wanted the stool test only, first. He felt that a big part of the problem could be solved with testing digestive function, yeast/bacteria, and fatty acid metabolism. He felt if there was a problem there, that could be corrected, the other tests may not be necessary. I wanted, more of what your Dr. is suggesting. I didn't want one test, then go back and discuss it, and order another, wait another 2 months, then go back. I knew the vitamins were working, and I wanted to check things out there first. I should have been more assertive, but I had been pretty beaten up by reg. Drs. and just didn't want to sound challenging with this Dr. and I did like him, and wanted to put this whole issue in someone else's hands. That wasn't meant to be in our case. Now he is retiring, but I have been told he is going to have a very small, part time practice, and he may keep us on as patients. Call the end of Feb. Why I wasn't informed of this, I'll never know. I have heard good things about Krill. One of the biochat Dr.s said another Dr. in his office was having good results treating tics with Krill. I also read it stinks to high heaven, but doesn't have the fishy after taste of reg. fish oil, so maybe the trade off would be worth it? Please let us know what you decide. The sharing of information here is invaluable. Without this message bd. I don't know where we'd be right now. Kim
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Sunshine, My youngest son has had the classic shiners, since he was a toddler. I started a digestive enzyme called No Fenol recently. I was using it to help with the yeast problem, as it is supposed to weaken the outer shell of yeast, along with Culturelle probiotic. It's really to soon to say if it's related, but his dark circles are gone. I'm wondering if it's not related to anything to do with yeast, but the phenol in his diet. Here is some info. http://www.danasview.net/phenol.htm List of high phenol foods -from Dana's site- Here is a short list of high phenol foods from Karen Seroussi's book, which you would want to eliminate or at least reduce to prevent overload, is food dyes, tomatoes, apples, peanuts, bananas, oranges, cocoa, red grapes, colored fruits, and milk. ****************************** Karen DeFelice is another moderator on the autism enzyme board. This is info on a book she wrote. http://www.midwestbookreview.com/sbw/feb_05.htm#health Enzymes For Digestive Health And Nutritional Wealth Karen DeFelice ThunderSnow Interactive 5720 Wentworth, Johnston, IA 50131 0972591869 $18.95 www.thundersnow.com Digestive enzymes are essential for human and animal life. Digestive enzyme therapy is an important and newly emerging alternative approach to a number of human ailments including autism and such neurological conditions as PDD, sensory integration dysfunction, migraines, ADD, ADHD, food and chemical intolerance, chronic fatigue, fibromyalgia, autoimmune conditions, bowel dysfunctions, and "leaky gut" syndrome. Author Karen L. DeFelice recounts the compelling and informative story of a group of families that found health improvements through digestive enzyme technology to be incredibly successful. ****************************** More info on enzymes http://216.114.78.114/webcenter/sites/HNI/...36&N=No%20Fenol Our Alternative Dr. told me not to use Nasonex because it was a steroid, on a continuous basis, and use xylitol nasal spray instead. I believe we have had flonase too, and neither flonase or nasonex caused any increase in tics, that I was aware of. Maybe try it for a short time and see if it helps? Kim
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Pervasive Developmental Delay and NT= neuro typical (normal) a lot of times you will see PDD NOS, the NOS=Not otherwise specified. http://www.google.com/search?hl=en&ie=ISO-...G=Google+Search Lisa, I just want to clarify that my sons have none of these disorders, so I'm certainly no expert, but I am becoming pretty fimiliar with these terms. My boys both stood in a wedding in Dec. No one would have known that there was anything different about either of them, no tics visible. We were very lucky since this was the period of time when my oldest son was up and down with the head shaking flair/staph. They are both generally A-B students, no social problems, nothing that would make sense to anyone, except maybe the people on these message bds, why I would spend so much time learning about autism. I just don't want anyone to have the impression that my kids must have a lot of difficult issues, that probably would not apply to their child. This is not the case. I just find the similarities too hard to ignore, even if it's on a tiny scale comparing my son's issues to the children with these other diagnosis's. Anytime I can try to help clarify anything for you...ask away Kim
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I gave some inaccurate info. about Dana. I have not read much of her site, just the messages from enzymes/autism-and most of her responses are breif and to the point. http://www.danasview.net/about.htm About Me, My Family, This Site, and Acknowledgments Hello, my name is Dana and I am 41 years old. I am an attorney, I am married, and I have four children. I homeschool all four of my children, and I do legal work part time from home. When my second child was diagnosed with autism at age 3, I began searching the internet to learn more about him and who he is, and I was surprised to discover that I also qualified as AS, which I will use here to refer to Autistic Syndrome although I am aware it is used for other uses as well. My third child would probably qualify as PDD, but I have not pursued an official diagnosis for him. My first and fourth child are NT.
