lmcgill

He is great now, besides going gluten free and watching his diet, he is tic free. Please pray and believe it will pass by.

One word: RELAX! I am not saying to ignore the situation, because if you are like me that would be impossible! It was a long journey for us, but my sone started around 8 and he had numerous tics. They all started with the eye, then shoulder, nose scrunching, even hoping. We did everything including a GF diet, which he is still on, Grimwalds supplements which I think really helped. Anyways, he is almost 15 and no tics save maybe the odd eye one when he has gluten or chocolate. Bottom line, it will pass. Read my posts and you will see the journey I was on. I wouldn't want to go through it again, but if I did, I would be much better prepared.

I admit, I was obsessed with this forum while we experienced what probably the majority who visit this site do.....panic! We did lots of tests, took many supplements, did NAET treatments, every time hoping for a miracle to stop his tics. Looking back now, when he was about 8 was when they started. He had the arm jerks, shoulder shrug, eye rolling/blinking. He just turned 14 a couple months ago and he has not had body movements since he was about 10, and about the only thing he has now is the odd eye roll or blinking. For us, I think it was and still do think it was wheat or gluten issues. Ever since we took that out of his diet, he has been great. I suppose it doesn't matter to me if he just grew out of it or if the diet changes helped, but the story I want to tell is it gets better but as most people will say, it is a journey. I would like to thank all those that gave me hope, it was appreciated and now I feel qualified to pass that hope along. You can search my old posts and see my journey, when the posts started getting less was a direct time line to my sons tics. I shed a lot of tears and felt helpless and hopeless many times but it does get better, and you will be a stronger more loving parent because of this "journey".

Nice feel good story. This forum has helped me so much, my sons tics led us to a diet that has helped the whole family. Thanks for sharing.

If I could back about 3 years or so I would love to have someone tell me," if you don't stop obsessing with (insert child's name's) tics you will lose out on a big portion of the really good parts of that child's life!" Yes, they are tics and yes you will figure it out, and yes they will stop eventually. Our son is now 12 and he has doing great. We figured out what was the main cause, like you we have no history of family tics. He needs to be gluten free and we limit the games and TV he watches. Sometimes I wonder if he has just grown out of them, but like you I was scared, depressed, and obsessed about his tics. What a waste, he was doing fine, I was the one that needed help. Just love her as much as you can and relax and know that it will end. Maybe it will take some time, but it will end.

Similar story, although we did not ever get a dX on our son, the fact that my mother is very celiac and after trying so many things, we put him on a strict GF diet and it took over about a year for him to be (mostly) tic free. We notice now if he has gluten he will have a few eye tics like he did a week ago after some Starbucks salted caramel hot chocolate (yes, there is gluten in it). We are very strict with his diet, even a tiny bit will make him tic. We have followed the same routine for about two years now and the results are the reason: Natural Calm, 6 a day of Bonnies TS plus, and no artificial anything. I know our bodies are very different from each other, but I am glad I took the time to go through the process or as most call it; a journey. I still get a little anxious when he does a few tics, but now I know it will be temporary and adjust. Lenny

just the ts plus. We also do the calm in the evening.

We did so many things prior to gluten free, but even after we went totally gluten free, it still took about two months for us to see a more even tic sequence. I am stuck on the Bonnies supps. but have put him down to 5 in the morning and 5 at night. I also still give him the calm at night. This has been his longest stretch without tics, and even if he does have a few eye blinks I can usually find out he had something.

This is great to hear...can i ask if you are dairy free too?? We limit dairy, he couldn't take it as a baby, he only takes yogurt and cheeze, not any milk.

Hi Char, It took a long time to notice the full effects after taking him off Wheat/gluten. The only bad part now is that we notice the eye blinking tics will start within a couple hours after he has something, so we have made him so clean that even a little bit will show up in some tics. I also add that if he has milk chocolate he can get the same reaction. We have a clean diet now, it has not been that bad, in fact we like it!

