kim

DANGEROUS LEVELS OF LEAD IN VINLY LINING OF LUNCH BOXES A Back to School Warning: Children’s Vinyl Lunch Boxes Can Contain Dangerous Levels of Lead http://www.cehca.org/lunchboxes.htm#photos

Scientists Discover How Fish Oil Protects the Brain By Karen Pallarito HealthDay Reporter Fri Sep 9,11:47 PM ET http://news.yahoo.com/s/hsn/20050910/hl_hs...rotectsthebrain FRIDAY, Sept. 9 (HealthDay News) -- Louisiana State University scientists say they have discovered how the fatty acids found in fish oil help protect the human brain from the type of cognitive decline associated with Alzheimer's disease.

Mary, (nursepatti & evelyn too) Glad you found this site. I believe you will find a wealth of information here to help your son. I feel most Ped. Neurologists are good at ruling out things like seizure disorders, but may have very little experience with anything but using perscription drugs to treat tics/TS. I have found vitamins supplements, fish oil, diet changes, digestive enzymes to be VERY beneficial for my sons, and others here have found various alternative treatments to be superior to drugs also. Everyone has to weigh all of the alternatives and decide what they feel is best for their child. A poster here recently gave these links to someone on another board. I actually found there is a new Alternative MD about 3 miles from my home on this list (thanks Carolyn and glad to see your post on biochat!) DAN (Defeat Autism Now) Doctor: http://www.autismwebsite.com/ari-lists/danus.html American College For Advancement in Medicine: www.acam.org American Academy of Environemental Medicine: www.aaem.com I think the more posts you read, and the more you realise how vast your options are for exploring the improvement of your sons tics if they continue to be bothersome, the better you will feel. One of the things that was so upsetting to me was the fear of progression and helplessness. Helpless is the last thing I feel now, thanks to the wonderful sharing of information. It might help if you could explain a little more about your son's situation. Is there a family history of tics, recent steph infection, repeated antibiotic use, allergies, ADD, ADHA, obvious digestion problems, sleeping issues, food cravings or avoidance? Anything you can think of, even if it doesn't seem related to his tics, might be helpful (one of my sons had red, hot ears mostly at night and got to sleep waaaay too late. I thought it was my fault for being ineffective at enforcing bedtime rules). Anyway, welcome, and know there are some really wonderful people here that will help in any way they can! Kim