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Hastert, Frist Said to Rig Bill for Drug Firms* By Bill Theobald The Gannett News Service Thursday 09 February 2006 http://www.truthout.org/docs_2006/020906R.shtml http://www.gallatinnewsexaminer.com/apps/p...405/1309/MTCN04 */Frist denies protection was added in secret./* Washington - Senate Majority Leader Bill Frist and House Speaker Dennis Hastert engineered a backroom legislative maneuver to protect pharmaceutical companies from lawsuits, say witnesses to the pre-Christmas power play. The language was tucked into a Defense Department appropriations bill at the last minute without the approval of members of a House-Senate conference committee, say several witnesses, including a top Republican staff member. In an interview, Frist, a doctor and Tennessee Republican, denied that the wording was added that way. Trial lawyers and other groups condemn the law, saying it could make it nearly impossible for people harmed by a vaccine to force the drug maker to pay for their injuries. Many in health care counter that the protection is needed to help build up the vaccine industry in the United States, especially in light of a possible avian flu pandemic. The legislation, called the Public Readiness and Emergency Preparedness Act, allows the secretary of Health and Human Services to declare a public health emergency, which then provides immunity for companies that develop vaccines and other "countermeasures." Beyond the issue of vaccine liability protection, some say going around the longstanding practice of bipartisan House-Senate conference committees' working out compromises on legislation is a dangerous power grab by Republican congressional leaders that subverts democracy. "It is a travesty of the legislative process," said Thomas Mann, senior fellow at the Brookings Institution, a Washington think tank. "It vests enormous power in the hands of congressional leaders and private interests, minimizes transparency and denies legitimate opportunities for all interested parties, in Congress and outside, to weigh in on important policy questions." At issue is what happened Dec. 18 as Congress scrambled to finish its business and head home for the Christmas holiday. That day, a conference committee made up of 38 senators and House members met several times to work out differences on the 2006 Defense Department appropriations bill. Rep. David Obey, D-Wis., the ranking minority House member on the conference committee, said he asked Sen. Ted Stevens, R-Alaska, the conference chairman, whether the vaccine liability language was in the massive bill or would be placed in it. Obey and four others at the meeting said Stevens told him no. Committee members signed off on the bill and the conference broke up. A spokeswoman for Stevens, Courtney Boone, said last week that the vaccine liability language was in the bill when conferees approved it. Stevens was not made available for comment. During a January interview, Frist agreed. Asked about the claim that the vaccine language was inserted after the conference members signed off on the bill, he replied: "To my knowledge, that is incorrect. It was my understanding, you'd have to sort of confirm, that the vaccine liability which had been signed off by leaders of the conference, signed off by the leadership in the United States Senate, signed off by the leadership of the House, it was my understanding throughout that that was part of that conference report." But Keith Kennedy, who works for Sen. Thad Cochran, R-Miss., as staff director for the Senate Appropriations Committee, said at a seminar for reporters last month that the language was inserted by Frist and Hastert, R-Ill., after the conference committee ended its work. "There should be no dispute. That was an absolute travesty," Kennedy said at a videotaped Washington, D.C., forum sponsored by the Center on Congress at Indiana University. "It was added after the conference had concluded. It was added at the specific direction of the speaker of the House and the majority leader of the Senate. The conferees did not vote on it. It's a true travesty of the process." After the conference committee broke up, a meeting was called in Hastert's office, Kennedy said. Also at the meeting, according to a congressional staffer, were Frist, Stevens and House Majority Whip Roy Blunt, R-Mo. "They (committee staff members) were given the language and then it was put in the document," Kennedy said. About 10 or 10:30 p.m., Democratic staff members were handed the language and told it was now in the bill, Obey said. He took to the House floor in a rage. He called Frist and Hastert "a couple of musclemen in Congress who think they have a right to tell everybody else that they have to do their bidding." Rep. Dan Burton, R-Ind., also was critical of inserting the vaccine language after the conference committee had adjourned. "It sucks," he told Congress Daily that night. Rep. Jim Moran, D-Va., another member of the conference committee, was upset, too, a staff member said, because he didn't have enough time to read the language. The final bill was filed in the House at 11:54 p.m. and passed 308-102 at 5:02 the next morning. The Senate unanimously approved the legislation Dec. 21, but not before Senate Democrats, including several members of the conference committee, bashed the way the vaccine language was inserted. "What an insult to the legislative process," said Sen. Robert Byrd, D-W.Va., a member of the conference committee. Byrd is considered the authority on legislative rules and tradition. President Bush signed the legislation into law Dec. 30. When asked about Frist's earlier denial, spokeswoman Amy Call said: "Bill Frist has fought hard to protect the people of Tennessee and the people of the United States from a bioterror emergency and that's what he did throughout this process." Hastert's office did not provide a response. *Not against the Rules* The practice of adding to a compromise bill worked out by bipartisan House-Senate conference committees, while highly unusual, is not thought to violate congressional rules. Some Senate and House Democrats have proposed banning the practice as part of broader attempts at ethics reform in Congress. They, consumer groups and others with concerns about possible harm caused by vaccines charge that the move was a gift by Frist to the pharmaceutical industry, which they point out has given a lot of campaign cash to the Nashville doctor through the years. "The senator should be working to ensure there are safe vaccines to protect American families rather than protecting the drug industry's pocketbooks," Pamela Gilbert, president of Protect American Families, said in a statement. The group is an alliance of consumer, labor and advocacy organizations. Frist has received $271,523 in campaign donations from the pharmaceutical and health products industry since 1989, according to the Center for Responsive Politics, a watchdog group. He is also a possible candidate for president in 2008. In the interview, Frist reiterated how important he thinks the vaccine