kim

Claire, What a wonderful surprise to see a post from you! I have to say that the reason this thread is here is because of you. You were the one who directed me to the Autism Enzyme board, and there is such amazing info. there and at asd_solutions. Karen DeFlyce has been an awesome resource too. I have to refrain from calling you "Our Dearly Departed" Claire. There are many many times, I have wanted to refer to information that you have shared. I was actually searching this forum for an old thread that you started on "testing" this morning. The metal redistributing, and how much improvement can be had with gut healing alone, are two of the many question I have also. On metals, from what I have listened to on biochat, the general impression I am left with is, it may not be as likely as some have thought, but as you pointed out, no one is certain, just theories. A couple of us have started using Houstons Digestive Enzymes. I think part of the reason we don't say "Wow" more often is because you are never sure exactly what is making the improvements. Again, this option was something you brought to my attention. I would love to ask you a million questions, but I am well aware of the sacrifice your family and work suffer when too much time is spent on the computer. I get so side tracked, that I don't accomplish what I got on for, quite often. I hope in the fall when things slow down a bit, you might have a little more time. I remember you were working toward MT Promotion for your son shortly before you quit posting, when his zinc/copper got out of line? Now, you are working toward it too. I am hoping that means you had good results with your son. I know Carolyn recently had her amalgams removed also. Again, it was wonderful to hear from you. You take care, and get back with us when you can! Kim

David Kirby on "Meet The Press" Sunday Morning, August 7, 2005(Check local listings for times) Daivd Kirby, author of Evidence of Harm, Mercury in Vaccines and the Autism Epidemic: A Medical Controversy will be debating Dr. Feinberg from the Institute of Medicine, live on TV with Tim Russert, on NBC **Thanks to ASD_ Solutions