A child recently died while receiving IV EDTA. Please excercise extreme caution with use of this product and the qualifications of the Medical Professional who is administering it, especially until more is known about this death 9/12/05 Kim Dr. Cindy Schneider Dr. Schneider is a unique healthcare provider who has established a reputation for responsible and effective management of patients who have not found relief through conventional treatment. Her areas of special interest include innovative nutritional, environmental, and detoxification interventions for a variety of complex conditions including autism spectrum disorders, attention deficit disorders, and a wide range of autoimmune diseases. As the mother of two children with autism, Dr. Schneider offers both a medical and personal assessment of current and promising treatment options. She has developed and implemented multiple research studies relating to the treatment of autism and the identification of genetic risk factors for neurological disease and remains committed to advancing our current understanding of neurodevelopmental disorders through research and clinical standards of the highest quality. Credentials Dr. Schneider is board certified in obstetrics and gynecology. Her practice expanded to include the treatment of individuals with autism and other developmental disorders in 1995, and has been exclusively devoted to the treatment of neurological and immune disorders since 1998. She has been a member of the Defeat Autism Now! Think Tank since 1997 and served on the Research Committee of the MIND Institute at the University of California at Davis from 2001 to 2005. She has developed an extensive database that now contains detailed medical and developmental histories on approximately 1000 children with autism spectrum disorders and utilizes the insight gleaned from this information to continually improve her approach to treatment. Dr. Schneider was the founding president and medical director of the Southwest Autism Research Center and is currently the medical director of the Center for Autism Research and Education (CARE). She attends educational courses and conferences monthly and is committed to expanding her knowledge base and clinical skills throughout her career. ******************* Q: My son is a picky eater with a limited diet. He has multiple food allergies/intolerances, is on a gfcf, soy and nut free diet and is very thin for his age. He's 11 and only 58 lbs. He is a bit above average for height. Any suggestions on how to get him to gain some weight? Thanks He has no gut issues, never had BM problems. A: Is he weight so low because he’s refusing foods? (answer – he’s very active as well as very picky) He has a poor intake but is able to be active, so that’s a positive. Even if they don’t have obvious diarrhea, constipation, reflux, etc, it probably is still worth getting an endoscopy. Has he ever seen a gastroenterologist or had someone look for inflammation of the gut? (answer – yes, years ago, 2003, they saw problems with the mucosal lining of the stomach and small intestines, gastritis) So even though there are no obvious signs, he does have inflammation, probably still has it since he isn’t gaining weight and is a picky eater. What have you tried in the way of supplements/diets? (answer – inositol, no glucosamine) N-acetyl glucosamine is very helpful in healing the gut. Also MB-12 helps, and the diet. For the size of your child, 500 mg 2x a day. You should see some healing. Another intervention that might help is intravenous glutathione. If there is chronic inflammation, you might want to do genetic testing, see if he has normal glutathione genes. (answer- we are doing IV glutathione, 600 mg, every 9 weeks, also secretin Secraflo) With the kind of inflammation you’re describing you might be better off doing it weekly. I like to bring the inflammation down first with glutathione; then use secretin. Secraflo is the preferred brand, as far as I’m concerned, for safety. You might also try the transdermal glutathione from AMT in between if you can’t get the IV more then every 9 weeks. If it turns out genetic testing shows there are problems with glutathione production, try the IV and/or TD glutathione. (answer – reduced glutathione is low, cysteine is normal, dr thinks he has GST 1 defect based on test results; no yeast issues; not sure of taurine levels) Also if you have a feeding specialist in the area, they can work on him with his diet, and help with oral motor. In summary, best option is IV glutathione, if you can’t do that frequently TD glutathione; also probiotics and MB-12. Also could consider oral gammaglobulin. Q: I have enquiry re EDTA. We were having great success with iv EDTA and am now looking for alternative to iv while on hold . Would appreciate your thoughts on effectiveness of td-EDTA also CAEDTA in bath and Cilantro /Chlorella as a "reroute" to accessing lead. Thank you. Have you done any TDEDTA challenges??. OK and while I'm here what about really low motor tone and lead issues very tall child won’t pick up a pen, can't jump or run. Do you think these are lead toxicity type issues??? A: I’ve had very good results with IV calcium EDTA. Lead comes out first, then I see cadmium, mercury and other metals come out. It’s shocking to see how much lead is a problem to my patients. I have tried TD EDTA, I’m not happy with it, they can’t seem to concentrate the formula, it’s messy, smelly, you have to apply 3 x a day. I do use a lot of the Beyond Clear, the EDTA you put in the bathwater. I have not done studies on that bath water EDTA however, so I don’t know how much metal is coming out. I don’t have experience with cilantro and chlorella – I’ve heard from other doctors it’s not all that effective. We did a couple challenges on TD EDTA, not a lot came out; but then again I didn’t see a lot come out with TD DMPS challenges either. The calcium EDTA challenge showed a lot more. I get the sense that TD DMPS is slow and gradual, as you go on you see better excretion. Q: What precautions and preventive measures can be taken during pregnancy and after delivery by mother and baby to prevent autism? A: I thought I knew what to do to have as healthy a baby as possible, being an ob/gyn. I was always very conservative – avoid caffeine, alcohol, etc. You should look at your health very carefully before considering another pregnancy. Consider autoimmune; deal with amalgams; COMT testing and other testing that is for children on the spectrum; if you have MB-12 defect, consider taking that yourself; essential fatty acids; probiotics. Avoid flu shot. If you have to have rhogam get the thimerosal-free version. If you’re RH-, have husband tested, if he’s RH- too you don’t need to have the rhogam shot. After delivery, if you have one or more children on the spectrum already, avoid gluten/dairy for this child, and become well-informed on vaccines before making the decision to get them. I wouldn’t chelate someone who is pregnant, but I have chelated women before they get pregnant. Q: Have you heard of using Nebulized Glutathione to help with detoxification of metals while doing chelation? A: I’ve heard of it, but am afraid to use it. There could be some downsides, rare but serious, since it’s inhaled. Q: my son has lymphonodular hyperplasia, gastritis, colitis; found it because he was anemic from all the blood loss through the stool -- could you please just briefly list off the treatments you recommended for Barb in the first question, so that i can write them down? thank you so much! A: Heal the gut – MB-12; folapro; n-acetyl glucosamine; good probiotics; gluten/casein free and any other allergens; essential fatty acids (introduce these later on in healing process). For those that don’t respond to these, there’s IV glutathione, secretin, gammaglobulin. I’ve been using n-acetyl glucosamine for years now, usually have a very good response. Q: I'm a very picky eater adult. I gag with several foods. I have tourette syndrome & also have multiple food/pollens/molds/dust allergies. I have bad candida. I notice tics are a lot less when I avoid the foods I'm allergic to. I can't seem to get on a gluten/casein free diet because I'm still such a picky eater. My fruits are limited to 2 fruits and one I'm allergic to. My vegetables are limited to 3 and I'm allergic to one of those. Also I get really bad cravings for dairy products and bread. Do you have any suggestions? A: Most of the tourette patients I have are very sensitive to dairy. Follow the diet as strictly as you can, most of the time the diet helps. In terms of allergies, if you’ve done things to heal gut, you might be able to reintroduce foods that you couldn’t tolerate before. Cravings indicate that it’s a intolerance still. Q: My daughter is x, Dr. Neubrander is her DAN!. You left a very encouraging message on my answering machine re: IV EDTA and I listened to it everyday before she had her IV. The IV went well, she did get pale and sleepy afterward. Is there any reason why a child would not be a good candidate for IV EDTA and what can we expect after IV - such as sleepiness, etc.? Should a child on IV EDTA take any special or extra supplementation? A: Adults report some fatigue, some achiness, but not often. That might be from calcium and magnesium depletion, which we can easily supplement. I use red blood cell element testing, prior to any chelation at all. If there are low levels of minerals, we replenish before starting chelation. CBC, thyroid and other usual tests are done prior to chelation as well. Q: My son has a huge appetite. He wants to eat a meal every hour from 6 am until 5 pm and will scream and bang his head if not fed. He eats huge amounts of food, all healthy, GFCF but the quantity is huge. He has had bad stool bacteria for over a year. We tried treating it with the antibiotics on the stool test and he lost lots of language. I have tried megadoses of tons of good quality probiotics with no effect, lots of herbals , most of which he does not tolerate. His OAT is clean and his other stool markers are good except not enough good bacteria. Is there any other way to approach the bacterial problem? Should I try NAG? Does it ever have negative side effects? Thanks! A: Does he have frequent stools? Sounds like he might have a malabsorption issue. (answer – he does not have frequent stools, actually infrequent) How bad is his constipation? If you address that, you might solve your other problems. You might want to re-do a stool test, see if inflammation is a problem. You might need to address that. Otherwise address constipation. NAG does work; but you can try buffered vitamin C and magnesium taurate. Both help clear up constipation. Q: What is your opinion on Saunas for detoxification? And also, which High quality probiotics do you recemmend? My son has major yeast issues (aribinose and hippuric acid on oat test were high) and I am going nuts with his various diets (gfcfsf), but his behavior gets out of control. His stools smell nasty but are pretty firm, and he goes everyday (sorry for the detail). A: I do recommend far infrared saunas. Start with just 5 minutes for a child, see how he/she tolerates. It helps with pesticide exposure and many other chemicals, not just heavy metals. It’s not affordable however for some families. I prefer Claire Probiotic Complete, they ship it in perfect condition. There are other vendors with good products, but if they’re shipped warm, that kills the bacteria. You have to look at sugar intake, how constipated he is, in addition to the good probiotics. Hopefully you’ll see good results. Q: Do you have any opinions on lead wrt to maternal load affecting the fetal sink. Have you challenged any Mum's . ??? How long do you feel these children will require lead "extraction' given it is stored in the bones and what would your long term protocol be assuming some time in the future we will be able to resume iv EDTA. Were you giving weekly iv EDTA biweekly??? Thanks again A: I agree, we will never totally clear our toxic metal load. We do need to decrease the volume to increase our chance of having healthy children. Any toxic metals could potentially cross the placenta and go to the fetus. More often then not, moms are pretty toxic. My hobbies used to be making stained glass windows (solder, lead, etc); and I worked my way through school in chemistry labs. How often for EDTA depends on the individual and their mineral status. Q: My 17yr old son sees a conventional metabolic and GI specialist. He has had obvious mercury exposures and complications w/Rhogam along with other things. He has problems detoxifying in general (enzymes). My question is what is the best test for mercury in order to evaluate justification for IV EDTA? A: I’m not sure what you’re basing your statements on – have you done a hair analysis, urine test, challenge? Or are you guessing based on vaccines? You can try any chelating agent, and collect urine afterwards. EDTA is a viable option if you see high lead. There are very high lead levels in the patients I’ve tested. We’re dealing with kids that have very poor detox capabilities – they accumulate all heavy metals, whatever they’ve been exposed to. Q: I had my amalgams removed a couple months ago. I started on mb12 injections about 2 weeks ago. I plan on starting tddmps in about 3 weeks. Today I started having achy legs, which I had a couple weeks ago, but it went away. Is this likely to be a possible detox symptom? As far as magnesium I'm taking a supplement that has 100 mg of Magnesium (as Glycinate) and 546 mg of Magnesium Glycinate. How much magnesium does it actually contain? A: Monitor red blood cell elements. If you have achy legs, you’re most likely deficient in minerals, calcium, magnesium. Magnesium taurate and citrate are my preferences for magnesium, moreso then glycinate. Q: 1. Should a pregnant woman who already has an autistic child be on gluten-free, dairy-free diet during pregnancy and nursing period? 