Andy

Nick, not a day goes by where my wife and I are not watching our two youngest children with the dread of seeing tics develop. My four year old sometimes shows what could be tics but he has seen so much from his older brother over the years that it might be a learned behavior that he was expermenting with or doing without thinking. We do not think he has tics like his older brother, who was already a mess at that age, but to be on the safe side we give epsolm salt baths to my four year old along with cod liver fish oil, probiotics, and multi-vitamin. My four year old has no food allergies and has not shown any vocal tics or serious stuff the older one has so we think the behaviors that he showed was just behavior. The key question is the length of time the tic behavior is being shown. At least that is the key question that we use with the younger brothers.

I made a mention on why I was against NAFTA. I guess I should provide information on that to those who may not know. It took years of mothers protesting, enviromental groups lobbying, and millions of petitions to get pesticides like DDT outlawed in this country. Now under NAFTA we are forced to import fruits and vegs that have been drenched in the stuff in nations South of the Border of us where DDT is still legal. That is one reason and that is the reason why if we can not afford organic that month, that we only buy what is labeled as grown in the USA.

Glad if I was of any help. It took us two summers to figure out and work out the pool thing ourselves.

Kim, I wonder if you went to a regular doctor and said I think my child has lead poisioning if you could get all the blood work for heavy metals done. You might not even have to mention vaccination shots, just mention pollution or paint chips, etc.

Sydsmom We are currently chelating with DMPS IV and DMSA. We have seen more postive results with the DMSA in two plus months then years of supplements. The cost factor would be that the DMSA is alot cheaper in the long run since we are not plan on doing it for more then 6 months and the medication is only around 100 a month. Plus DMSA is covered by most insurances. What is expensive is the DAN doctor visits and phone conferences. However, six months to one year of using a DAN doctor may be alot cheaper then years of supplements. Now for an even cheaper cost factor for detoxing may be NDF. No doctor visit is needed, there are tons of websites for dosage level. Ask your aunt about it for some of the parents who post on her website praise NDF. The only draw back on it now as far as I know is the yeast factor. But if your child has no issues with that then look into it.

Sydsmom We have our son take a hour long epsolm bath everytime after the pool. The sulfer is suppose to help rid the body of the chorine that the skin had absorbed. I also read that sun bathing after swimming in the chorine pool only makes it worse. By the way, I also read and post, not that often there thru, on the chelatingkids2 website as well. It is a good website, especially for those who are detoxing on DMPS lotion.

I don't know much about this but I do know that we have enough problems at home with the powers that be and we should not be so quick to want to join the new world order, the world without borders that the first Bush and Clinton had us going in. You know the United Nations/World Court/NAFTA stuff. I could care less what the world community thinks about us for after all the less democracy an individual nation has the more control the worlds multi-billionares have over us. It always upset me when I see corperations having thier own flags and reading how the CEO's and majority share holders have homes around the world.

Hi Spring. Kim posted a converstation from Dr. Usman and a portion of the posting was listed as the following: "Q: WElcome Dr. Usman and thank you for sharing your time with us. My questions is if there a natural chelator THat i can also use on my NT kids who have attention and hyperness problems my youngest who is ASD is under the care of Dr. Neubrander and We are in the process of doing the toxins test. Yet i was intrested in a natural chelator for my other two kids. A: NAC, ALA, MB-12 etc are natural to the body and can boost the body to clear metals more effectively. There are also natural herbal agents that bind – cilantro, parsley, chlorella, spirulina. Some of the natural agents though are not produced under strict enough conditions, and could be contaminated themselves. She uses Metalfree, PCA-rx, NDF, and is happy with the standards on those." I will be seeing our DAN doctor this Friday for a meeting and son's IV treatment and inquire about Metal Free and ask for an update in regards to NDF.

Hi, Giselle "More commonly (and usually at doses over 2000mg/day) gastrointestinal distress and diarrhea are the only side effects from vitamin C. Using the buffered preparation or vitamin C esters can significantly reduce the incidence of gastrointestinal side effects as willl dividing the dose" page 18 of Treatment Options for Mercury/Metal Toxicity in Autism and Related Developmental Disabilities:Consensus Position Paper. February 2005 -can be accessed from www.AutismResearchinstitue.com You might want to refer to the above paper for they have more information on dose levels and research that you might be interested in.