Hilarys notes from biochat: You can access this file at the URL: http://groups.yahoo.com/group/asd_solution...hael%20Lang.doc Michael Lang – Brainchild Nutritionals http://www.brainchildnutritionals.com/Brainchild_Nux.html Michael is also on Autism One Radio every other Sunday Q: I have heard that TMG and possibly DMG can compete with or block MB12. Do you have any insight into this and/or have you had any personal experience using MB12 injections? Also, have you chelated your kids and for how long? A: I used DMG with my daughter in ‘96-98, sublingual. MB-12 is a very good protocol to start with for children with high mercury. All the research I’ve done (1996 when I started researching autism), I knew my kids had a detox impairment. We gave glutathione, antioxidants, sulphation, gluterate, glycine, taurine, methylation, acetylation. We gave sublingual DMG and B-12. But after a while the B-12, DMG, folinic all peaked, and it was clear to me that it was the sulfur that was still helping. I gave them a sophisticated blend of nutrients to support detox and redox. My daughter had problems when NOT on the Feingold diet, had a lot of trouble with phenols. Q: Hi, my son reacts to vitamin A even in small amounts. Do you know why? He gets irritable, and slightly aggressive. A: I don’t know exactly why, but here are some possibilities. What kind of vitamin A? Pulmitate? Cod liver oil? (answer: all, even RDA in multivitamin) Make sure it’s a good form, not rancid (oxidized). Did you see a similar reaction to vit C, vit E, or glutathione? There’s a workable halflife in antioxidants or glutathione, when they get into the bloodstream that face oxidative stress. When they go to do battle, there are 1000 enemy soldiers, and you march in 20 to fight them. Such is the case with free radicals and oxidative stress. There is a whole list of processes impaired in autism, they rely on recycling or redox, that is a very sulfur-dependant process. When you put glutathione or another antioxidant into this type of body with so many impaired processes, they oxidize fairly rapidly, you’ve just introduced more oxidative toxins. Perhaps this is what’s happening in your case. If you put oxidized glutathione into the body of someone who already has 4-5 times the oxidative burden, it’s not going to help. Look at that predominance of oxidative stress turning antioxidants to the dark side. Q: I was reading about your new metal detox product that comes in dropper form. Can you tell me more about it and what have you been seeing from it? A: Herbathione, developed 6 years ago. Combination western, Chinese, Indian herbs, that all help redox/recycling glutathione. Hepatic liver glutathione, plasma glutathione, cerebral glutathione was all increased by using these herbs. It’s almost like homeopathic. It’s a concentrated tincture. Another product that we resell is called NDF (nanocolloidal detox factors). It’s nanosized (extremely-small particle size) chlorella, a natural mineral product. I’m looking to make a mercuric reductase product, found in certain algaes. These organisms convert mercuric chloride (HgCl2) to an elemental form (Hg0). These species adapted over millions of years to detoxify water. There is a fish off Calcutta, India – a bottom feeder – water passes through its gills and this species of fish can resist mercury, it has a mercury-resistant bacteria. So I’m looking at things to help with redox, and detox of mercury. The folks at BioRay might on the same path. Q: Michael we are just refining the process 2 years into BioMed 1 year into successful chelation what more can we do to open sulfur pathways we are using Epsom Salts baths and oral MSM? We have noticed more language and clarity. I want to do all we can to capitalize on this since it is producing good results as we chelate. We also eat an organic diet GFCF dye free/preservative free diet as well. A: Those are all good things, organic, gfcf, etc. Wish we could just open sulfur pathways. The severity of autism is probably related to the compromise in sulfur pathways. I used many forms of sulfur. We didn’t use chelation or MB-12 shots back when I was recovering my children. It was like an apothecary. Doing research on phenolic foods, I found a close relationship with sulfur. If I overdosed on Tylenol, they’d use n-acetyl cysteine. So I started using that, methionine, MSM, glucosamine sulfate, condroitin sulfate, Epson salt baths. I discovered a lot of those were detrimental. On a high dose of sulfur, within a week my daughter would be worse then before we even started the process. The extra sulfur was causing a backup of some toxic material her body couldn’t process. I started to reduce. The methionine has to go through so many conversions before it gets through. MSM, Epson salts were both good, as well as food-based amounts (30 mg) of NAC (n-acetyl cysteine). Too much was detrimental. Too much NAC would go against methionine synthase. We eat broccoli, or onions, or brussel spouts each day. Once I cut back and found the right amount, she did well. 300-500 mg a day of MSM is about right. If you notice flatulence, cramping, bloating, you need to cut back 25%. Epson salts very good – I’ll take a half of the ½ gallon carton, and let them soak for a good hour. NAC in small amounts. Glucosamine sulphate, biotin, thiamine, molybdenum. Also enhance sulfur in the diet. Make stews and soups, with onion in broth. Eggs are also high in sulfur. Broaden the types of sulfur, keeping the amounts moderate to low. Q: Thank you for taking the time to answer our questions. Have you considered making your vitamin mixture in a pill form? A: Yes, it’s been asked. The body digests things to make them liquids, so the most effective way to get things into the body is in liquid form. It is possible to take this and put in a capsule, but difficult to get the concentration right. A 50 lb child would have to take 5-6 horse pills. I have friends that do colonics professionally – this is gross – when they look at the effluent from the colonics, they find capsules/tablets still undigested. When you have a dimishment of enzymes (like in autism) that would normally break these capsules down, it will stand more chance not to be broken down, so a liquid is better. Also we don’t have the equipment, we’d have to farm the process out. So those are all the reasons we haven’t yet. Q: there's been discussion that TD_DMPS - is not "really" acting as a chelator, but rather, it's doing something to open a sulfur pathway... what's your opinion on that?? A: I agree. If you look at the formulary, there is cysteine, glutathione ,methionine, etc. It’s 2/3 or ¾ sulfur, and the rest DMPS. So what is actually doing the work? We’ve been doing sulfur interventions (secretin, b6 magnesium, b12, etc) since the biomedical started. Both DMPS and DMSA are pro-sulfur. So I think that we’re using fairly weak chelators in TD-DMPS that have a propensity for grabbing mercury. You have a river that’s not flowing well, you supply water to tributaries, and the river flows better. This is kind of what you’re doing. Some side effects – potential for liver damage, bad dysbiosis, compromising immune function down to the level of bone marrow. My whole premise has been that you need to go low and slow. I’ve heard others say this too. There is probably some genetic component to autism, damage to the DNA that is passed on to successive generations, weaken the progeny, make them more susceptible to mercury. You have to rethink how to detox, don’t rush the process. It will take a couple of years. Low and slow. Q: Do you recommend oral (lipoceutical ) glutothione or TD??? Is there a problem with mercury or other heavy metals in the NDF Plus. I think I had heard it may contain metals??? What results have you seen with Herbathione? Thank You. A: I have some misgivings about TD-glutathione, because it has a chance of being preoxidized. The lipoceutical glutathione is a better bet, you’re surrounding it with a lipid to protect it from oxidation. As far as mercury in NDF+, metal free, pca-rx – these products are well-tested. We’ve been getting asked this a lot lately. They’re using cultured chlorella. Herbathione is not being used to the degree I wish it was. I have one child recovered with this amongst other things. She was using Herbathione. She asked us to make bigger bottles, the whole family is using it. My daughter, that child, plus 2 others are recovered – as long as there is redox support in their protocol. This mom does fish oil, antioxidants at this point. For my child Herbathione is a finishing step. If she misses her vitamins, we fill in with this. She regresses to asperger, HFA without having her redox support. These kids will have lifelong impairments in antioxidants, glutathione. Mercury most likely causes this damage. Q: Thanks for your awesome products. (We use III and megamins). Anyway, my son has started smelling like sulfur lately. He takes lipoGSH and TD-GSH, but this is a recent occurrence. When he sweats, he just reeks of sulfur. Is this a sign of GSH overdosing? A good thing? (He's doing great, behaviorally!) Also, are you adding ALA back into your vitamin III formula? I think my son did much better with that. I'm considering using TD-ALA until you guys (hopefully!) add it back in. A: If sweating sulfur, then you might want to ratchet down the lipo and Td glutathione. Find a better level. If sulfur in the stool, most commonly it’s and allergen reaction from yeast or fungal overgrowth. Adding ALA back – we’ve tried 3 different forms of lipoic acid. We used alpha-lipoic (R and S mix/counterparts). R is natural, S is synthetic. The concern was that with the synthetic form, it might block it’s natural counterpart. Then we used the single R alpha-lipoic, but when mixed with water it turns to a mix like playdough and crazy glue! It will stick to the gut, intestine. It was also very expensive. Then we used a liquid lipoic, wasn’t suitable for our multi. So I’m as frustrated as you, but for now we won’t be adding it back. Q: What supplements do you recommend for improving the sulfur pathway/redox recycling, sorry, late, if you already answered this. A: Start with small levels. 30 mg NAC, 300-500 mg MSM, Epson salt bath, glucosamine sulfate, condroitin sulfate, biotin, thiamine, molybdenum. Cruciferous vegetables, beef and chicken, broccoli and brussel sprouts, asparagus, cabbage. Durian fruit (sp?) – looks like alien seed pod, like a custard texture inside, smells sulfury. We’ve tried that a little. B1,B2,B3,B6,B12, A, C, E, selenium, zinc, lipoic acid, glycine, will all help with glutathione formation and glutathione recycling. If you go to Autism One website, my presentation Beyond Methylation is there. Powerpoint. Shows variety of nutrients and what they do in the body. Q: Where do you recommend new parents begin with all of the above information? Feeling a little overwhelmed. We are GFCF and non-verbal. We also just had our 5 yr physical and skipped our vaccinations for the first time. A: Good on skipping the vaccinations. A good start online to do research is PubMed. You can type in glutathione and antioxidants, for example. ABMD, CK2 are good yahoo groups. I didn’t do a lot of biomed work with doctors, I went on my own, that was my choice. Not everyone does things this way. I did do some testing. But mostly I researched, and observed what my children were presenting. And take care of yourself. This is a hard thing to go through. Keep your hope and optimism. Q: My son (50 lbs) has been on level 2 of your vitamin mineral and he has seemed very stimmy. There are other variables in his regimen, but I did cut back to 1 teaspoon TID (from 2 t.) It seems to be tolerated a bit better. (admittedly, I worked him up quickly to the 2 t. TID). Do you have kids who don't reach their "optimal dose"? Should I try to work him back up? Or is it better to switch to PAK or level one at full dose (2t. TID)? Thank you for your response. A: Whenever you see stimmy behavior, this is probably B6 in excess. Only use as much as is necessary to do the job. B6 also will inhibit some sulfur processes. If this is a new supplementation protocol, he might be better on the PAK formula. If he has been on this formula for a while, and the stimminess is new, you can probably do fine with less B6 Q: What’s the name of the fruit? A: Durian, you can get it at some Asian markets, it’s very expensive, cheaper to buy frozen. Q: Were your children GFCF and are they off the diet now? Also, why are many of these children not able to tolerate folinic acid but can tolerate FolaPro. A: My children are still gfcf. When my daughter was 3.5 we were just on Feingold, it brought about profound changes for her. My son had allergy symptoms. I do think he has an immune problem. Wheat and dairy are also phenolic. I don’t recall the structure of Folapro, I think it’s calcium folinate? We use calcium folinate in our product. (Folapro is l-5 methyl tetrahydrofolate.) I don’t use a lot of folic acid with my kids. I’m hearing from folks doing mb-12 shots that the folinic is very helpful at first and its effects diminish over time. I would love to add methyl B-12 to our formula, have wanted to for a long time. It’s very expensive, and MB12 is not real stable in water, unfortunately. Q: Do some kids have an intolerance to sulfur? If so, what can we do to get them to tolerate it? Also, you said that sometimes a body under great oxidative stress can react badly to antioxidants. What should a parent do if this is the case? A: Most children would not have a broad intolerance, but there might be certain forms of sulfur that they react to, or certain levels they react to. Keep a log book – what level, what form, what manufacturer, what was it combined with, etc. Low doses will be better tolerated. The forms that have to undergo less biotransformation, fewer pathways will be better tolerated. That sort of bumps methionine out. Look at sulfur-bearing foods if the supplements aren’t working, also the Epson salt baths. I’d do tests to find out more about the oxidative stress issue. What are the levels of toxins in the body of the child that cause them to react this way, react to all the things that should be helping them. What is the mercury burden, what other toxins; how is the gut? Q: On your A1 pres. you mention DNA repair. Does micro algae, NDF+ do this, cat's claw?Is this done earlier or later in the recovery process? A: I don’t know about the cat’s claw, and whether it helps DNA repair. We need to understand the breaks/mutations in DNA, and look at how to patch the DNA. There are some emerging theories of DNA repair. I am finding that algae that has survived with mercury, volcanoes, etc have the ability to detoxify mercury. They have a unique construct of iron-sulfur clusters. Like a circular revolving door. The electrons that want to get in or out have to pass through this revolving door. When you put mercury, pesticide, barbiturates, pharmaceuticals in the body, it can inhibit this process. When you cannot transfer electrons back and forth, you have impaired redox and detox. Even though I know my daughter is really healthy, healthier then I am, (I don’t see any evidence of mercury toxicity), I still see when she goes off her supplements, she has slight regression. Fixing the DNA would be the holy grail. The micro algae is able to repair DNA in algae using the iron-sulfur clusters. Can we fix the DNA? I don’t know yet. I have to visualize a biochemical target. My premise is that if we can do DNA repair, we might have a child able to go off antioxidants and other supplements. __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/asd_solutions/ <*> To unsubscribe from this group, send an email to: asd_solutions-unsubscribe@yahoogroups.com <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/