2. Is chelation using DMPS-IV regularly every month ok for a 6-yr old boy? as he was not tolerating more than 2 drops of td-dmps, huge stimming and regression. 3. Any other chelator suggestions? He had 8 rounds of oral dmsa when 3yrs old but stopped becaue of yeast and increased liver enzymes. A: Yes, I do recommend moms be gf/cf/cornfree/soyfree during pregnancy. I recommend breastfeeding. Avoid things like MSG, artificial coloring too. IV-DMPS I don’t use, I know it can be used in the proper hands, but there are more side effects reported from this so I don’t use it. If your child doesn’t tolerate 2 drops of TD-DMPS, I certainly wouldn’t go to IV-DMPS. There must be something about the DMPS that your child is sensitive to. There is oral EDTA as an option, since he’s not tolerating DMPS or DMSA. Q: My daughter is 6 and non-verbal autistic. We are using TD-DMPS dr buttars protocol for almost 5 months and TD-ALA for 3 weeks now. She has made improvements but still no language. I want to continue but my hubby is loosing faith in chelation. How long before we say it will not help her learn to speak? And have other treatments like Hyperbarics and FIR sauna's help as well? What form of Glutathione do you suggest we look into? A: What else are you doing? I have heard good reports with hyperbaric in select cases, and I mentioned FIR sauna before. Are you not seeing metals come out? (answer – small amounts) You might want to try a different chelation agent. Maybe mercury isn’t the primary problem for your daughter. Q: We are almost a year on TD-DMPS and have not seen noticeable improvement. Do we continue? Could we take a break until we have done more EDTA's? We have done 3 IV-EDTA's and have seen good results - increased awareness. Could the previous poster’s child not be sensitive to the gsh in the TD-DMPS, not the DMPS? My guy could not tolerate the gsh in the IV-EDTA so we leave it out, although he does tolerate the lipo glut. so we use small amounts of that instead. A: There is always a possibility that the child can be sensitive to glutathione. I saw one. Ordinarily it’s tolerated well. If you’ve done a year of DMPS and see no improvement, yes, consider switching to another agent, consider oral EDTA. Q: I have amalgams, and I apply td-dmps on my son to remove his mercury. After applying the td-dmps (I use a glass to apply it on his skin), I sometimes get headaches which last for days. Can my headaches be caused by the td-dmps which I give to my son? A: Did you have headaches before you started your son’s TD-DMPS? Perhaps it’s from the little bit you’re inhaling. If you’re that sensitive to it, I wonder how sensitive your son is to it. Ask someone else to apply it on your son, see if that solves your problem. Q: Hi Dr. Schneider. My 4 year old son receives 20 mg of magnesium glycinate in his multi vitamin. He is chelating with TD DMSA. I have tried to add additional magnesium glycinate and recently magnesium citrate and he becomes noticeably irritable and less focused. When I pull the extra magnesium, he is making real strides. Any thoughts? A: You should test minerals to see what magnesium level is. Does he have loose stools, or is constipated? Glycinate is not my first choice – I like mag citrate or taurate. (answer – bowel movements daily, somewhat loose) Q: I have extremely high levels of uranium and high levels of arsenic. How does one get high levels of uranium? Is it pesticide related? I grew up on a farm. Is tddmps effective methods for these? A: I see high levels of uranium in quite a few of my patients. I know it’s naturally occurring in the soil in some parts of the country. Also can be a product of nuclear reaction. It might also be pesticide related. I have seen TD-DMPS help with the arsenic; I don’t know that it’s that effective for the uranium. Q: I have a 2 1/2 year old daughter - has had a history of sensitivity to treatments - ie: was a great responder to MB-12 but had huge side effects that were only cleared up after months on SCD - she had an oral DMPS challenge that found only high mercury - DAN Dr recommended trying NDF PLus - and she had a reaction almost immediately - first stimming off the charts and within a day speech regression - I stopped the treatment - would you suggest trying again at a smaller dose or maybe exploring other options? Thanks A: You said she was a great responder to MB-12 – what were the huge side effects? (answer – panic attacks, sleep disturbances, aggressive biting) Have you done genetic testing? (answer – no) That might shed some light on this. If she’s had very strong negative reactions, I wouldn’t repeat them – the NDF +, etc. I’d look into other options instead. Have you seen results with LDN? (answer – yes, great changes in her ABA sessions, more willingness to learn). So continue MB-12 since she’s good with it now, and continue LDN. Q: Why did the b 12 shots not work for us? We tried everything Dr N said to do and still no results. My daughter is non-verbal, autistic. She’s 6. She is constipated. We’ve used mag citrate, glycinate, sennekot, little tummies, miralax, enemas and dulcolax. A: Try buffered C, like Bioenergy C which you mix in juice or water. Suplement with magnesium. Epsom salt baths. Enemas. Probiotics, EFAs, n-acetyl glucosamine. (answer – we’ve done all that) How much vit C is your child taking. (answer 500 mg) Use buffered C, use ½ tsp 2x day, and work up as needed, until you see improvement in her stools. Monitor sugar intake. Once you can clear up constipation, you’ll see other things fall into place. Q: 1) Does oral EDTA remove mercury effectively? 2) Also, you mentioned genetic MT Testing, is it Metallothionein? If MT deficient, then should MTP be taken for a while before conception? A: 1) Truthfully most of my experience has been with IV EDTA. EDTA clears mercury, but clears lead first. 2) I think it’s helpful for any woman considering pregnancy to know if she would benefit from MB-12 and Folapro. I don’t think I would use the MTP during pregnancy. Do a red blood cell test to check zinc, selenium, so forth. Q: My son was on TD-DMPS for 8 months. We tested him before chelation and at 7 months. He was excreting some mercury and tons of lead in urine and stool before chelation and at 7 months he was not excreting anymore mercury in urine and less lead. He was also shaking his hands a lot. Why would this be? There were no big improvements but he was more affectionate during chelation starting the first week. I want to chelate again at a low dose. Should I consider a different schedule than every other day? A: Have you been following mineral levels, and is he on MB-12? (answer – we supplement lots of zinc) You should still test, and check other levels –calcium, magnesium, selenium. The shaking of the hands might have to do with remyelination (nerves regenerating, this feels like tingling). Keep him on MB-12. If the main problem seems to be lead, you might try oral EDTA at this point. Definitely check mineral levels – you don’t want to oversupplement with zinc either. Q: I had my amino acids tested and certain ones were high. Gamma-Aminobutyric Acid, Taurine, a-Aminoadipic Acid, Aspartic Acid, Citrulline, Glutamine, Anserine, B-Alanine, 1-Methylhistidine, Arachidonic, Docosatetraenoic, Arachidic, Behenic, Pentadecanoic, Heptadecanoic, Nonadecanoic, and Total C:18 Trans. My Isoleucine was low. It suggested several supplements which most of them I'm familiar with except for a-KG. Could you explain what a-KG does? A: The high arachidonic usually means there is inflammation. Do you have arthritis, sinusitis, inflammation in the gut, asthma? (answer – candida and allergies) I am not very fond of alpha keta glurorate (a-KG) – it can cause irritability. It can be beneficial in some cases, but I found it’s not well-tolerated in a significant percentage, so I don’t use it. Q: If an autistic child has high IGG antibodies for a certain food, should that food be completely avoided, or limited? How often should we do these IGG tests during chelation to check if the removal of mercury is healing the immune system ? A: IgG is one way to look for allergies, though not my favorite way. I would completely eliminate the foods that have high IgG reactions. Avoid them until you’re convinced there is significant healing of the gut. If you reintroduce the food before the gut is healed, you’re back to square one. Rotate the foods that there are no sensitivities. Reintroduce foods one at a time when the child is healthy, things are stable. The child may have outgrown the sensitivity. Q: You mentioned earlier that you thought Nebulized Glutathione had too many risks involved> We want to use it for our 6 year old autistic non-verbal daughter. What kind of side effects are you talking about and are they permanent damages? As I mentioned we are using TD-DMPS and TD-ALA and want to enhance her detoxification of mercury and other metals. My friend said her son became very hyper on oral glutathione. Would you suggest using transdermal for this as well? We can't find anyone locally who will use this in IV form and I am nervous about using IV anyway. A: I have not used it personally. Some kids that don’t cooperate with IV might benefit from it…but I’ve heard of asthma reactions, which could be life-threatening. That’s why I avoid it. If your child has asthma, definitely don’t try it. I don’t recommend oral glutathione, it’s poorly absorbed. Try transdermal – start with low dose to make sure it’s tolerated. Q: 1. Who is a good candidate for MTP? 2. What improvements and side effects can be expected? 3. What is the general usage protocol and how long should it generally be used? 4. What are good sources of fat on gfcf diet, what is your opinion on ghee ? 5. What is your opinion on blood thinners like nattokinase to enable blood flow to brain? A: Metallothionein promoter? It’s not always tolerated, causes irritability. I supplement zinc and B vitamins separately and don’t use the MT promoter. If a child has pyroluria, they will have to always supplement minerals. I prefer olive oil for good fat. I stay away from corn and soy oil, these kids shouldn’t have it. I stay away from cottonseed oil, high in pesticide. I don’t think these kids could tolerate ghee. I might allow organic ghee (clarified butter) if the child is ready to have it reintroduced. It’s certainly preferable to margarine. Blood thinners are effective. I don’t use them in children. I’ve seen dramatic improvement in adults. Q: What is your protocol for testing and treating for parasites? A: I use the standard 3-day digestive stool analysis. I’m fairly aggressive in treating parasites with traditional and non-traditional means. I do use some homeopathy, but I’m not a homepath. Some remedies have been helpful to my family, so I am learning about it and implementing it in small amounts. Q: my daughter drinks very little fluids - what do you recommend for children like this? A: I prefer she drink water instead of juices. For kids that won’t drink, try ice chips, or popsicles made from juice. Sometimes kids prefer broths. Bathe them frequently; they’ll get some absorption through the skin. Enemas with filtered water will make them absorb water through the rectum, if they are really dehydrated. Q: I've been using vitamin therapy for 8 years and still a year ago I had vitamin deficiencies in calcium, b5, and vitamin c. I also have pyroluria. I'm going to get the red blood cell elements test done. If I still have deficiencies is it suggested that I still start chelation or do I need to get these deficiencies in control first? Do the deficiencies ever go away?