From my understanding, NDF-plus has not gone thru the testing groups for assessment as DMPS and DMSA has. However, more and more parents from the various websites are jumping to it and most are claiming good results. A few DAN doctors are also starting to include it in their procedures. If you look up Doctors Data on the internet and contact them they might be able to test your urine results independently from a doctor. Some parents have claimed to have done this themselves. As for using NDF-plus to start out with, once again it is my understanding that if someone has stomach issues with yeast then they should not use NDF-plus until those issues have cleared or at least under control with another supplement. DMPS and DMSA has been proven to work with countless studies from around the world. I can not recommend what is best for anyone for I am not a doctor nor would I know of anyones medical background. I am a firm believer of having medical tests done to get baseline data. However, the only doctors I know who do this type of testing nation wide is DAN doctors. I believe that you have a contact with someone who is a supporter of detoxing after having "silver" fillings removed. That person might know of a list of doctors who may be of more assistance. Note: You may alos be interested in typing in the name Michael Biamonte into a search engine. He has an article on Mercury Removal which is interesting, however I am not to sure about his claims that DMSA can remove mercury from the brain, along with references you might also want to look up.

Kim thanks for that NDF link. NDF just sounds to good to be true but then again I am sure the same could be said of the gains we got from our son from the treatments we did. What I love about NDF is that there is information on how to dispense it on line, it is affordable and there seems to be no potential negative by products other then yeast build up if that issue exists in the first place. Now I am no expert in NDF and I feel that the parents who are using it are so it would be very much appreciate Caz if you could keep everyone posted with your views on NDF-plus.

Kim you are so right about the DAN doctors not having that much experience with the kids labed TS. I stayed away from them years ago for I only saw their label but when I compared my son's medical charts to a child with the label of ASD they were very similar. This led me to the conclusion that we were both dealing with a heavy metal issue and damage from it with the degree of damage being different. What is scary is the research that is showing that heavy metal toxics can be passed down from generation to generation. I will not be surprise that in the future all parents to be will be recommended to detox as part of a prenatal procedure. As far as the doctors not having experience with other then ASD, I have noticed that some DAN doctors are now taking on not only TS kids but also ADD as well. The baseline data for our kids is not there yet but I guess one could go by the medical tests to judge for themselves how long the treatments should be. We ourselves have decided to stop the DMPS IV at 6. Next week will be my son's 5th treatment. The DMSA is now in the second month, first week and we do not see going past 6 months with that and depending upon test results maybe a lot less. We will continue the TD Glutathione for a while but as I stated we are hoping to use NDF-plus with TTFD,when my kid is ready to swallow pills, along with organic veg shakes as a long time solution/prevention measure. I am still amazed at the progress we have made and find it a sin that elements of the press go out of their way pushing slanderous misinformation. The results speak for themselves and their are plenty of kids out there as proof.

Wow Kim. A coversation like that in a Doctors office would run between 300 to 500 dollars. A wealth of information in so many ways. Great posting! I found the following four quotes to be of the most interest. 1."Dr Neubrander doesn’t believe in redistribution with strong chelators like DMSA or DMPS. They are so strong – they pull mercury off a body tissue – why would it ever drop it? One percent of less of metals would actually come off, in Dr N’s opinion. Very little is known about chelation, even by those that know it the best. There are so many falsehoods and rumors. Dr N doesn’t think the mercury would be redistributed to the brain. My son has had remarkable results with his DMPS and especially DMSA treatments. I was hestitant to have started them in the first place due to the amount of misinformation on the internet. I am glad to see him shoot down one of the major "rumors". 2. "So glutathione has potential to detox metals from brain." Big information here. This is what the Vitamin B12 needle is all about and the glutathone creams so many of us lotion our kids with. 3. NAC, ALA, MB-12 etc are natural to the body and can boost the body to clear metals more effectively. There are also natural herbal agents that bind – cilantro, parsley, chlorella, spirulina. Some of the natural agents though are not produced under strict enough conditions, and could be contaminated themselves. She uses Metalfree, PCA-rx, NDF, and is happy with the standards on those." 4. "The patients he has that use NDF+ are seeing good results, but Dr N doesn’t know why or how it works. Dr N suggests you change nothing else when starting something new, like NDF+". I believe that Chemar has had great results with chlorella and I am glad to see that NDF-plus is starting to get DAN doctor support. I am hoping to use NDF-plus as a life time measure to keep my son's body detoxed in the future as well as to pick up any lingering metals.