protections are. "The United States of America, if a pandemic occurs, is totally unprepared," he said. "And the only way we are going to be prepared is rebuilding our manufacturing base to build a vaccine infrastructure that can be timely and responsive. We don't have it today." Frist has long advocated liability protection for vaccine makers, and it was widely reported that he would attempt to attach the legislation to the Defense Appropriations bill because it is considered must-pass legislation. Ken Johnson, senior vice president of the Pharmaceutical Research and Manufacturers of America, said that, while the group favors liability protection, it did not take a position nor did it lobby on behalf of the law that passed. ------- *About the law* The new law providing vaccine makers with protection against lawsuits is called the Public Readiness and Emergency Preparedness Act. Among its key provisions are: . It allows the secretary of Health and Human Services to issue a declaration that a "disease or other health condition or other threat to health constitutes a public health emergency." . The secretary may also issue a declaration if there is a "credible risk" that there may be such a problem in the future. . The protection against lawsuits then kicks in covering the "manufacture, testing, development, distribution, administration or use of one or more countermeasures," a term that includes vaccines and other drugs. . Requires someone who is injured to prove "willful misconduct," and states that the standard will be "more stringent than a standard of negligence in any form or recklessness." . Excludes any state or federal court from reviewing the secretary's [gestapo-like] decisions under the law. -- GANNETT NEWS SERVICE *On the Web* The Center on Congress at Indiana University is at http://congress.indiana.edu. Click on "News" item about media seminar, then click on "Part Three" for video of staffer's comments. ------------------------------------------------------------------------ *What's next?* Here's what could happen next regarding the vaccine liability protection law: . House and Senate Democrats have proposed changing the rules to block votes on any provision that has not been approved by a conference committee. . Members of Congress could try to amend the vaccine law. . The law's constitutionality could be challenged in court. -- GANNETT NEWS SERVICE John Wayne Gacy, Theodore Bundy, Bill Frist, Charles Manson, Dennis Hastert, Heinrich Himmler, Henry Lee Lucas, Bill Frist, Gary Leon Ridgway The material in this post is distributed without profit to those who have expressed a prior interest in receiving the included information for research and educational purposes. For more information go to: http://www4.law.cornell.edu/uscode/17/107.html http://oregon.uoregon.edu/~csundt/documents.htm If you wish to use copyrighted material from this email for purposes that go beyond 'fair use', you must obtain permission from the copyright owner. [Non-text portions of this message have been removed]
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I had posted recently about my oldest son having a couple of moles removed and getting a staph infection in one of the sites. I had told the dermatologist that he was on a vitamin program for a tic syndrome. His quick reply was. "if it's working keep doing it." He later prescribed Doxycycline for the staph. I had given the Doxycycline along with his usual supplements. A couple of weeks later there was a reoccurrence of the staph, the pediatrician prescribed Keflex, but phoned me afterwards to say that the culture from the lab was recommending Cipro. I googled Cipro, and was not thrilled with the possible side effects, although rare, it just didn't look like a drug that I wanted to give a 13 yr. old with tics. I called the Rite Aid Pharmacist and explained the whole situation, he agreed that the Keflex should be effective and safer, but said the Cipro was very effective for staph and expensive, so don't throw it out. I made the decision to go with the Keflex. I am aware of the MRSA staph infections, and wish I could have discussed this with the Dr., but it's just not possible, as I knew he would feel pressured about going against the system recommendations, and get annoyed with me, as they will not acknowledge TS/tics as a neuro condition, only a minor annoyance with no real medical significance. A side effect of Cipro can be tremors, brain swelling ,etc. The point here was, when I was looking at Cipro, I decided google Doxycycline too. http://www.drugs.com/doxycycline.html Do not take iron supplements, multivitamins, calcium supplements, antacids, or laxatives within 2 hours of taking doxycycline. These products may reduce the effectiveness of doxycycline. I believe another site mentioned zinc and magnesium too. You will not always find this info. on the first couple of sites you look at, some will say "tell your Dr. if you are taking any herbal supplements," but they don't elaborate. I had read about this effect with some seizure medications and calcium a while back too. I just want everyone to be sure that they are very careful about ANY medications that are being taken along with supplements. Even if your reg. Dr. knows what you/your child is taking, they may ignore it completely when prescribing meds, so you will have to check with your Alt. Dr. a Pharmacist, or do a through search yourself. This error may have caused my son to have to take a second antibiotic. I had assumed since I had made the Dermatologist aware, that it would be taken into consideration. The staph lesion popped up in a totally different place from where the incisions were, so obviously, it was lurking in his system. It was not fun trying to give the medications, his supplements, and a probiotic, twice. The head shaking flair coincided with the staph appearance, which was really upsetting after so long tic free. I wanted to increase his vitamins, add extra vit. C, zinc and mag taurate, and that was really hard to do, as I wanted to keep supplements away from even the Keflex (although I don't think it was necessary-just being cautious the 2nd time around) He was taking it 3 times a day, and I was trying to keep 4 hours btwn the med and his vits. His head shaking flair is about 90% better currently. I really feel like his system was taxed with the mole removal, stitches and then the staph. When he started the second antibiotic, I thought it would clear the staph and we would start to see an improvement. That didn't happen. The tic stayed the same, or got worse on the Keflex. It was only when we increased his supplements that he started improving. We only went from 5 up to 8 of Bonnie's vits. and extra of the things that I mentioned above. I have to confess I had a bottle of carnosine in my hand, but knew in my heart, this wasn't the right time to rush into a new supplement, without supervision. There was too much going on. We also went back on the Houston enzymes recently, as I feel they will help with his wheat sensitivities, and umm,umm...elimination. The Peptizyde seems to have that effect.