Well Okay then, we are even, my post brought me to tears writing it! Never give up hope. I have come to realize that most of the stories you hear on the internet are mostly there because they are "sensational". Once you figure out what is making your child tic, then it doesn't really become a story after that. I am just thankful there are people like the ones on this site exist. They don't get paid for there information expertise, they just do it because they want to. I remember hearing a doctor say he had a "mild form of torettes" and to deal with it, he could care less that I was trying to hold back my emotions. He totally blew off the fact he could have something else going on inside his body, I did, and I didn't give up. My mom was and still is extreme celiac. His tests didn't show much of an issue with wheat, but once he was taken off it, he just continued to improve. He has other issues, he will need open heart surgery at some time to fix his aortic valve, we will cross that bridge when we have to. For now, I have my God to help and give thanks to and two kids (twins, boy girl) that I live for.....isn't that enough?

Hi all, It has been a long journey for us and our son. He started tics when he was 7, he is now 11 and is doing so good. We were coming back from the Oregon Coast today and was thinking about this same time 4 years ago when he was going into grade 3 what a difference he was. His words will never leave me: "daddy, I am going to be in a new school tomorrow aren't I?" His tics were bad, body jerks, arm movements....his whole body moved with uncontrollable jerks. He is now calm and I am so much better as well! This site has done wonders, we did the blood tests, we did the NAET, but finally we found out what the main issue was. After we put him on a gluten/wheat free diet, everything started to become clear. We still keep his diet clean, still give him Kids Calm every night, still give him Bonnies supps. twice a day and as of today I can say he is doing wonderful. Thanks all for you help, and for all those that can't sleep and are depressed and cry for your child on a daily basis, there is hope and things will get better, love them and hold them and tell them you love them every day no matter what they are like. I had that sick feeling in my stomach for years, wandering when he got off the school bus how he would be, oh how I wish I could have those days back, but I can't. I had the darkest days of my life the last several years, between God and my endless search for help I feel I am now prepared to help others by telling them there is hope and it will get better. It may not be gluten free, but it will be something that you will find that is the root cause. Lenny

We have always given him Kids calm, (about 1 tsp before bed) and he is taking 12 bonnies, 6 in the morning and 6 in the evening. The calm is completely harmless and is part of our evening routine. He has a twin sister that also takes it, makes her feel important too! I know now when he has had some gluten, he gets a bit of a wild look to him and starts blinking or eye rolling. He also seems to blink when he plays his Wii or he DSI. I do not think he has Tourettes, we at least not the genetic type. We know of none in both our families. Hey, I don't want to go back to 2006, I was a mess! But after IGg testing, NAET treatments etc etc, I feel we are under control. That feeling in my stomach when I knew I had to see him at the beginning and end of each day, is mostly gone. I know now, that when he does tic, it will be over in a few days to a week. The bonnies vitamins take a few weeks to a couple months to notice much, but they do seem to work. Like I mentioned, going totally GF has been what I think has made the most difference. We are in Vancouver BC, and we find it very easy to get GF products, restaurants are excellent too. Don't give up, I promise you it will eventually get better

If there was a script to write about my son it would be very similar to yours. I was obsessed, depressed and had that feeling of helplessness. He started when he was 8 and turned 11 a couple months ago. You can look at some of my older posts, but he is so much better today. He is still on Bonnies pills and we still give him "kids calm" at night. Our breakthrough was when we put him on a gluten free diet, my mom is extreme celiac, so there is a history. He did not test positive to the celiac test, but I found out that gluten/wheat can affect lots of different parts of the body. His tics are some eye blinking and eye rolling every once in awhile now. No one else knows, his body tics seem to be over for about 2 years now. This is a long journey, but this forum will make it shorter and less painful. Don't worry too much, I wished I could of saved all that energy in tears and anxiety looking back.....and I am supposed to be a tough guy! I had my God to help me along, I just kept remembering something I read that "He will never give you more than you can bare" and I was at that brink many times. I don't want to go back to the beginning, I felt compelled to write to you even though I want to forget those years, even as I write I find myself wiping tears from my face....a combination of emotions that include feeling sorry for your situation and emotions of relief that things do and will continue to get better. He knows now what makes him tic, video games and foods are his triggers. Take care, Lenny