Sorry this is so late... I think this may be one to catch if at all possible. go to http://www.drneubrander.com/page6.html then click on biomedical treatments and support chatroom Friday July 29, 9:00pm EST Michael Lang, MFA Michael Lang is the father of two children, nine and twelve, previously Autistic and recovered using only nutritional and dietary biochemical interventions for natural detoxification. Both his daughter and son are essentially non-autistic, doing very well in regular education with no need for aides, establishing peer relationships, and for all practical purposes, leading healthy, normal lives. He is a former college professor who became a parent-researcher and a nutritional consultant specializing in the biochemistry of Autism after his first child's diagnosis in 1996. Michael’s operating philosophy of cause, effect, and treatment in ASD has long been “That while mercury may be the rock thrown, sulfur chemistry is the window that it has broken.” Michael has committed the balance of his life to facilitating the recovery of other children with Autism and establishing the causal connection between multi-generational vaccine and environmental toxin exposures, broad compromises in sulfur chemistry, and ASD. He is also the formulator, founder, and president of BrainChild Nutritionals, a supplement company with a sole focus of supporting the specific biochemical needs and facilitating the natural detoxification of children living within The Spectrum. With great hope, Michael Lang, President BrainChild Nutritionals Inc ____________________________________________________ Start your day with Yahoo! - make it your home page http://www.yahoo.com/r/hs Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/asd_solutions/

Andy, Did your Dr. have any words of caution for you regarding the use of enzymes? From everything I have read, there does not appear to be any downside risk to these. At worst they just will not help anything, and they have not been found to be toxic in any amount, this is my understanding. The question regarding your body not producing its own enzymes any longer due to supplementing, has been asked several times and from what I understand, this does not occur. http://www.enzymestuff.com/discussionsafety.htm http://www.enzymestuff.com/faq.htm As Daniel mentioned, the restrictive diets, especially when dealing with an extremely limited eater, is really hard, if not impossible with my youngest, however, I am very interested to hear any opinions on this subject. If there is one thing I have learned in the last 6 months or so, it's to look at everything from all directions, pros and cons, so far, I have just not been able to find any cons, and to get as many viewpoints as possible. If you have the time to elaborate at all, it would be greatly appreciated. Chemar, Could you tell me what kind of test your Dr.s did to determine the need for the use of enzymes? Kim

Susanmom, I saw similiar results when I started my 12 year old on Bonnies vit. He was hyper, to the pount where he was telling me he felt hyper, and hyper is not good for tics. We had worked our way up to 16. His weight required the full 20 vits. Then he got sick, and didn't take the vits for about 4 or 5 days. When we introduced them again, we only went up to 12 and the teeth grinding and body aches he would experience in the mornings were gone so we reduced to 10 and still had good results and we have stayed there, at 1/2 the recommended dose. If the folic acid is a problem, which I suspect he is high histimine/undermethylated, and according to Dr. Walsh from Pfeiffer, folic acid should be avoided, maybe at the reduced amount, it is not quite as big of a problem as it may be at the higher dose. We too will have some testing in August. Maybe you could cut back or just stay where you're at for a little while and see if things improve. My younger son experienced the same thing with vit B. It made him hyper to begin with. He now takes Bonnies vits. at less than 1/2 the recommended dose (5 per day) and he is about 80lbs. He didn't have any increase in tics or hyperness but we went really slow with Bonnies vits, where when I gave him straight vit B. it was probably a little too much to quick. Here is a link to an article by Dr. Walsh that might give you some info. if you haven't read it yet http://www.alternativementalhealth.com/articles/walsh.htm I totally agree that testing and supplementing with only what's deficient is the best way to go, but when I ordered these vitamins I wasn't aware of many of the things I am now, and they have helped tremendously! Kim