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Andy, I just posted a link to Dana's website in a post to Sydsmom. I know you get your information from the best research and Dr.s available, but sometimes it's kind of refreshing to read the personal accounts. How this woman has done all of the research she has, and dealt with 3 children with special needs, is beyond me. If I have it right, ALA was pretty much her primary chelator and she obviously is a big believer in it. As bad as the thimerisol exposure was, now I'm afraid we are going to have to cope with additional amounts of mercury in the air. With the oil shortage and all of the possibilities for supply disruptions and growth in emerging countries, the push is on for alternative energy sources, and a lightening of the emission restrictions for the *^%$ coal burning plants is really frightening to me. Personally, they could put a wind fan (or 10) right in my front yard, if it would help to stop the poisioning of our environment and our kids. If only others were connecting these dots, instead of medicating so many kids, we could probably make some progress. Kim http://www.greenpeace.org/usa/news/mercury-report
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asd_solutions@yahoogroups.com enzymesandautism@yahoogroups.com http://www.danasview.net/issues.htm Lisa, The first two are groups that the messages are just delivered to my email everyday, and there are usually a ton of posts, so be prepared, if you set it up that way, to read or delete a lot of emails. There are so many supplements discussed btwn these two groups, that I find it really useful. Teresa Binstock posts the majority of the articles, that I post here. She is an adult Aspergers with a PhD (autism researcher) and is mentioned quite a few times in Evidence of Harm. Some really amazing people in these groups. They might start discussing say, 5HTP, and you may get 5 or 6 people reporting what results they got with it, good, bad, or nothing. Probiotics, children with limited diets, tics, anxiety meltdowns, rage.... so many things. Some have wonderful DAN Dr.s and some are just working slowly on their own. Recently there was a virus started on the ASD bd. If you join the group, you may want to mention that you are from a tic/ts bd. and Kim with the two boys with tics, recommended the site. Karen (moderator) has indicated that she is going to screen new members more carefully, and ask that people pass the word for a "connection," for new people wishing to join. I don't post there often, but just mentioning the tic connection and ts bd. would probably be good. Kim
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Useful Info on Strep Infections from Ronna
kim replied to Chemar's topic in Tourette Syndrome and Tics
For Carmen -
Noelle, I'm so sorry about your experience with the neurologist. I had a very similiar experience. My son had a horrible tic flair, but he was playing Pac Man. I thought it was the flashing ghosts and, as you said, the stress and excitment with the chasing on the game. He had just gotten it, and it was his birthday. I'm just afraid that the neurologists will not entertain the fact that we have eyes and live with these children. I think often times, they only see what's in the medical journals, or what meds can be used. Trust your instincts until you can find a Dr. who is on board with alternative medical approaches. There is information at the top of the page on finding medical help, if you choose this route. I wanted to let you know that Claire is not here much anymore, but does pop in occasionally, so don't feel left out, if you don't get a response from her. There is SO much information here, just keep reading, and ask questions when ever you feel the need. It took me months of reading this forum, to even cover 1/2 of the info, but well worth it. Kim
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Carmon, Maybe the first two times he did have strep, and not necessairly a sore throat. My kids have had strep and never even said their throat hurt. My feeling is that any infection or virus is very capable of bringing on a tic flair with the boys, although not always. I'm not very up on all of the PANDAS stuff, but I think the people who are, would tell you to get his strep titers tested. If you make copies of some of the research in that area and take it to the neurologist or your pediatrician, it might help. http://www.enzymestory.com/PANDAS.html There are also some really excellent threads here with posts by Ronnas and Allison and others, that you would probably want to read, if you haven't already. Please let us know how your appt. goes., and God bless your little one with diabetes too. Kim
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Andy, It must be wonderful to see no mercury. Any idea why lead reappeared? So happy for you and your family and your ability to restore your son's health. TTFD...skunk smell right? Since you mention ALA, I'm wondering if you have ever read Dana's site? She's a moderator on the enzyme bd. and basically chelated all of her asd kids herself and talks of ALA a lot. Her site is strictly personal accounts, kind of like a running log on her kids experience with different supplements. She has talked of the addition of biotin, substantially helping with yeast control. This caught my attention as my 9 yr. old has had paper thin finger and toe nails since he was an infant, along with turning orange, which now I think was an inability to convert betacarotene properly I keep reading everything I can get my hands on to try to decide if chelation is the only thing that will give my son his appetite back, or if time and less drastic measures will do it. I just finished Evidence of Harm. It reminded me of a ping pong match at times, but one thing was perfectly clear, to me anyway. They went to extraordinary lengths to make data inaccessable, and the remarks from the transcripts at Simpsonwood just make me seeth. They knew the very strong possibility of great harm was there. The statistics on tics, with the exposure levels at the age of 3 months is sickening too. I finally got out the very incomplete vaccine records that my pediatricians office have provided me for school, and see where the Hep B that my youngest son was given the day of birth, gave him about 34.45 times over the EPA's allowable amount, in that 1 vaccine, if, I have the manufacturer right, as it's hard to make out on the record. Two out of three of the Hep B vaccines are in this same range for an 8 lb. infant. One is .84? I can't track many, as the manufacturer is missing on most (along with my consent signature on a few) http://www.nvic.org/calc.htm Sorry to ramble, just thought I would share a couple of thoughts. Kim