Sarah, Chemar said exactly what I was thinking as I was reading your post. So very very happy to read of your son's improvement. Please do keep us posted. For anyone else interested in reading, http://thinktwice.com/multiple.htm Kim

Power plants in the U.S. collectively emitted more than 90,000 pounds of mercury into the air in 2003. “The administration’s mercury rule recklessly exposes another generation of children to high levels of mercury pollution,” said U.S. PIRG Clean Air Advocate Supryia Ray. “We commend Senators Leahy, Collins, Snowe, and Jeffords for taking action to reduce mercury pollution in this decade, instead of decades from now.” http://uspirg.org/uspirg.asp?id2=18999

Here is a working link for the article by Evelyn Pringle regarding the FDA knowing long ago (60 yrs.) about the Dangers of Thermerisol in Vaccines. http://www.independent-media.tv/item.cfm?f...nder%20Reported Also a recent article regarding flouride http://www.independent-media.tv/item.cfm?f...ory_desc=Health BURLINGTON VT - The Fluoride Action Network (FAN) has urged that a Harvard Professor be removed from a research group studying the association between fluoride and osteosarcoma because his objectivity and ethics are disputed and he has ties to a company that profits from fluoride. http://www.independent-media.tv/item.cfm?f...ory_desc=Health

tictoc, The same person in those posts can be found on the testimonial page of the Natucor website. B6, Magnesium and L Glutamine are all easy to obtain. I guess I would check one of the more well known sites, like Kirkman, to see if you could find a similiar product. Kim

Tictoc, I got thinking about your post about Glutamag. The statement about the FDA finally approving sales, is quite puzzling (am I missing something here)? I went to the Natucor website and they don't make reference to anything like that. I see where there is an email address to get more information on the product. I think I would be careful, especially with the the WBUY Television site. As others have pointed out to me, just because something is said to be natural, doesn't mean you can automatically believe that it is safe and effective, and not potentially a rip off. Finding the most reputable products and distributors, in my opinion, is really important. Kim I was trying to find something to justify the FDA approval statement. Now it's clear as mud FDA Overview Dietary Supplements, Infant Formulas, Cosmetics http://www.emedicinehealth.com/articles/61487-6.asp

Why are atypical drug users angry? Zyprexa (Eli Lilly) Risperdal (Johnson & Johnson) Abilify (Bristol-Myers Squibb), Clozril (Novartis), Geodon (Pfizer). http://onlinejournal.com/health/081905Prin...905pringle.html

by Evelyn Pringle _http://www.opednews.com_ (http://www.opednews.com/) FDA Knew Dangers Of Thimerosal-Vaccines For 60 Years Had to edit this post because I became aware that this was from a site with a strict copyright message attached. I could not find the article when I followed the link. I will try to get permission to post.