I have heard of DAN doctors who called NDF useless and now I am being told of other DAN and another major Dr. who is studing NDF. "Oh Andy, I do have a note on NDF and chlorella-SP? -He said since there are studies for working with the two agents you are currently using for detox, he felt more comfortable with those. I think he said, if those were unsuitable, he would more throughly reseach these other two, or if more studies became available on these??? Something to that effect." taken from Kim's posting. Dr Shaw is a major player and if he is not dismissing NDF that is really something. Someone who claimed to be from Dr. Neubrander's lab claimed that they are doing a study on NDF. Someone who claimed to be a parent of a child being treated by Dr. Neubrander stated that Dr. Neubrander has her son on NDF plus. I have read comments from parents on a yahoo site using DMPS-lotion that they were also trying NDF with it. Now I have seen the success of DMPS and DMSA, which I am very very happy with, but if NDF is the real MCcoy then a healthy long term and very affordable treatment option exists for children and adults who don't have stomach issues. As for chlorella, it is one of the substances used in NDF and NDF's web page states something to the effect that they are very careful where they get theirs from for alot of the big name products are polluted with heavy metals. We ourselves looked up one company, blue algee in this case, that is a major player in the supplemental market and saw in their local papers from the area that they get thier stuff from was heavly polluted from farmer run off. Research is everything today. I myself am not ready to use NDF but waiting to see what is going to come out in the next three to six months. I am also planning on buying the new book on natural treatments for TS that Sheila Rogers wrote. For after all with all I know I know that there is still alot for me to learn.

Kim, great posting. I have visited Dr. N's website many times and viewed the videos of the success from his vitamin B12 needles, etc. But to actually question and hear answers from Welsh, Dr. N, etc is truly wonderful. Not to say a savings of hundreds of dollars as well. "The picky eater subject was brought up by a poster. Dr. Shaw said the biggest culprits were high ammonia" from Kim. My son is a picky eater and at one time was a non eater. Probiotics and florastor for yeast issues as well as Alpha Ketoglutaric Acid to reduce the ammonia was used. It is interesting to see that Walsh was on the same page as my Nuerologist and DAN doctor on that one. A Third opinion so to speak. Thanks Kim.

I had more then half of my silver fillings taken out four years ago and I feel that my thoughts are clearer now if that makes sense. However, I moved out of New York and didn't finish the job. Funny that you posted this today for I went to a dentist today to see what the cost would be to take the other three out but the price down here is a bit much for our family budget right now. As for chelation, NDF is very cheap compared to DAN doctor visits who prescribe various DMSA treatments and if it works is really a wow. So you might want to look into that. Chlorella falls into the NDF range in that if what they say about it is true then wow. However, be careful for even if it does work and I tend to think that it may it is said that some of the products out there have been polluted so do your research on that. DMSA stinks so you might want to take that in consideration if you plan on using the cream vs the pill. There is also a drink form that is suppose to be very effective but I am told by a parent that it tastes horrible and also smells dreadful. If you need to by pass the stomach and want to skip on the lotion then DMSA can also be taken thru a supposortory. WE love Glutathione lotion and it has a slight smell and is kind of sticky but we feel that it is doing wonders with the DMSA for our son. The person who went thru detox and is advising you would know more about this then me, however, I Hope I was of some assistance, good luck and be well.