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Carolyn. My 13 year old has had braces for the last 3 years. I have not seen any correlation to tic increase. He has lost a silver cap on one of is molars about 3 times and I'm always afraid of the sealant, but so far, haven't ever noticed any flairs with the addition of a metal appliance or a sealant. He, like Cheri's son will have a hard time with metal forks, metal on the end of pens or pencils as he feels compelled to bite them sometimes. There was a thread on braces on the autism bd. here that was full of info on this. I just looked at that forum, and it looks totally different, only two pages, and none of the people that I remember from there. Anyway, they talked about the metal being comprised of nickel and most didn't seem to think that they leached metals from what I remember. Hey, I wanted to tell you that there have been about 4 posts in the last couple of days about black specks on autism/enzyme and ASD solutions. Most said yeast die off, one said it looked like pepper sprinkles, and she was always glad to see this as she knew the yeast treatments were working. One person posted about blood in the intestine causing little dark specks? Three out of 4 related it to die off anyway. http://www.google.com/search?hl=en&ie=ISO-...e+Search....wow a google of autism+dangers of mouth metals+braces. This should give you some information kim
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Wewillbeatthis, I wanted to send you this link, and recommend that you go over the information on the site's where your son's testing was done. This PDF gives the examples and a breif (too breif) explanation of the possible problems associated with the reported values. This is an example of an adult test, and mine says "ranges are for ages 12 and under" so they are not identical, and laid out a little differently, but you may find some clues here to help you know what things to discuss with your Dr. at next appt. for at least this one section of the test. http://www.directlabs.com/PDFfiles/T97dysbiosisSR.pdf I now realize how many of these labs, send parts of tests out to different labs, so I'm not sure if the original test was ordered through Direct labs, or if your Dr. just ordered straight from Metametrix, but btwn the two sites, you should be able to get an overview of results for different sections of your test. Then you can start researching what the out of range things are for your son, and what is usually done to correct them. If you read Great Plains site, Pfeiffer (Dr. Walsh) and use your own knowledge of what types of problems your son is most prone to, you will start to be able to form an opinion (or at least be able to discuss possible treatments for your son) and save some time and money, at your appts. You may have a preference for what testing is done, in what order, or supplements you suspect may be helpful/or harmful. It appears that some of the Dr.s that are willing to check things outside of the mainstream protocol, are learning right along with us, and may have limited knowledge as to what labs/ testing are available, and what the results mean, so your "detective work" can be important too. Your Dr. kind of sounds like the one I was taking the boys to; willing to work with me, but not an expert on alternatives, or DAN Dr. http://www.greatplainslaboratory.com/russian/test1.html I have found this site to be helpful in the explanation of what's being tested, and why, even if your test wasn't ordered through this lab. Once again, this was really really helpful to me when I first started trying to piece together, what everyone was talking about. http://www.alternativementalhealth.com/articles/walsh.htm Hope something here helps. Kim
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*Childhood Vaccination: State Enforced Child Abuse?* ------------------------------------------------------------------------ /Dateline: Monday, January 30, 2006/ http://phenomena.cinescape.com/0/editorial..._id=84&sub_id=0 *By: DR PAULA BAILLIE-HAMILTON* By: Medical Doctor and Author /Dr. Paula Baillie-Hamilton explores the growing phenomena of parents choosing medical sterilisation instead of submitting future children to the increasingly rigid state childhood vaccination program, which many top scientists now believe to be compromising our children's present and future health./ I am standing in the Floridian department store Burdines-Macy's watching my friend Annie trying to round up her two younger children. For most children, a few stiff words would have the desired effect, however in this instance she could be speaking in an alien tongue for all the effect her efforts appear to be having. As I race around the store searching for her youngest child, who appears to have completely vanished off the face of the earth, I look back and catch a glimmer of unadulterated distress and sadness in her eyes as her beloved children's poor behavior attracts increasing numbers of disapproving stares from passing shoppers. Far from being a result of poor discipline, the poor behavior - and multiple health problems - of all her three children seems to have arisen as a direct result of childhood vaccinations. Despite being completely normal for the first few months, they all deteriorated physically, and behaviorally, immediately following various different rounds of the intensive and expanding program of childhood vaccinations all American children now have to unquestioningly submit to in order to be admitted to school. Now all her three children appear to show signs of the increasingly common vaccine linked childhood behavioral conditions known as Attention Disorder Hyperactivity Deficit (ADHD) - indeed her eldest was recently put on a ritolin like drug (called focalin) due to poor behavior in school. But this tragedy for her does not stop there as, more worryingly, another one of her children has also developed features of autism. Indeed, their behavior has deteriorated to the point that this highly intelligent lady says with feeling that "These are not the children that I gave birth to." *When sterilization is the only alternative* For Annie and a growing number of her friends, the current system has gotten so crazy that they have been forced to take the only option available to them - medical sterilization. She and other parents of vaccine damaged behaviorally disturbed children have been so traumatized and worn down by the tough state laws on childhood vaccinations, medical stone walls and extreme child behavior, that they taken the dramatic step of being sterilized for fear of having any further healthy babies which end up being damaged by compulsory vaccinations. While she and her husband love all their children dearly and despite her deep desire to have another child, which was extremely strong, they both could not contemplate coping with another behaviorally damaged child. It is this real fear of "making more bad babies" which appears to be the driving force behind this new and shocking phenomena of deliberate sterilization. *The Government childhood immunization programs: State endorsed blackmail?