Daniel, You are using the chewables right? I think the chewables equal about 1/3 of a capsule? My youngest son could handle Peptizyde, 1/2 a capsule (I wish I would have ordered the chewables) to start with, with no problem but 1/2 zymeprime caused some stomach pain. The first 2 times he took the zymeprime he had the stomach ache, pretty intense, but it stopped as quickly as it started, thank goodness. It lasted about 10 to 15 minutes both times and it came about 2 hours after taking the enzyme. After that, I cut it back to about 1/3. So now he takes 1/2 Peptizyde and 1/3 to 1/2 Zymeprime with every meal, as I'm working back up, and I am starting to give with snacks. He is taking about 5 of Bonnies vits. 1 fish oil, and a little extra zinc. He has been doing excellent. I do have to say though, we went to the mall this evening. The shoulder shrugging started in a BIG way. Probably the very worst I have ever seen him tic, with the exception of the Pac Man game on his birthday last fall. It was there while we were in the Mall, but in the parking lot, he did it so bad he was practically turning in a circle. I thought he was doing it to be funny, he wasn't. I think once we got outside, he just let it rip. He said it was the Smell of the Mall. This is the second time he has said that. I believe the other time was in the Dr. office. Tonight was a baseball game for two of the leagues combined, sort of a "scrub game" for fun. One of the Dad's had bought a really off brand of Soda (cheap). Youngest got a can of this before I got there. 50 mgs of sugar and art. color. He also had pretzels which I have not been letting him have. Pretzels are one of the things he could eat 1/2 a bag of and call it dinner, he didn't have any enzyme with this and I'm thinking a wheat sensitivity could definitly be a possibility with him. So, I will be waiting to see how things go tomorrow. I have to say right now that this child ran into a trigger in a big way. The head shaking I mentioned a while back with oldest was sort of a flair. It has been the mildest he has ever had since this whole thing started. I started giving him the enzymes. I had not been giving them to him, as he has always been a great eater, seems to have a strong stomach, but I didn't think it could hurt as I really believe the gut issues and food sensitivities are a big part of this. The head shaking really seems to have improved to almost nonexistent, in only about 2 or 3 days of starting the enzymes. I saw him do it once today. I guess it could be a coincidence, but I am keeping him on the enzymes for a least a while. Then I may stop and see what happens. He has complained of an "acidy feeling" since starting the enzymes, however, this has been a complaint I have heard during head shaking flairs before. I always wondered if the violent head shakes caused him to throw acid into his esophagus, if that's possible. Since the head shaking this time around, has not been as frequent or violent, I'm just puzzled now. I have read where a lot of kids on the autism spectrum have low stomach acid, but I had always assumed oldest had high stomach acid, so don't really know. Also have read where stomach discomfort is not unusual when starting enzymes , and I may have given him too much too soon. I didn't go as low and slow with him as I did his brother. I am cutting his vits. back from 10 to 8 a day while he's taking these. Again, I have read where sometimes you are able to reduce the amount of other supplements, when using enzymes. Trial and error, we'll see. Kim

Andy, Caz, I sure hate to "jump the gun" but I'm starting to think I'm aliken these enzymes. Peptizyde and Zymeprime so far. Kim

Leslie, http://www.bonniegr.com/Interview%20with%20Bonnie.htm This is a link to Bonnie Grimaldi's site. She developed a vitamin specifically to help her son who had tics, OCD, etc. I'm sure you will find her site to be very informative. I am giving both of my sons these vitamins, plus we order our fish oil from Bonnie also, and I do have a bottle of the mag taurate, which some use during flair ups. Yes, yeast/ bad bacteria treatment is something many on this board have experience with. If you start reading some of the threads (It took me about 4 months to get through the majority of them) you will be amazed at the wide range of options you have for managing and sometimes eliminating tics and some of the behaviors that can accompany them. Look for Claires posts. She had/has been working with a DAN Dr. and also with the Pfeiffer Institute. Her posts contain a wealth of information, as well as Chemar's. There are many posters who have seen really wonderful success with alternative treatments.. Andy is a father who is going through some pretty intense heavy metal removal with his son, and his story is really inspiring too. My sons were both taking a prescription medication, clonidine, which really had very little impact on tics, mood etc. It did seem to promote sleep in the beginning, which my oldest son used to have difficulty with. I have to say I am 100% happier with the results I have seen using Bonnies vits. digestive enzymes, fish oil, healthier diet-reducted artificial colors, preservatives, less processed and more whole foods. Allergy control and food sensitivities seem to play a big role here too. I was very grateful for having been led to this site. I hope you find it as beneficial as I have. Be prepared for some late nites with your computer dates, if you're anything like me. This is one of the first things I read that really helped me when I was brand new to all of this. http://www.alternativementalhealth.com/articles/walsh.htm Be sure to click on all of the pages A-E, F-L etc. Kim

