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Lynn777

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About Lynn777

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  1. Hi Everyone! Please send us good thoughts today, we are leaving in about 2 minutes for our 2 hour road trip to meet with Dr. T and review DS's bloodwork. Hoping all goes well and maybe we get some answers. Thank you! ~Lynn
  2. Hello! We use Benadryl, however please note that in some kids it does increase tics, we are lucky in that Benadryl not only works for my son's allergies, but also reduces his motor tics. I also give him Quercetin supplements (recommended by our integrative doctor) & use all natural saline nasal spray daily. Additionally, I use all natural cleaning products in his room & we run an air purifier at night. Take Care, ~Lynn
  3. Hi Diane, Welcome, sorry you are feeling overwhelmed, especially with the diet. I felt the exact same way in the beginning & when I wasn't crying about the tics I was crying about the extreme difficulty in managing my son's diet. However, you will get used to the ingredients & after a while you will feel much more comfortable. My best suggestion is to start off shopping at Whole Foods instead of the regular grocery store, that really helped me in the beginning because even though all the foods at Whole Foods aren't perfect, you rule out many offending ingredients just by walk
  4. Hello! I am not sure what your doctor/insurance situation is, but we had the IgG blood test done on our son and then chose to receive the NEI Guided Nutrition Program, which is a 55 page custom designed report that details all of my sons intolerance, possible cross-reactants, recipes, baseline symptom, detailed instructions & tracking charts. Our insurance paid for the blood work & the report was $20 out of pocket & I use it all the time. It it so organized & helpful. Anyway, I have attached a few links: http://www.news-medical.net/news/20100112/NeuroScience-launches
  5. Thanks for all of the replies. DS is currently on lots of supplements & a special diet. That was the first thing we changed when we realized he might have TS. He also had his Thyroid checked twice & it seems to be okay. However, it appears from his current blood-work that he might have a B12 deficiency. I have no idea if that could be related, will ask the doctor. All his pediatrician says is "growing pains", but like fightingmom said, I never had growing pains that woke me up from a deep sleep & neither did my older son. hugs2day - Your son's experience sounds exactly
  6. Hi Everyone, I am wondering if muscle pain in the thigh/calf is common. I did read on one of the threads "joint pain", but this is definitely muscular. Last night my DS woke up at 1:30 a.m. crying that the muscles in his legs hurt. This is the 3rd time in 3 months this has happened & he has occasionally brought it up during the day. Anyway, each time I have given him Motrin, rubbed his leg(s) and he will eventually fall back to sleep. It also seems like he has restless legs whenever this happens, his legs seem very "twitchy". Everyone keeps telling me it is "just growing pains
  7. Dcmom - Thanks, I will ask Dr. T about the clindamycin. I am very familiar with antibiotics, but haven't heard of that one. MichaelTampa - I'm sorry, I am not sure I fully understand your comment. However, if I wasn't clear, my DS does appear to exacerbate when sick. It's just that sometimes he exacerbates without illness symptoms or only shows very mild symptoms, that is what I think happened this last time & finally pushed me to get the blood work done. I am clueless about Lyme, all I know is it appears two strains showed up in the bloodwork, but apparently that still means "nega
  8. Eljomom - I would love to talk/keep in touch. We have an in-office appointment with Dr. T on April 7th. We live in PA, so it's not that far of a commute. Dcmom - My son has not had a recent infection that we know of, I only suspected when the exacerbation started about 5 weeks ago. That said we have had 3 positive throat cultures in the past year & also 3 other times where DS only experienced a slight sore throat & mild fever, then 3-5 days later I had full blown strep. I had severe strep from the time I was 6-16. Then it seemed to settle until recently. Now, I am starting to
  9. Hi Everyone! I have been on & off the board for about 2 years. I won't tell my story again, but my son DS is 6 years old, had a pretty extreme onset. But now, he has mostly tics, mild OCD, no rage, but very perfectionist personality I have bounced between accepting the tic disorder & digging into PANDAS the whole time. Anyway, finally followed through on a consult & blood work with Dr. T. I just received the results today & frankly I feel just as confused as before. I know I have to wait for Dr. T to review them with me. But I'd love any input/thoughts in the mean
  10. Thanks everyone, I checked with my insurance and as long as I go in-network to Lab-corp they should be covered. We have an appointment at 1:30 today & I am so nervous. I haven't even told him where we are going because I know he is going to freak out. Also, thank you for the tip on having copies sent directly to me. I didn't even know I could request that! Does anyone remember how many vials of blood they took for all 12 tests? Thanks all! Lynn
  11. Hi Everyone! I have two questions, Dr. T has ordered a bunch of blood work for my son (12 tests in all)... 1. How long does it typically take to get the results back? 2. Did your insurance pay for these tests or were they out of pocket? If out of pocket does anyone mind sharing how much it cost in all? Thanks, Lynn
  12. Thanks, the information was helpful & interesting. My son with tics is only 6 and in the scheme of things he is mild. So, it would be a while before considering patches for him, if we ever have to. But I never read anything about it helping for ADHD, but it makes sense. I actually started giving my older son a coffee drink every morning at the end of last year & the teachers saw a difference in his attention. So, although it goes against everything I've researched for "natural" approach - I sure don't think it is any worse for him then meds! Looking forward to hearing how the
  13. 911RN - Can you give more specifics regarding the nicotine patches? I have read about the studies, but had no idea there were doctor's actually prescribing it. I have one son with tics & another with ADHD. My son with ADHD did very well on Strattera until he hit puberty. They are both on only supplements at this point. Also, to answer the original poster. It is my understanding that Strattera & Intuniv are the medications least likely to exacerbate tics. Anyway, I'm very curious about the patches. Hope it works out... Lynn
  14. Hi Everyone, I haven't been on the boards as much anymore. First, I needed a break & second, the tics were pretty low from Feb - July. The tics are never gone, but they were so mild no-one noticed except me & my husband. Despite the waning, we kept him on all of his supplements & his strict diet. Honestly, the child almost never misses his supplements & rarely cheats on his diet. Well, about two weeks before school started, DS started with a breathing tic (so painful to watch). It is honestly scary. It's the first tic that has really annoyed him. He's also starti
  15. DS had significant improvement on Amoxicillin (x3). Pandas doc thought it was quite definitely strep/infection related (mostly tics). He put us on Augmentin for future outbreaks/exacerbation's. Now DS isn't responding positively to Augmentin or Amoxicillin, so I'm going back to thinking this is just Tourettes plain & simple. Pandas doc said in his opinion ALL Tourettes is Pandas, not sure I buy that. Thoughts?
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