* You may well ask why if it was so obviously the vaccines behind her first child's deteriorating health, why were her second and third children vaccinated? Well, if the doctor who vaccinated your child does not accept the fact that the vaccine that he/she gave was actually responsible for your child's current health problem, this would make even the most confident parent, question his or her own recall of events or existence of symptoms. If you combine this with the fact that all childhood vaccines are now mandatory, this serves to makes resistance almost futile. As questioning the safety of a vaccine is tantamount to taking on the entire US government and medical profession in one fell swoop. Thirdly, there is denial - what parent wants to be told that by vaccinating their child they were indirectly responsible for causing their health problem? Every different state has passed laws requiring children to be given a full course of vaccination, which comprises 33 doses of about 9 or 10 vaccines before entering school. While exemptions can be obtained, they are very hard to get and mainly reserved for religious and some health reasons. And although a few states do allow for philosophical objections, the New Jersey courts recently upheld the right of a private school to deny admission to a student merely because she objected to taking a vaccine. This legalized form of blackmail goes further as unvaccinated children are not even allowed to take part in school sports. Indeed many pediatricians will not even treat unvaccinated children. For a country supposedly known as "The Land of the Free," America appears to have the harshest anti-libertarian laws in the world when it comes to childhood vaccinations. To many citizens, particularly non-Americans who don't have anything like these laws, these regulations could be seen as nothing more than state-endorsed and enforced blackmail. Annie's child was transformed from a normal baby into a "high needs baby," who screamed around the clock immediately following her first 8 week vaccination. This was followed by five years of total rebellion and extreme behavior. Another of her children's hair fell out at the age of two following another vaccine. Nevertheless, the threat of being unable to send her children to school, of being struck off her pediatrician books, and of becoming a social outcast among the other parents with vaccinated children made Annie press on with the full vaccination program, despite her better innate judgement. *Do vaccines really benefit our children?* Since most children today get up to 33 immunizations before they can be admitted to public school, parents are starting to ask a fundamental question. Which is the greater risk: getting and being injured by the disease, or being injured by the vaccine that purports to protect against it? For example, serious adverse events after receiving the hepatitis B vaccine, including 48 deaths, are reported three times as frequently as actual cases of hepatitis B in children under the age of 14. Indeed, many of the vaccines are used against diseases which simply don't exist. For instance, the only polio cases in the United States since 1991 have been those caused by the oral polio vaccine, whose use was discouraged only just recently! And even when they do exist, our better living standards have converted diseases such as measles from potential killers, as they can be in third world countries, to mostly harmless childhood illnesses. So somewhat shockingly, despite the draconian "blackmail" style laws set up to force parents to vaccinate their children before they are old enough to decide for themselves whether they want to be injected with this concoction of highly toxic chemicals, there appears to be no clear cut evidence that the vast mass vaccination program is on balance benefiting our children. Indeed, there is a growing pile of evidence indicating that as legislation goes to previously unheard of extremes, this policy may have brought about far more damage to our children's health than good. *It's official - The Childhood Vaccination Program is damaging children's health* Ever since mass vaccination of infants began last century, reports of serious brain, cardiovascular, metabolic and other injuries started filling pages of medical journals. A recent article called "The Dark Side of Immunizations," reviewed reports from several countries showing that vaccinated children, in addition to having a lower I.Q., also have a higher incidence of behavioral problems, asthma, and diabetes than unvaccinated children. In fact, pertussis vaccine (whooping cough) has even been used to induce encephalomyelitis in animals, a potentially fatal disease characterized by brain swelling and haemorrhaging. Take for example the strong link between vaccines, autism and other childhood behavioral disorders, a real problem Annie and her family live with 24/7. The overall amount of the heavy metal mercury that children were getting -- from the constantly increasing number of vaccinations -- was getting so high that between 1989 and 1999, children who received all the recommended vaccinations would have absorbed their lifetime's "safe" amount by the time they were 6 months old. This "mistake" was so serious that it even prompted an adviser to the National Immunization Program, Dr. Neal Halsey of Johns Hopkins University, at a hearing in Cambridge three years ago to admit, "I feel badly that I didn't pick it up". Symptoms of mercury toxicity in young children are extremely similar to those of autism and ADHD. Thus, it is thought that the widespread use of mercury in the childhood vaccination program explains the recent increase in the numbers of children diagnosed with autism since the early 1990s. Indeed, the high number of children diagnosed with autism seems to directly correlate with the recommendation of both the hepatitis B and HIB vaccine to infants in the early 1990s. But it's not just behavioral problems that are linked to the childhood vaccination program. Mounting evidence suggests the program has played a role in the massive upsurge of other 21st century childhood health epidemics, such as diabetes, cancer, and immune-system diseases like allergies, asthma and autoimmune disorders. *Why we are seeing previously unforeseen levels of apparently vaccine-linked childhood disease* The reason behind this epidemic of vaccine-linked diseases appears to stem from our increasingly polluted environment. Since the creation of synthetic (and often extremely