Chemar-
Thanks so much for all of your help. I agree, with the experience we have had with a Neurologist, they do not know a heck of a lot about PANDAS or even tic disorder for that matter. We went to see a Neurologist a few years back and they didn't mention anything about PANDAS. He said my son had tics...and that was about as far as we got with the Neurologist visit. Complete waste of time.
I have researched PANDAS in the Colorado area and found a doctor currently on the medical advisory board of the PANDAS resource network. I have made an appointment with him. He is a homeopathic doctor that specializes in PANDAS. I am looking forward to meeting him.
Thanks again. I so appreciate latitudes.org, I really do from the bottom of my heart. Thanks everyone for help. It feels a lot better knowing we are not alone...
Hi Chemar
My sons tests came back and was diagnosed with PANDAS! Thank you big time for all of your help on this. Starting his antibiotics/steroids today. Food and seasonal allergies were very high along with his strep test. I don't think I would have gone down the PANDAS path if it wash't for you and another helpful woman who replied. Thanks so much...