Bio Chat notes From Session with Karen DeFelice Notes by Hilarydowning@yahoo.com Karen DeFelice www.enzymestuff.com Karen is starting a trial for high-dose enzymes for viral conditions – contact her if you want in on the trial. Q: My son (soon to be 3) got extremely aggressive when we tried enzymes a few months ago. I had him on for about 2 weeks and we couldn't take it, it was consistently getting worse so we discontinued. He was recently scoped by Dr Krigsman, LNH in colon and ileum. It was Houston enzymes. It was peptidase and took the recommended dose on bottle. A: When you have a sensitive gut, the tissue is torn up, the peptidase irritates the tissue in the very beginning, so we recommend you start with ½ capsule for a few days, then move up in dose gradually, until you're up to full dose. It's like when you're cleaning a wound with antiseptic and it stings, you have that torn up tissue, the protease goes in like a washcloth to clean it out, but it stings. So go the slow, low-dose method. Q: Can my son take enzymes instead of doing the diet? If so, what enzymes should I buy (where too), how much should I give to him and when? He is 3 with autism. (and i understand the dosing now i think) A: I'm assuming gf/cf when you say diet? If you're using Houston Peptizyde, that is the one product that has consistently allowed people to use the enzyme instead of doing the diet. Most people can use Peptizyde instead of the gf/cf – 80-85%. But sometimes they need to wait a few months, let the gut healing continue. There are other enzyme products that you can take with the gf/cf diet, but they're not designed to replace the diet. Enzymes have specific uses – you might have an enzyme product that is not working for the results you need. On dosing, low and slow is what I advocate. Really small changes can send the nervous system through the roof. So for kids, use the low and slow approach. Q: If you have a child who had a history to many food intolerance's with definite allergic reactions and has been GFCF,SF, CF DF….etc. For several years, but also been chelating during the duration. But, no longer using enzymes and is noticing through trials these foods are becoming less sensitive. Do you feel these food issues will eventually clear after we are finished chelating without the continued use of enzymes? Also over all would you recommend maintaining food avoidance before the gut is fully healed over the use of enzymes? Would it be right to say that enzymes will help heal the gut just as effective? Will enzymes accelerate the healing of the gut when it is still heavy metal burdened? A: We do have people in our enzyme group that have done that, so the answer is yes. There are others that have been able to lose the enzyme even without chelation, they become less sensitive to foods. One of the properties of enzymes that is well-known is that they help heal tissue. They help heal wounds externally and internally. If you want to continue avoiding foods it's up to you. For some families, avoiding food is just not an option, you do the best you can. Theoretically the enzymes should help with detox, there is info on the enzymestuff.com site. The theory and science indicate yes. There is no study that says categorically yes, this happens, however. Q: My son is 12 years old and has been taking Similase & Lipase Concentrate-HP by Tyler and Ox Bile by Allergy Research Group. He has difficulty and still can't tolerate foods such as tomato and blueberries. What enzyme can we give to help him with foods such as these? A: The two foods that you mention are phenolic or salicylic type foods. These are the colored foods, and the phenols also happen to be the anti-oxidants that help with oxidative stress. But the kids with phenol and salicylic intolerance can't tolerate these foods. No-Fenol by Houston is made specifically for this issue. The enzymes break down the fibrous parts of grains, fruits, vegetables. There might be other products that work for this, but this is the one I know of. Feingold (www.feingold.org) Q: My question is about the enzymes with Isogest developed with Kirkman in cooperation with Tim Buie's research- have you seen the study yet and have you heard feedback from isogest enzymes? A: I look at research, and then at anecdotes. Buie was doing research to find the earliest way to find if a child has gut problems. Kirkman's Isogest has more starch and sugar digesting enzyme. Other research shows you can't just substitute Isogest, so then the Isogest enzyme might not be doing anything new or different then anything else. Q: Hi Karen, What's the best time to give the enzymes? Everytime they eat? At the start of a meal only? If your child is a grazer and doesn't eat an entire meal or snack at one time how can you get them in? Once enzymes are mixed into a food or drink do they last a while or do they loose their effectiveness quickly? Thanks A: The best time: enzymes work on contact. The enzyme should be touching the food that it should break down. Given this, enzymes are best taken at the beginning of the meal, this maximizes their potential. If you forget, go ahead and take as soon as you remember, it will still work to digest what's in your stomach. It's up to you if you take it every time you eat. In the beginning, you might get best results if you take it every time you it, helps gut to heal. You can put the enzymes in a drink and keep in the fridge, have that drink along with the snack/food. Enzymes stay ok in drink up to 4 hours. My kids swallow capsules, so I just have them swallow. Some parents make up peanut butter balls with the enzyme in it. You could also split the capsule, put ¼ of it in whatever they eat each time they graze. Keep enzymes dry to preserve them, they are active when they get wet. Keep them cool and dry. If you keep them in the fridge, they'll last 4 hours. If you mix them in nutballs, they can stay preserved in the freezer up to 2 weeks. Q: If my 3 yr old child has responded positively to IV secretin does this mean that she requires follow up with enzymes. A: From the people that have done both, it depends. No it doesn't mean she requires it. Secretin has a particular goal of telling the pancreas to release enzymes. Secretin tells the body to make enzymes. If you take enzymes with your food, you're getting them that way. If a child responds to secretin, they will probably do well with enzymes. Q: My 4 yr old son has sensory integration. We started AFP and Zymeprime 3 mos. ago. He had about a 65 - 75 % improvement. We started No-Fenol 2 weeks ago. He tends to have a lot of congestion and ear problems. He has tested positive for mold allergy. Is there any particular enzyme that could help with those issues or is it just a matter of gut healing and time? A: Go with the gut healing, stick with it, on average that is 3-6 months. If you're not seeing any improvement after 6 months, reevaluate. Enzymedica makes a Mucostop product that helps respitory system. Helps asthma and bronchitis, chest congestion. Q: Hi, I got a recipe off the internet for an enzyme chocolate wafer. I want to confirm that the process for making this doesn't kill the enzymes. It's to melt casein free chocolate chips in a microwave, when it cools to a point that it's just warm, open the capsule and sprinkle in it and freeze. After melting the chocolate, how cool should the chocolate be in order to not kill the enzymes before sprinkling and freezing? A: Melt chocolate first, when it's cool to the touch, put the enzyme in. If cool enough for your mouth, it's cool enough to put the enzyme in. Q: For a young child, gf/cf/sf whose prone to yeast outbreaks whcih enzyme do you recommend starting with? Also, can enzymes be given with other meds/supplements? A: Enzymes only work on certain things, they don't go throughout the body doing random things, so they can be taken with pretty much any medicine or supplement. If you're taking a time-released medication with cellulose, then be careful with cellulase. There is more info on the enzymestuff.com site. If someone is prone to yeast outbreak, there is a good protocol. Start low and slow, start enzymes with meals, it helps get nutrition from the food. Then between meals, take Candidase, No-Fenol, or Candex to work to break down yeast. These are yeast enzymes. Take with a prescription or herbal yeast killer (Oil of oregano, pau d'arco, grapefruit seed extract). Q: Which enzymes work best - the Carbo/Lypo and Digest from Enzymedica or the Houston enzymes? My kids have been taking the ones from Enzymedica for over a year but I've heard so much about Houston enzymes. We just started 1/4 cap of each of the Houston enzymes today. I called my DAN doctor and they have never used them but said they didn't feel you could go off the gfcf diet b/c there would still be opiods introduced in the gut and the enzymes could not handle them all. A: It depends on the person. If you have a problem with casein and gluten, the pepzidase from Houston. If you have a problem with fat digestion, the Lypo helps that. Buy one bottle of each brand, try one whole bottle at a time, you'll know by the end of the bottle if it's working for you. We've seen over and over that kids with gfcf diet have improvement, then add enzymes, more improvement, then go off the diet and stick with the enzyme and see the most improvement. The opiod problem – proteins are insufficiently broken down. The enzymes break the opiod proteins down even more. Q: You just said that if a gut healing protocol is not working in a year or so we need to evalute, but is that true if we are chelating as well? A: You should be seeing improvement along the way, except if you're doing something that causes a problem, like stirring up yeast. The yeast might delay the gut healing. Q: 1.) do enzymes break down the lipoceutical gutathione or destroy pro-biotics if given at the same time? 2.) my son does not get a positive response from No Fenol or phenol assist unless given wiht 1/2 tsp of magnesium- can you explain why? 3.) Also, are you coming back to WA state anytime soon- I missed your talk at Marlene's Market a couple months ago..... A: 1) With a good quality probiotic, this shouldn't happen (research behind the product, and plenty of people saying that works well for me). There is debate about this. Look on the bottle of the probiotic package. Or take enzyme at beginning of meal, then probiotic at end of meal. I don't know about the glutathione. 2) Some enzymes require minerals as cofactors to get them to kick into gear. Some enzyme products have trace minerals in them. 3) I may come next spring. I have a calendar of talks in the calendar section of enzymestuff.com. There is a list Probiotic Short Course on enzymestuff.com, this lists the good enzymes that are widely used. Q: Do you need to heal the gut before starting enzymes? Where do I find your gut healing protocol? Have you heard of BioSet - what do you think of this program? They are big on enzymes. A: To heal the gut, use enzymes. Don't wait – add the enzymes in to get the gut-healing going. Probiotics are another proactive gut- healing action. One of the healing aspects of probiotics is they make enzymes. At enzymestuff.com, look up the great low and slow method, that's the protocol. A really good product is Enzymedica Lacto, has very low proteases, good to start with. Lacto, V-gest by Enzymedica and the SCD Zyme Prime by Houston. Lacto has dtt4 activity, breaks down the dairy. The V-gest is low protease, breaks down fiber. Good for constipation, colon-problems, etc. Houston SCD Zyme Prime also very low protease. Q: hi Karen. My son is 4yr old and enzymes has tremendously helped my son. Your website and book is excellent and very very helpful. we are chelating our son. I give my son Candex alongwith houston enzymes. Can i give No Fenol along with candex? A: Yes, No Fenol and Candex both help with yeast, but are very different formulations, so give together or rotate, because if one doesn't work the other might. They both target yeast. Q: My son also has some sleep problems. I was wondered if he doesn't have a magnesium deficiency. Does he need to be tested to find what his levels are before beginning a magnesium supplement? A: If you're magnesium deficient, which most Americans are and most ASD kids are, get some magnesium, see if he improves. Try Epsom salts or magnesium supplement before he goes to sleep. It's easy to build up more calcium then magnesium, but you need to have them in balance for the magnesium to get utilized. Q: what is the best enzyme for someone just starting out? kirkman, houston? A: Make sure it's a good quality line of products, then determine the problem you're trying to fix – mucous, yeast, gluten/casein etc. Find the enzyme that works for that problem, then find the product that contains that enzyme from a reputable source. Kirkmans, Houston, Enzymedica all make multiple products. Peptizyde by Houston is the king of the gf/cf diet issue. The regular Peptizyde has papain in it. If you have salicylic intolerance, use ASC. Best for yeast is start Lacto with meals (gentle enzyme), then Candidase, No-Fenol, or Candex as the yeast-killing enzyme. You can mix and match different types of enzymes. 6-12 enzymes are not high, don't feel limited to one enzyme. More serious diseases like cancer, folks take 40 enzymes a day. Q: Does it mean anything when you have an adverse reaction to Zymeprime? (with cellulose) A: We had 2 or 3 people in the group with this problem – they had coconut allergies and happened to react bad to this product. MCT oil helps the capsules fill correctly, that has the same fat as coconut, so that's the connection. These kids are highly sensitive. Better check other supplement labels too because they have MCT oil. (scroll down to Monolaurin, FYI) http://www.patientcenters.com/autism/news/....html#essential Q: We have been on the enzymes for 3 years. We still need them. Does that mean his gut is not healed?We are still GFCF. He is doing very well, but still has meltdowns occasionally that I can't really predict. I am looking into B-12 shots. We can't chelate until we are filling free. We have done some rounds of nystatin. We are just starting PCA-RX to try to boost his immune and try to draw some metals out. Is that what you mean to reevaluate. By the way, it is good to hear your voice. You and Cindy helped me get started on enzymes years ago. Besides a meltdown occaisionally(every few months) we are doing well but still need to reach peers socially. Functions well socially within the family.I guess I'm asking what do people do when they go to the next level for further healing. A: A yeast problem can make it very hard to heal the gut. That might be delaying the healing. If you still need the enzymes, you still need the enzymes. Q: 1) After 8 months of GFCF my son still tested IgG high on Casein (Alletess and immunosciences). My son improved a bit with all 3 houston enzymes. Do the Houston's help with casein cross reactors? Immunosciences told Dr JM that there are cross reactors with casein that can cause high casein igg even when off casein. 2) are their any enzymes that are ok for kids with high IgG to yeast and not allowed to have yeast? What about pancreatic enzymes??? A: 1) yes. Yeast byproducts can register on the casein peptide test, so maybe you don't have casein problem, but a yeast overgrowth. Yeast can proliferate on the gf/cf diet. VirusStop enzyme was helping a lot of folks with virus issues. Again, let me know if you're interested in the trial we're doing. 2) Pancreatic enzymes are great, they work really well, but they are not stable. They need to be coated. They don't get started until they're in the small intestine. Plant and microbial enzymes are perfectly stable in the stomach acid, so they make more sense then the pancreatic ones since they start digesting the minute you take them. If you can't tolerate the plant or microbial, you could try the pancreatic. Q: Do enzymes help reduce a bloated gut? My guy has a distended gut and has for quite some time. We started Kirkman's enzymes about a month ago. Also is there any problems if enzymes are taken without food? A: Yes, they can, for example Bean-o is an enzyme, it breaks the bond in legumes that produce gas. No, no problem if the enzyme is taken without food, it will do more healing and cleaning out. Go ahead and give 3 or 4 Kirkman's enzymes with every meal, since you're dong fine with the one capsule each meal after a month. Q: Do you find that once a child with ASD's gut is healed then goes through chelation, do they need to continue taking digestive enzymes any longer… Is taking enzymes for a recovered child usually still a lifelong thing? I've heard through the internet parent grapevine is that once chelated, a child is usually more able to handle foods with gluten and casein in it. Do you find that this is true? A: There are some that have gone through chelation and don't need to take enzymes anymore. There are also others that haven't chelated, and they eventually don't need enzymes either. My younger son had reflux, constipation, etc and he doesn't need enzymes any more, after 4 years. He never was chelated. After a while, you realize that taking enzymes is like taking a multivitamin – it helps with digestion and nutrition. I too have heard that chelated kids and even non-chelated kids can grow out of needing the gf/cf diet. If you tackle the root cause, the food problems can go away. Q: my son dandc gave him bioset digistive enzyme. It was doing good, but I just witched to take houston enzymes, he gets constipation, do you have any advices for this A: If it was ZymePrime, try taking that out, and use other enzymes. He might also need more magnesium. Go with the one he did better on (Houston). Q: Can you recommend an enzyme supplement for recurrent viral eye infections possibly herpatic in nature? What would you recommend for a child who likes do eat weird non-food things - toilet(urine) water, feces - & likes to lick people and things? A: Viral – VirusStop by Enzymedica. You can also give any strong protease, like Peptizyde. Non-food things – this usually points to a mineral deficiency, usually magnesium, zinc or calcium. Use soluble magnesium. Then try zinc if mag doesn't work – use soluble zinc. My younger son takes 400-600 grams of magnesium a day. 1000 mg a day is the therapeutic dose. Give more and more magnesium until you get loose stools regularly, that's your max. Then drop that slightly until stools firm up. Q: My son tested with a high lactate level. Do enzymes help with this? Any enzymes that should be used vs. avoided? My son is currently taking all three of the Houston enzymes. A: I don't know. I'm not sure what a high lactate level indicates. Write me at kjorn@thundersnow.com and I'll research for you. Q: I loved your books – thanks! My 3.5 yr old started GFCFSF, then SCD Zyme Prime (cellulose), AFP Peptizyde, & No Fenol – we started all very slowly and went up to 1 capsule each with each meal. We also started SCD after enzymes. Dramatic response to GFCF, continued improvement thereafter. About 4 mos into the enzymes, my son started losing weight (a few pounds), gagging every time we gave the enzymes (in pear juice). Dr. McCandless told us that the little kids have trouble tolerating the Houston line of enzymes, and recommended the Kirkman's brand. Any reason why this would be? Our BioSET practitioner did confirm that my son is "allergic" to the Houston enzymes. We've switched to Kirkman's and BioSET brand (I think it's Enzymedica private-labeled) and he's tolerating the new enzymes much better, but I miss the GFCF safeguard of Peptizyde, and I'd love to know if there is a class of people who have problems with strong enzymes like the Houston's. (My son has a problem with loose stools). A: Sometimes a dr might have an affinity for a product. You might need to take more of a product to equal one of a Houston. Or if you want less, you don't have to take the whole capsule at once. It's not common for enzymes to cause a gagging reflux. Enzymes usually work from the beginning. If you're going to have a bad reaction, you usually have it from the beginning. I don't think it was the enzymes doing it. Look at what he's eating. Could it be a yeast or bacteria problem. Dr Crook (wrote yeast book) said when you take enzymes it starts to break down the yeast, and causes throwing up from die off. If you have yeast in lower colon, the stools are funky. I'm not sure how the BioSet works, but if it's working for you, go with it. Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/asd_solutions/ <*> To unsubscribe from this group, send an email to: asd_solutions-unsubscribe@yahoogroups.com <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/