health-damaging) chemicals at the beginning of the 20th century, their production has doubled approximately every ten years. Consequently our children are now exposed to thousands of synthetic and toxic industrial chemicals from the moment they are even conceived. Then as children, they get yet more from contaminated food, water, and air. The problem is that our detoxification systems simply were not been designed to process these chemicals. This is true with adults, and even more so with babies. As a result, these toxins accumulate in our bodies. At a certain point, the degree of chemical poisoning appears to become so great that one or more body system collapses, resulting in the development of a so-called "fixed name" disease, such as diabetes or cancer. There is evidence which points to childhood vaccinations being far more risky than adult vaccination. Firstly we know that children, due to their relatively immature detoxification systems, appear to be the most vulnerable to possible vaccine-induced chemical damage. Secondly, levels of chemicals which cause damage to children are much far smaller than those known to damage an adult. And thirdly, because children systems are still developing, chemical damage can causes additional health problems in our young such as developmental delays and diseases such as autism. This, together with the fact that these days our children are have already been exposed to far more chemicals in the womb than their parents ever were, could help account for the unprecedented number of childhood vaccine-related illnesses now being seen. *The difficulty of breaking the "vaccines are only good" myth* Dr. J. Anthony Morris, the former Chief Vaccine Control Officer at the U.S. Federal Drug Administration, stated that "there is a great deal of evidence to prove that immunization of children does more harm than good." This is a profoundly shocking comment, and makes you wonder what is behind the government's policy of forcing parents to unknowingly subject their babies to dozens of shots of highly toxic, well established brain poisons -- in the name of health? To understand how this crazy situation came to pass we need to go back to the origins of vaccines. Vaccines were originally introduced following Dr. Jenner, an extremely observant country physician, noticed that milkmaids who had been infected by Cowpox, appeared to be resistant against contracting the more fatal small pox. Ever since, this romantic medical breakthrough has resulted in virtually the entire medical community holding the concept of vaccinations tightly to its collective bosom. However, things have changed from those early days in a way in which Jenner could never have predicted. For vaccines are now -- unlike in his day -- regularly loaded with some of the most toxic brain damaging chemicals known to mankind. The problem appears to arise from the fact that most doctors are simply not told about these additives. And even if they are, because they are not taught about the effects that these chemicals can have on human health, they fail to grasp their significance and potential role they could be playing in triggering disease. *Is the US Government responsible for child abuse on a massive scale?* In the light of all this information, the question has to be asked to whether the U.S. government enforces laws based on incomplete and flawed science, which are now so rigid, that they could even constitute child abuse on a massive scale - the like which has never before been seen? Consider the definition of child abuse from federal agencies themselves - when those responsible for a child's welfare knowingly or by omission inflict physical harm on a child. Although I am no lawyer, the fact that no safety studies have examined how existing levels of vaccines "additives" could affect current and future child health, could potentially be construed as child abuse by negligence. For instance if I, a medical academic, but also a non-government funded, mother of four young children, can find enough evidence to write two major books on the subject, surely one or more of the highly paid government scientists in charge of the childhood immunization program should be able to do the same. If not, at least examine the evidence from the thousands of existing peer-reviewed scientific papers available, and adopt the precautionary principle to make vaccination optional until further studies shed more light on the situation. *Conclusion* After discovering that her children's problems may have been due to the chemicals present in vaccines, rather than waiting for any change of policy from the government, Annie has spent the last few days avidly reading up on ways in which to reverse this damage. She has also been researching ways to exempt her children from future vaccines. While she knows she cannot undo all of the seemingly vaccine-induced damage done to her children, she has already seen a glimmer of promise following even a few days of appropriate supplements. Although small, it has even been enough to give her hopes of one day resurrecting her dream of having another child. While that dream may just have come that bit too late for her, one thing that can be said for certain: no child of hers will ever get the needle again. *Copyright Phenomena Entertainment Group LLC 2004.* /Dr Paula Baillie-Hamilton is a medical doctor who holds an academic doctorate in human metabolism from the University of Oxford. She is a visiting fellow in Occupational and Environmental Health at Stirling University in Scotland and an advisor to the Soil Association, the UK's organic certification body. Dr Baillie-Hamilton's extensive work on chemical toxins and organic foods has been published in international medical journals. Her critically acclaimed book, 'The Body Restoration Plan', was published in the US in 2003 by Avery Books and in the UK by Michael Joseph under the title, The Detox Diet. Paula's second book is known as 'Stop the 21st Century Killing You' in the UK (Random House, January 2005) and as 'Toxic Overload' in the US (Penguin Putnam June 2005). This book looks at the wider issue of the ways in which 21st century living damages our health, and outlines ways in which to adapt and thrive in our new and toxic environment./ Dr Baillie-Hamilton's website can be found here <http://www.slimmingsystems.com/>. * The material in this post is distributed without profit to those who have expressed a prior interest in receiving the included information for research and educational purposes. For more information go to: http://www4.law.cornell.edu/uscode/17/107.html http://oregon.uoregon.edu/~csundt/documents.htm If you wish to use copyrighted material from this email for purposes that go beyond 'fair use', you must obtain permission from the copyright owner.
