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FraggleRed last won the day on May 7

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About FraggleRed

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  1. I’m so sorry I can’t help you with your question. I’m new to this too. Please don’t give up the fight. (I started antidepressants in May, and for me it’s really helping.)
  2. You could also try a GABA supplement, as well as trying dietary changes. Like removing gluten and dairy. Dietary changes can take many months to see improvement.
  3. You may want to visit a functional neurologist. I had read that that this is most helpful when tics are predominantly on one side. (Take this with a grain of salt as I can no longer find where I read this.) I hope so much that you can find some improvement.
  4. Gluten antibodies especially take a long time to resolve. I know it can feel discouraging.
  5. Hi Chemar, thanks so much for the response. She had a follow up blood test today. The dr ordered another CBC as well as a test for reticulocytes. Unfortunately I won’t get the results for at least two weeks as her dr is quite busy. I’ve read quite a bit that tics can be connected to immunity so I don’t think this can be a coincidence. She had been doing so well I honestly thought the worst was over, but watching her making faces at dinner last night was difficult. I remember when this first started sometime at the end of January. I asked her what she was d
  6. My dd’s tics are noticeably worse today. She had blood work done recently which revealed below normal range of both red blood count and neutrophils (a type of white blood cell). Also her strep titres shows <20. What does that mean? That she does have strep or she doesn’t? The dr said every thing was normal other than blood count. Does anyone have any insights for a worried mom? Has anyone else experienced problems with blood counts?
  7. We started a gluten free, dairy free, soy free, egg free, sugar free, no artificial flavours /colours diet on February 20 of this year. At this point my dd had been ticcing for 3 to 4 weeks. We had a couple of her worst days AFTER her diet changes. It was disheartening to say the least But we persevered and her tics are now 99% gone. We’ve since reintroduced eggs and I’ll be trying soy next. She will always be gluten free however. I should also add nightmares and stomach pains and joint pains are also gone. Don’t give up!
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