Biochat, Thursday, July 21, 9:00pm Karen DeFelice Karen DeFelice has a Master's in Science and has worked for 20 years in the sciences and education. She is the author of Enzymes for Autism and other Neurological conditions. The pratical guide to digestive enzymes and the www.enzimestuff.com website. She moderates the enzymes and autism yahoo group that is 4 years old with nearly 5000 members. She teaches on computer topics, technical subjects, and information and graphic design. She develops educational training materials in print and multimedia soft ware for companies, universities and other organizations. Synopsis and Reviews of Enzyme book Enzyme therapy is one of the fastest emerging successful alternatives for people on the autism spectrum as well as other neurological conditions. Reports of significant improvements in health, pain reduction, language, food tolerance, socializing and other benefits emerge daily. Drawing on long-standing scientific research and trials by a wide range of families, Karen DeFelice deals comprehensively with all the information that parents or those new to enzymes need: how enzymes work, who may benefit, what to expect, practical tested advice on selecting and introducing the right kinds of enzymes and how this can be combined with other approaches and therapies. About the author Karen DeFelice and her two boys deal with pervasive neurological and sensory integration dysfunctions, and have seen dramatic improvement in their conditions through the use of enzyme therapy. Karen has a Master's in Science and works in education and the Sciences. http://www.drneubrander.com/page6.html click on Biomedical Treatments and Support Chatroom