http://www.boston.com/news/globe/ideas/art...interrogations/ Interrogations Thanks to a little-known piece of legislation, scientists at the EPA and other agencies find their work questioned not only by industry, but by their own government

tictoc, I had never heard of the product before, however, the vitamins my boys take have B6 and L-Glutathione (not sure how that differs from L-Glutamine) and magnesium. I didn't see the amount of each ingredient on the site, do you know? I guess that would be the interesting thing. If the dose was acceptable, anything that can be given in combination, to reduce the amount of supplements that have to be swallowed, would be nice. Also, I'm wondering about the type of magnesium. It seems like Mag. Taurate has a reputation of being a pretty absorbable form, again that is the type in the vits. my guys take. I'm not sure they need all of the other things in the vit though, so thanks for posting this, and if you find out more info. I'd like to hear it. http://today.reuters.co.uk/news/newsArticl...CERN-KID-DC.XML Rate of ibuprofen-related asthma a concern in kids Fri Sep 2, 2005 7:35 PM BST ************* http://www.biomedcentral.com/1471-2431/5/34/abstract Research article . Tourette syndrome and learning disabilities Larry Burd , Roger D. Freeman , Marilyn G. Klug and Jacob Kerbeshian BMC Pediatrics 2005, 5:34 doi:10.1186/1471-2431-5-34 Published 1 September 2005

At the very highest level of exposure, almost every one of the neurodevelopmental disorders -- autism, ADD, ADHD, speech delay, sleep disorders, tics, stammering -- had elevated relative risks on the order of 4 to 8 times, and the vast majority of those risks were statistically significant. http://www.sciencedaily.com/upi/index.php?...ageofautism.xml

http://ods.od.nih.gov/factsheets/magnesium.asp#en9#en9

The Age of Autism: New York nixes mercury By DAN OLMSTED http://www.sciencedaily.com/upi/index.php?...ageofautism.xml Have America's medical authorities -- including pediatricians -- lost their credibility on an issue involving the well-being of the nation's children?

Autism Crisis Brings Together Top Scientists and Clinicians to Share Recent Findings at National Symposium; Participants Issue Urgent Call to Increase Funding, Attention to Autism Epidemic 8/31/2005 3:16:00 PM --- The Coalition for SafeMinds stands for Sensible Action For Ending Mercury-Induced Neurological Disorders. SafeMinds supports research on the potential harmful effects of mercury and thimerosal. Its mission is to end the health and personal devastations caused by the needless use of mercury, especially mercury in medicines. http://www.usnewswire.com/

The Safety and Efficacy of Chelation Therapy in Autism http://www.autismwebsite.com/ari/treatment...ationsafety.htm

Wednesday, August 31, 9:00pm EST Dr. Stuart H. Freedenfeld Dr. Freedenfeld has been involved in integrative medicine for the past 20 years. Board certified in family practice since 1978, he has been working with autistic children using the DAN!T protocols for 9 years. He will be discussing "practices for Safe Pregnancy", HBOT, and Chelation. http://www.drneubrander.com/page6.html

