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Starfish

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  1. I haven’t been on this forum in a while, but wanted to add an update as well. My son was virtually tic free again from November until the end of February. Only a very soft breathing noise at times, which was totally unnoticeable unless you were looking for it. We felt this improvement was due to being very strict with his diet again (organic, gluten/dairy free, dye/artificial free, lots of fruit and veg), staying busy and getting lots of exercise, and supplements (magnesium threonate, elderberry syrup, methylfolate/B12). Then the tics returned with a vengeance the day after he was given a
  2. Thank you Chemar. I will look into the micrograms of melatonin and the other things you mentioned. I appreciate your advice so much.
  3. Hello everyone, I am hoping to get some advice (or at least commiseration). Background: My son, who’s 5, started having both motor and vocal tics 7 months ago at age 4.5. We haven’t gotten an official TS diagnosis because it hasn’t been a full year yet, but I expect he will meet the criteria for it. He has sleep problems for most of his life, but they’ve been worse in the past couple years. His biggest struggle is staying asleep, not so much falling asleep initially. He often wakes multiple times during the night and frequently can’t go back to sleep. He tosses and turns for hours ev
  4. Is this it? https://www.homeopathicremediesonline.com/product/clerodendrum-inerme/
  5. Yes my son has both motor and vocal, mainly one or the other at a time. Currently it’s mostly vocal (a short fake cough noise and a sort of throat clearing noise). It’s hard with younger kids since they can’t tell you what’s going on and there’s such a wide range of “normal” behavior. I find my husband and I have a similar dynamic to what you described (and I also see it a lot on this forum where the mom is the more emotional one about it). My husband is much better than I am at staying calm and thinking positive. I just find it so hard to watch and hear the tics sometimes, and I can really go
  6. Thank you Cary! That’s so great you are seeing improvement. Thanks for the clarification, I was seeing chiropractors come up when I searched and wasn’t sure if that was the same thing. We are going to try one out tomorrow!
  7. Can anyone share how to find a doctor like this? Would they be called a functional neurologist or something else? I’m in southern ca but would be interested in trying this for my son.
  8. Omg do not watch YouTube!! So far with my son we have tried magnesium (I like the liquid magnesium glycinate by Genestra brand—my son is 60 lbs and takes 125mg, which my ped was fine with), as well as topical magnesium lotion and epsom salt baths, calcium and D, B6, a homeopathic drop called Tic Tamer, omega 3, probiotic, L-Taurine and L-Carnitine (only used these for a couple weeks at a time), passionflower tincture, and a multivitamin. We also used Biocidin (a natural antibiotic) recommended by a naturopath in case PANS could be a factor. Wow that’s a lot when I list it!! I bought most of th
  9. We are in the midst of a somewhat similar experience, which began when my son was 4.5. I find it so frustrating that there isn’t more information on factors that might influence a child’s prognosis with tics, or any way to predict outcomes. Personally what has helped me some is the knowledge that Tourette’s doesn’t have to be the big scary word I thought it was. Actually, it seems that regardless of whether it’s officially Tourette’s or not, tics are likely to improve or even go away by adulthood. In the past few months I’ve reached out to lots of parents, through this forum and others, a
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