Andy, The news of your being able to reduce supplements and the observation from your brother is such awesome news. Fingers are So crossed for good results with the NDF plus. I'm so happy for your son/family. Kim

I will be the guest speaker on this week's Biochat at Dr. Neubrander's > site. The topic will be enzymes and related issues. You can sign on and > just listen, or type in questions. The speaker will has a microphone so > you can hear the talk over your computer. Here is the link: > > http://www.drneubrander.com/page6.html > > It will be Thursday July 21, at 9 pm EST. > > Karen.

Donna, I have been meaning to reply to your post, but there was a lot to consider there. I did look up the acupuncture treatments that you have had success with. Pretty remarkable that these alternatives exist and can be effective. The high dose vit A, I have read a little about on the other board, but I'm still trying to convince myself that things at quite low levels are safe! I will just feel so much more comfortable when we have some testing, and Dr. guidance. I also looked at some articles on xylitol, I was looking for the safety and dangers. There was a lot of reading that made it look like a pretty interesting alternative in the sweetner dept. I know some people have had great success treating yeast with GSE. I have read where it slows down part of the liver function, so you need to have that monitored if used long term. I guess all yeast treatments can be rough with die off, if not done slowly. That's the way I would want to go too. Probotics are something I'm sure we need in our line up also. I hope you and yours are doing well. Kim

Alison, If you go to the site and move the slide bar to the right of the messages down about 1/2 of an inch, you will see "Also regarding floaters" It is right below a pretty long string of messages titled Re: Salt/C....Wow. Don't know if this has any connection to what is going on with your son, but might be worth a look. Kim

Alison, I found this message board, and thought of you when I saw "floaters" in the thread. It looks like there are quite a few responses. Hope there may be something there that's helpful http://www.healthyawareness.com/candida_general/ This is a discussion board on yeast and treatments-you do not have to join to read Kim

http://www.mercola.com/2003/jul/5/pasteurized_milk.htm Dr. Mercola's Comment: Over the last six months I have come to realize that the major reason why autistic children need to avoid milk is because it is pasteurized. The pasteurization process turns casein into a very dangerous molecule that can further precipitate the brain injury. If the children are fed real raw milk this will not occur. Good article

Andy, Thanks a lot for detailed post. This Dr. Greene sounds like someone well worth adding to favorites, and the orgainic milk looks like the way to go too. Kim

Andy, So sorry to hear about the loss of your Dad. You know, I hesitate to post some of these articles that I have been reading, as I don't research the "other side" mostly due to time factors, and it's so hard on your mental well being, to think that all of these cover ups and greed can be impacting the health of so many, in such devastating ways. My sister in law recently gave me a copy of Natural Cures They Don't Want You to Know About. It covers the Pharma companies, the FDA and the exchange of money, how studies are conducted, funded, why meds are pushed when there are safer, more effective cheaper alternatives... and corruption. I have come to think that any disorder with vit/mineral deficiencies will never make significant progress, except for the remark you made, about the med. community following the money. That's one of the reasons I think we need to "hang tough" with the Dr.s at the bottom. They need to know we're serious and will not just go away, and blindly follow their advice, without questioning, when it doesn't make sense. Could you save me some time, and tell me how the organic milk is "sanitized?" I know you research things carefully, so I'm sure there is a simple explanation of how the milk is made bacteria free. I think I will start a new thread for some of these articles, which again, are provided mostly by posters on the autism/enzyme board. Then, who ever is interested can read, and others may choose not too. Some days, I just can't take it and think with the world we live in, it may just come down to "survival of the fittest." Kim