A Statement from Dr. Neubrander regarding childs death. > This is the statement Jim is giving to his patients regarding the tragic > event of last week. This may be used freely as long as quoted in its > entirety so as not to be misquoted. > > > > August 25, 2005 > > Continuously updated as new information is known. > > From Dr. Neubrander to the parents of his patients: > > The cause of the recent tragedy involving the death of a young boy with > the > use of IV EDTA is expected to take time to determine exactly what > happened. > > Some of the leaders say that "no comment" is the best comment until the > details are known. There is nothing wrong with that statement except that > it > does not aid in reassuring parents that biomedical treatments, in general, > are safe with a relative benefit to risk ratio that is lower than almost > anything else known. The truth is, at this time we just don't know what > happened. However, considering that IV "calcium" EDTA has been used for > years with extreme safety, only so many possibilities exist to explain > what > happened. The most plausible possibilities include: a) a rare allergic > reaction; the form of EDTA used was disodium EDTA and not calcium EDTA. > > For those looking for a "smoking gun" to justify them not using effective > biomedical treatments, this is a dream come true. However, apples should > be > compared to apples and not oranges. One death from EDTA out of hundreds of > thousands to millions of safe doses being administered by an FDA approved > drug should be viewed side-by-side with the number of deaths from Ritalin > over a 10 year period [186], chickenpox vaccine in a 3 year period [14], > DPT > vaccine in a 3 year period [471], MMR vaccine in a 4 year period [30], OPV > vaccine in a 5 year period [540], Hepatitis B vaccine in a 8 year period > [439]. The question must be asked, "Where is the smoking gun in reverse? > > Why is one 'unapproved biomedical tragedy' so much worse than the hundreds > of 'FDA approved tragedies'?" > > Emphasizing this issue of bias, prejudice, inequality, and the frying pan > calling the kettle black is an article written by Virginia Linn that > appeared Monday, August 29, 2005 in the Pittsburgh Post-Gazette [for the > complete article go to <http://www.post-gazette.com/pg/05241/561879.stm> > http://www.post-gazette.com/pg/05241/561879.stm]. > > Though parents are dismayed about what happened and are now more cautious > than ever, they are not willing to stop using a treatment that helps many > children. > > However, because many parents see chelation as a logical option due to the > fact that they believe there is a connection between their children's > autism > and the mercury preservative in childhood vaccinations, Dr. Paul Offit, > director of the Vaccine Education Center at Children's Hospital of > Philadelphia, made the following statements. He said: a) "Scientific study > after scientific study have found no connection, and it's unethical for > any > doctor to give chelation for this purpose; Doctors need to work harder > to > convince parents that the whole reason to use chelation is pointless; c) I > wish there was more outrage with this death. This boy was sacrificed on > the > altar of bad science and that was unconscionable; d) Who was watching out > for this boy?'' > > > > To his last statement about who was watching out for this boy I reply -- > Each of us who: > > a) Studies the issues open-mindedly. > > Who reviews studies both pro and con about mercury and vaccines and who > don't just swallow the party line, especially when there seems to be so > much > conflict of interest by so many parties involved. > > c) Listen to parents to learn why what they are saying may be true, not > why > what they are saying is not possible because research doesn't support it. > > d) Is willing to cry "foul" when articles such as the one that appeared in > the New York Times gives only their side of the story, represents it as > "truth", and sells their position by saying that parents are illiterate, > opposed to science, acting out of desperation, duped by unscrupulous > doctors, and who are speaking to God. > > e) Is not willing to wait for the wheels of science and medicine to slowly > grind to fully document everything as safe, especially when these > scientific > gristmills are so often fed by the grains of money, politics, and power. > > f) Is not willing to ignore the Science of THE GOD known as the "Weight of > Evidence" when it shows a good benefit to risk ratio and does not bow to > THE > IDOL "when" it says it is the only god, the "Double blind Placebo > Controlled > Study". > > g) Is willing to yell "unfair, unfit, unscrupulous" when one tragedy is > used > to condemn all parents, all clinicians, all scientists who have come to > thoughtful conclusions that are in direct conflict with the message that > those pointing blame want to sell as being universally true. > > But most of all, EACH OF US WHO are intelligent enough to realize that any > person, any time, anywhere who points blame with one finger but who does > not > look into the mirror and point the finger back when equal or greater > atrocities occur "in the name of good science that rests on a TARNISHED > ALTAR with the blessing of the FDA-GOD" is definitely worshipping at the > feet of THE IDOL. However, to be perfectly clear and not be misquoted > which > is sure to happen, double blind placebo control studies are not an idol or > a > god. Rather, the problem is the way humans have made an idol out of > something that is here to serve them all the while saying it is the only > god. Therein lies the fallacy. Herein lies the truth: The "total body of > knowledge", as gathered by "the total compilation of evidence" from > parents, > clinicians, "classic" science, and "the other sciences" is the only way to > find THE TRUE GOD OF KNOWLEDGE. > > THE FOLLOWING TWO POSTS SAY IT WELL. > > POST #1: > > From: "bradfordhandley" > > Date: Thu Aug 25, 2005 1:40 pm > > Subject: Pittsburgh Story thoughts bradfordhandley Offline Send Email > > A child lost his life because his parents were trying to remove the heavy > metals from his body and he had an allergic reaction from the drug being > administered. > > There is no way to sugarcoat what happened, all of our hearts go out to > the > parents and family who are grieving, and, for many of us, this hits very, > very close to home and reminds us that no medical procedure is 100% safe. > > Will the press and mainstream medicine have a field day with this story? > > Absolutely. > > My wife and I welcome discussions with the press. Losing even one life is > too high a price to pay for healing our kids, and we need to learn from > this > experience to make treatment even safer and more effective. > > To say that we are using "chelation therapy to treat autism" is a > misstatement. We are using chelation therapy, in our case, to treat a > medical diagnosis of heavy metal toxicity. That is what my son actually > has, > that is what the dozens of medical tests we have run on him show, and one > year into chelation he has improved dramatically. > > Autism is a psychological diagnosis, based on observed behavior. It does > not > offer up a medical foundation or explanation for cause. > > This case will be blown out of proportion. We can use this as an > opportunity > to explain to the world why we are treating our children (because they are > heavy metal poisoned), how they are progressing, and that we all know and > accept the risk involved in making our children better. > > Of course, the press will probably not mention some of the ugly truths > that > are out there about how our children die from other treatments, so here > are > some resources to consider, in an attempt to help the journalists reading > this list put things into perspective: > > 1. Between 1990-2000, 186 reported deaths from Ritalin: > > <http://www.ritalindeath.com/> http://www.ritalindeath.com/ > > 2. Children's deaths from vaccines, as recorded by the CDC: > > Chickenpox vaccine 1995-1998: > > Between March 17, 1995 and July 25, 1998, 6580 adverse events - including > 14 > deaths - were reported to the Vaccine Adverse Events Reporting System in > association with varicella vaccination--- Pediatric News 33(3):12, 1999. > > For DPT vaccine 12,504 reports VAERS reports with 144 deaths per year > > (1990-1993) > > "In a year-long investigation of the Vaccine Adverse Reaction Reporting > System (VAERS) operated by the Food and Drug Administration, NVIC/DPT > analyzed VAERS computer discs used by the FDA to store data on reports of > deaths and injuries following DPT vaccination. A total of 54,072 reports > of > adverse events following vaccination were listed in a 39-month period from > July 1990 to November 1993 with 12,504 reports being associated with DPT > vaccine, including 471 deaths."Campaign Against Fraudulent Medical > Research > > (CAFMR) > > MMR vaccine VAERS reports 7 deaths per year (1990-1994): > > "From July 1990 thro' April 1994, 5799 ADRs following MMR vaccination were > reported to US Vaccine Adverse Events Reporting System (VAERS); including > > 3063 cases requiring emergency medical treatment, 616 hospitalizations, > 309 > who did not recover, 54 children left disabled and 30 deaths."--- John P > Heptonstall > > For OPV vaccine there were VAERS reports of 108 deaths per year over a 5 > year period. > > "We commissioned an OPV Vaccine Report and started making all kinds of > other > inquires. The OPV Vaccine report that we received was a shocking report. > It > covered a recent period a little less than 5 years and the following is > the > summary for that period: The number of Vaccine Associated events that > > occurred: 13,641 ..The number of events resulting in death 540"--The Polio > Connection of America & Polio vaccine victims: > > <http://village.ios.com/~w1066/poliov6.html> > http://village.ios.com/~w1066/poliov6.html > > For Hep b vaccine there were VAERS reports of 54 deaths per year > > (1990-98) > > "The total 24,775 VAERS hepatitis B reports from July 1990 to October 31, > > 1998 show 439 deaths and 9673 serious reactions involving emergency room > visits, hospitalization, disablement or death."-- Michael Belkin > <http://www.whale.to/vaccines/belkin1.html> > http://www.whale.to/vaccines/belkin1.html > > "Since July 1990, 17,497 cases of hospitalizations, injuries and deaths in > America following hepatitis B vaccination have been reported to the > Vaccine > Adverse Event Reporting System (VAERS) of the U.S. government. This figure > includes 146 deaths in individuals after receiving only hepatitis B > vaccine > without any other vaccines, including 73 deaths in children under 14 years > old. In 1996 alone there were 872 serious adverse events in children under > > 14 years old reported to VAERS. 658 of those injuries were following > hepatitis B vaccination in combination with other vaccinations and 214 of > these injuries were after hepatitis B vaccination alone. In these children > under 14 years old, there were 35 deaths after hepatitis B vaccination in > combination and 13 deaths after hepatitis B vaccination alone, for a total > of 48 deaths. Compare these statistics with the total number of hepatitis > B > cases nationwide reported that same year (1996) in children under 14, just > 279, and the conclusion is obvious that the risks of hepatitis B > vaccination > far outweigh its benefits."---Incao's Hepatitis B Vaccination Testimony > > > > POST #2: The following was posted from Dr. Gary Gordon, one of the > founding > fathers for chelation therapy and an expert in the field of chelation for > all reasons, not just for heavy metal poisoning seen in ASD children. > > Dear Health Care Professionals: > > You may soon read and hear the kind of hysteria and negative press that I > expected to see, but it will get FAR WORSE before it gets better. As of > this > moment, I can only assume that there must have been a substantial > deviation > from the standard procedures that I, and all of you, have established for > the safe administration of Calcium EDTA. As incredible as it may seem to > those of you belonging to this discussion group, the possibility exists > that > the child was treated with Disodium EDTA administered by IV Push. I am > forced to consider this unfortunate explanation unless there was some > major > undiagnosed illness in the child that no one suspected, such as a major > heart defect or perhaps an aneurism that ruptured at the exact time the > patient was receiving the IV Push of Calcium EDTA. However, the autopsy > has > been completed and he results were inconclusive so that they have ordered > additional tests, which may take up to 5 months to complete. > > This means that there is no obvious explanation for the death of this > child. > > My fear is that if someone who is not knowledgeable in chelation and has > not > learned that this is complex chemistry assumes, for example, that all that > they have to do to provide magnesium EDTA or Calcium EDTA is just add > either > magnesium or calcium to a syringe containing Disodium EDTA. > > We could have a serious problem because Disodium EDTA has a black box > warning about rapid administration to children and simply adding something > like Calcium or Magnesium does not fully convert Disodium EDTA to Calcium > EDTA. Then there is also a problem with discomfort, if you tried to give > yourself an IV push of diluted Disodium EDTA the pain could be extreme so > you might wind up increasing the dose of Lidocaine and again we can get > into > problems with the heart if too much of a "caine" if given intravenously. > > So let's look at the big picture, there are NO DEATHS occurring when EDTA, > either calcium or Disodium are PROPERLY administered. Now the media will > try > to make chelation out to be fraudulent and the tests that we do to measure > lead etc as being meaningless. Amazingly they will bring out Quack buster > Barrett who with a little more effort we may be able to one day put behind > bars for his lies and incompetence. > > Thus I have to conclude some error in rate of administration, dosage, > method > of preparation probably occurred; in fact, I now believe this is most > likely > rather than administering the correct drug, Calcium EDTA, intravenously, > which even in children is safe and effective. > > Doctors who have been providing this treatment to children can hardly stop > talking about the remarkable successes they have been witnessing with > children responding far more rapidly than we could ever do with just the > oral Calcium EDTA that I have been advocating for so long. > > We know that worldwide sales of all forms of EDTA have been steadily > increasing and that based on logical calculations it appears that well > over > 10 million patients have been safely treated with either Calcium or > Disodium > EDTA over the past 32+ years without a single documented fatality, as long > as the established protocols were followed. All the evidence to date that > EDTA is perhaps the safest therapy offered in medicine, outside of > placebos. > > To my knowledge, EDTA has been safely administered for nearly 50 years > with > the only deaths occurring in the beginning, with terminal cancer patients > suffering uncontrolled hypercalcemia where inappropriate doses of Disodium > EDTA were administered by rapid infusion to patients with known > compromised > renal status. > > With the extensive proof now existing that everyone today has nearly 1000 > times too much lead in their bones and Harvard publishing that this bone > lead will compromise vision there can be no argument that we all have some > heavy metal toxicity. Then once we conclude that government cannot stop > the > mercury, cadmium, lead etc from going in the air, and thus into everyone > anywhere on earth, then it becomes a matter of personal choice, live with > these heavy metals or remove them. Oral chelation is clearly necessary > since > bone lead will take 10 years to turn over for the average adult, but some > of > us want results NOW. Nothing is as effective as the 147 fold increase in > lead excretion over base line that IV Calcium EDTA, PROPERLY FORMULATED, > was > documented to induce by Doctors Data with the help of Dr Whitaker's staff. > > Thus I must extend my sympathy to the family of the deceased 5-year-old > boy > from Nigeria whose brave mother came to the Pittsburgh area from the > United > Kingdom to seek treatment for her autistic child. She was seeing clear > improvements in her son. This was the third infusion he had received. He > apparently had a cardiac arrest and was unable to be resuscitated > immediately following this third infusion of what I fear was not Calcium > EDTA, which is the ONLY form of EDTA that I have advocated for the > exciting > rapid infusion technique. > > I hope those who have experience with it in their practice are NOT GOING > TO > STOP USING it that you have the "rest of the story", as best as we can > establish it at this time. Please understand that the involved doctors > cannot be expected to admit anything on advice of their attorneys. I have > only checked to see if they have ever purchased Calcium EDTA and found the > answer was ?no??. leading me to compose this email in an attempt to > diminish > the harm that the media will do to everyone who otherwise could have been > receiving oral and or IV chelation and will now be afraid. > > This email may be copied and handed to your patients in an effort to meet > the need for a fully informed consent. > > Sincerely, > > Garry F. Gordon MD, DO, MD(H) > > President, Gordon Research Institute > www.gordonresearch.com