Dan, as you know I am using both DMPS and DMSA as a chelation for my son. We are also using glutione lotion, excuse my spelling. But that is just part of the story. We use garlic, epsolm salt baths, vitamins A, C, E, Taurine, Zinc as detoxers as well as well as organic cherrys, watermellon, spinch, carrots, potatoes, etc as part of the treatment and way of life in our house. We turned to the DMSA and DMPS for my son was in a bad way and we felt that more drastic measures were needed for the short term. However our long term treatment before, during and after DMSA and DMPS is nature with the help of a blender and juicer. I do not know how much of the mercury and other metals we will be able to get out but I do know that the more metals we do get out the better he gets. As a personnal note, we think that the DMSA is working better then the DMPS and from all the parents that I contact or read about from my local area and websites it seems to me that the DMSA is showing more results then the DMPS lotions pills and IV's. Of course I could be wrong but if one was to pick only one then I would suggest that they research the data and look more at DMSA. A third major detoxer is TTFD with Glutathione. No toxicity has been reported with TTFD according to the DAN doctor report We are going to look into this treatment when we are finished with the DMPS and the DMSA. Note: Parent recommentations are the best. So we will also be looking into Chemar's source of chlorella.

Sis, Dan gave a website in one of his post which had some really great information. I have pasted below a portion of it inregards to vaccination shots that you might want to use for future reference as well as read the links that it suggests. DAN! (Defeat Autism NOW!) Vaccination Guidelines: Updated: April 2005 1.Use Thimerosal / Mercury free vaccines!! The only way to know for sure a vaccine is mercury/ thimerosal free is to read the insert, box and vial yourself! Many doctors still have mercury/ thimerosal vaccines sitting in the refrigerators! And yes, mercury / thimerosal containing vaccines are still being made!! Be sure to be 100% sure! If you are wondering which vaccines currently contain ethylmercury and which do not, visit: - http://www.vaccinesafety.edu/thi-table.htm and - http://www.vaccinesafety.edu/thi-table.htm#2 For information about which flu shots contain ethylmercury and which do not, visit some CDC-created information at: Flu Vaccine 2004 Mercury Content - http://www.safeminds.org/NewChart.pdf NOTE: I have heard time and time again that parents/ professionals and others have indicated that thimerosal has been removed from vaccines since 1999 – THIS IS NOT A TRUE STATEMENT! Please be sure to read the vial, the box and the vial yourself! Different manufacturers will post the information in DIFFERENT PLACES. 2. Do not vaccinate newborns. 3. Avoid re-immunization with a vaccine after a previous bad reaction. 4.NEVER vaccinate ill children or children recovering from an infection. 5. Space vaccines - do not give multiple vaccines in 1 day. (THAT INCLUDES single vaccine doses that have multiple viruses! Split them up!) 6. Use single dose vials from which to draw up the vaccines as opposed to multiple-dose vials which provide less uniform dosage. 7. Use inactivated polio. (the shot, not the drops) 8. Give RDA (Recommended Daily Allowances) of Vitamin C before and after vaccines 9. Give a natural form of Vitamin A ( cod liver oil ) to keep RDA's at level at all times for the age. 10. Separate the MMR into 3...start with measles at 12-15 months, then mumps at 18-21 months, rubella at 24-27 months. 11. Do not give live virus vaccines to immunodeficient children. 12. Do not give vaccines if allergic to any of these components: i. Yeast - Hep B ii. Eggs - MMR iii. Neonycian - MMR or Varicella 13. Hold off on the Varicella until 10-12 years & if the child is shown not immune to Chicken pox. 14. Checking vaccine titers before giving boosters (Most people are immune after one dose. We continue to get multiple doses that MAY NOT BE NEEDED. Have them check antibody levels via titres blood test.) Note: this information came from DAN! (Defeat Autism NOW!) Protocols. For a complete copy of the treatment protocols go to www.autism.com/ari and click on DAN! For information.

Hey if my DAN doctor is on board with it, I'll be racing you to the e-web store to buy it! and if he doesn't like it, I will still look into it more.

Hey, that is great news. Congrats!!!!!!!!!!!!