Hi Donna, Thanks so much for posting! I'm really sorry hear you lost the effect you were seeing with the calcium. Bedwetting isn't the end of the world, but I do think it is hard in the self esteem dept.(hard on Mom and the washer too) Sounds like your little ones are dealing with a lot. I posted here recently, that the people on the autism boards amaze me because things can be so difficult for them and their children, yet they find time to post and share with others, like myself, who have milder problems. Thank you! I have to ask you about posting--"By the sound of it, the amount of magnesium I'll need to supplement, must be either twice the amount of calcium or atleast asmuch as it. So for me that will be either 600mg or 1200mg. Haven't had much luck finding high levels of magnesium in capsules (she wont swallow tablets, but will swallow capsules)." My understanding is that you need double the amount of calcium to magnesium, or at least 1:1 ratio. This is the what I read most commonly. I believe I also read where magnesium will block, or make calcium "uptake" harder. Just wanted to make sure that you weren't confusing the two, Lord know, that's easy enough to do, or maybe you are talking about something specific to enuresis? Maybe someone else here can help with a high level mag. capsule. I have mag. taurate, but it is only 100 mgs per capsule. I am still only using about 1/2 capsule of Peptizyde, and 1/2 Zymeprime, once or twice a day. I have No fenal here, but have not used it yet. I REALLY do the low and slow, with everything, mostly due to the fact that I have not had the support or advice of any type of Physician. I agree with everything you said about the enzymes, allergies etc, you just have to work through the maze of what works best, and then pray, it keeps working. You mentioned leaky gut. Could you tell me what treatment you do for yeast, other than the GFCF diet? Do you use GSE, Nystatin ? Which Probotics? I just wanted to add, that I have supplemented with Zinc, however only a total of about 25-30 mgs, about 15 mgs. given seperately at night, and have seen no effect on the bed wetting. Again, it was wonderful to hear from you. Kim

http://www.newswithviews.com/Smith/jeffrey1.htm Excerpt from article GM=Genetically Modified In the UK-one of the few places that do annual evaluations of allergy statistics- soy allergies skyrocketed by 50% immediately just after GM soy was imported for the first time from the United States.[5] This might have resulted from the increased allergen, trypsin inhibitor, in the genetically modified Roundup Ready® soy[6] or perhaps from the protein in that soy that has never before been part of the human food supply. Milk and dairy products from cows treated with the genetically engineered bovine growth hormone (bGH) milk contain an increased amount of the hormone IGF-1, which is one of the highest risk factors associated with breast[7] and prostate cancer.[8] The Council on Scientific Affairs of the American Medical Association called for more studies to determine if ingesting "higher than normal concentrations of [iGF-1] is safe for children, adolescents, and adults."[9] In addition, Sam Epstein, M.D., Chairman of the Cancer Prevention Coalition and author of eight books, wrote, "bGH and its digested products could be absorbed from milk into blood, particularly in infants, and produce hormonal and allergic effects." He described how "cell-stimulating growth factors . . . could induce premature growth and breast stimulation in infants, and possibly promote breast cancer in adults."[10] One of the most dangerous aspects of genetic

Who would have known the power of a cyber hug! Thanks so much guys. When we were dealing with the high fever, it was bad, but as I read so much on the Autism boards, it really keeps you mindful how lucky you are to be dealing the this syndrome, and not Autism. Those parents/kids are amazing people. They share and find time to help others, when things are sooo rough. Per yesterday's blood work, white count and platelets are comming back up. One was in normal range, one almost. Mono negative. He is feeling much better, although last night he said his throat felt sore. He had that same little white stuff on tonsils that he had toward the end of the school year 3 times. I'm starting to wonder if he is harboring a virus that doesn't really go away. Giselle, Bonnie's vitatims contain B5 too and that is what I credit stopping the bruxism with older son, so as soon as I can get youngest back on enough Bonnie's vits, I'm hoping that will dissappear again too. I gave him 2 yesterday, will probably give him about 3 today. Allery med, vits, fish oil, a little extra zinc, and i was working with small amounts of Huston enzymes, have to go slow introducing again. mmazz, at this point our "diet" is still pretty pathetic. He has lost weight, and I'm giving him Graham Crackers instead of folded spinach leaves right now. We will resume work, but I have made no real gains in diet yet. If only I could find a juicer that would pull the good stuff out of candybars! I do believe the reduction of junk, and the vits, have helped him through this. He sure doesn't seem very weak, even between fevers, he was asking if he could go for a bike ride. Kim

Sis, My 12 year old son and I have always been so close. He is sensitive and a deep thinker, and I love his insight where people are concerned. But let me tell you, if he's sick and I try to rub his back, or if I put my hand on his knee, or kind of rub his leg-It drives him crazy. I believe it's a sensory issue. It has nothing to do with how much he loves me, and he IS a big hugger. Please do not waste time on guilt of what you may have felt, or done wrong early on. When that little guy acts uncomfortable, I honestly feel like the best thing you can do is give him his space, and communicate to him that it is "just fine" with you, however he needs you to love him, is just fine. I know it's hard as a Mom, the natural thing to want to do, is cuddle and comfort, especially an infant, just don't take it personally. When either of my boys are having a bad day, or as I said in an earlier post, my 8 yr old has had the virus from ****. He can be really wicked in the personality dept. You have to overlook these things the best way you can, while communicating that it's "unacceptable" at the same time. I also agree with Andy, don't expect the same things from both children, especially a boy and a girl. I see Mom's with daughters, and sometimes I'm a little envious, but these boys have their own way of being wonderful, and I think it's really different from girls. I wouldn't have wanted to miss out on having a son for anything. If the improvements you have seen are a result of removing the soy formula due to high maganese, just keep in mind your son could have a problem excreting. A lot of kids drink soy formula without neuro symptoms (although, if this info on soy is accurate, I think it's criminal that parent's aren't informed-everything carries a warning now days, why not soy?). I think Andy's advice is the best, if at all possible, have him evaluated by the best you can find. I remember both of my guys walking, talking meeting all the milestone early or on track, but they didn't roll over! for a really long time. I thought that was weird at the time but didn't dwell on it much. Anyway, I was so glad to hear from you again. Please keep us updated! Kim

http://www.cbsnews.com/stories/2005/07/14/...ain709269.shtml CBS Evening News A Kennedy Fuels Autism Debate

Thanks for all for the replies. It's great to know that other parents with special concerns about their kids health are out there. Super boy is doing much better today. Giselle, it's interesting you would mention West Nile. I had a neighbor ask me about that today too. I will do a search and see what it says. Believe me your imagination has nothing up on mine. I was everywhere from streph in an organ to invasive candida in the tissue. Held my tongue with the Dr.s -probably a good thing. Everything I read about roseola sounded like younger children get it. In my original post, it was supposed to say "an older child" but I left that out. Funny how 4 or 5 nights with no sleep will make you goofy. I will probably be trying to shove a thermometer in his mouth tonight in my sleep. I do believe roseola is contagious, I guess now they think it's linked to the herpes virus, they used to think measles or chicken pox, so not sure. Alison, you WOULD have laughed to see me running through the garage with this child held only under the neck and ankles. His butt was pratically dragging the floor. I suppose a fall could have been more detrimental than low glutathione or the fever, but hey 105. is scarey. If anyone has a gall bladder problem, if your anything like my husband, do not fear. The day after the surgery, he was back to coaching the All Stars. He said he felt better than he had in months. Dr said no bike riding or rough housing until spleen returns to normal. So I'm waiting a day or two to start vitamins again, until appetite (yea right) returns to normal (sugar craving). We are making progress and I type this with a smile. Thanks for the prayers and well wishes, it worked! Kim Today as he's up and around a bit, he is shoulder shrugging and the teeth click is back. Nothing horrible but worse than before. I'll be anxious to get him back on track.