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Everything posted by lmcgill

  1. He is great now, besides going gluten free and watching his diet, he is tic free. Please pray and believe it will pass by.
  2. One word: RELAX! I am not saying to ignore the situation, because if you are like me that would be impossible! It was a long journey for us, but my sone started around 8 and he had numerous tics. They all started with the eye, then shoulder, nose scrunching, even hoping. We did everything including a GF diet, which he is still on, Grimwalds supplements which I think really helped. Anyways, he is almost 15 and no tics save maybe the odd eye one when he has gluten or chocolate. Bottom line, it will pass. Read my posts and you will see the journey I was on. I wouldn't want to go through
  3. I admit, I was obsessed with this forum while we experienced what probably the majority who visit this site do.....panic! We did lots of tests, took many supplements, did NAET treatments, every time hoping for a miracle to stop his tics. Looking back now, when he was about 8 was when they started. He had the arm jerks, shoulder shrug, eye rolling/blinking. He just turned 14 a couple months ago and he has not had body movements since he was about 10, and about the only thing he has now is the odd eye roll or blinking. For us, I think it was and still do think it was wheat or gluten issues.
  4. Nice feel good story. This forum has helped me so much, my sons tics led us to a diet that has helped the whole family. Thanks for sharing.
  5. If I could back about 3 years or so I would love to have someone tell me," if you don't stop obsessing with (insert child's name's) tics you will lose out on a big portion of the really good parts of that child's life!" Yes, they are tics and yes you will figure it out, and yes they will stop eventually. Our son is now 12 and he has doing great. We figured out what was the main cause, like you we have no history of family tics. He needs to be gluten free and we limit the games and TV he watches. Sometimes I wonder if he has just grown out of them, but like you I was scared, depressed, and
  6. Similar story, although we did not ever get a dX on our son, the fact that my mother is very celiac and after trying so many things, we put him on a strict GF diet and it took over about a year for him to be (mostly) tic free. We notice now if he has gluten he will have a few eye tics like he did a week ago after some Starbucks salted caramel hot chocolate (yes, there is gluten in it). We are very strict with his diet, even a tiny bit will make him tic. We have followed the same routine for about two years now and the results are the reason: Natural Calm, 6 a day of Bonnies TS plus, and n
  7. just the ts plus. We also do the calm in the evening.
  8. We did so many things prior to gluten free, but even after we went totally gluten free, it still took about two months for us to see a more even tic sequence. I am stuck on the Bonnies supps. but have put him down to 5 in the morning and 5 at night. I also still give him the calm at night. This has been his longest stretch without tics, and even if he does have a few eye blinks I can usually find out he had something.
  9. This is great to hear...can i ask if you are dairy free too?? We limit dairy, he couldn't take it as a baby, he only takes yogurt and cheeze, not any milk.
  10. Hi Char, It took a long time to notice the full effects after taking him off Wheat/gluten. The only bad part now is that we notice the eye blinking tics will start within a couple hours after he has something, so we have made him so clean that even a little bit will show up in some tics. I also add that if he has milk chocolate he can get the same reaction. We have a clean diet now, it has not been that bad, in fact we like it!
  11. Well Okay then, we are even, my post brought me to tears writing it! Never give up hope. I have come to realize that most of the stories you hear on the internet are mostly there because they are "sensational". Once you figure out what is making your child tic, then it doesn't really become a story after that. I am just thankful there are people like the ones on this site exist. They don't get paid for there information expertise, they just do it because they want to. I remember hearing a doctor say he had a "mild form of torettes" and to deal with it, he could care less that I was tryi
  12. Hi all, It has been a long journey for us and our son. He started tics when he was 7, he is now 11 and is doing so good. We were coming back from the Oregon Coast today and was thinking about this same time 4 years ago when he was going into grade 3 what a difference he was. His words will never leave me: "daddy, I am going to be in a new school tomorrow aren't I?" His tics were bad, body jerks, arm movements....his whole body moved with uncontrollable jerks. He is now calm and I am so much better as well! This site has done wonders, we did the blood tests, we did the NAET, but finally
  13. We have always given him Kids calm, (about 1 tsp before bed) and he is taking 12 bonnies, 6 in the morning and 6 in the evening. The calm is completely harmless and is part of our evening routine. He has a twin sister that also takes it, makes her feel important too! I know now when he has had some gluten, he gets a bit of a wild look to him and starts blinking or eye rolling. He also seems to blink when he plays his Wii or he DSI. I do not think he has Tourettes, we at least not the genetic type. We know of none in both our families. Hey, I don't want to go back to 2006, I was a me
