Thank you for the input, both of you- it really helps to have some perspective, I think my greatest fear is that there's something we need to act on right away but we have to wait to see the neurologist for a few more weeks.
I have seen some information about PANDAS/PITAND and am trying to understand it all better. I honestly don't know if the neurologist I was assigned to is knowledgeable in that area or not, I just got his name yesterday. I'll try to go in prepared, I've been keeping a detailed log of her activity thus far. HEr only possible exposure to Lyme might have been during a trip to Alaska last month, but my understanding is that ticks there don't carry Lyme. I'll definitely bring it up with the PN though.
This is out of the blue, sudden onset, she's having small tics 300-500 times a day with the longer ones happening more frequently as time goes on. The one in the video was an example of one of her longer episodes. In retrospect, I do believe there might have been a few behaviors over the last year that we attributed to normal childhood annoying habits...clicking in the back of her throat and whistling incessantly. Those each lasted about a month. Didn't even dawn on us at the time that it might be something more.
No major change in diet, environment, illness, no recent immunizations and no family history.
Yes to a new school, but she's taken it in stride....I do know that stress of that could affect her, but the tics did start before school was imminent...before she even really knew it was happening, actually. She changed school due to my taking a leave from work for a year to stay home with the kiddos, it wasn't due to a move or anything. School started this week. I guess she's actually been having tics for 3 weeks now, it's been almost a week since we got our referral and at that point it was two weeks.
I'm also taking into consideration some type of allergen...though she's had no change in her diet, possibly she reached some kind of threshold in being able to tolerate something such a gluten or food coloring.
Thank you so much for your thoughts, this is a whole new world to me...