Health Agency Tightens Rules Governing Federal Scientists. After accusations that some government scientists used their official positions for private gain, the National Institutes of Health announced rules on Thursday that ban its scientists from consulting for drug companies. New York Times. 26 August 2005. [Registration Required] Director of NIH Agrees To Loosen Ethics Rules. Flooded with 1,300 comments by employees and threats of high-level defections, the head of the National Institutes of Health agreed yesterday to loosen some of the ethics rules he unveiled in February. Washington Post. 26 August 2005. [Registration Required] NIH Eases Up on Ethics Rules for Researchers. After six months of review, the National Institutes of Health has decided to leave in place its ban against agency scientists taking consulting fees from drug companies but will not require the scientists to sell all of their industry stock holdings, officials announced Thursday. Los Angeles Times, California. 26 August 2005. [Registration Required] *************** For full article http://www.washingtonpost.com/wp-dyn/conte...5082501664.html

EU relaxes control on 'gender' chemicals By Geoffrey Lean, Environment Editor Published: 28 August 2005 http://news.independent.co.uk/europe/article308599.ece Penis Size and Phthalates - DrGreene.com Pediatric expert Dr. Alan Greene discusses phthalates, a chemical widley using in many plastic products and how they can impact the size of a penis. www.drgreene.com/21_1917.html - 101k - Aug 27, 2005 Our Stolen Future: Phthalates tied to genital deformities in boys Boys exposed to multiple phthalates simultaneously were also more likely to have ... Boys with lower AGIs had smaller penis volumes and were more likely to ... www.ourstolenfuture.org/NewScience/oncompounds/phthalates/2005/2005-0527swanetal.htm - 38k - Aug 27, 2005

http://www.danasview.net/parent2.htm#homeschool Thought you might be interested in this link as it appears to have alot of information with regards to home schooling.