  14. If there was a script to write about my son it would be very similar to yours. I was obsessed, depressed and had that feeling of helplessness. He started when he was 8 and turned 11 a couple months ago. You can look at some of my older posts, but he is so much better today. He is still on Bonnies pills and we still give him "kids calm" at night. Our breakthrough was when we put him on a gluten free diet, my mom is extreme celiac, so there is a history. He did not test positive to the celiac test, but I found out that gluten/wheat can affect lots of different parts of the body. His tics
  15. This is some of the best news you could get! The fact that he is responding to some supps. and diet changes would suggest that transient tics is much more likely than clinical tourettes and they will get better over time. Even if it is tourettes, diet seems to help that too. I know since we have been on Bonnies Supps. and put our son on gluten free, he is so much better. He just seems to have some facial tics such as eyes and eyebrows lately mostly (I think) from his video games. Lenny
  16. Our son has a very similar story, he is on Bonnies still, as well as Natural Calm, but cleaning up his diet and doing gluten free has stopped all his body and limb movements for over 2 years. His first tics were just after he turned 8 and today he turns 11. My mom is extreme celiac, with much different symptoms then my son. He still gets some eye tics such as blinks and eyebrow movements, but this seems more to do with playing video games. We did NAET, blood work, etc and I cannot say if the NAET treatments were successful or not. As far as diet now, eggs showed up as the worst on his Igg
  17. Dear Lenny, I am new to this so please pardon me if I am not doing this right. I am a mom to an almost five year old boy -- precious and perfect! Two weeks ago today, I picked him up from his preschool and noticed him blinking, rubs his face and then wipes his nose with his sleeves. Thankfully, no vocal tics. We had our pediatric opthalmologist appointment yesterday and we were told he has 20/25 vision. I was broken. I had hoped to get him glasses and that would be it. Like yours, we have no family history of TS or even facial tics that both grandmas can remember. His teachers in
  18. Our son is a couple months from 11 now. He started the famous eye blinking at 8 and did the body jerks (arms, legs and some head) a couple months later. They waxed and waned for about 4 months then stopped. He still has some facial tics, mostly some eye blinking, then nose twitching and eye brow furrowing but the jerks never came back. Even now his tics are so minor no one but me seems to notice. He goes for months with nothing, the last week he has had some eye brow furrowing, but he has been playing games on his Game Boy and this seems to be a problem. This has been a long journey fo
  19. We just do gluten, but limit his dairy to cheese and yogurt. Junk food is mostly Whole Foods stuff now, it is amazing how he doesn't even ask for the junk anymore. We ended up starting the Bonnies just after he had his last body tics two years ago. The next phase was gluten free about a month after. I can tell when he has anything he shouldn't now, he will get a eye or nose or some other minor facial tic that take about a week to subside. Lenny
  20. Hi Krista, we live in Vancouver, actually just a little south of there by White Rock. Our son started eye blinking then shoulder/leg arm jerks, then some neck jerks etc.....this happened when he was 7. He is now 10 and has been mostly tic free for 2 years. We went to a Dr at Childrens Hospital that specialized in TS, but did not help at all in my opinion. We did the natural route, had him tested for lots of things and currently he takes the TS plus as well as Natural Calm Mag. Our biggest breakthrough was putting him on Gluten Free diet and removing all artificial everything. He has some
  21. Just had to tell you this post has hit home to me. Our son turned 10 in Febuary and his tics were the bad when he was 7-9. His last tic (eye blinking) was fairly bad in January when his class had their late Christmas concert. Since then he has been tic free. You can read my previous posts, but he is gluten free along with no artificial things plus he takes Bonnies Sups and Natural calm. So far it works, but this has been a long journey for me and we are still on it. It is so nice to hear these types of stories....gives everyone some real hope.
  22. We did see an improvement with tics, I just can't be sure why since we were doing the diet as well as Bonnies all around the same time. As far as what he was treated for, it seemed like almost everything! I have his book, I should look into and see. The whole thing just got a little wierd when the NAET Dr. tried treating over the phone, or through my wife touch our son while touching her, or emailing us telling our son was not cleared yet, but then let us know hours later that he was now cleared?? Too strange, but I am not going to say I was sorry for doing it. He was not treated for radi
  23. He had some donut holes at school last Monday. He has been so clean so this took him a little back. I am thinking about taking him into NAET for a tuneup. I still have a problem with the whole thing, sort of all hocus pocus if you think about it too much! Overall he is very good, we still keep the diet in check as well as Bonnies and Calm. How about you, you in a "good place" these days?
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