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Dr Walsh on EFA's http://www.alternativementalhealth.com/articles/walsh.htm#Co Borage Oil is a good source of omega-6 oils. I think the widespread use of Primrose Oil results from widely publicized treatment successes with schizophrenia in England & the USA in the 1970's and 80's. I would choose the one with the highest arachidonic acid level. (Sep 28, 2003) I once collaborated with Dr. Doug Bibus, a Minnesota fatty-acid expert, on a study of 87 schizophrenics. Bibus' lab provided reliable chemical analysis for about 60 fatty acids. We reported the results at a national meeting of the Americal Oil Association (not petroleum) & plan to publish the results in a journal. We found that 75% of schizophrenics were somewhat elevated in omega-6 oils, and significantly depleted of omega-3 oils. However, the pyroluric schizophrenics comprised the other 25% and exhibited severe deficiency of arachidonic acid and other omega-6 oils. We've had considerable success in using PUFA's (poly-unsaturated fatty acids) to treat persons with mental illness, but have found that omega-3 and omega-6 oils can cause clear worsening if given inappropriately. Pyrolurics need omega-6..... whereas most other patients need omega-3. There is a competition between o3 and o6 for zinc, B-6, and the delta 5,6 desaturases. The ideal would be to identify a person's biochemical individuality, with respect to PUFA's, then treat accordingly. We've met several pyrolurics patients who reported a setback after omega-3 supplements. Most of them turned out to be pyroluric. Kennedy-Kreiger Institute in Bethesda has a lab that performs a reliable PUFA assay. Direct Healthcare Access in the Chicago area has an excellent kryptopyrrole assay for determining presence or absence of pyroluria. (Oct 14, 2003) If you look at the reaction cascades for omega-3 and omega-6 beginning with ALA and LA.... both cascades require B-6 and Zn, which may be in limited supply. If a person is overloaded in one of the omega's and depleted in the other.... supplementation with the omega already in excess will result in less B-6 and Zn availability and a worsening of the levels of the depleted omega. About 60% of schizophrenics exhibit low omega-3 levels. About 20% of SZ patients (those with severe pyroluria) exhibit extremely low AA and DGLA levels and thrive on Primrose Oil or other forms of omega-6. The remaining 20% do not exhibit PUFA anomalies. The low omega-6 patients are very different from other schizophrenics and the general population. Classic symptoms include: Extremely dry skin (remember that the oils are the waterproofing of the skin), raised nodules on the back of the upper arm, abnormal fat distribution, plus the symptoms of pyroluria itself.... These include severe mood swings, stress dyscontrol, sensitivity to light and loud noises, poor immune function, little or no dream recall, reading disorder in childhood, craving for spicy/salty foods, poor appetite in the AM, etc. My preference is the RBC membrane assay for the PUFA's. (Oct 20, 2003) Donate and help us reach others with this information! Send this article to a friend DISCLAIMER: The information of this Website is for educational purposes only and is not intended to replace the advice of physicians or health health care practitioners. It is also not intended to diagnose or prescribe treatment for any illness or disorder. Anyone already undergoing physician-prescribed therapy should seek the advice of his or her doctor before reducing the dosage or stopping such treatment. For questions or comments about this site please E-mail us
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wewilbeatthis, I'm really curious as to why you would have strong IgG reactions (food sensitivities) if the intestinal tract is in good shape. I'm not disputing this, it's just that everything I have read in relationship to food allergies/sensitivities is based on the premise that there is permeability of the gastro tract where the undigested food particles pass through to the blood stream. You may want to read through this site. http://216.114.78.114/webcenter/sites/hni/ As Mazz pointed out in an earlier post, digestive enzymes are a necessary part of digestion, and this site may provide some answers as to why you have this problem without any "leaky gut." I totally agree with her on the point of getting any healing/help with natural foods and diet if possible. The juicing Mazz is doing is wonderful, but not an option for our limited eater. I have used the enzymes in the past from Houston, and am using them now again for the boys. If your test showed only the need for a good multipurpose vitamin, you may want to look at this site. https://www.juiceplus.com/nsa/pages/Home.soa This is a product that I have always been interested in, but couldn't find the info on what they actually contained. I'm told it IS on the site, but I've never been able to find it. Haven't looked in a long time though. I noticed this saved to my favorites when I was looking for the Houston site http://www.metametrix.com/TestServ/default...ID=40&TabID=117 Looks like a pretty comprehensive test. Was the dairy and egg sensitivity, and Omega 3 (fish oil) and a multi vit. all that were recommended due to these test results, or just a starting point with other supplements yet to come? Dairy is said to have an addictive quality. I think what you told your son is a fair statement. I think this article talks about the caisen addiction, the opiate effect, and gives a good overview of a lot of the things that are helping our kids too. Edit...removed because it's not the article I meant to post. I'm looking for the right one I would love to hear more specifics of your sons test results if you get a chance. I see where Methylation sufficiency status, is listed. Were the values here in the green? Zinc/copper ok? Kim
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Helpful Probiotic Information http://www.innvista.com/health/nutrition/biotics/proborg.htm