efgh and All, Andy, that was a great response. I have been following this whole thing on the autism/enzyme and asd_solutions site, and wondering how to bring up such a complicated subject here. It has been recommended by one of the bd. moderators there, that the biochat notes by Dr. Usman be edited for now, as they refer to the use of EDTA for chelating. She goes on to say that therapies are always changing and it is their goal to give the most up to date info. on any form of treatment and their safety, and until more is known about the death of this little boy, the recommendation of IV EDTA be put on hold. There are so many unknowns at this point about the way this was administered, and as you said, it would appear there are many Dr.s that have pieces of the chelation process down, but are not experts. There is also the possibility that this Dr. did nothing wrong. The fear is that this will be "pounced" on, as another way to discredit the whole treatment proticol, which so many have found to be beneficial. The greastest wish amongst the parents posting on the autism bds. is to learn from this tragedy, and find the safest most effective treatments to aid in the recovery of their children. The new Dr. I took the boys to was most interested in gut issues and metals. I told him that I wasn't interested in metals right now, he was very puzzled, as we both agreed it was probably at the heart of the matter, or at least a big piece. I felt we had seen amazing success with the use of supplements and diet etc. and just wanted to make sure everything was balanced and maybe eliminate some things that may not be needed, also yeast and probiotics were a main concern for me. His feeling was, once you dealt with the gut and metals, all of the other things would self correct. I knew if we were going to try ANYTHING with metals, it would be with someone in the top of the field. This man, while being fimiliar with the DAN treatments is not a DAN Physician, he is a pediatric DO specializing in allergies, and for the last 8 years, vitamins etc. I so hope parents research and get very fimiliar with these treatments and the Physicians who oversee them if they plan to pursue it, as Andy and others have done. It is the only way to judge the risk/reward. The new Doc was heading to a place that I was not willing to go. He was very respectful of my opinion, and I think he can be of great help, but not involving chelating agents, which I personally do not feel are a completely necessary therapy at this time for my boys. Kim

http://www.post-gazette.com/pg/05237/559756.stm > > ================= > > Boy dies during autism treatment > Thursday, August 25, 2005 > > By Karen Kane and Virginia Linn, Pittsburgh Post-Gazette > > > A 5-year-old autistic boy died Tuesday in a Butler County doctor's > office while undergoing an increasingly popular though controversial > medical treatment touted by some as a cure for the lifelong > neurological and developmental disorder. > > Abubakar Tariq Nadama died while receiving chelation therapy, an > intravenous injection of a synthetic amino acid that latches onto > heavy metals and is then passed in the urine. > > State police at Butler are investigating Nadama's death, which > occurred at about 10:50 a.m. Tuesday in the office of Dr. Roy Eugene > Kerry in Portersville. > > Authorities said Kerry's office reported that the child was receiving > an IV treatment for lead poisoning when he went into cardiac arrest. > > The boy was being treated with EDTA, or ethylene diamine tetraacetic > acid, which has been approved by the Food and Drug Administration for > use only after blood tests confirm acute heavy-metal poisoning. > > Exposure to heavy metals, especially mercury, has been linked by some > researchers as a contributing cause to autism. Removing those metals, > they believe, can improve a child's condition. The theory is a matter > of dispute among scientists and within the autism community. > > A family friend said the boy and his mother, Marwa, who are from > England, moved here in the spring, specifically to receive chelation > therapy, and were living in Monroeville. > > In the autism community, the use of chelation as a way to detoxify > environmental contaminants in children has exploded since 2000 as > more and more families have reported miraculous improvements and even > cures. But skeptics in the community say they fear the procedure is > at best risky and possibly lethal. > > "It was just a matter of time before something like this would > happen," said Howard Carpenter, executive director of the Advisory > Board on Autism-Related Disorders. > > "Parents of children with autism are desperate. Some are willing to > try anything," he said. > > "I can't sit there and endorse it as a viable treatment. It's not > something published in peer review journals and studies," said Dr. > Gary Swanson, a child psychiatrist at Allegheny General Hospital who > works with autism patients. "It's probably a quack kind of medicine." > > If the child's death is tied to chelation therapy, it would be the > first associated with the procedure since the 1950s, said Dr. Ralph > Miranda of Greensburg. Miranda is the former president of the > American College for Advancement in Medicine, a group that sets > clinical practice and education standards for chelation and other, > similar therapies. > > Chelation can be administered through pills, skin creams or other > transdermal methods, nasal sprays, sauna baths and intravenously. > Miranda said it is unusual to give a young child IV treatments unless > he has an extremely high level of heavy metals. > > He said although EDTA is a "very safe drug" he usually administers an > oral form of chelation drugs to children to remove toxins because > pills are safer. It does, however, take longer to remove the toxins > with the pills. > > "There are people out there suggesting using the IV to get faster > results. I'm not," he said. > > Marwa Nadama said yesterday she did not want to comment except to say > that she is not blaming chelation for her son's death, at least not > at this point. > > "Let's wait until we have the results of the autopsy," she said. > > An autopsy conducted yesterday on the child's body by the Allegheny > County coroner's office was inconclusive. Results on the cause and > manner of death are pending additional testing which could take up to > five months to complete, authorities said. > > Kerry, who is a board-certified physician and surgeon, advertises > himself as an ear, nose and throat specialist, dealing with allergies > and environmental medicine. He operates out of offices in Greenville > and Portersville under the name Advanced Integrative Medicine Center > Inc. Kerry did not return calls to his offices yesterday. > > Doctors affiliated with the National Institutes of Mental Health and > American Academy of Pediatrics do not endorse the use of chelation > therapy to remove heavy metals for autism. Such drugs used in the > process can cause liver and kidney damage and other problems. > > Cindy Waeltermann, director of the Pittsburgh-based national advocacy > group AutismLink, issued a statement to members yesterday warning > that caution needs to be used as parents seek help for their autistic > children. > > "Please, before you try any new therapies, we urge you to research > the physician, the methods, and the safety. Some of these therapies > are quite dangerous. We're not telling you what to do, we're just > urging you to use caution. We all do what we think is best for our > children, and sometimes we are desperate. While we've heard stories > of chelation success, it is definitely a dangerous process," > Waelterman wrote. > > She said parents on her group's online forum have referred to Kerry > as a known practitioner of chelation therapy. > > News of the death soared across the autism community yesterday, > alarming proponents and foes of the treatment. > > "It's just terrible. My heart is just dying for the family," said > J.B. Handley of San Francisco, who helped found Generation Rescue, an > international advocacy program for the use of biomedical treatments > that include chelation therapy to help autistic children. > > He claims his son Jamison, now 3, has dramatically improved since > undergoing chelation therapy to remove mercury, the metal most > associated with autism because of its presence in some childhood > vaccines. He and his wife launched their international group in May. > > He said that, in 2000, perhaps a dozen autistic children were treated > with chelation therapy. This year, it's more than 10,000. > > >