My son uses Floramore from renew life-refridgatored,UDO'S Choice Children's blend Probiotic- refridgatored, and 2x a day Florastor that is shelfed. I had used another brand as well but our DAN doctor said that it was dead stuff and useless. We give 4 doses a day broken up three times a day for a number of years now.

Hi. I may have no business to be on this conversation but I just wanted to add that all the regular doctors and specialists that I saw painted a bleak picture for my son over the early years and only offered powerful drugs for my little boy to take. Well 4 years later of using natural organic foods, probiotics, special elimination diet, supplements of amino acids, vitamins, and minerals, epsom salt baths, air filters, as well as going thru chelating, my son went from being seen by those doctors as a special education classroom student/home instruction to actually being tested into the gifted program a few weeks ago. So hang in there. It is a long road. A road that we are still traveling ourselves but a road worth the effort for great results are possible. Be proactive, get educated and stay up to date for every 1/2 year or so amazing things in treatments are coming out.

Daniel, it is good to post every type of information out there so people could make informed decisions and there was a lot of great information on that website but I found it disturbing that the web page pushed Andy Culters book, 35 dollars, and dismissed other types of treatments, in a clever undertone manner, such as DMPS. As for Amy Holmes, she is very respected but last I heard she has retired due to health reasons. However if you look on her old web page she recommends DAN doctors personally who use DMPS and DMSA. Also some of the leading DAN doctors that are lead speakers at the conferences use DMPS and DMSA as part of their treatments. There is a 42 page DAN paper on detoxing heavy metals that everyone should access for personal information that explains the different Detox treatments with the research listed as well to back it. Most of this information was presented before Congress and no one was arrested for fraud. The website is www.AutismResearchInstitute.com and the paper is Treatment Options for Mercury/Metal Toxicity in Autism and Related Developmental Disabilitites: Scroll down on your right hand side and you will see where to click. You would be interested to see the names of Stephanie Cave, MD,Andrew Levinson, MD, James Neubrander, MD and Derrick Lonsdale, MD listed as some of the doctors who provided the research data that created this paper. Now the report itself if I remember correctly also stated to be careful of the doctor you picked and to check their experience with using detoxing agents. What people may not know is that any DAN doctor who uses DMPS IV should have been certified thru training to administer it. When dealing with alternative medicine one always has to look out for those individuals who jump on the band wagon to make some quick money. Always go for the expert for most likely the expert is going to be the same price as the sham doctor. As for DMPS if you look on the internet you will see that one can order it from Germany for it is an over the counter drug there as well as elsewhere in Europe.

I saw a program on this on public TV. They claimed that hospitals and doctors are starting to develop alternative medicine to gain hold of the alternative medicine market share. The program, which aired over six months ago, went out of its way to show the extreme alternative medicine aspects which gave the whole alternative/natural medicine a bad image. If my memory serves me correctly it was Front Line. Even with that said, bottom line: Money talks. The doctors sooner or later will go where the money is going.

Sis, My 40 plus years of life experience has taught me that there is no such thing as normal and that everyone is dealing with one kind of issue of another. The sad thing is most people can hide their issues where our children are hampered by theirs. My heart goes out to you for I like most here have been where you are. Being here is the first thing you need to do. Now educated yourself as much as possible for being proactive is the only way to go. Most of us if not all have had great success with our kids. My kid who was a complete mess and who we thought we might have to do home instruction at one point for health reasons has just been tested into the gifted program where we live. Now are we all the way there yet after 4 years of trying. No. But we have made great strides and with every set back we just suck in a breath of air and move on. We hope someday that this issue would be a small one that won't matter and we think that we are on that track. However remember the poem and song Richard Cory. Everyone wanted to be like him yet he kills himself in the end. Everyone has issues to deal with in life and even if we get over one another one seems to come up. As the late Gilda Ratner said from Saturday Night Live, "There is always something". The most important thing is that we keep the love alive and strong in our families, our faith in god and what's right alive and strong and we prepare our children to deal with anything that comes up. For there is always something.